Scleroderma stories - Lorraine

In this inspiring video Lorraine talks about her life with scleroderma. She tells us of her concerns for how scleroderma may soon prevent her from teaching the classes she loves, but also the strength that she draws from exercise now. She also talks of the inspiration of her family and friends, who will always be there to support her.
For support and guidance during your journey, further information and resources are available at MoreThanScleroderma.com

[@cherielilly5265]

I'm so sorry what you are going through I know your pain I have Scleroderma myself and it's a daily battle God bless you

[@boehringeringelheim]

Dear Cherie, we are so sorry to hear that. We assume you are already in exchange with a doctor, but if not we recommend you to do so. We wish you all the best for the future. Kind regards, Annika

[@lillyrocks2011]

Please scientists give us hope!! That there will be something against this terrible disease. 🙏🏽🌠

[@peterfrankow8149]

Keep on rolling, Sister!

[@deenam6171]

Wow I will follow your steps. I miss dancing!

[@boehringeringelheim]

Dear Dee Nam, we are glad to hear you found this video helpful. Thank you for letting us know! Best, Marina

[@deenam6171]

@@boehringeringelheim you are an inspiration! you made me believe in possibilities. All the best

[@basitmunawarkahn7464]

I have also held me I am in pakidtan

[@basitmunawarkahn7464]

In pakistan

[@boehringeringelheim]

Thank you Basit for sharing this! Best, Ina from the Boehringer Ingelheim Social Media Team

[@lillyrocks2011]

What's the treatment for scleroderma? Seems there's nothing yet?

[@boehringeringelheim]

Hi LillyRocks, Unfortunately, there is currently no cure for this rare disease itself, but several therapies are being studied that aim to affect the progression of the disease. Living with scleroderma means you can't make the disease go away, but you can learn to manage it and find a way that works for you. We recommend people affected to seek help from a doctor with whom together they can find an appropriate treatment plan. We’d like to invite you to visit www.morethanscleroderma.com for more information. Kind regards, Annika

[@lillyrocks2011]

@@boehringeringelheim Thank you. I hope someday soon can exist a cure or better treatments. 🙏❤️ It's very bleak.. I've been struggling to get the right diagnosis for so many years, Doctors here in my country even a "specialist" didn't care and diagnosed me with fibromyalgia. It's amazing that so many doctors don't know well about this disease. I was hoping to have a medicine for this but it's very sad that there's nothing yet. Kind regards from Mexico. ❤️🙏🌻

[@lillyrocks2011]

@@boehringeringelheim I've been diagnosed with Scleroderma.. struggling for years to get the diagnosis!! It's very sad. I hope to that can exist soon medications to stop the progression 🙏🏽