25th anniversary - A scleroderma story, Mindy Quiat

  Рет қаралды 2,412

National Scleroderma Foundation

National Scleroderma Foundation

Күн бұрын

Mindy Quiat and her husband describe life with scleroderma, from the original diagnosis to moving forward.

Пікірлер: 6
@ca.gopalsrathore242
@ca.gopalsrathore242 4 ай бұрын
Very inspiring story. I am also a Scleroderma Patient since 2018. I am doing well with my strong Will Power and mind control. Thank you so much. God bless you with healthy and long life. 🙏
@ritaperez6775
@ritaperez6775 Жыл бұрын
💔 I was diagnosed with Scleroderma 35 years ago.
@lillyrocks2011
@lillyrocks2011 Жыл бұрын
Why still is nothing to stop the extra production of collagen? There's a lack of knowledge and research for this terrible disease. The rheumatologist I went first didn't diagnosed me correctly and misdiagnosed me with fibromyalgia 🤦🏽‍♀️ I was years without diagnosis. And when you have others symptoms at least here in Mexico the doctors never investigate what is it or culprit for everything to the Scleroderma. There's a need of more research and hopefully medication to stop the collagen extra production.
@SclerodermaUS
@SclerodermaUS Жыл бұрын
Hi Lilly, please email questions to info@scleroderma.org and one of our staff members can provide more information. Thank you!
@MrNiirmal
@MrNiirmal Жыл бұрын
Move to some warm countries i also suffered and i moved from north india to South India which is warm it helped me lot
@diptishilwant9304
@diptishilwant9304 Жыл бұрын
They are not taking this disease seriously..i hope there will be cure for this disease very soon
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