Literally crying, after 8 years of living with narcolepsy I hope they can somehow make a pill with this discovery
@KazziKolorZz5 жыл бұрын
My sleep specialist tells me there is a pill being tested in the UK right now that deals directly with the Orexin. She says it should be available in the states within the next few years. If you look into trials you might get first dibs.
@j.l.spraggins85894 жыл бұрын
@@KazziKolorZz Is it Sunosi?
@tracyfreddie78994 жыл бұрын
@LowTempy That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
@lavender24533 жыл бұрын
Modafinil gud but everyone wants to buy it from u lol
@Tinyteacher11113 жыл бұрын
@@lavender2453 I have that, but was never asked for any. Maybe because I’m 66? Lol!
@TheMcKenzieHaus5 жыл бұрын
Kudos for his persistence. 10 years to figure out cause and 15 years to figure out why lol talk about dedication
@georgplaz3 жыл бұрын
thats science in a nutshell :)
@RyanWilliams2223 жыл бұрын
Agreed. Amazing work!
@jethrotull58474 жыл бұрын
I fought diabetes for 20 years. I would literally “pass out” during meetings, driving, waiting in line at McDonald’s. I would wake up in my car not knowing where I was. I started loosing muscle control when I heard dry humor... I thought it was my blood sugar. Then I had a stoke at 54 and I knew I couldn’t fight no more. I hung up my car keys. It’s a long road to get diagnosed. You first enemy in this endeavor is yourself, then comes the medical system. While I believe the identifying criteria for narcolepsy is sound it took me many sleep study’s and two years to obtain the medical diag of narcolepsy 1. Very frustrating. Even worse my employment disability is ensured if I can no longer perform my duties... sounds proper but there twisting of things are criminal. Anyway... in my case thank God for Uncle Sam. I paid into the system for many years and they are a God send ! If you have any weird symptoms don’t just try to forget about them, be proactive !
@flipnasty22967 күн бұрын
I started having sleep paralysis about 8 years ago really bad case it went away I no longer have it but now same thing I'll be just sitting there in my car waiting and all the sudden 2 hours later I'm waking up
@flipnasty22967 күн бұрын
I'm 41.. happens daily... I'm a plumber when I work I'm a machine full of energy but the second I sit down that's it... I sleep all weekend I can't spend time with my family and even after I sleep 12 hours I can sleep another 6 or 7 more
@tonicastel23905 жыл бұрын
Thanks for the video. I have Narcolepsy & it has had a massive effect on my life. I’m so grateful for this doctor’s research.
@william25995 жыл бұрын
Toni Castel same
@higreentj5 жыл бұрын
George Church has Narcolepsy and he finds it helps with his research. Dreaming is how the brain solves problems.
@RinsedCheeks5 жыл бұрын
What were your first symptoms of narcolepsy?
@tonicastel23905 жыл бұрын
I have never had those episodes where I just fall down. I am EXTREMELY tired during the day. As soon as I wake up, I am trying to go back to sleep. Even on very high dose of 3 stimulants, Adderrall, Modafinil & Vyvanse, I still have to take 2-3 naps per day of 1-2 hours each. I am wide awake at night & often go 2-3 days with no sleep at night so I’m completely inverted with my circadian rhythm. My pain dr sent to have a sleep study done because I was complaining about how tired I was. But if that’s all you’ve ever known, it’s hard to realize how abnormally tired you are. The sleep study clearly showed my narcolepsy. It’s gotten worse as I have gotten older. It affects my life significantly even with meds.
@gracefulslumber84415 жыл бұрын
Same! I also have Narcolepsy!
@liveforever1413 жыл бұрын
finally i understand what happened. my grandmother had a nasty flu (she was hospitalized because life threatining case pneumonia), in her 30's and she blamed this flu for her narcolepsy, because shortly after getting better, she became narcoleptic. she lived with this.
@themac96775 жыл бұрын
These videos are so cool! Could you do one on schizophrenia?
@AlexM-xj7qd5 жыл бұрын
I second this comment
@freezeburn15 жыл бұрын
I third this comment
@Mr_Makina4 жыл бұрын
But schizophrenia is a mental illness not a virus or fungas like this serious is supposed to look at...
@maryosburn87074 жыл бұрын
I fourth the comment
@fozzz-vb5oj Жыл бұрын
COOL STUFF PEOPLE FALLING FALLING APART IGNORANCE IS BLISS
@sleepingknight91315 жыл бұрын
Thank you so much for this incredible video. Now I can share it with some of my friends who don't understand me and think that I just need more sleep at night. I seriously love this channel😊😍.
@Tinyteacher11113 жыл бұрын
I totally agree! No one believes that I have this, unless they’ve seen me have it knock me out! I’m using this to show people who don’t believe me.
@omegaman61935 жыл бұрын
His accent makes everything interesting
@TheKEDW4 жыл бұрын
This is the best video on narcolepsy that I've ever seen! I immediately subscribed after watching this! In the future, I'd love to see a video explaining type 1 and type 2.
@nancywalker-keay83614 жыл бұрын
That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
@myeyepie9 ай бұрын
@@nancywalker-keay8361what's his name and how does he do it? We need some help with it.
@massimookissed10235 жыл бұрын
Yeah, good job with the audio levels.
@Doozymoon4 жыл бұрын
I knew it! I’ve been saying for years now that I felt my narcolepsy started after I had h1n1! Wow....
@KC-ie2hl5 жыл бұрын
Great video! Very important that people know Narcolepsy is auto-immune caused brain damage. People with Narcolepsy (PwN) even develop a glial scar, just like survivors of stroke. Also, you can develop Narcolepsy by experiencing a Traumatic Brain Injury (or TBI- like from multiple concussions, or car accidents) if that same area of the brain is damaged. So many tend to write off Narcolepsy in invalidating ways, saying we're lazy or just need to drink more coffee or whatever. Nope, it's actual brain damage. Grateful for this professor and all those who are seeking to understand and better treat Narcolepsy! Hoping for more medications to help increase deep wave/restful sleep (which PwN greatly lack due to high REM and unregulated sleep stages), as there are currently only two meds that do this. Many don't respond to them or have unbearable side effects or reactions. There are many stimulants out there and in development, but many can not handle stims for various reasons. We sorely need more options for the sleep aspect of treatment! The current two medications are GABA-B agonists, but maybe there is even another way we could get the same result. Like how one of the new stimulants acts on histamine receptors which hasn't been done before. Here's hoping.
@KC-ie2hl3 жыл бұрын
@@FionnghulaThell Type 1 is auto immune based. Meaning the immune system does the damage. Then the damage leaves a scar. I've read so so many studies and journals and such about N over the years I forget where exactly.
@hermanshankovitz27002 жыл бұрын
I have it and never knew that.
@myahouston202 жыл бұрын
@@KC-ie2hl my neurologist said my brain looked pretty normal, he thought I would have damage
@UnleashedTraining101 Жыл бұрын
People have accused me of being on heroin because of it. It’s embarrassing sometimes. There needs to be more attention given to this disease. I’ve fallen asleep walking.
@praveen8403 ай бұрын
@@KC-ie2hlyour number
@samhaines82285 жыл бұрын
Outstanding work by the researchers, and superb video! To have it explained so succinctly by the man himself, Dr. Emmanuel Mignot. Well done, all around.
@bing0bongo5 жыл бұрын
*As a person with Narcolepsy, this is a great video!*
@ryuhayabusa4005 жыл бұрын
What do you take to treat Narcolepsy?
@gracefulslumber84415 жыл бұрын
I agree!
@gracefulslumber84415 жыл бұрын
@@ryuhayabusa400 I know this is way later, but I take Nuvigil (Armodafinil) via two 200mg tablets twice a day. I take the first when I wake up and the second in the afternoon. I also take Venleflaxine, which combats cataplexy, with the morning dose of Nuvigil. Though I'm not the original person, I hope this helped!
@TommoCarroll5 жыл бұрын
Haha "Can it be white wine?" - great video Seeker folk! Loved the animations and loved learning about something that I had zero understanding of!
@josecastilleo84252 жыл бұрын
I really like the hypnogonic hallucinations. When I close my eyes and start trying to sleep I will start hearing people talking and having conversations that I don't know hearing music playing that nobody has ever heard. It's neat stuff.
@ZezFilmsGH2 жыл бұрын
IKR, i literally love this disorder.
@roxannerodriguez7075 Жыл бұрын
I like it sometimes too. Sometimes I get upset when people wake me and I've told them "I wanna go back to my dream!" And try to go back to sleep. In which, believe it or not- I can return to my dreams sometimes!
@abigail74963 ай бұрын
If you love it then you don’t have it
@JayHoga822 ай бұрын
Exactly. If you love it then you don't have it. This condition has ruined my quality of life. It's embarrassing. I developed it years ago. It's only gotten worse. And EVERYONE invalidates the symptoms.
@abigail7496Ай бұрын
@@JayHoga82 My sleep doctor says it gets worse until age 25, are you older than that and can you confirm or deny that? I’m 24 and it’s the worst it’s ever been, I truly hope it doesn’t continue getting even worse. What age did your symptoms begin (or what year?) I think mine began around age 8-10 when the swine flu epidemic happened, but I never caught the flu (or the symptoms at least) That’s when I started having trouble waking up to play with my friends, letting them down felt awful. Every day I get stuck in sleep paralysis loops. My dreams are unrelenting. I can’t drive or get an actual job. Cataplexy makes me look nuts (because I shake like a leaf at any negative emotion, makes me look way more upset/anxious than I actually am) I took high doses of adderall in my earlier 20s but now I can’t stand stimulants (It triggers focal seizures my neuro suspects) This SUCKS! Then you have idiots saying they love it 🙄 I hope my next life treats me better, I hope I have another chance that is.
@kallijminer83045 жыл бұрын
After my diagnosis, I was told by my specialist that my family is the rare case of human narcolepsy caused by mutation. My Grandfather, his mother, my aunts, and I all have confirmed narcolepsy. My mom and sister likely do too.
@nancywalker-keay83614 жыл бұрын
That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
@sahilverma70456 ай бұрын
How could your mom have it if that mutation is in your dad's side genes ?
@dawndrew8313 Жыл бұрын
I really hate this condition...it's a difficult to maintain my relationships
@PaulineDyer-c1z3 ай бұрын
Until you own it, and use it for good.x
@karthi85375 жыл бұрын
Hey seeker do a video on Nipah virus.. recently spotted again in Kerala literally at the day of it's first anniversary.
@sdfkjgh5 жыл бұрын
Sarath Bb: Nipah virus: Happy one-year anniversary, sweetie! Kerala: Oh Krishna, someone save me from this crazy stalker!
@karthi85375 жыл бұрын
@@sdfkjgh pardon me is this some kind of joke to you?
@kshatriya14145 жыл бұрын
Sarath Bb Lighten up ffs
@sahilverma70456 ай бұрын
@@sdfkjgh wtf ??
@runawayremedies50633 жыл бұрын
Thank you for the very informative video, I was diagnosed with Narcolepsy with Cataplexy last November, its been a whirlwind the past seven years, having being misdiagnosed as having schizoaffective disorder due to my really strong hypnogogic and hypnopompic hallucinations back in 2013. It's been an insane one!
@liani1415 жыл бұрын
I have narcolepsy with cateplexy and this is straight on. I really don’t have any cateplexy symptoms now because of my medication but whenever i used to laugh i would have muscle weakness in my neck area. Now almost every night i have vivid dreams, nightmares and vivid nightmares every other night. It’s nothing unusual to me. I just wish i could sleep throughout the whole night.
@xavier45635 жыл бұрын
Oof
@gearhead13025 жыл бұрын
Have you tried hypocretin/orexin as a treatment? I'm curious if it could help someone be more awake. I also use to get weak while laughing when I was young and all my dreams were nightmares. The sleep dr says I don't have narcolepsy though. I guess it's normal to miss out on half your life because your sleeping.😒
@UnchartedWorlds5 жыл бұрын
Hi Stephanie, i don't have narcolepsy but i have dreams that come fast, and i regularly get nightmare dream, it doesn't scare me but i wish i could sleep through the whole night without any dreams. Have you found a way to do that? Maybe meditation or being active in sport, etc? I'm a very positive person by day but in my dreams all kind of shit happens 😂
@fugz5 жыл бұрын
@@UnchartedWorlds Many medications can cause a lack of dreams or an increase in them. Sadly, none are prescribed for just that purpose alone. I'd recommend trying a sleeping pill of some sort (preferably in the hypnotics category) Just tell your doctor you have trouble sleeping and ask if there are any meds to help with that. Tell them you've tried melatonin so they don't recommend you try that first. Worst case scenario, the pills don't get rid of your dreams and you can just toss em.
@UnchartedWorlds5 жыл бұрын
@@fugz no sleeping pills, I'm looking for all natural solution. I got experience with sleeping pills, they suck 😊
@ceciliaarevalo18764 жыл бұрын
Wow I’m amazed and so grateful!! I just had my first appointment w/ Dr. Mignot 😭🙏🏻
@johnwirk4 жыл бұрын
Not sure of my issue but I struggle with fighting an undescribably strong urge to sleep during the first 4 hrs of work and I'm on my feet on into the day. I'll actually start experiencing that beggining of dream state while awake but its more just confusional arousal. If I am fresh and heavily interested I'll remain awake but if its mundane, repetative, and easy, I risk nodding off standing.
@juannaym8488 Жыл бұрын
late by several years but I had the same thing in my late teens/early twenties. It started after I had to work 12 days straight, alternating between day and night shifts, at the age of 18. I was so tired afterwards and it somehow never went away until I turned 21. I don't even know why it changed. The docs I saw couldn't figure out why I had it. I have depressions and OCD, I don't know if that plays a role though
@midianrise70593 жыл бұрын
Thank you. I’m a narcoleptic and I appreciate you bringing attention on this
@jethrotull58474 жыл бұрын
I was diagnosed with diabetes T2 many years ago. I have progressed to taking insulin. For years I thought my “melting” when laughing, sleep attacks, and lack of energy was due to blood sugar. As these “weird” symptoms got worse I found myself drinking 12 monster rehabs and still falling asleep in the drive thru with my foot on the break. I fall “asleep” in seconds. So I haven’t drove for 2 years. With the addition of a stroke I am disabled... I want to thank everyone who pays taxes because SSDI came through for me. My private insurance however is a joke ! Everyone take care and thanks !
@nancywalker-keay83614 жыл бұрын
That's so sad to hear you are still suffering from this situation
@martintube244 ай бұрын
what brought on the stroke though, if I may ask?
@dynamic48204 жыл бұрын
Struggling with narcolepsy for years now. Modafinil really the homie fr
@nancywalker-keay83614 жыл бұрын
That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
@1.21Gigawatts_2 ай бұрын
Modafinil takes your sleepiness away?
@thebusinesswoman234 жыл бұрын
Damn, I wasn't expecting everything in the video to line up so perfectly with my daily symptoms. Oh well, at least I am more informed before my sleep study.
@rhonindemora87935 жыл бұрын
Love the video! As a Narcoleptic its good to have a video to show people instead of trying to explain it.
@spicedlemons Жыл бұрын
my narcolepsy symptoms started directly after having a HORRIBLE flu in 2010 that i wondered if it was swine flu. 105 fever for 5 days. i gasped when this video mentioned a major connection!!!!!! its held me back in life tremendously
@lyndayates7533 Жыл бұрын
Wow! I've lived with this for 60 years. Only got a diagnosis at 30. They say it's not genetic and yet my Mother as well as 2 children have this also.
@libacus47415 жыл бұрын
I got very sick with the swine flu when I was 6 it was awful soon after I developed sleep paralysis and have awful dreams it’s been 10 years later and it still occurs at least once a week, this blew my mind
@tracyfreddie78994 жыл бұрын
That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
@H.C.Q.3 жыл бұрын
We all go into sleep paralysis every night whether we become aware of it or not. It is a natural process of the body shutting down and going into sleep mode. Your dream body separates from your physical body once the physical body becomes immobile.
@sBm4ever2 жыл бұрын
@@tracyfreddie7899 hello Dear.. 🤝
@sBm4ever2 жыл бұрын
@@tracyfreddie7899 can I contact with you please?
@tracyfreddie78992 жыл бұрын
@@sBm4ever hello how are you doing friend
@scarytrout86485 жыл бұрын
ERROR at 12 seconds. Narcolepsy isn't triggered by joy, this is cataplexy. As a person with narcolepsy, this distinction is important, because during a cataplexy attack, the narcoleptic is still aware of the world around them, they just are limp and unable to respond because of the paralysis of voluntary muscles. Sleep attacks are different from cataplexy attacks, even though they appear similar to the onlooker.
@sicsempertyrannis46133 жыл бұрын
I’ve had this since I was a kid. I was falling asleep in class and falling over when laughing. We didn’t think about getting it studied until I was in HS and couldn’t learn because I was constantly sleeping.
@1.21Gigawatts_2 ай бұрын
Have you found a treatment?
@nuancednuancer70525 жыл бұрын
Having nightmares manifest in reality before you properly fall asleep causing extreme terror, which in turn causes cataplexy, which in turn makes the brain fall asleep partially again and manifest more nightmares, getting myself stuck in a perpetual cycle of sleep paralysis and nightmare hallucinations assaulting your every sense while getting constantly paralysed. Not a fun time, I became afraid of sleep and insomniac. Thankfully, everything is better now that it's medicated.
@gamereditor59ner225 жыл бұрын
Interesting information and keep it up!!!!
@nat.mp35 жыл бұрын
this is really informative!! thank you seeker for inviting dr. mignot! thank you dr. mignot for being so determined in your research and explaining so well!!
@smileandshimmy5 жыл бұрын
I've had Type 1 Narcolepsy for 31 of my 38 years on earth. Type 1, meaning, with Cataplexy, and all the other 'fun' symptoms it comes with. I wouldn't wish it on my worst enemy. The Doctor Mignots of the world, give us hope. 1:01 "Narcolepsy isn't really about falling asleep, it's about not being able to stay awake" Frickin' nailed it!
@tracyfreddie78994 жыл бұрын
That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
@LadyjediDjedet3 жыл бұрын
@@tracyfreddie7899 You and your friends are gross, attempting to take advantage of people seeking help. Stop spamming! REPORTED
@Ficus_videos11 ай бұрын
@@tracyfreddie7899hi. Can you pls share the contact of your doctor. I'm suffering from it and my condition is too worse. And the number of episodes are getting increased day by day. I'm having 40- 50 episodes per day.
@jabbersart62184 жыл бұрын
my symptoms just started appears about 4 months ago...every night is horrible. i'm always exhausted now, i wouldnt' wish this on my worst enemy
@roberthopkins79845 жыл бұрын
Thank you so very much. I am truly grateful. I feel at last some hope for a cure.
@tracyfreddie78994 жыл бұрын
That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
@xeasonchan94015 жыл бұрын
respect for Professor's great work
@potapotapotapotapotapota2 жыл бұрын
Just so others know, you can have narcoeptic symptoms without having narcolepsy per say. That is because this doctor is describing narcolepsy caused by the destruction of hypocretin producing cells, whereas there are also situations where hypocretin production is merely inhibited.
@SolidSiren9 ай бұрын
Hypocretin is actually normal in people with narcolepsy without cataplexy. I don't have a diagnosis yet but I'm sure I will soon. I now almost crumple to the floor *every day* as my legs give out while falling asleep *while walking around at work*. Unfortunately I have a job that requires almost 20 miles of walking per shift with 11 hr shifts.
@SolidSiren9 ай бұрын
It's so bad now that I can be having a conversation with someone and feel my eyes going weird, can't focus them on anything no matter how hard I try, and fall asleep while talking to them. 😢
@sunshine156233 жыл бұрын
The most valued information available. thank you.
@taralewis6661 Жыл бұрын
Thank goodness for Fritz!! I don't have narcolepsy nor do I know anyone who does but I can't imagine how debilitating it is for those who suffer from it. And I can also imagine the frustration in getting a diagnosis. Has there been any progress medically/pharmaceutically in the past few years??
@zachlochabay58035 жыл бұрын
Interesting video. Wish they had described the differences between Type 1 and Type 2 narcolepsy. Quite a substantial difference. People with Type 2 generally have normal levels of hypocretin so it’s kind of strange. Educational video nonetheless tho!
@bryanjk5 жыл бұрын
Along with that they could've gone into the diagnosis process using EEG & MSLT. Basically seeing how you sleep at night and how you sleep during naps in the daytime. One of the notable features are hitting REM sleep ridiculously fast during a nap and not getting late sleep stages at night. Things like Restless Leg Syndrome can play a role causing you to kick in your sleep which wakes you many times throughout the night but you're not usually even aware its happening.
@drunkenramble41205 жыл бұрын
I used Modafinil for a couple of months, and it totally killed the symptoms, but sometimes I'd be awake for 3-4 Days.
@1.21Gigawatts_2 ай бұрын
Were you sleepy throughout the day and modafinil took your sleepiness away?
@ianohtheentertainer58682 жыл бұрын
I have never experienced anything as heartbreaking as this condition.....
@SJSOmar5 жыл бұрын
When your brain is interested in learning in itself -my brain right now
@motherboard2.076 ай бұрын
As someone who has narcolepsy I need to tell you that not all people have all these symptoms. Also, I the 2007 case of the bird flu is what causes mine
@isceaakajessicaogradach93595 ай бұрын
I've had it my whole life and I'm 53.
@aphelmusonda525311 ай бұрын
Thank you so much for the information, I really appreciate ❤
@H.C.Q.3 жыл бұрын
I am experiencing narcolepsy lately together with autoimmune disease. I also think it may have something to do with blood sugar levels.
@roxannerodriguez7075 Жыл бұрын
I wonder the same thing too. Because our body reacts to the rise and fall of blood sugar. It just seems connected.
@ryank12319985 жыл бұрын
Science is... pretty sick
@mariapaz63795 жыл бұрын
😆
@catalinacurio5 жыл бұрын
Can narcolepsy be brought about by stress on a temporary basis? Ok, I answered my own question in that high stress can lead to the auto immune system to be disrupted.
@DeKosta5 жыл бұрын
No not only by that you need a host of certain factors to line up like they explain in this video.
@Provigilman5 жыл бұрын
It's much more likely that you're experiencing poor quality sleep or insomnia, which can then result in excess daytime sleepiness. Both of those can be caused by increased stress, and result in similar symptoms. One of the ways that narcolepsy is diagnosed is through a sleep study, where they can monitor both the time that you sleep as well as the quality. There is an overnight period, as well as a daytime nap period that they look at. From my understanding, having gone through it myself, normal people will have difficulty sleeping during the repeated nap cycles after they've had a full night of sleep. I, on the other hand, fell asleep within a few minutes of the start of the nap periods, and had difficulty staying awake during the wake cycles. Lastly, the Doctor in the video that talked about the immune destroying the hypocretin cells. When those cells are destroyed they either don't come back, or they get repeatedly destroyed by the immune response, and as he put it: "Then you have narcolepsy for life". So, there really isn't any form of "temporary" narcolepsy, just other temporary factors which might produce similar symptoms for a period of time.
@francismiklas36465 жыл бұрын
He forgot bad head injuries...to. If you lose 5000 or more brain cells at once,ect.my husband battles this.trying to get disability... There making it hard on narcoleptics.
@FionnghulaThell3 жыл бұрын
I think so! I had this experience
@abigail74963 жыл бұрын
No. Narcolepsy is caused by your immune system attacking hypocretin. Once hypocretin is destroyed it never comes back. Narcolepsy is always lifelong.
@couchpotato498Ай бұрын
Love that I can thank a dog for my health!!!! Thanks fritz! ❤❤❤
@mikejeffery83715 жыл бұрын
Love these! I’d love to see one on E. Coli
@j.l.spraggins85894 жыл бұрын
Excellent info. I have narcolepsy with cataplexy & parasomnias. I've done 4 sleep studies. A blood test showed I have two genes that most of the population does not have & a few percentage have one gene or the other but rarely both. Having both genes meant I had a 72% chance of having sleep disorders. The sleep study & sleep diary factored in with that 72% & the result was a proper diagnosis (after 15 years of seeking medical help).
@nancywalker-keay83614 жыл бұрын
That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
@myahouston202 жыл бұрын
@@nancywalker-keay8361 who’s the Dr ?
@kungfungify Жыл бұрын
Fantastic work doctor!!!
@HeatherHolt5 жыл бұрын
Wow. Very interesting. I thought I had narcolepsy but turns out I’m just lazy.
@naomifortin25254 жыл бұрын
HAHAHA OMG THIS COMMENT WINS
@HeatherHolt4 жыл бұрын
Andrea Fortin aww thank you 💕 that just made my day friend
@naomifortin25254 жыл бұрын
@@HeatherHolt Omg I thought you won't see my reply because your comment was 1 year ago 😅 but no worries you made me happy too! 💓😊
@BLAZE455 жыл бұрын
This is why I got fucked up after getting sick?! it makes so much sense now.
@jsmith68223 жыл бұрын
I used to take a sleep medicine called Lunesta until I started finding my keys in the fridge or a half-made peanut butter and toothpaste sandwich on the counter in the morning. They switched me over to a medication called Belsomra (Suvorexant). Apparently it is totally different in how it acts. It is an Orexin blocker. It works by decreasing the amount of Orexin that your brain produces and in turn makes you drowsy. It works like a charm. Sometimes too well. I can remember times where I’d wake up to use the bathroom and I couldn’t get on my feet because I had no control of them. I’d get out of bed and fall to the floor because I just couldn’t walk. Strange feeling. I think that this medication was somehow mimicking the symptoms of narcolepsy.
@0neBadMonkey5 жыл бұрын
Wow, great video. Thanks.
@JannyMaha4 жыл бұрын
Very nice video. I think that narcolepsy may be genetic in humans as well. I am the only one diagnosed with narcolepsy in my family; however, many other family members (who seem to be in denial) have many of the same symptoms that I do.
@LadyjediDjedet3 жыл бұрын
@@nancywalker-keay8361 Stop spamming with that snake oil. People are looking for real help. REPORTED!
@miegravgaardxoxo3 жыл бұрын
It can be genetic
@kookiejk32225 жыл бұрын
my brain is watching a video itself. wEiRDddD
@naomifortin25254 жыл бұрын
We gon connect the dots army HAHSHAG
@avhuf5 жыл бұрын
this is very informative. thumbs up.
@Seeker5 жыл бұрын
Thumbs up right back at you.
@ShirleyitsJohn5 жыл бұрын
FINALLY!!! shout out to my narcoleptic brothers and sister. I've got the fun one with cataplexy and it's about damn time someone does a narcolepsy video that isn't a cartoon guy in a sleeping cap.
@ShirleyitsJohn5 жыл бұрын
Ps. Please my dude, find me a cure that isn't adderall or super expensive xyrem, that would be super duper. It's been a fun conversation topic, but I'd mich rather be done with this affliction and not have to jack my heart up before I can drive safely
@gracefulslumber84415 жыл бұрын
@@ShirleyitsJohn ugh Xyrem grinds my gears. I have narcolepsy, and Xyrem worked really badly for me. It would cause me to eat sugary treats from the pantry/freezer like I was a food-zombie. It caused extreme nighttime incontinence and a medium amount of daytime incontinence. I was so depressed and suicidal during the night while taking it as well. I was more sensitive to loud noises while on it, which would actually CAUSE me to have a cataplexic attack rather than prevent the occurance of one. My family was also affected not only from distress due to the expenses of the dang medicine, but also from having to wake me up for my second dose since I couldn't wake up via an alarm or other means. After 3-4 years, I finally told my Mother that I'd rather fall than take Xyrem. We consulted my sleep neurologist about the problems, and he agreed that it was best to cease taking Xyrem. He told us to start titrating my dose down little by little each night. After a few nights, I was finally free! I lost many years to it, but it's been 1 1/2 years off of it and I'm doing so much better. Unfortunately, though milder than before, both the nighttime and daytime incontinence remain to this day. I honestly think people glorify Xyrem WAY too much. It's treated as some miracle drug for everyone when, just like with any other medicine, it just depends on the person. For some, it works amazingly and they rarely/never have problems. However, when it doesn't work particularly well for a person, it seems to be detrimental. I really haven't seen much/any in-between experiences. In my experience, Xyrem caused way more problems than it fixed. Instead of Xyrem, I take Venleflaxine to combat cataplexy. Originally, I took Venleflaxine for depression since it is also an anti- depressant. I started taking it while on the Xyrem, though at a lower dose. Good luck to you and your family!
@ShirleyitsJohn5 жыл бұрын
@@gracefulslumber8441 very interesting experience! Definitely useful to know. I'm currently on just a shit ton of addy everyday and while it definitely improves my day to day I know the amount that it's taking to keep me awake is running my heart hard so it's really only a bandaid to a lifelong problem. Actually took a genetic test since posting this and my doc said xyrem was a no go anyway. I'm sure you understand plenty well that while the narcolepsy definitely sucks cataplexy is soo much more disruptive and also embarrassing at times. Like I've cracked my head on my tile at least 3 solid times just from trying to tell a joke while off my meds. I'm just really holding on to the hope that they'll figure out a drug that can correct the auto immune response in our brains so that this affliction can be cured. It's tough be narcoleptic though since it's not necessarily life threatening and rare that means not too much attention from the medical community 😞
@Rene-uz3eb9 ай бұрын
How about sleep debt causes narcolepsy (it raises both orexin and melanin concentrating hormone, latter triggering rem sleep). They did an experiment, it took 20 days of extra sleep to work off accumulated sleep debt, a total of about 50 hours extra sleep in addition to the required 8h each night (they put people in total darkness for 12h+), before sleep went back to only 8h. With much improved mood, vigor etc. This was for normal people without symptoms. Probably a tad more for people with narcolepsy. Sleep Extension: Getting as Much Extra Sleep as Possible, 2005, stanford.
@renjiaow3742Ай бұрын
The problem is you can’t sleep for more than 4-5 hours continuously with narcolepsy. It messes with your sleep cycle greatly, I was hitting REM sleep within 3 minutes during my study.
@Rene-uz3ebАй бұрын
@@renjiaow3742 but you could still sleep 8h per day in total with naps, and more like 9h if you want to work off sleep debt. It's probably limited how much sleep debt you can accumulate, but it's definitely real.
@ristube33195 жыл бұрын
Well thanks doc, I guess I really do have the worst luck! The accent was a nice way to hear I’m screwed though.
@YizzleBerry3 жыл бұрын
I was thinking the same thing...like jeez thanks for bringing even more sarcasm to an already f*caked up situation. Smh
@CatylisticRevo628 ай бұрын
I like how the narcolepsy expert wears a hairdo as if he just got out of bed
@tailorforeman70823 жыл бұрын
I'm like the awkward in between. Excessive daytime drowsiness but I'm not showing all the signs of narcolepsy.
@kaichey29765 жыл бұрын
You guys are almost at four mil! So close!
@phpn995 жыл бұрын
Could this help shed some light on insomnia too ?
@jblackbath Жыл бұрын
Great! But this is about Narcolepsy Type 1 (with Cataplexy) Now please make a video explaining Narcolepsy Type 2 (w/o Cataplexy), which is what I suffer from since birth. Thanks!
@kdog3505 жыл бұрын
I had no idea having the h1n1 virus could cause someone to have narcolepsy. Hearing that was a like a light bulb going off in my head. Back in 2009 I had swine flu. Watching this video makes me pretty sure I have narcolepsy in part due to the h1n1 virus.
@grandgamingexhilarating5 жыл бұрын
This video series is awesome. Kudos to all the Seeker crew and medical specialists that made it possible. Surprisingly I wasn't expecting swine to get any worse than already being a source for Trichinella spiralis, Taenia solium and Ascaris suum. I was aware of the H1N1 virus, unaware that it's a strong risk factor for narcolepsy. 😨.
@tracyfreddie78994 жыл бұрын
4 years ago I was diagnosed with NARCOLEPSY and I have tried everything I could to get rid of this , but it was all to no avail, until I saw a post on a health forum about an herbalist preparing herbal medicines to cure everything type of diseases. including NARCOLEPSY , at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for NARCOLEPSY and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. , gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 1 months of use, I am now totally free from NARCOLEPSY, all thanks to Dr. Joshua Ighalo for helping me with my situation. You can also contact this great herbalist for help by email: drjoshua.ighalo@gmail.com or contact Dr. through his whats-app: +2349057958723. They also specialize in the treatment of all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.
@jackietoole255 жыл бұрын
I also have a few questions about this information and wanted to know if anyone knows someone or this doctor could answer them?
@gracefulslumber84415 жыл бұрын
I have narcolepsy. I even met Dr. Mignot at one of the NN Conferences!
@nancywalker-keay83614 жыл бұрын
4 years ago I was diagnosed with NARCOLEPSY and I have tried everything I could to get rid of this , but it was all to no avail, until I saw a post on a health forum about an herbalist preparing herbal medicines to cure everything type of diseases. including NARCOLEPSY , at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for NARCOLEPSY and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. , gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 1 months of use, I am now totally free from NARCOLEPSY, all thanks to Dr. Joshua Ighalo for helping me with my situation. You can also contact this great herbalist for help by email: drjoshua.ighalo@gmail.com or contact Dr. through his whats-app: +2349057958723. They also specialize in the treatment of all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.
@superministry4 жыл бұрын
I have been self inducing narcolepsy when experiencing sleeplessness. And wake up amazing in the morning. It has helped me.
@zachcrawford55 жыл бұрын
It's nice having someone who knows what they are talking about explain a scientific breakthrough (especially when they are partly or mostly responsible themselves for that breakthrough) instead of a parrot who is trying (way too hard) to be "hip" and "exciting" and just comes off as condescending and intelligent.
@bhrzy20294 жыл бұрын
There’s no way I don’t have this some of the symptoms I had more as a child like sleep paralysis and halusantion nowadays I’m just constantly tired and this helped a lot on knowing what I got I’m gonna see a doctor very soon to help deal with it
@sarahparker14145 жыл бұрын
For many years doctors thought I had absent seizures, taking the medication for it only made my narcolepsy worse. Here recently they sent me to a sleep specialist that concluded I had narcolepsy. It sucks having this and honestly I wouldn't wish it to my worst enemy... it's just to much to deal with ;-;
@sumdumguy12345 жыл бұрын
hi, i finally got diagnosed with narcolepsy and cataplexy after 10 years, it was a battle to say the least.i consider myself mentally strong, and I find it very hard to cope emotionally.i too feel "its just to much to deal with" I find a good cry helps, pick myself up and carry on.i just wish other people were a bit more understanding of the condition.hopefully vids like this go towards that.anyways good luck and keep on keeping on
@tracyfreddie78994 жыл бұрын
@@sumdumguy1234 That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
@rosannalucas28294 жыл бұрын
I have type 1 narcolepsy and my father was a veteran of the First World War. I was born in 1941 and always remember my father as being sick. It is possible he died of flu because my family received support benefits. I came down with symptons after an operation on my leg. I was in the hospital for about 3 months. Do you think there is a relationship?
@nancywalker-keay83614 жыл бұрын
That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
@lizatanksley91814 жыл бұрын
Good information 😁😁😁👍👍👍😁😊😊😊👌
@cy78425 жыл бұрын
Please do an episode about Psoriasis. Thank you 😊
@josh-ie6vr4 жыл бұрын
I have cataplexic tendencies, insomnia, frequent sleep paralysis, abnormal REM sleep (in fact I can dream in just minutes of sleeping), and hypnagogic hallucinations (i feel like my whole body was spinning in all directions and angles) but I don't have excessive daytime sleepiness (as a matter of fact, if i return to sleep hours after having a 2-3 hrs of sleep, I'll get sleep paralysis). Is this still be considered as narcolepsy? Help.
@somneang87time294 жыл бұрын
My symptom as like you So i still to looking for help
@nancywalker-keay83614 жыл бұрын
@@somneang87time29 That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
@william25995 жыл бұрын
I have narcolepsy and ive expierienced all of the symptoms. Honestly it f...ing sucks
@ScoolHumorORIGINALS5 жыл бұрын
seeker literally paraphrased the wikipedia
@MitsuhashiTakashi5 жыл бұрын
What's new
@bryanjk5 жыл бұрын
The doctor needs a fancy lab coat and it would be an even better video!
@pareblanur76904 жыл бұрын
I almost gave up treating the dreadful sleeping disorders I have encountered for 2 years. But ever since I used this sleep plan *4InsomniaCure. Com* my sleeping trouble was vanished and sleeping in my bed just felt great. Use this product, you won`t regret it. I was the biggest doubter but now I`m the biggest believer.?
@marybb.49473 жыл бұрын
Woahhhh great patience ! Thanks
@Xenonmorph__3 жыл бұрын
Narcolepsy had me like: hypersomnia all day, insomnia all day
@mrs.cloroxbleach43824 жыл бұрын
Please can someone help me out. I have many symptoms of narcolepsy. I know hallucinations are one of them. so during the day or during the night whenever I feel an overwhelming tiredness right before I fall asleep it feel like something shakes my body awake. Right before I fall asleep. It happens all the time. Sometimes I am so tired that I just ignore it and basically pass out from being so tired. But most of the time it scares me so bad I fight everyday not to fall asleep. Please anyone give me an honest opinion. Is this a symptom of narcolepsy or do I have a poltergeist?
@FionnghulaThell3 жыл бұрын
Could be. I have experienced a deep trembling but its more of an internal tremble. Its due to stress and one of the narcoleptic symptoms. Its your your brain trying to wake your body back up even though your body is going into a natural state of sleep paralysis to help you sleep. It creates a tremble because your literally forcing yourself out of that state whereas normally you would need to go through a compete sleep cycle to come out of it. just go with it it wont hurt you.
@MisterTonyG3 жыл бұрын
Hmmm interesting comment. Sometimes I experience this "trembling" too. I'm about to doze off and then I'm jolted awake by a tremble or twitch. When I was younger, I was with some friends and this happened. They made a joke that I looked like I was going to have a seizure. It's not very frequent but a couple of times a month and there's really no pattern that I notice.
@Tawkitoutti3 жыл бұрын
I got the flu around the same time and slowly developed narcolepsy. What can I do. I take modafinil and it doesnt work well.
@anorganism89134 жыл бұрын
Okay so I did a sleep study they showed that I have narcolepsy. I've had many sleep paralysis events and cataplexy. I'm considering going to do another sleep study. Has anyone done multiple ones?
@jadetaylor24433 жыл бұрын
I have had two.
@lmaxx88814 жыл бұрын
So how do we grow back our balancing cells compounds? There has to be a trigger food? Raw liver?
@sdfkjgh5 жыл бұрын
Could insomnia be an overproduction of orexin?
@lindada11112 жыл бұрын
Great documentary. Apparently sometimes Ritalin is recommended.
@Bigfoot_With_Internet_Access5 жыл бұрын
Someone with narcolepsy could try to answer that in the comments, but they'd probably just fall asleep while writing the comments
@omegaseriestfbang99335 жыл бұрын
Good one! XD
@Emmunation5 жыл бұрын
I have narcolepsy but a low (dose) of it. I don’t need any medicine to sleep at night and I don’t really need medicine to stay awake at daytime. I only uses medicine to stay awake in school and events. It’s not that irritating to have the kind of (dose) that I have but I usually take a nap after lunch and ones again a few hours later to be more alert the rest of the day. I dream a lot but it’s mostly good dreams and I can sometimes control the dreams and if I have a bad dream I can wake up at demand. That’s one thing that’s good with narcolepsy.
@sweiland755 жыл бұрын
Making such a comment doesn't make you look clever. It makes you look like an idiot.
@bryanjk5 жыл бұрын
Much of the time falling asleep isn't even sleep, it's cataplexy. A full on episode is kinda like reverse sleep paralysis, where that system kicks on while your awake. You're aware of your surroundings and you just wait for it to pass. Cataplexy is specific to narcolepsy and has different severities from just weak muscles to full body collapse. Usually brought on by strong emotion, but I'm not sure why. I only have the muscle weakness so I can't imagine the experience of full paralysis while awake. However, I do get sleep paralysis occasionally but you're dreaming during that so there's added visual/auditory effects. (...like demons sitting on your chest, lol)
@kushaljunghare35755 жыл бұрын
Or FFI (Fatal Familial Insomnia)
@DynAmisch6910 ай бұрын
What about the swine flu vaccine?
@ursaltydog5 жыл бұрын
Triggered by excitement or laughter? Not in my family.. They don't laugh enough.. and the tree is full of narcolepsy...
@Provigilman5 жыл бұрын
The "triggered by positive emotions" bit is more referencing cataplexy. Not all narcoleptics have cataplexy. Source: Am a narcoleptic without cataplexy
@ursaltydog5 жыл бұрын
@@Provigilman Yes, I'm familiar with cataplexy, but not triggered by extreme emotions, which is the definition that ths doctor here gives. I have one cousin who is narcoleptic with cataplexy and sleep paralysis. However, with additional diagnoses of ehlers-danlos, syringomyelia, and chiari malformation, it's a bit difficult to discern if it's truly cataplexy or weakness/shaking due to those aforementioned. She is on no medicine due to the EDS affects her heart. One not diagnosed with cataplexy, but narcolepsy with the vivid dreams, hallucinations, and sleep paralysis. Had three accidents while driving and fell asleep. He's on both Xyrem to make him sleep better at night, but Provigil in the day time to keep him awake, yet still falls asleep. He did have scarlet fever as a young child however, which points to the auto-immune, except that his mother also was being treated for narcolepsy and high bp at the time of her death. Another has narcolepsy but also adult ADHD and on Vyvanse. Myself? Insomnia.. Can only sleep 3-5 hrs at most and EDS as well. Most have the EDS in both sides of family.
@acaciaj53785 жыл бұрын
I don't know much about narcolepsy, but could it be treated by medications that prevent the reuptake of hypocretin?
@Reth_Hard5 жыл бұрын
I have a friend who's having narcolepsy and in the past he was treated with Ritalin. (Methylphenidate, category: Amphetamine) He doesn't use Ritalin anymore but I don't know what pills he's taking now...
@baker6071025 жыл бұрын
there's aren't any at the moment as they need to find drugs to cross the blood brain barrier. But there still arent enough hypocretin producing cells
@Icydragon28 Жыл бұрын
I myself have narcolepsy as well as Idiopathic insomnia. My autoimmune disease is RA/Lupus..
@Frank0202 жыл бұрын
This clarifies everything New hypocretin cannot be added or induced to be produced by the body? Or replanted somehow?