SKIN LESIONS WITH CRPS

[@WendysCorner-h3h]

Wow wish I was aware of this a few years ago! Almost 40 year RSDS surviver, full body case now a a few years ago i was suddenly covered with lesions on both legs, both arms and the back of each shoulder blade with ones so bad some actually erupted and others and one on my ankle ran all the way into the bone.NO ONE could explain this and worse, not one of the many specialists I saw attributed to RSD/ CRPS. The photos are horrible to take in and the scaring is almost as bad. Thanks for posting this video and for others out there I know it feels desperately hopeless at times with no one truly understanding your pain and then adding in being shunned because you are covered with lesions or just feeling like you are being shunned. Please remember its NOT YOUR FAULT and please don’t give up the battle for help and hope.

[@WendysCorner-h3h]

Wow wish I was aware of this a few years ago! Almost 40 year RSDS surviver, full body case now a a few years ago i was suddenly covered with lesions on both legs, both arms and the back of each shoulder blade with ones so bad some actually erupted and others and one on my ankle ran all the way into the bone.NO ONE could explain this and worse, not one of the many specialists I saw attributed to RSD/ CRPS. The photos are horrible to take in and the scaring is almost as bad. Thanks for posting this video and for others out there I know it feels desperately hopeless at times with no one truly understanding your pain and then adding in being shunned because you are covered with lesions or just feeling like you are being shunned. Please remember its NOT YOUR FAULT and please don’t give up the battle for help and hope. I’ve never heard of ketamine cream, but I will look into it so thank you for the tip. Yes I have tried everything homeopathic stuff seems to be the best for me. Good luck and peace.

[@lizaboland1253]

I find these videos so informative, supportive and helpful. Keep them coming.

[@TheCRPSNetwork]

Thank you so much for the feedback.....it means a lot to me. I've taken a bit of a break but am back and have a new vid that will be released sometime by Wednesday.

[@sharonbrown5702]

I am so glad for all the information on crps as I have for about 8. now 9 years no tablet as I have heart block thank goodness I have not had any skin lesions I live in London not support groups for London look forward to your next vlog Sharon Brown ❤️❤️❤️❤️

[@elainegarrow8528]

Omg I’ve had CRPS in my right foot for the past 18 years and I’ve never connected my itchy bumps to the condition. I get them all over my body, especially on my right side and the top of both arms. I’m now going to show this to my general practitioner. Thanku so much

[@EvelynLopez-yp2yv]

And thanks corazon for the info too,,

[@nononoonoo]

Hi I hope all is well. I have a friend who has it on the right side also what over the counter treatment do you use for the rash.

[@lucyannmcwilliams3889]

Thank You!! Very helpful ❤

[@TheJustonemore]

oh boy, you know it. I have one that stays around. And I Have wound clinic, and yes the cream beforehand mine is a mix Amitiptyline, Gabapentin, Ketamine

[@kimlampkin]

I get them all the time.. ty for sharing .. so happy I am not the only one.. I use Mupirocin ..it does help me but as you all know it takes time to heal.. I have crps in my hips ,knees and feet both sides and my back. but i get the sores mostly on my arms ... but some on my legs, head, sometimes in my nose and i get blood sacks at times in my mouth and heal with honey....The scars are bad on my arms I just bought a new machine to try to use on the scars .. not sure if it will take all of them away but even if it fades some I will be happy..thank you for sharing you made me happy ..

[@TheCRPSNetwork]

Kim, wow...thank you for sharing! I have heard of others getting them in the mouth, but hadn't heard of using honey...that's great and a natural healer. Thanks so much for sharing what works for you. How long have you had CRPS? Most of the other people I know with the lesions have had CRPS for 20+ years.

[@tracibracken2331]

Lately my skin has been having such an unexpected but extremely helpful solution dealing with the CRPS constant hell fire burning and😊😅 all consuming itching. Using a cotton ball or my fingertips I rub a mixture of tea tree oil, clove oil, frankincense&myrrh with coconut oil over trouble areas. Adding lavender or eucalyptus oil can sometimes help give me some aid in tolerating my bedsheets and blanket allowing me to finally sleep next to my hubby and sleep comfortably.

[@theobservertheseekerthewan1824]

The first time the skin lesions and Blister's showed its ugly face was about 1999, this all caused by a Job injury in 1997. Back then I had to be hospitalized. Back then the Doctors and Hospital had no idea what they were doing, so when it was burning they decided to wrap it, wrong thing to do, it got not only worse, but it left a huge scar all the way around my left leg. Now this Nightmare disease has decided to get my Right Knee & Leg now too, After a Botched Knee Surgery last year, Now the Lesions and Blisters are starting on that leg/ knee as well. Telling the Pain Doctors what's going on and they still look at me like I freaking Nuts!! Now this Nightmare Disease is in my back as well, after having a New SCS spinal cord Stimulator and lead revision done 3 months ago. I Hate this Disease!!!! 22+ yrs and Still Fighting to Hold on as long as I can!!!

[@TheCRPSNetwork]

So you started getting the lesions after only 2 years with the condition? Have they been persistent since then? Is there anything that makes them better?

[@abigaildawn2996]

Would love to know more on what’s worked, I’m currently hospitalised with a critical infection of a CRPS ulcer and drs are just so unprepared with little insight

[@lucyannmcwilliams3889]

I have been using coconut oil on the lesions. . Small bumps and larger. Use a small amount Morning and night. Has helped tremendously.

[@doublehelix1185]

Lesion, I think of weeping sores. I have dime size and smaller raised brown patches started on my RSD leg and is on my right leg also. No infection, no rawness or weeping. I cannot see a CRPS specialist, I have medicaid. I have had this monster disease for almost 17 years.

[@TheCRPSNetwork]

Do your brown patches sting at all, or just a raised discoloration? There are some specialist who accept medicaid. Which state are in? Possibly I can help you find one.

[@Nootsmum]

I have crps and I use a prescription cream called Retinol -A Microderm and a menthol cream which is also prescription called Mometasone which i find very soothing. I also take a Blexten pill everyday which is also called Bilastine ( this is just for my skin conditions take other medications for the pain and other symptoms)

[@TheCRPSNetwork]

Great suggestions!!! Thank you ;-)

[@Nootsmum]

@@TheCRPSNetwork thank you :) it is sometimes difficult to post ones inner lifes challenges. Support is always nice and just knowing someone read it is nice too

[@TheTxkat]

I've had CRPS in both legs (broke my right foot and had compression of peripheral nerve in right leg) for 10 years this last March, was also diagnosed with Fibromyalgia and neuropathy 3 years later. I developed a skin rash under my hair on my scalp last year. It makes my hair and anything that touches my scalp super painful and my scalp during this rash flare up is very hot/ warm to the touch. I would appreciate any help in treating it, as I've found nothing that helps. 😢

[@dhebert111]

I've had C.R.P.S. for about 10 years now. It stems from a serious accident I had to my neck, arm, shoulder and knee (a bad fall into a hole in the ground on a construction site) My bicep ripped out of my shoulder and also damaged a lot of nerves in there. I herniated two discs in my neck as well. I had a few operations. The surgeon had to find a different place to reattach my bicep to a different location on my shoulder due to the damage at its original spot. My CRPS is mostly my neck/back of head down to my shoulder where its really intense and continues down my arm to my hand. I always have large seemingly incurable lesions all along the same path that's the most severely affected by my CRPS. I've never mentioned it to my specialist because I thought it wasn't directly related. Now I feel relieved and a bit stupid at the same time. Coincidentally, I have a Dr's appointment tomorrow and I'll definitely be mentioning it to him. Thank you so much for your videos. I will be watching every single one of them over the next few days. I honestly didn't know that other people with CRPS have been experiencing a lot of the secondary symptoms that I have. There's no way I can express the gratitude i feel for you and your channel right now. I deeply appreciate this.

[@TheCRPSNetwork]

Awwee...thank you!! And I am so glad you discovered how skin lesions can be a result of the CRPS. CRPS affects us in so many unsuspecting ways, it's hard to know all the different complications. There is a CRPS specialist by the name of Dr. Philip Getson, from NJ. He is one of the most knowledgeable doctors concerning CRPS in the country. He has a video which he discusses all the complications, and a couple that took me by surprise. It's a really good one to watch! kzbin.info/www/bejne/mGTXg6qabLpopNk. Also, I forgot to mention in my video that I have heard cryotherapy is supposed to be helpful for skin lesions too.

[@dhebert111]

@@TheCRPSNetwork Thankyou very much. You're doing something great here. I really appreciate the understanding. It's frustrating that even alot of Dr's outside my specialist's are unaware of CRPS. The worst was a physio assistant that did not accept or believe that the spot on my shoulder was as severely sensitive as she was told; so she decided to poke me twice. I went into a full blown 10, had to the Hospital and it took days to interrupt that signal. Those "accidents" happen to me quite a bit. Honestly I see a psychologist on a regular basis who has a doctorate and specializes in CRPS and other chronic pain illnesses. It's hard to live with, really hard. I count it as a win just making it through one more day. I appreciate a good day more than most and I believe that to be a blessing. Sorry for rambling, I just wanted to say thanks and I'll check it out.

[@wesnorthcutt639]

I"ve had CRPS for 18+years, 3 years after the onset, my foot swelled up like a watermelon with toes, then in the hospital, during PT I twisted the hell out of my ankle, soon after my foot turned black, then it spread into the other side and left not lesions that come and go, but scars up to my knees on both legs...AND ALL THIS HAPPENED IN A MEDICAL ENVIRONMENT...wtf????

[@TheCRPSNetwork]

I'm sorry to hear about this. I know 2 other CRPS warriors that have had a terrible time with both of their legs being affected with non stop infections from their knees to their toes. One of them was helped by taking Augementin (antibiotic) and Emu oil with cbd in it.

[@donaldturcotte9734]

me too twisted ligaments during physco.

[@abigaildawn2996]

I am in Australia and have been battling ulcers that drs here who don’t understand CRPS don’t treat properly and don’t believe are connected. Would love any help anyone could point me to, I’ve become desperate lately 😢

[@TheJustonemore]

Mine even start with a different shoe,

[@donaldturcotte9734]

swelling in both legs are very itchy!I quess this is sensory..I remember years ago⬜I asked my dr.Years ago. because i would scratch and scratch from neuropathy and the itch never go away nnow i use anti itch from aveeno.When i write i have a twitch as you can tell.My rsd came about right after my spinal surgery for severe spinal stenosis, and sponylolisthesis.I had to wear a stryofoam back bbrace for 3 months.My legs are double tthe size they were before surgery.Alot of back pain still.My fusion was from L2 TO S1.After that 1 yr.Later hip replacement then 3 weeks aafter severe left ffoot pain, swelling,hot to touch compared to normal foot, more red too.The dr. on call said rsd.My orthopedic surgeon never once mentioned rsd,,or my g.p.or a neurologist.They should know. I was in a wheelchair the last year of visits because of the foot pain.only one dr. took both boots off to compare.my p.s.w. was the one that noticed the heat and observed the different colours.I also need my knee replaced and the oother hip done'.I am scared tto death !!!!Take vitamin c next time is that it?I live in ontariio,Canada.I am not able to take any anticonvulsants or any other nerve medicine because as soon as i do it slows down my bladder.Now ii have to take narcotics wwhich help abit but been on it for 20 yrs because of chronic pain.Baacloven orally doesn't help much.Canada doesn't use ketamine why?But my kids tell me that its on the blk. Market here.The pot helps for sure.My severe pain started when i was 30.I just turned 65 last week.I have 6 grandchildren and 1 gr.grandchild.i stopped smoking cigerettes 5 yrs. ago.can you run something on bladder problems.i have had neurogenic bladder since i was 30 and now i have lots of accidents.i have to start interment catherization.the doc says my loss of bladder is part of rsd. but i am not seeing much on it.first i thought maybe it was cauda equina.any info would be great.i am waiting for physco at the hospital but my pain med is not helping.nothing has changed regarding the pain and i won't take any anticonvusants because it produces severe urinary retention.i thought maybe a pain pump because of my age and i have been on the fentanyl patch for 20 yrs now.

[@donaldturcotte9734]

ii am joanne my hubby is Donnald

[@donaldturcotte9734]

I have a rash and sores for 2 yrs.Gets worse and gets better.Aveeno helps but I will try sone antibiotic creme on the sores

[@richardstanleymaness5768]

Have had CRPS for at least 27 years. I have skin flare-ups that cover my whole back and are very sensitive and painful. Have pictures but don't know how to send to you. RSM

[@TheCRPSNetwork]

You can always email me at [e-mail] 👍🏻

[@kimberlymedvedis5817]

Hi! I believe I have CRPS. I have all the classic symptoms, and I've had this for a while now. How do I bring this up to my doctor? Usually I'm diagnosed with things & told I have XYZ, but never asked my doctor if it's possible I have a certain condition. I do have many other disabilities/ conditions which can cause chronic pain. But CRPS seems to match the missing pieces of my complicated puzzle

[@elainegarrow8528]

Kimberly Medvedis it took years before I was diagnosed I’ve had CRPS in my right foot for 18 years. Ask the question do I have CRPS and most doctors (unless pain doctor) will say what’s that. I have to educate my GP every time I go. Good luck

[@doublehelix1185]

I dont believe there are any RSD Specialists that accept Medicaid/Medicare. It isnt taught in medical schools. During the first year I was turned away by 6 doctors. Many tears came from that. Mine will be 18 years in March, 2020. I am having Gastro complications etc. I use a wheelchair. Its my left foot from sciatic nerve damage. Arent we lucky lol?

[@TheCRPSNetwork]

Kimberly, sorry for my delayed response. I would first check to see if your doctor is knowledgable about CRPS, many are not. You may want to see a specialist to evaluated. It takes on average of 5 years for someone to get diagnosed with CRPS. It is very often overlooked or misdianosed. The temperature difference between two limbs can be a real tale tale sign.