Living with dementia

In this film, four people with dementia share their insights and experiences of living with advancing dementia. See SCIE's dementia resources: www.scie.org.uk/dementia/
Staying active and eating well matter greatly and can help a person live well with dementia. Behaviour, learning disability and sensory loss all have an impact.
From the Social Care Institute for Excellence: www.scie.org.uk/

[@jamestemple6059]

I want there to be cure for dementia so, so bad. I feel so sad because I miss my mom so much. She's still here physically, but she's not always here mentally. She's so different now.... she suffered through encephalitis and meningitis while on a trip in Hawaii and she hasn't been the same since. She has been diagnosed with having dementia. I wish we had more time. She's only in her forties and her life before all of this was just taken from her. I am 15 years old and it has been almost a year and a half since she got sick. I visit her every Saturday, but it hurts to see her the way she is. I love her very much. *Update - November 2021:* Thank you to everyone who has taken the time to read this, as well as for the thoughtful comments! These last 7 years have been long and filled with many ups and downs. Unfortunately, my mom’s health began to decline both gradually and in sudden bursts as her condition inevitably progressed for the worse. I am sad to inform everyone that she passed away two months ago at the age of 51. On a final note, I urge those who are struggling-whether that be with grief, loss, or overall mental health-to reach out. You deserve to heal and thrive.

[@littlepig2226]

+James Temple im very sorry to hear this. Im 17, and i cant imagine what this would be like, stay strong xx

[@jamestemple6059]

+Jaimie M Thank you, darling

[@ghoul1713]

I am so sorry to hear that man . I cant imagine how this would be like ... Stay strong !

[@jamestemple6059]

Ghoul 17 Thank you very much :) I can't believe it's been nine months since I posted that comment and kind people like yourself are still messaging me! I really appreciate it. Although these past nine months came and went, I have to say that my mom has been pretty stagnant in her progress. She's gotten better with some things, worse in others. I'm just glad the situation isn't worse than it already is to be honest. But anyway, I hope you have a wonderful day :)

[@adamrickguerra2576]

much love brother, I had underwent a massive head injury when I was 12 and I am strangely forgetting things...I had been researching more and more about all this, I hope that you are doing good. I will pray for you.

[@noblestor8089]

Barry is a fucking trooper, living 15 years with it and still being able to articulate how he feels

[@RealValkor]

I'm happy for him, he's being able to kind of control the disease, not many can do that.

[@mariamoon2527]

It just depends what part of the brain is damaged.

[@deezy81]

Did not even know that it was possible to live that long with it.

[@KenzieNHammerly]

@@deezy81 I know. I thought most people only live with it for 10-12 years but man, 15 YEARS, and he can still explain his feelings

[@deezy81]

@@KenzieNHammerly He is one of the fortunate ones

[@patrickjohnson1107]

this is the saddest shit i've seen. they need to have a cure for this

[@davidstewart58]

People that play Chess do not get this incurable disease.

[@general_-rt4bt]

@@davidstewart58 not necessarily. That would be dumb

[@jugemujugemugokonosurikire4735]

@@general_-rt4bt Actually, according to some researches, people who keep their minds active as well as people with higher levels of education have lower chances of dementia. Not 0, but it's lower.

[@koofusdoofus3265]

indeed peter griffin's pants

[@freddyfastbearNZ]

..... there is no cure

[@Lisarata]

My mom's coming down with that. I don't know if she can feel that we love her so much. Wish she could have her best possible outcome.

[@Lisarata]

Actually, she is doing better thanks to my sister-in-law's care about her medication and my brother making her living conditions warmer and stuff. She complained that her bones were breaking, for example, and they found that she has arthritis and got her a better painkiller. They found that her sleep meds were wrong, tried a new one, tried another new one, and now she's having so much better days.

[@alberteinstein3078]

How is she now if you dont mind me asking?

[@allanultimate]

I hope your okay .

[@Lisarata]

@@allanultimate Oh, thank you. She had Lewy-Body dementia, and then she broke her femur in a fall, and couldn't recover. She died in 2017 and I got to be there. It really sucked, and then she got to cross over.

[@Lisarata]

@@alberteinstein3078 She crossed over in 2017.

[@katieloveskittys5938]

My grand mother has this and she lives with us.. she is almost def and she cannot walk. They said she would die last year. But she is still alive today.She is a true blessing. Yesterday was her birthday.. 😇

[@mattc41421]

Katieloveskittys what age is she? if you don't mind

[@killuazoldyck2630]

How is she?

[@jugemujugemugokonosurikire4735]

How is she now?

[@nuramire9983]

Hope she gets even better, you must be doing a good job caring for your nan. well done

[@chimaera2611]

She's likely dead now. Sorry, but thats just the reality of the situation.

[@Blade56762]

Judy... what a wonderful woman. Even as she is so deep into the dementia her sense of humour pops up it's head ... "I know who I am.... got that one down!" ... lovely brave soul. What a horrid disease is dementia but the more I learn about it, the less I fear it. With understanding and knowledge there is no need for distress or fear, and happiness is still possible. I hope there will be a cure and/or prevention some day soon.

[@Microwave_404]

I feel so bad for her. it just makes me feel so sad because she wants to do thing but now she cant and she thinks about what she should've done before and it's really sad to me.

[@donnaburkley8250]

Do you really want peace in your life or home or are you tired of going through traumas in your life, Dr Egwali is here to help bring back peace and happiness into your life, it all depends on your level of positivity and how determined you are to make things work because they both matter a lot. Talk to a reliable spell doctor today and be rest assured it is going to be fine.. WhatsApp, Telegram or viber on [phone].. Facebook/facebook.com/Dr-Egwali-HerbalSpell-Home-104943231946675 /

[@gloriamaryhaywood2217]

@@Microwave_404 Absolutely. It's very sad. I know this horrible disease on a personal basis. Watched a lovely woman lose everything that makes us independent and gives purpose to our lives. It's a pitiful way to live and a pitiful way to die.💔💔💔

[@Jeff_WeedEater]

Do you know who else has dementia?

[@Jeff_WeedEater]

@Jonathan Thomason do you know who else has ms and alzheimers? MY MOM WOOOOOOOOOOOOOOOOO

[@axis6782]

Cherish who you have. Usually I'm a pretty selfish person, but I've come to realize that you need to hold on to what you have for as long as you have. My grandma, my second mom basically, is far gone from dementia. Please please please cherish your family and loved ones. :)

[@laghmanikhan564]

Axis rff.

[@shotalen13]

Same

[@tremoney23]

facts

[@Miscopy]

lol

[@Jeff_WeedEater]

@@Miscopy "hey skips, do you know who else has dementia?"

[@paulaann7952]

i work with people who have dementia. i'm a carer. it is such a heartbreaking condition. i hope and pray that there will one day be a cure. until then, i will continue to devote myself to them

[@topshiba293]

Paula Ann If we could find a prevention... we wouldn’t need a cure. My mums had it now for 8 years and I find it hard seeing her the way she is. It’s people like you that deserve much more for doing such a demanding job.💋to all the carers.

[@electrosuze]

God bless you Paula. You have the most important job in the world, and one of the most undervalued. I will continue to devote my life to you and all the other carers. Thank you for everything you do.

[@TimoteoDeBaum]

❤️❤️❤️

[@dinidusamaranayake3266]

God bless you 🙏

[@deezy81]

Nice dog.

[@justinherring2959]

This is a disheartening but honest documentary. I can see the pain in their eyes-- how they don't want to hurt their loved ones but they can't do anything.

[@adamt6505]

My grandma has this illness. Today was the first day I visited her in 4 weeks as I’ve been away with the navy. When I walked her home she said she didn’t know who I was. This really played on my heartstrings as usually I visit here every 2-3 days and she knows who I am quite well. I don’t have much more to say about dementia...it’s truly an awful thing

[@bridgetrice7485]

As a caregiver to currently 9 residents with this awful disease... they do have moments of clarity. Hang in there and visit as often as you can. Sing to her... apparently music is stored everywhere in the brain. Don't give up on her.

[@bretlouden7965]

@Gay-sey Are you suffering from dementia and need urgent cure then WhatsApp [phone] for urgent help and solution to your problems

[@popsiclestick]

@@bretlouden7965 STOP FFS

[@bretlouden7965]

@@popsiclestick what do you mean by that

[@killersg.8290]

How’s she now?

[@rockycampanella1211]

Just lost my mom to this horrible disease this morning! She took her last breath at 5:14am on Nov 21, 2021. In her case, she went in to hospice 5yrs ago. Dementia took away her ability to walk, then her ability to recognize, then after 3 strokes, her ability to eat, swallow and ultimately her ability to breathe! Terrible thing to have to witness your parent take their last breath! Rest In Peace mom! I will see you on the other side one day.

[@rodkirkbride2230]

💖💕❤️💖💪🙏

[@e.j.thomas9994]

I lost my mum to vascular dementia on boxing day 2021, and her older brother on 15th January 2022 to Alzheimer's and Parkinson's diseases. (And Delta Covid took a good friend of mine on 19th December 2021.) Mum was still locked inside her 76 year body, but at the end, she was totally helpless. She passed in my arms, at 11:15pm on boxing day night, at home. Seeing my mum and best friend fade like that, and knowing that there's nothing I could do to make things right again, has left me devastated. Every time I see the advert for the Cadbury's big Easter egg hunt, I wish I could hide an Easter egg in heaven for my mum to find, so she'd know for sure I'd not forgotten her. I'm lost without my mum. The worst thing for me was seeing Mother's Day adverts, and remembering that I don't have a mum any more.

[@jab6451]

❤ 🙏

[@jobee525]

I work in a memory care unit and I’m seeing all walks of the dementia life. From the people that are just diagnosed and still trying to understand the diagnosis, then to the people that we fully care and do everything for. Rest in peace to your beautiful mother❤️

[@triptithaverdasani7898]

Same happn with m mon 😔😪😪she was not able to get she wa in bed in hostal was not speaking not eating she gave her last brth on ventilator my mumm my life my jannn she was my alll 😪😪😪😪

[@louisianna5524]

My darling dad passed away yesterday Devastating R.I.P MY LOVE XOXO 💜

[@user-pf7qg9lc6p]

Jazzy An Kazzy Krazzee i am sorry to heard that but no worth to cry for that, we must continued own lives anyway, we have work to do here, let fathers rip.

[@gaminganimals6868]

Jazzy An Kazzy Krazzee sorry

[@kturob]

R.i.p

[@willmorley5859]

Jaine, God bless you, are you still missing him badly...

[@billiembadjie9668]

Jaine Chapman Sorry to hear that, condolences to you and the family. Raw as it must be now, try and get some comfort that he is free of all that pain right now. He’s happy and at peace in heaven. God Bless you all xx

[@bythebooksgaming2721]

This is the one disease that genuinely scares me slowly losing yourself to the point you can’t even remember to breath or eat

[@bretlouden7965]

@Gay-sey Are you suffering from dementia and need urgent cure then WhatsApp [phone] for urgent help and solution to your problems

[@c_01m26]

You can't forget breathing. It's an automatic mechanism and has nothing to do with "remembering to do it"

[@kiiiko2227]

@@c_01m26 that's how most people die of it, do your research. well.blogs.nytimes.com/2016/04/05/ask-well-how-do-you-die-from-alzheimers/

[@MarkyMarkTeamAmerica]

@@c_01m26 thats not how it works...the way it works is the lung, as in the organ itself, stops functioning because the brain sending signals to the lung to do its thing, doesnt anymore. So without yoor brain sending signals, the organs are useless and dont work at all. Hence, why brain death occurs and the organs stop working. Think about a gun shot. A headshot or shot in the brain is the only shot that can kill you instantly. Getting shot in the throat, heart, liver, etc, you never die instantly....if the brain goes, EVERYTHING goes with it. This is also why people with dementia usually just go to the bathroom whenever and whereever they feel like. The colon stomach bladder etc is not working how it used to. I can go on and on but yes thats how it works. Not as automatic as you think. I know this because I work in a dementia ward and with neurologists aka brain doctors...

[@Worms2pl]

@@MarkyMarkTeamAmerica can u get a link to your workplace domain? where you worked alongide neurologists?

[@luckyotter623]

This is absolutely gut wrenching. Love and blessings to anyone reading this who has a friend or family member suffering from dementia, or has it themselves.

[@SmashHDD]

You know what else is gut wrenching?? My hot liquid shit in the toilet

[@thatonequeergundamfan71]

@@SmashHDD okay stfu

[@SmashHDD]

@@thatonequeergundamfan71 mad

[@thatonequeergundamfan71]

@@SmashHDD pretty much because no.1 we didn't needed that no.2 we are serious here and you are just trolling around no.3 why did you have to comment that garbage!!!!!!

[@donnaburkley8250]

Do you really want peace in your life or home or are you tired of going through traumas in your life, Dr Egwali is here to help bring back peace and happiness into your life, it all depends on your level of positivity and how determined you are to make things work because they both matter a lot. Talk to a reliable spell doctor today and be rest assured it is going to be fine.. WhatsApp, Telegram or viber on [phone].. Facebook/facebook.com/Dr-Egwali-HerbalSpell-Home-104943231946675 /

[@darku878]

This was uploaded almost 7 years ago, they must be dead by now from this horrible disease. God bless their souls.

[@editor.nightx]

Yeah god bless 🙏

[@-HolySpiritDove-]

May they get their memory & functioning fully back in Heaven 🌻🌿🗻⛅️😇✨💫

[@rwooshmeifurgeylol1828]

May their souls rest in peace and love

[@rio.escobo]

Indeed may they be Blessed.

[@nakajimasyntaxx6924]

@@-HolySpiritDove- sadly it wont because it wont heal its "god's plan" Afterall :)

[@emilytallent9677]

“I used to do alright one day, but… it seems to get a bit harder and harder every year.” :( broke my heart. sending nothing but love and peace for those who have dementia & Alzheimer’s as well as their loved ones.

[@austinhuntsberger5957]

Even with dementia she still had regret for the things she didn’t do. If there’s something you want to do. Or something you want to experience. DO IT! Even if you know it’s a bad idea. Stay smart and learn your lessons. But whatever you do. Don’t leave room for regret when you can’t do those things.

[@Nabooru956]

Dementia doesnt take away a persons identity. Like Judy says, its always been her. Shes always been in there. What Dementia does is take away peoples ability to express themselves, which is arguably even scarier. Slowly you start to lose all the ways to show others what you experience.

[@danzig159]

No man, I'm going through it with my mother, it takes everything, including your identity.

[@rodkirkbride2230]

@@danzig159 And it robs your entire soul if you're the carer.

[@danzig159]

@@rodkirkbride2230 It's trying to, but I'm still me and I'll still be me after it's all over, my soul will remain intact, bruised and battered but intact. We have to realize, we all gotta go, whether it's fast or slow and most of my friends have already lost their parents. Acceptance is a big part of keeping it together.

[@rodkirkbride2230]

@@danzig159 Wise words.

[@innda6]

@@danzig159 acts 💯💯💯💯

[@alm5816]

I’m currently living in a nursing home and rehab facility recovering from a stroke and watching some of these ladies with dementia can be so heartbreaking, my neighbor yells”help”24/7 but I watched our nurse go to her a few weeks ago and talk with her, never heard this woman say anything other than “help”. The nurse said “I love you, Kay!” And Kay said it back to the nurse, then the nurse blew her a kiss and Kay returned the gesture. And it was so very sweet, the following week was nurse appreciation week and I wrote her a letter of how I witnessed that beautiful interaction and told how she is a beautiful person and how happy seeing that made my heart feel, the letter ended up making her cry...or maybe because she is like 5-6 months pregnant

[@gloriamaryhaywood2217]

You are a very beautiful person yourself!!💜 How are you doing these days? I hope that you are fully recovered from your stroke?🙏

[@Jeff_WeedEater]

Do you know who else is living in a nursing home? MY MOM WOOOOOOOOOOOO

[@message2612]

You seem like an amazing person, I hope your health is recovering well, we need your sweetness in this world ❤️

[@bobby6427]

It’s so weird how we age then some of us end up just like we were when we were babies

[@thecitizenoftheinternet1077]

I know right

[@deezy81]

Once a man, twice a child.

[@COLLECTORSCORNER1979ANT]

It happens more with people who don't really have any hobby/interests and or try to occupy there mind with anything atall.the brain will just give up. :-( my mum has dementia and this is exactly the case with her.

[@tinyred4512]

@@COLLECTORSCORNER1979ANT What do you mean???

[@VVabsa]

@@tinyred4512 The lack of stimulation on early stage dementia will speed up the process, You won't have to worry in your younger life (up to 50 or so) and being healthy.

[@billiembadjie9668]

Such a sad disease. God bless them all

[@ab3ki84hayate]

"Everywhere at the end of time" repeating over, and over, and over again.

[@ramaprasadpadala1541]

How did 38 people feel like disliking this 😡😡😡😡😠 and 38 dislikes sitting on couch. These old people are sharing their problems and it saddens to see them struggling with their old bodies 😞😞😞😞. May lord give them best of the life till the end. Amen. Be strong 💪💪💪. May lord protect and watch those people.

[@ramaprasadpadala1541]

Lord give them strength, happiness and love with whatever life span they have. May God bless them ❤. Care !!!. Watch over them.

[@SmashHDD]

My liquid shit got all over the phone and posted this comment.

[@jcproducktions2158]

@@SmashHDD epic gamer moment

[@seth6525]

@@SmashHDD are you trolling?

[@SmashHDD]

@@seth6525 No, I accidentally got some shit on my phone cuz it got on my fingers and it was a lot of it so I had to wash my hands for like 2 minutes cuz I don't want to shit to stink on my fingers.

[@anthonyjackson6128]

I take care my grandma on daily basis and dealing with this disease is by far the hardest thing I’ve even done .. I feel so bad for her , some days she’s just so lost .. pray for her !

[@reunbearreid2177]

That touching scene between Judy and her daughter Brought me to ears :'(, my mom has recently been diagnosed with a rare form of dementia as she is only 53. Everyday is a struggle as my mom is very low and carnt come to terms with being diagnosed with this condition. It's so nice to see someone who understands what it's like to care for someone with dementia as right now I feel alone. I will always be there for my mom and the joys on these people's face round their family's make me string enough to look after my mom too so thanks for this upload xx

[@frankyang7073]

X Txiv frank koj mus li cas lawm? Kuv cia siab hais tias neb mus kaj siab lug o Koj tus tais hluas hu tuaj thiab hais tias kom neb los mus txog teb chaw laoms ce hu mus rau nws thiab yuav nrog neb tham txog yawm txiv uas nyob tid tsev os

[@e.j.thomas9994]

Nobody who HASN'T had to live through this hell, can possibly hope to understand just how devastating it is to see someone who is your world, fall apart in front of you. The worst thing about it all for me, was that I knew I could do nothing to save my mum. Just 7 days before, I'd lost a friend to delta covid. (19th December 2021.) Then My mum passed in my arms at home, on 26th December 2021 at 11:15pm GMT. And then I lost my mum's older brother at 4:25pm GMT on 15th January 2022. That's 3 members of my inner world I lost in just under a month. I know I'll never get over this!

[@pathos7527]

Hope you’re doing okay somehow

[@HoneyLove40]

I wish there was a cure for dementia my grandmother has it and it's so hard to see her like this I pray to God for a cure

[@fabolousjada5070]

My dad has dementia and I sleep with him every night and hear all his childhood memories

[@Elizabeth-Mags]

We can only pray that we don't get this horrible disease. My grandma, her mum, and her mum and so on, got it and I have a 97% chance of getting it, so I'm gonna try and live my life to the fullest whilst I still can. 😊

[@niaxoxo5548]

🙁💞

[@donalddavis8620]

Sending you love for lossses and for yourself

[@message2612]

❤️

[@kingnaruto4life422]

L genetics also how old r u

[@lassmichruhe]

@@kingnaruto4life422 king Naruto, kindly grow up you child

[@louisianna5524]

My dad is in a beautiful nursing home with dementia and it breaks my heart when it happens while im there. Love him so much i just wish it never happened Great stories Thank you

[@lakuli7786]

"Everywhere at the end of time" is a 6h long music album that portrays what it is like for a dementia patient to live with it. It made me cry, it is one of the saddest albums i have ever listened. I can't even imagine how it is for these people living with this disease.

[@xaliimaxk2392]

@@tiimallen same

[@dallasprice4779]

I live with my grandfather. This video has truly helped me understand another reason to not be upset with him. To accept him and do my best to help him be comfortable.

[@nobodyaskedyouropinion6036]

It's just a burning memory...

[@tomasbandeira7206]

I guess we were both brought by the same entity

[@3manu3l_xd]

Damn, it truly does articulate and visualize what it feels like, a dread, a void. Its like a flower, the once blooming flower has decayed and widowed to its last remaining pedals. Its sad and unfortunate that many uncurable diseases still have no cure. But eventually we will be able to help those who need it the most.

[@GabesGoose]

Everywhere at the end of time...

[@StomachAcid]

:(

[@tgp12345]

get out of my head

[@ForgettingYourself]

Fabulous honest film - nothing glossed over but essential essence of each person 'shines through' Really communicates the sadness of the experience and the determination of the human spirit to cope. And of course the importance of others being supportive

[@sweetlady6645]

I work with folks with dementia too and mental disabilities - I can't imagine wanting to do anything else The rewards are enormous I'd love to be part of a team delivering end of life care - what a privilege that would be

[@jameshall2195]

The Caretaker- Everywhere at the end of time . A musical journey through the different stages of dementia. I recommend everyone listen to it if you want perspective on what it's actually like.

[@apocalypticblox2346]

That’s why I’m here

[@electrosuze]

Me too.

[@luckyotter623]

A brilliant and gut wrenching work of art. It's haunted me for almost five months now.

[@SmashHDD]

Getting freaky on a friday night YEA

[@danielpasfield1280]

I lost my great aunt to dementia, she may forget but shes never forgotten

[@airwolf276]

RIP

[@elrandombongos3501]

Everywhere at the end definetely helped us understand how dementia feels

[@Siddeo]

My body is going to betray me one day for sure..but I wish that my mind should never...

[@NSPIREDCAREGIVERBOOK]

This is so sad! It brings back memories of when I cared for Rose who had dementia. She used to say, "Peggi, my mind is all scrambled up" and "I am lost in space.' It is also very dangerous for the caregiver's health! We feel so many different emotions as well as feeling powerless. The Inspired Caregiver book was created for the health of the caregiver. It is a book to read and re-read bits of it when we need strength and inspiration. I almost ran Rose over. Someone was watching her while I drove to the bank to pay all her bills. On my way home, driving up the hill and around the corner, I slammed on my brakes. There Rose was in the middle of the street. Rose had made her bed look like she was still sleeping in it - and then she snuck out of the house. It was strange how slow I was driving up the hill. I just happened to be driving extra slow, and thank goodness I was! I hope they cure dementia soon! It is rising in alarming rates and this is unacceptable with all of the brilliant minds out there! Thank you for sharing a great video. I am amazed that Barry can actually talk about his dementia. Rose was not able to comprehend this. Cruel disease for both the caregiver and the patient.

[@K_Boogie4000]

The Inspired Caregiver Book Thank you for your comment I have been a Live-in carer for a dementia patient for some time now and it is nice to know that there are others who feel the same about this terrible illness . Seems such a terrible waste of such great minds . My client is amazing and I only wish that I could help more .

[@NSPIREDCAREGIVERBOOK]

You must be a wonderful caregiver, because you care about your client and you are watching youtube videos on the subject. I do hope a cure is found- and quick. I hope you take good care of yourself too. :)

[@MiotaLee]

I had meningitis a couple of years ago. The first symptom I remember is me trying to make a cup of tea, getting it all wrong. I grabbed the milk and almost poured it in the fridge. After I got back from the hospital I found a teabag in my toilet. I know it's not the same, but it affected my brain quite severely. At my worst point I couldn't speak. Even if I was lucid and tried to concentrate on saying the words all that came out was gibberish. I was so scared. I felt locked inside my body. Luckily I made a full recovery and I can walk and talk again, but I'll never forget that existential horror.

[@0w0est]

I lost my great grandmother to Dementia over 3 years ago. She was put into a carehome a few months before her death. I wasn't allowed to see her much in the home. I remember before she went into the home, she could barely remember who I was and she kept calling me my sister and my cousin's names. I didn't know she had it at the time, so I just brushed it off as her being old... god I was stupid. I wish I could spend more time with her.

[@glenn4ever999]

"let me live" is the most heart wrenching thing i have ever heard, Dementia is so terrifying and i personally know someone close that has some sort of dementia and its tough to watch. God bless these fantastic human beings for giving us the time to speak with them

[@epicpika11]

I am my grandfather caretaker and he has severe dementia, it's so so so difficult, I absolutely hate this disease, I'm just grateful I'm able to take care of my papa at the stage in his life when he really cant do it on his own.

[@chqrismaras5697]

A friend of mine's mother had a bilateral stroke and she survived, but survived with severe dementia...her living conditions are so difficult for someone so young and I just hope I can support her well enough to get through such a difficult stage in her life...

[@pcc38116]

I just lost my mother to this horrible disease at the age of 94. Just four years ago we celebrated her 90th birthday and she was as healthy as she could be. Two years later it struck her. It was awful watching her slowly slip away.

[@danzig159]

It's happening to my mom right now and I am her sole care giver. I am trying my best just to have her retain one single memory: our address. I never sleep properly anymore because I'm afraid she'll leave our apartment and get lost. She keeps thinking we live somewhere else besides where we have lived for 28 years. The problem, as you well know, is that trying to have her retain any memory is like putting paper boats with messages written on them onto a flowing stream which takes them away almost immediately. She is even starting to not to understand me when I speak to her, among many many other issues. She's been put on Aricept but it has only been two days so I am praying that in a couple months there might be some improvement, at least enough so that I can have at least one more real conversation with the person I always knew as my mom instead of this new person who looks like mom but really isn't. I feel like crying all the time and I'm what people might refer to as a "tough guy" or someone who appears tough, but I'm broken inside now and I have no other family.

[@xcchosendetermination643]

Currently, my grandma, who is 92 years old, was diagnosed with dementia a few years back. It is heartbreaking that she doesn't remember her grandchildren's names, or her children's. She starts crying all of the sudden, and when we tell her why, she responds she doesn't have any money to provide us since she is broke. In other occasions, she tells my aunts where is she and this isn't her house. I only get to see her once a year, since she lives in another country, so I don't have the opportunity to see her often. I don't talk to her at all, due to being an introvert, but I know now that I got to take every minute of chance with her and show she is loved.

[@olivias4152]

I appreciate the folks who took their time to describe their experiences.

[@Jerkwad152]

Poor Judy, I want to give her a hug so badly. 😭 It's not possible to truly understand what it's like, to have lost so much of yourself, and to _know_ what you've lost, until you're there. And then the cruel irony is, you can't really articulate it.

[@reneditss]

She reminds me so much of my grandmother.. she was acting the same as her.. she passed away this year, rip ❤️

[@asgard9374]

I'm literally crying my mom came in and see me in tears 😞 I wish the best life for those who have it

[@victoriaadawy3780]

I am goin to show my staff this video. Very powerful.

[@primroseinmypocket]

I’m going to help my mum not become like this, I’m 15 and she’s 44 I want to help her prevent this. I couldn’t bare to see my mother like this

[@spacecat3198]

Medicine is improving so by that time we should have a medication. I'm in my 40s and 2 family members had strokes and dementia and my mum had a stroke, mid 60s. Possibly looking at my own future. Enjoy your family now, when the future comes that's another story.

[@yogurtzephyrfog5499]

My gran has Alzheimer’s, she refuses to go in a care home and refuses to take her pills. She is just taking each day as it comes as she doesn’t want any help. I fear for her life 😢

[@wendyd9920]

Brilliant film, thank you.

[@awaffle_]

my grandma with dementia described having it as “feeling like I’m in the twilight zone”

[@Axle69e]

my grandmother is 92 & my mother is 63 both have dementia its hard to live with a person with it they Always hiding things & everyday is a blessed day to have them on earth with me

[@ostrich1006]

My grandpa has dementia and it’s so sad how quick things happen he was only healthy for a little bit of my childhood

[@hu1902]

I always come back to this video.

[@Ms.Tee65]

My Mom is living with this, We moved her in with two of my Sisters. We all take care of her including the grandkids. It’s hard but we make it and support each other. I feel for everyone who goes through this. My Mom lately has been seeing her dead relatives and she sees evil people on TV . She lived a full beautiful life and it’s so hard to see my Mom like this. Praying for All.❤

[@luckyotter623]

Caretaker/EATEOT stage 2: "I still feel as though I am me." Judy: "It's still me...it's still me." Poor lady looks to be well beyond stage 2.

[@bingbong_swimz7806]

My dad is young, and he seems to be experiencing memory issues. He randomly thought my birthday was in June one day (it’s in October) and he forgot about the essay I got a 100 on yesterday and scolded me for not doing it. He could just be under a lot of pressure, but I’m only 14.. my maw maw has dementia and she’s the last of my grandparents. I’m sorry to make this topic so dark, but we really shouldn’t make light of it anyway. Dementia is devastating and terrifying

[@bretlouden7965]

@Yacine Alimazou @Gay-sey Are you suffering from dementia and need urgent cure then WhatsApp [phone] for urgent help and solution to your problems

[@kennygaming208]

Please be paintent and don't take it too personal

[@taraalan1131]

@Yacine Alimazou Your dad is probably worrying about your grandparent , so don’t upset yourself. x

[@taraalan1131]

@Yacine Alimazou Don’t make your business public on You Tube. What’s wrong with you - and no reply required . You’re just attention seeking . Also , I was replying to the original comment and accidentally sent it to you- but you had the information wrong anyway , which is why someone recommended the dementia What’s App number .

[@averageWhiteMaleAGGCA]

I think your dad has only alzheimers disease.

[@janetvillalobos4035]

My mom has this and i feel like i’m grieving her while she’s still here Nobody understands the feeling nobody understands the loss I miss my mom and yes she’s here but she’s not my mom she’s just there 😢

[@whatever.3442]

i just want to hug Ms. Judy so much and cry...

[@imemilylawrence5483]

My mom is only in her 40s and I’m 17 and she’s coming down with dementia :(

[@willrodz8453]

Sorry to hear , may god give you strength to deal with this desease . God bless you and your mother . Praying for you

[@sheilagibson982]

Ok, I needed to watch this today, (was getting so discouraged)!

[@sugar-free-2centz]

I hardly ever cry from watching or reading sentimental things, but this was so heartbreaking to watch. I'm 35 and my parents are in their late sixties and early seventies, and I dread this ever happening to them. How sad.

[@sevenseven7990]

My grandmother had dementia and alzhimers and i watched as the woman who pretty muched raised me slowly became more and more confused and afraid, i wish i could say theres a happy ending to this story but there isnt, we couldnt take care of her and we had to have her placed in a nursing home and a few months later she died of a pulminary embolism, her last words before she died were " im scared" and that is going to haunt me every day for the rest of my life until i die.

[@madisondoe1883]

My grandad has dementia, it’s horrible to see him this way 😪 i wish there was something to cure this evil shit

[@clairemacauliffecarroll263]

My grandmother had a still birth, then had a daughter who died from pneumonia at six months and then she had bowel cancer, had to have a hysterectomy, and ten years after that, my grandfather died from cancer and then my aunt who had epilepsy died the same year my grandmother was diagnosed with breast cancer, and since my aunt's death she slowly started to deteriorate. Now, she's had vascular dementia for three years. Life has been so cruel to her and I hope that if there is a God, he will reward her greatly for enduring such a harsh life

[@traviscole4121]

Jesus. How the hell did ya'll's genetics make it to modernity 🤣🤣

[@priatalat]

Hang on in there, we'll always be there with you

[@blueangelic7956]

i dont have words, this is just proof that mental disorders can be up to worse than physical ones.

[@bretlouden7965]

@Gay-sey Are you suffering from dementia and need urgent cure then WhatsApp [phone] for urgent help and solution to your problems

[@capresti3537]

Dementia is not a mental disorder it's a neurological disorder with biological causes unlike mental illness that is invented.

[@Caringforcindy]

I'm amazed by the ability of these four people to articulate so clearly about their dementia. At first I thought they must be actors, as it is very rare to have this kind of vocabulary, sentence structure, and clarity of thought with dementia, but the description says otherwise. It was very brave of them to share their feelings. My mother went through a period of heavy depression during the time she was aware of what was happening to her brain from the Vascular Dementia. Those were the hardest days between denial and no longer understanding. While the dementia medications did nothing to help, an antidepressant has contributed a huge improvement in her quality of life and mine as her caregiver. We've used Extra Virgin Coconut oil for years, and have only seen improvement in her energy level and constipation. Really hope a major breakthrough is right around the corner!

[@mom-kq2ch]

my grandmother is my world my everything I hadn't seen her in 3years when I saw her broke out in tears 3days I cried she didn't even no me why will she ever

[@nadja973]

i pray that all these people live they’re best live and hope them the best🙏🥺💕

[@HarleyLilo1988]

I'm 32 years old and my mom was diagnosed with dementia, she slowly starting to show, it's scary because I don't have any brothers or sister my dad, not in the picture so but my mom has my stepdad but his health is not doing so well so its just sad cause the women i saw as a warrior and could take on anything is slowly starting to go, and its much harder cause im alone on this

[@jojoseven5911]

My mom has this too and is deteriorating rapidly. Its been an emotional month for us. I guess i am fortunate to have a great dad and sister for help and support but its so hard and it seems every day is getting harder just to try and feed her. God help us all PLEASE

[@sibbycooter9105]

@@jojoseven5911 My prayers will be with you. It’s a horrific disease that I wouldn’t wish on my worst enemy…

[@amnesia7077]

its so sad. people have listened to the album, and cried over it. but thats 6 hours long. these people have the experience a single stage everyday, even for years. people have lost people due to dementia. and its horrible. to live life, and then one day just... you cant remember anything. ever again. i truly hope we find a cure for it one day.

[@deli6562]

whoa hi i know you also yes absolutely, it's horrifying

[@amnesia7077]

@@deli6562 oh what thats crazy

[@deli6562]

@@amnesia7077 yeah

[@bretlouden7965]

@@amnesia7077 Are you suffering from dementia and need urgent cure then WhatsApp [phone] for urgent help and solution to your problems

[@amnesia7077]

@@bretlouden7965 wtf

[@shantereed]

My grandma was diagnosed with dementia and is hard to hear she can’t care for herself now and she raised me. She is definitely not the lady that raised me anymore. My mom has. a hard time even getting her to talk to me. The only silver lining is I got to spend time with her before the onset since I don’t go back to my hometown much. Thanks for sharing this.

[@BloodMoonASMR]

It's incredible how self-aware Barry and Olive are. I have a grandfather who's completely unaware of it. I was referred to as ’a boy in the house’ today. He used to have a bottle of wine nearly every night and it's definitely damaged his nerve cells.

[@michaelmccullagh2241]

MY aunti drank cider every day and was an alcoholic. I wasnt very clsoe to her. However she got dementia at 55 and died. Definitely the alcohol

[@brookg7636]

My great grandma Had it and passed away years ago. Now my grandma deals with it. Also, my grandpa is starting to get it as well. It's really sad to see my loved ones deal with it. I decided to take my experiece with loved ones dealing with it and I am trying to write it in the point of view of the person who deals with it.

[@ToonersUWU]

People like Judy really don't deserve this shit. I'm happy she still can recognize her daughter still loves her after everything

[@Will-cd1tl]

My grandmother came down with it just over 2 years ago. She's been starting to ask where her husband is, who passed away 18 years ago. She still knows who all of us are, but I know that it won't get any better. She's the toughest lady I've ever known, and I want to go down & see her every chance I can, even while I'm away.

[@theman4202]

My great grandmother has it thanks for the vid

[@noravi1149]

If you still have your grandparents or parents with you and you fear that they would have dementia or any worse. I want you to spend as much time with them as possible, it is worth spending every memory with them.

[@GygX]

it's just a burning memory...

[@nadinenorton8601]

Oh wow , I heard 2 or 3 years ago from My sister that they thought my mom was in the early stages of dementia but didn't really make to big a deal of it . So. since then I only thought about it during the 2 or3 times that I actually spoke to her because I could tell that it was starting to take effect just a little bit. Like she couldn't remember how old her grand son was even though she was the one who just finished raising him and allowing him to move out about 3 weeks before . She had to ask my stepfather how old he was. She told me that he was only 14 years old , but I said mom if he was still 14 years old you wouldn't have let him move out. Then she asked my stepfather and he told her that he was just about to turn 18 in a couple of weeks . After the last time I spoke to her , I kind of didn't think of it again. I ended up losing all of my social media accounts and didn't have any way to get in contact with her until I just bought a phone 2 weeks ago. Last night around 5:00 pm I was talking to my to my niece on Facebook and she let me know how different my mom had become . I instantly felt an enormous sadness and cried. You see I can't be there for my mom because she lives in Alexandria , Ontario and I live in Vancouver BC. I definately can't afford to buy plane ticket there and back or even one way. From the way my niece was talking she may have already forgotten who I am It hurts sooooo bad🛩️❤️😰

[@bretlouden7965]

@Gay-sey Are you suffering from dementia and need urgent cure then WhatsApp [phone] for urgent help and solution to your problems

[@nadinenorton8601]

@@bretlouden7965 I'm sorry 😐 I'm not very computer savvy. I'm not exactly sure what you are telling me to do should I punch the WhatsApp in

[@bretlouden7965]

@@nadinenorton8601 yes message me on WhatsApp for solution to your moms problem

[@iamjohnadams]

My great grandpa had dementia. He was the handyman of the neighborhood when he was young, but as he aged you could never tell he was that man before. It’s really sad

[@MrAndroidData]

she said "just to be here" talking about her family, i lost it at that point, bless them all

[@koorita69]

After all it’s just a burning memory...

[@DearPanda0813]

I can’t with this right now

[@donnaburkley8250]

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[@britmorris7937]

I take care of my nanny on the weekends she has dementia it is the hardest thing I've watched a family member have. I hate it for her, I hate it for my family. There should be a cure it is almost to much and it's not my battle but it feels like it, I can't imagine how my aunt feels having all week care.... I hate these desease.

[@bretlouden7965]

Are you suffering from dementia and need urgent cure then WhatsApp [phone] for urgent help and solution to your problems

[@cubeman3352]

my grandpa got diagnosed with dementia and died 3 months later i did not know people could live this long with it

[@missagente8100]

My maternal grandmother suffers from dementia. She’s unfortunately notorious for stealing some of my and my mother’s things. Because of this my mother and I have had to put locks on our bedroom doors and put what we can out of my grandma’s reach. She’s not always like this; other times she’s laughing and being silly with my grandpa and shows that she loves me and my mom very much. Once, I hadn’t been feeling good at a hotel and when I came home the next day she was genuinely concerned. She often needs help cutting up her food and a lot of reassurance when she worries about things she doesn’t understand. I love her so much, but the disease is very sad. ☹️

[@bansining5413]

It's tough to care for a person who is suffering dementia. My granny was diagnosed with dementia a few months ago and that I know exactly how painful it is. Throughout browsing time, I coincidentally unearthed a noteworthy website presents info about a potential cure to dementia.

[@brianna094]

It seems sick and inhumane to me that we keep late stage dementia patients alive, continuing to administer meds and shovel food down their throats. At what point do we care about what they want? Instead of answering for them and assuming they want to be alive and continue suffering. The reach the point where they can no longer communicate and if they want an end to their misery, they can't even tell us. It must be an absolute nightmare for them.

[@SexyFace]

maybe it is like that for them at first, but i imagine they reach a stage where they are no longer aware of the lack of awareness. it is probably hard to suffer when you dont even know you are suffering

[@michaelw.5030]

a lot of people with dementia are also suicidal. the second day i worked with people with dementia (I was 16 and had no experience or education) i had do sit next to a woman for an hour while she just kept repeating "i dont know who I am" "I want to die". sometimes it looks like they are saving up all of their energie so that they can tell us the one thing that they want us to know the most. and that thing is that they want it to end. people with early stage dementia can still live a happy live but for the later stage people, especially people in the last stage it just seems cruel that we keep them alive.

[@COLLECTORSCORNER1979ANT]

My mum has dementia.its really not easy to live with someone who has this horrible disease.my mum was angry enough before.but now she is on a whole new level.she has well & truly lost the plot and gets very angry about even tiny little things.even the very simplest of tasks have now become near on impossible for her to do with her just staring into space trying to work out how & what to do.she even somehow manages to slam soft close kitchen cupboard Doors and is constantly opening the oven door when she is trying to cook anything.she has now got to the point where she is getting very dangerous.we very nearly had a fire cos she left a cloth on the hob, luckily I was nearby to stop this happening. :-( She also forgets conversations just seconds after they happened.sometimes denying the conversation even happened atall.

[@andydogdixon1]

I’ve been diagnosed with the early onset of dementia. I am atheist, and I WILL NOT Allow myself to live in the late stages of this disease I have. Right now I am planning some wonderful vacations and trips, near and far while I can ❤️

[@benbrewer5853]

My heart and prayers go out to all of them my sister-in-law has a little bit of dementia sooner or later we'll probably all will keep your mind focused on Jesus

[@tjfreak]

This guy is fortunate,15 years & still have this capacity..I'm kind of waiting for my moms second death, the person she was what made here is long gone..everything ! death # 1 Whats left is the physical death # 2..I love who she was & will see to it she has everything & taken care of the right way..thats why it will be by me…it's beyond any kind of wordage to even try to capture the experience in words they fall way way way short.

[@Phicheee]

"second death" is not something I'd considered as a thing. It's eerie, ominous, and heartbreaking. I hope you and your mom find solace in the end.

[@wolfie7051]

My mom died of complications from dementia in January of 2022. It's a terrible disease that stole my mom from me. And I lost her before her body gave up.

[@icie4u]

I’ve learned so much about this disease. Get their Ferritin and iron saturation blood levels checked. Get scan of their liver sizes. Sometimes hidden liver issues can cause similar symptoms to dementia. May be able to lessen the symptoms if you find out soon enough.

[@andrewlemonaki]

Not really living, more so existing

[@bridgetrice7485]

They still have purpose even though they will probably never know. As a caregiver in a home... I've become much more patient and have learned to be more positive every day. If they only exit to help others do the same... at least that's something I guess. Still so heartbreaking!!