Reminds me of the man with an iron lung. My heart goes out to her, makes you feel grateful for what you have.
@claudiarobinson5872 ай бұрын
I don't know if you know but he died a month or two ago. He was amazing.
@simonebittencourt82512 ай бұрын
The same thought came to me. Both of them, extraordinarily inspiring human beings, such positive and loving souls.
@DJBallistic122 ай бұрын
@@claudiarobinson587yea 😢
@YaeGalvus2 ай бұрын
Yeah but he only got the iron lung cause of having polio
@watermelonwishes41932 ай бұрын
@@YaeGalvus Yes-that 's what they invented it for. Paul Alexander was amazing. I binge-watched videos of him a few years ago and learned that he was a lawyer. I was so glad that he was able to live his life to the extent that he did. 😊
@nathanempty2 ай бұрын
holy shit this woman is so much stronger than most people who have ever existed
@Uteria_8882 ай бұрын
You're telling me! 💀💀
@salzburg182 ай бұрын
She's incredible ❤
@chiboy_speaksАй бұрын
No lies told😢
@sidrathompson9520Ай бұрын
You took the words right out of my mouth. Godbless her and mom
@sorrowinchrist338715 күн бұрын
Cause of her family being there for her with out them she and all of us in the same position will crash.
@saftis53042 ай бұрын
She said "obviously I'm adopted" right after I thought that they look so alike❤
@Patrycja1492 ай бұрын
had the same exact thoughts!
@feefkeef2 ай бұрын
thats what i thought too!
@audsrose2 ай бұрын
same here… she looks just like her mama. beautiful ladies. 🩷
@stellasullivan1102 ай бұрын
Thank you great interview. ❤ Much love
@JodeanCarlson2 ай бұрын
Yes, I agree she looks like her mother.....
@Peelios2 ай бұрын
I have FOP too, and have met Ashley several times. She's amazing and a wonderful soul. This disease sucks but you've got to make the best of the life you're given. Her mom is incredible just like mine. Love you, Ash, hope to see you again soon!
@olivedog18802 ай бұрын
🤟🏼🙏🏼❤️
@e.delano72852 ай бұрын
❤
@jessicahagard81852 ай бұрын
❤
@xChimkin2 ай бұрын
bless you
@hoosiermomma72 ай бұрын
❤ God Bless you both
@VincentGroenewold2 ай бұрын
The thing I find so sad is that the answer of everyone on this channel is always; "I'm just a human being". Which means many people, apparently, react negative on their appearance in the general public.
@mistydayremainsofthejudgment2 ай бұрын
people with disabilities get stopped and asked/told the most ridiculous, rude things in public. it definitely feels dehumanizing.
@yoshisarethebomb2 ай бұрын
And the fact that disabled people existing around people makes ableists rage, and they’ll say “You’re inconveniencing us” and “Just stay home”
@RogueWave20302 ай бұрын
Absolutely. She is a human being and nothing but.
@Madamegato2 ай бұрын
Not to mention the people that always want to offer "helpful" advice, as though your doctors know nothing. And then they'll caveat that the know someone who had something kinda like sorta what you have and they took vitamin A and cured it. Well meaning, but oh so unhelpful and demoralizing.
@kodakoala2 ай бұрын
Yah I used to work with adults with varying special needs, people need to take a damn class in high school that introduced them to people that are different. The ignorant poor behavior from adults when we were out always floored me. I think this channel is great and I appreciate all they do!
@fmt_Guåhan2 ай бұрын
She's your *FULL-TIME MOM* ...I was blessed to be a *FULL-TIME MOM* when my eldest son became paralyzed and bedridden after he fell ill with bilateral pneumonia at age 31, fell comatose for a month on life support and awoke a month later - paralyzed from the chest down. I immediately quit my job ( I had retired 6 years prior and started a 2nd career with a community college) and became a *FULL-TIME MOM.* God allowed me twelve years with my beloved son, even after doctors told me to take my son off life support (they said he was brain dead) when he was in a coma...but I refused since we had just lost his father to cancer three months earlier. I miss my son tremendously...but I relish the 12 years of memories I was graced with in being a *FULL-TIME MOM* . ❤
@Purpie_Slurpie2 ай бұрын
"full-time mom", I really like that phrase
@cindypowell6358Ай бұрын
God bless you. You’re one very beautiful soul for sure & your heart is so loving. I’ve lost so MANY loved ones including my mom & sister both only 4 weeks apart. My infant brother when I was only 8yrs old. Life is definitely challenging. I can honestly say love continues to grow more inside me, regardless of all the pain & tragedies I’ve endured. God reminds me he’s got me. I miss my mom beyond any words. She was my best friend too. Her daily hugs were everything to me. I know your son cherished EVERY SINGLE MOMENT he had with YOU without a doubt. Much love to you. 🙏❤️🙏 ♾️
@sharondoan144710 күн бұрын
Thank you for sharing your story with me. I am so happy that you were healthy enough to be that full time Mom your son needed. Beautiful memories. Fulfillment .
@mirandastephens45869 күн бұрын
@@fmt_Guåhan thank you for sharing this.
@mirandastephens45862 ай бұрын
She said "obviously I'm adopted" but when the mom first came on screen I thought they looked so much alike.
@annerobards30782 ай бұрын
I agree! And Mom is also so beautiful❣️ 🥰
@WendyFilice-p9i2 ай бұрын
I thought the same thing. 😊
@helenhines27122 ай бұрын
Why did she even have to mention that she was adopted? She is your mom, period!! Your biological mom was just an egg donor.
@kwiatowska2 ай бұрын
Me too. They definitely appear very similar.
@Mary-momof82 ай бұрын
Me, too!!😊
@SuperSpooky2 ай бұрын
Soulmates dont always have to be a romantic thing, these two were destined for each other.
@lornarettig321523 күн бұрын
What a lovely thing to say ❤
@fraserkatie2 ай бұрын
Awww Im so glad to see Ashley again , even if she is bedridden now. Bless her.
@amritheamriandshermanshow77772 ай бұрын
What was the other vid with her in it called
@fraserkatie2 ай бұрын
@@amritheamriandshermanshow7777 It will be on here on his bio.
@elainenicholls76482 ай бұрын
I would also like to see that video.
@arneedlund85122 ай бұрын
@@elainenicholls7648me to
@annasala9572 ай бұрын
@@amritheamriandshermanshow7777, she was on an episode of Mystery diagnosis
@mercedezkenzz2 ай бұрын
For a lot of my patients, “care partner” instead of “caregiver” feels more positive and emphasizes least restrictive care ❤
@cbgbstew40722 ай бұрын
Never heard this term before, but I love it! Thank you for sharing ❤
@BrightSoul7362 ай бұрын
Thanks!☺️
@YuBeace19 күн бұрын
I like that, because it implies that you also care back, perhaps in a different way, but it signifies you’re in it together.
@DrakulaBambaataa2 ай бұрын
I’m in bed pouting like a child over the end of a bad relationship and you’re remaining a smiling bad ass! You are amazing.
@blackavar57232 ай бұрын
Your pain is also valid, friend. I hope that peace and comfort find you in this time ❤
@hilariecalijo46432 ай бұрын
It’s ok for you to be sad. You can’t help how you feel . I hope you feel better soon .
@NicoletteLeeNoble2 ай бұрын
Right? Great reminder of perspective
@elizabethstephens88012 ай бұрын
I feel that! I bet it takes a lot of time and resilience to get to where she is now
@lavendardust2 ай бұрын
Emotional pain is a horrible weight to carry. You have to grieve, it's part of the healing process.
@mandyb22452 ай бұрын
This woman is the definition of "look on the bright side". She's awesome!
@HappyT1112 ай бұрын
Ashley, the most positive person ever with a beautiful Mom. Love and hugs to you both.❤
@RogueWave20302 ай бұрын
♥️
@Just_Smile-n2w2 ай бұрын
FOP affects only about 400 Americans a year! Median life expectancy is 56 years. I saw a new FDA (first one ever) was approved in 2023 for FOP. The drug, palovarotene, reduces ossification of connective and soft tissues. I was so happy to read about this since this condition is ultra-rare. What a beautiful soul ❤ ❤
@terryfilkohazi22372 ай бұрын
I bet it's unfortunately very expensive and not covered by Medicare and Medicaid for sure.
@WildWombatsАй бұрын
Can they undo the fusion once it happens or is it irreversible once it does happen?
@@WildWombatsit's irreversible, once it's bone it's bone.
@louise87522 ай бұрын
"She's been my number one human my entire life."-Ashley "I like that"-mom. I like that too...what a beatuiful relationship they have!!
@Sohollywood10002 ай бұрын
“They weren’t old they were my age” love it !!!! ❤❤❤ she’s blessed to have a mother with a great sense of humor and a nurturing heart ❤️
@roachdoggjr452 ай бұрын
That part made me a bit sad. If the mother didn't say anything, then she would have thought they were old, and her reasoning for giving them a pass is valid. But because the mother maybe felt forced to make that joke, or was self conscious, she said "they weren't old, they were my age!". It's little things like this that cause a feeling of "disconnect" between people. They make it clear they appreciate each other, probably because they know they cannot communicate perfectly, as the disconnect is there. This also explains why she won't even talk to her for a couple of days when she is in a funk.
@guardianangel95172 ай бұрын
@@roachdoggjr45 oh for gosh sakes lighten up.. Ashley does. Carrying resentment and negativity makes you old fast😮
@JenneferTinsley2 ай бұрын
Ashley is a wonderful lady. I would love to have her as a friend. I have never seen a bedridden person so full of life and so vibrant 😊
@kevinkeener32162 ай бұрын
She's a great person. I'm so glad to call her a friend. She is like this off camera. So sweet and genuine.
@kel283242 ай бұрын
I kept thinking, “wow, she sounds like she’s a great friend” especially when she was talking about being there emotionally for her friends & wanting them to feel comfortable telling her about their own struggles.
@JenneferTinsley2 ай бұрын
@@kevinkeener3216 thanks for the reply. I hope Ashley reads these comments and sees just how awesome everyone thinks she is 😊
@jeannie15922 ай бұрын
I do not intend to say anything seemingly negative because I love this channel and these people are absolutely wonderful. Regarding your comment she did say she is on Anti depressants, which makes a profound difference in attitude, every level and overall outlook. She says she would likely cry a lot more if she wasn't on them. I just don't want others thinking -what's wrong with me why can't I be more positive she's in a worse situation than me.- maybe if they were prescribed medication it could help them with that. Serotonin, dopamine and oxytocin are the key to happiness and all regulated by the brain, which sometimes needs a little help. I have a friend who was on anti depressants and had to stop taking them to get pregnant and have her baby, and her whole outlook on life changed. Her energy level was way down, she was overall sad and experienced more negative thoughts. So please no one get down on yourselves for not being as positive as her in your situation. 🤍
@casualobserver772 ай бұрын
What an amazing woman. Her mother is amazing too. This is humbling to say the least.
@alyssa69752 ай бұрын
I’ve followed Ashley’s story for yikes 15 years? Since I learned about FOP. She was one of my inspirations to study genetics. I’m so glad to see her still going strong!
@AnneloesF2 ай бұрын
All the best wishes for your study, Alyssa!
@mama_j16292 ай бұрын
She’s so empathetic to her mom, it’s beautiful really. She’s not even upset she lost her arm she’s appreciative that not having it makes it easier for her mom to dress her. She’s one amazing human, if only everyone could be so grateful for life and those around them the would would be a much better place
@TwoTrees7772 ай бұрын
amen
@vital111222 ай бұрын
That Mom is a true Hero!
@courtneyb.92492 ай бұрын
Ashley is too.
@rphawx2 ай бұрын
Wow, her adoptive mother is literally an Angel. God bless her.
@jennybeanSMC2 ай бұрын
I remember first hearing about her on the show "Mystery Diagnosis". I'm sorry to see that she is bedridden now, but she still seems like such a strong and positive person.
@laramaaike30502 ай бұрын
Thank you, that's why she looked so familiair. All the time in this video I thought: I know a woman with FOP and she lost her arm also bc they thought it was cancer.
@tmf12222 ай бұрын
I remember that episode
@sillyslicker12 ай бұрын
This is why I clicked on the video! I so vividly remember watching that Mystery Diagnosis episode when I was little. I'm so sad for her loss of mobility, but so happy to see her again and get an update on how she's doing. I'm also glad that she's fine with having lost that arm, because that mistake was so gut-wrenching.
@Fgurs2 ай бұрын
i shouldn't be surprised that there are so many of us sbsk viewers that also watched mystery diagnosis!!
@Bicth972 ай бұрын
@@FgursMy fave show as a child for some reason 😂
@RiLee-j3b2 ай бұрын
I'm bedridden from a different condition and not as limited. You made me more grateful. Thank you for sharing your story. I'll be your friend if you want.
@bloodyhellism2 ай бұрын
What an amazing woman. Her mum is also an angel. Takes a special person to be a full time carer
@hamishpatel67752 ай бұрын
I wanted to take a moment to express my heartfelt gratitude for your tireless advocacy for those of us living with FOP. Your courage, strength, and unwavering commitment to raising awareness about our rare condition have made a profound impact on our community. Your voice has not only educated others about FOP but has also given hope and inspiration to those of us facing the same challenges. Thank you for showing the world that our condition doesn't define us, and for fighting to improve the lives of everyone affected by FOP. Your dedication to advancing research and support for our community is truly admirable. Ashley, you are a beacon of light for the FOP community. Thank you for being an incredible advocate, role model, and source of inspiration for all of us. 🙏
@olivedog18802 ай бұрын
❤🤟🏼🙏🏼
@elizabethbaird36042 ай бұрын
Wow! What a beautifully written tribute. You’re obviously a very smart and articulate fellow. I hope you have as many supportive friends around you as Ashley seems to have. I pray that you will have the least amount of bone for the longest amount of time. 🙏 Much love to you from New Zealand. 🥝🇳🇿😎
@Tinyvalkyrie4105 күн бұрын
She’s also an amazing advocate for broader conditions too. I have a condition called Klippel Feil (and I have a very severe version of it). As a kid, I never found someone with my condition to look up to, but I found her. KFS is a lot like FOP, except its not progressive. We are born with the fusions and skeletal abnormalities, and they stay that way, other than secondary progressive characteristics like arthritis and bone spurs that result from the abnormal joints. My relationship with my dad is a lot like hers, and my needs are similar, so she really made me feel less alone.
@alexishayman42352 ай бұрын
I loved that she casually mentioned that anti depressants have a very critical use during traumatic or difficult periods of our lives. I am so grateful for how lexapro helped me past some of the worst months of my life ❤❤❤
@carriefawcett99902 ай бұрын
Lexapro did absolutely nothing for me.
@tallic9672 ай бұрын
@@carriefawcett9990 It's different for everyone, just because it doesn't work for you doesn't mean it can't work well for others
@MeganGarzaWellnessАй бұрын
@@carriefawcett9990 not to mention the withdrawal symptoms can be disabling and even permanent for some people. For me, getting off antidepressants was the worst experience of my life... Never again.
@kimlashai2 ай бұрын
She literally just gave me insight on how much I should be happy. I love this lady. Id love to meet her. Beautiful soul
@angelfishluva2912 ай бұрын
What a special momma and a special lady.
@helenhawi82492 ай бұрын
I salute your mom she is what every human should aspire to be. I wish you the best and strength. God bless you.
@kellykim45152 ай бұрын
Attitude is everything - what a great attitude this woman has, we could all learn from her. Beautiful ❤
@RogueWave20302 ай бұрын
Isn't that the truth !
@karyne8262 ай бұрын
She’s got a wonderful role model in her lovely mum.
@ninahongkong53622 ай бұрын
Ashley, her Mom, and Chris are unbelievable people. ❤️
@trolllover85732 ай бұрын
Someone who struggles with a disease that slowly losing my sight. Hear your life story and how you still dealing with life. The positive attitude you have is such a fresh breath of air cause I feel the same way as you. Thank you so much sharing your story.
@RogueWave20302 ай бұрын
♥️
@AndreaRihm2 ай бұрын
@@RogueWave2030
@carolsaylor61512 ай бұрын
You will be thanking and praising God soon 🙏🙏🙏🙏
@sharim2 ай бұрын
@@carolsaylor6151 Why would someone thank and praise a ‘god’ that causes a disease that leads to blindness?
@Lowwski2 ай бұрын
❤
@lidiawroblewska11842 ай бұрын
What an amazing woman ❤ And her mom is the sweetest ❤
@cooperfreckles2 ай бұрын
What an amazing lady. I have a rare autoimmune disease Dermatomyositis. That disease causes me to have Dysautonomia. Which is my autonomic nervous system to go haywire. I can not cool myself off so in spring and summer I have to hibernate in my freezing cold room. I try to keep a positive attitude. I will not complain about my not being able to walk very well. My disease is a muscle and skin disease. At least I can walk and get to my many doctors appointments. So sad but glad she has lived way longer than the Doctors predicted!!! I am glad her family knows her worth! She is such a prize to this Earth! I wish she has many more years with her family.
@RogueWave20302 ай бұрын
You said it all
@thatcreepyxmastreeinyourat89502 ай бұрын
I wonder if I have that...I cannot stand being in the sun/])heat. I've been checked for literally everything and nobody can figure it out. They were actually thinking I was pre menopause at... 20...!Apparently not, because I just had a surprise baby at 44😂 I always have the air conditioner on me and I have to be very careful to bundle my baby so she is comfy and warm (which means I'm uncomfortably hot most of the time!) People think I'm crazy walking around half dressed while picking up snow and rubbing it on my forehead 🙃
@KuraiKaNinja28 күн бұрын
I've got dysautonomia (specifically POTS) but not the $$ to do tests to figure out whats causing it, but highly suspect autoimmune disease. i literally just had to turn on my A/C after having it off for only half an hour bc i felt like i was about to pass out 😅 wishing you good health days and that flare ups are few and far between for you, friend ❤
@RogueWave203028 күн бұрын
@@KuraiKaNinja It's awful that medical costs are too high for many people to get the help they need. Blessings to you.
@kellyb.36002 ай бұрын
Miss Ashley is the definition of the phrase An attitude of Gratitude ❤ Simply Beautiful
@janesweetman98902 ай бұрын
Blown away by this lady's courage, resilience and personality. Plus the strong love between her and her lovely mum.
@shawnaburns51582 ай бұрын
This lady is a true hero!!!! Love her mom too❤
@claudiarobinson5872 ай бұрын
She should write a book. I want to be her friend.
@RogueWave20302 ай бұрын
Me too!
@jeremiahallyn46032 ай бұрын
Me too! 😊
@marthaglad76312 ай бұрын
Me too!!❤
@MoZayik-jq7nj2 ай бұрын
Same here
@df-majik13312 ай бұрын
Spot on❤
@tasha_111_2 ай бұрын
I absolutely LOVE her spirit!! We can all learn a thing or two from this sweet and brave woman 💯🙏💕👌
@TheBeetrootman2 ай бұрын
I've met one person with FOP before in my career as a doctor, extremely rare. I feel so sorry for this woman but she has strength!
@haleybice47632 ай бұрын
wow just wow. her attitude and gratitude for life is so inspiring 🥰
@ea912 ай бұрын
What an amazing love between mother and child ❤
@sarahwatters-mm1ix2 ай бұрын
What a beutiful soul. Amazing human.
@AnnaZverina2 ай бұрын
I’ve been following Ashley’s story for ten years. Thanks for sharing and keeping us up to date on her!
@a.j.marcantonio1532 ай бұрын
I remember watching Ashley on the show “Mystery Diagnosis” many years ago. It’s sad to see how FOP caused her to be bedridden, FOP is a such a horrible disease!
@AnnaZverina2 ай бұрын
@@a.j.marcantonio153that’s where I found her too!!
@tatianaflores19262 ай бұрын
This women is beyond inspirational
@petunia20082 ай бұрын
Come on, old age is not an excuse to be rude. And doesn't earn respect automatically. Ashley and her mum are AMAZING!!! ❤
@mercyr61052 ай бұрын
I was laughing bc her mom said she wasn't that old they were my age 😂....I don't see my parents as old I don't like to
@seamarie31112 ай бұрын
Yep! Age is no excuse. My mom's great-aunt fostered a bunch of kids with disabilities for a time in the 1960s or 70s when her own children were grown. I remember my mom telling me how fiercely my great-aunt looked after and loved those kids. I also remember my mom telling me how when my mom was a kid, in the 70s I think, my grandma worked in one of the facilities they had back then for disabled children that some of those parents back then washed their hands of. Mom told me how attached she got to them. I think that work was extremely emotionally difficult, and she didn't do it for more than a couple of years at most. My grandma also raised a daughter with cerebral palsy, who lived independently in an inter-abled relationship as an adult before dying too young of cancer, and didn't blink an eye at me, her blind granddaughter. A far cry from my paternal grandmother who was definitely more distant and reserved. Anyway, my maternal grandma was born in the late 1920s and my great-aunt sometime in the 1900s or early 1910s I think. All I am getting at here is that there's absolutely no reason, not even age, to be an ignorant, ableist bigot.
@cheriesvansson51172 ай бұрын
What a beautiful and courageous woman! Thank you for sharing your story Ashley. Count your blessings everyday!
@Amanda-vl5ud2 ай бұрын
What an amazing mom she has!
@HeavensAngels11112 ай бұрын
What an amazing mother! ❤
@RealityTrailers2 ай бұрын
What an amazing human being she is. Glad she decided to be interviewed.
@passingby-t7r2 ай бұрын
I have the utmost admiration for parents/family members who are caregivers of people with special needs. The love they have to have to basically devote their life to take care of them. May God bless them greatly.
@littleogeechee2232 ай бұрын
Awwwww! Ashley is wonderful! She’s so sweet, and her beautiful mom is the very best! God’s blessings, Ashley. You have my prayers. Sending you so much love and light.
@brandee_anniee2 ай бұрын
What a positive amazing woman! 🥰
@EmmaBakesCakes2 ай бұрын
One brave lady living her best life. Wonderful to see xx
@seed.meditation2 ай бұрын
Truly
@sad_doggo25042 ай бұрын
I have to admit that as someone with chronic illness I have had nightmares about not being able to move. It's really amazing to see that she is able to live a full life surrounded by people who love her and support her, even if things aren't perfect.
@rosemarywessel12942 ай бұрын
What an amazing outlook despite her condition! She's the kind positive that lifts people up. I also love her fashion choices. Red glasses, plum lipstick and green suit - bold and beautiful.
@webg032 ай бұрын
one of the most inspirational things I've ever seen, god bless this woman and her beautiful caring mom
@Asian6oy2 ай бұрын
the individuals on this channel always remind me of how grateful I should be for what I have as despite their limitations they never seem to give up. thank you! 💕💪🏻
@RogueWave20302 ай бұрын
Yes absolutely! I have limitations but nothing in the world like Ashley's!
@laurachiar60862 ай бұрын
@@RogueWave2030❤🙏
@df-majik13312 ай бұрын
💯❤️😊
@elineff27912 ай бұрын
Ashley you're a lot braver than I ever would be
@Elaine-br4lw2 ай бұрын
Love her! She is an inspiration! As well as her mom!!🙌
@seed.meditation2 ай бұрын
True
@Krbymcd2 ай бұрын
Oh my goodness what a strong woman with an amazing attitude and outlook on life
@wildflower13972 ай бұрын
"I can't live in your invisible plastic bubble." Profoundly true on so many levels. ❤
@tracyschundlemire25862 ай бұрын
Wow!! She is an amazing woman! What an inspiration! God bless her‼️🙏🏻♥️
@carolmorris27052 ай бұрын
Those are two strong women. 💪🏻 I am so impressed with their honesty, courage and determination. Positive thoughts and best wishes to them both.
@LeeDee52 ай бұрын
I do not know where the human tenacity comes from to live a life like this and many others that we've seen on this channel. I'm constantly blown aaway.
@CYGNIUS2 ай бұрын
The humility and deep love that her mother harnesses are beyond commendable. She wins mother of the year every year. I wish everyone could be like her. ❤️
@monsenanna132 ай бұрын
This lady has a better outlook on life than I do, I wouldn't still be here if I were in her shoes..
@areanaangel89642 ай бұрын
wow. this gives me hope i can have happy days again. i have chronic, hard to treat depression with 1.5 decades of therapy and many meds. Having a bad afternoon. This gives me hope.
@diosadeamore2 ай бұрын
Wishing you strength. 💕
@wheelchairgeekАй бұрын
Don't make comparisons. Your illness is also hard to deal with and is your own trial.
@HandbagDiva2 ай бұрын
She’s a beautiful person & her mother is lovely.
@dadycreations1002 ай бұрын
I saw Ashley few years ago here in YT during one of their FOP meeting, I listened to her story and seeing her again today makes me glad. She can be bedridden but she has not lost her love for life. She's definitely a warrior! Ciao Ashley and mom from Florence, It.
@glenbo24642 ай бұрын
She is so likable and relatable.
@mirandastephens45862 ай бұрын
I wish there was a way to do a SBSK pen pal program. I guess you'd have to be mindful of weirdos (maybe screening by SBSK and then SBSK forwards?). I'd just love to tell these people they are loved and special and continue on the blessing.
@SabrlIna2 ай бұрын
I feel like it could work like those online bill pay systems. (Someone pays their bill online, a check gets issued and mailed on their behalf IRL to pay that bill.) a viewer could type out their letter, it gets reviewed and approved by SBSK (or an approved person), a physical letter is printed and mailed to the SBSK Friend!
@mirandastephens45862 ай бұрын
@@SabrlIna I would love to be a part of that. These special people have helped me through my own problems!
@Monkeyfunkyman2 ай бұрын
I love this idea! There could be a place people could submit their po box or something if they wanna connect with people and anyone who's interested can write to them
@terripalakie52872 ай бұрын
She's on Instagram
@jobdylan57822 ай бұрын
shes an adult you can just contact her
@cindypowell6358Ай бұрын
YOU inspire me. I’ve endured “9” close family member deaths within these 6 yrs. Including my mom & sister both exactly 4 weeks apart to the date. Seeing the bond you have with your mom, reminds me of the EXTREMELY CLOSE bond I had with my mom. She was my best friend. We gave each other a hug EVERY SINGLE NIGHT before bed. Even me being a grown adult. We continued the hugs every night. I would give anything to feel her hug again. 😢😢😢 Continue to stay positive & cherish every single moment with your mom. We all seem to have something the other doesn’t have. We’re all blessed as you said, we just have to remind ourselves of the blessings & try hard not to focus on what we don’t have. YOU seriously touched my heart tonight. Thank you SO MUCH. You’re more than human, you’re BEAUTIFUL beyond this earth & your HEART and encouragement is BIGGER than this life. God bless you & MUCH love to you and your amazing gorgeous Mom. 🙏❤️🙏🥹♾️ 🤗 Hugs.
@monaj.60042 ай бұрын
Shes a very strong woman! God bless her.
@jordangrice35652 ай бұрын
She snd her mother both are wonderful ❤️
@Tranquility322 ай бұрын
Just wanted to say hello to Ashley and her dear Mom. I think Ashley is so positive and upbeat. It’s interesting to hear about her life and how she lives with FOP. One of my dear friends was diagnosed with a progressive form of ALS. Ashley reminds me very much of my dear friend. How Ashley tells her friends it’s okay to be sad or upset over things that happen in their own lives. My friend wanted to hear about our days, how we were doing, what made us happy, what made us sad. It’s easy to see that Ashley is an amazing person and a precious friend to all lucky enough to be in her circle. Wishing her & Mom and their loved ones all the best!!!
@patriciabuttner75112 ай бұрын
Ashley is an amazingly uplifting person!!
@KristenBodhi2 ай бұрын
What an incredible and resilient woman. Sending Ashley and Tickles an abundance of love ❤️
@mrshumbie9992 ай бұрын
My god how much a lot of us can learn from this beautiful soul, she exudes positivity and a unique prospective
@weejohnoo2 ай бұрын
Wonderful to meet Ashley, what a superb example of a human being. An inspiration.
@IsabelSantosCunha19722 ай бұрын
This is the kind of human that could change the world. Wish everyone could think, feel, and act like her. What a treasure she is.
@shoshannafachima13062 ай бұрын
Ashley is warm and positive.i have seen her on youtube and no matter what is going on she keeps going and always looks to the future
@Waterfallguy83652 ай бұрын
Ashley you and mom are an amazing and inspirational people! God bless you!
@blessedsabbathbelievers34282 ай бұрын
God bless you precious! Will be praying for you and your family.
@sameoldsonganddance2 ай бұрын
She is a delightful woman….. way more positive than most people.
@darak41872 ай бұрын
Ashley, you have the outlook on life that everyone should have. Thanks for sharing your story with us.
@illrokursoxoffx102 ай бұрын
There's nothing like a mother's love ♥️ I love how Ashley doesn't see her mom as her caregiver, just her mom 🥺
@rhiannonm81322 ай бұрын
ashley, if you’re reading this i love your glasses, lipstick and cane, i can tell you’re creative and have a great sense of style! everything is carefully chosen, coordinates and shows your personality! thank you for sharing some of your life with us, you seem like a joy to be around. i have MDD so it’s like a constant fistfight in my brain to try and be positive about anything, my brain chemistry simply hates me, but i’ll think of your happiness and strength next time im really struggling to embrace life and accept things. one of the bad things about this channel is seeing people i would love to be friends with irl haha, but glad i could at least meet you this way :-) hope you have a great day :-) thanks also to ashley’s mom, you seem so kind and i hope you have a great day too! ❤💜💚
@jeanetteh.92402 ай бұрын
Hello! What is MDD?
@KnightViperX2 ай бұрын
What a beautiful soul. Your mom is truly an angel in disguise. I wish you a long and happy life.
@AmeekPal1232 ай бұрын
She is has a strong heart and mind.
@yvettelucy98312 ай бұрын
She's so positive and sweet! And i absolutely love the relationship between her and her mom!! What a blessing!
@LyingInAGreenBed2 ай бұрын
Thank you Ashley for showing that a life in bed can be a good life! I wholeheartedly agree with that - I basically live in bed too and only get in my wheelchair 1-2 times a week, sometimes even less. Still, all in all life is good and I’m glad to be here.
@nancywindbigler64342 ай бұрын
Ashley, you are one in a million!!! Your attitude is definitely what keeps you going and your parents are a large part of molding that attitude. You go girl!!
@cecilyerker2 ай бұрын
This is my reality check to stop complaining or feeling sorry for myself. I have so much to be thankful for.
@marthaglad76312 ай бұрын
Ashley! You and your mom sound like such sweet, beautiful people! Blessings to you both!!❤❤
@simonebittencourt82512 ай бұрын
Medical prognosis regarding how long a child or a teenager or an adult will live should not be given. Nobody has a crystal ball, not even doctors. It so much denies one's potential as an individual. Every single day one's potential challenges a medical prognosis. Ashley, you and your mother are amazing and it was an honor to learn about your story. Your love for life and living surely has made a huge difference. Your resilience, your strength, your positive spirit... you have convinced your body to keep going no matter what. You are truly inspiring, the way you think, the way you relate to life inside and around you. You make us all appreciate life just like you do because you have this strength and this optimism. Thank you!
@debbieschultz97682 ай бұрын
I’ve heard of people being told they have six months to live and they lived many years longer. It takes away a person chance of being positive and I agree it’s wrong.
@simonebittencourt82512 ай бұрын
@@debbieschultz9768 Absolutely, Debbie! Nobody has the right to predict someone's fate in life. Nobody has the right to determine if someone will be able or not able to do something. It is a total sabotage/denial of someone 's potential.
@jobdylan57822 ай бұрын
this is an actually deranged take
@kaclama2 ай бұрын
On the other hand, some people may want to know an average or estimate, even though nobody can predict for sure. People have the right to know whatever information they want to about their condition.
@jeanetteh.92402 ай бұрын
Parents grappling with a new diagnosis for their child are naturally going to want to know what to expect. Even if doctors can only guess.
@pauladimattei64342 ай бұрын
Your positive attitude is such an inspiration. Thank you for sharing your story.
@tracymay17492 ай бұрын
She has the absolute best look out on life! I can't imagine having to go through what she has to do everyday. Bless her heart! What a beautiful lady!
@keyplayer52 ай бұрын
Wow. Amazing lady and so is her Mom. Even more amazing is seeing Gods preparation for her to live out her life. Thanks for sharing. 💕