Lipedema and Vein Disease

[@marcelacampos4704]

when I was 19 years old, I was very skinny and I went to the doctor because my legs hurt so much, I have vein disease. The doctor told me that I had lymphedema. Now I am 52 and with menopause I start notice that I also have lipedema, I didn´t know about it in the past. I am so happy to find your videos, they are so useful. Thanks!!

[@marial9361]

Lipedema code to have in medical records in USA. R60.9. As per Lipedema simplified.

[@tiffanywilliams1406]

Thank you. I appreciate any and all information you give on this disease. It has been in the last year so debilitating 😢 to my body. I’m 58 and I walk as if I’m 100 years old. Lot a pain I endure on the daily. Keep up the good work.

[@AnneAlready]

Just had ablation in both legs and sclerotherapy. The vascular surgeon was very good. My company paid 80% of cost. 100% would have been better of course! ;)

[@g.3720]

I have had 2 vein ablation procedures done and 5 different appointments for injections. 2 on right and 3 on Left 2 more appointments 2 go in September. Still have bruising from July and the little hard pumps where the injections were. Very painful! Medicare has paid for it all!

[@aboutdawntoday]

I have had this my whole life and have not ever been diagnosed. But thank you because I am going to discuss at my next appointment.

[@ruthgarrett277]

Great advise! Keep calling until you get a better answer. I’m laughing. Sturdy is right!

[@horse__power7891]

You offer so many wonderful tips! I think I’ll get a lounge doctor.

[@sturdywoman]

I'm so glad it's helpful @horse__power7891! The Lounge Doctor comes in difference sizes based on height so be sure to check the size chart so it fits your legs properly ❤❤

[@deannefalise2784]

I had no issues with United Healthcare approving my Vein procedure. I had history of using compression on my own. Don't know if that made a difference. Still expensive. Insurance covered 80%. I still ended up paying out of pocket over $1k. Would've been more if deductible wasn't met.

[@tammybarker2439]

Yes! I had ablation done on my Great Saphenous vein in both legs in 2013 and some sclerotherapy. Those procedures gave me a lot of relief for about 9 years.I'm currently having some touch-up work, and I hope it will give me some relief now. Thank goodness, no real fight with insurance because it was already in my records that I was using compression leggings and using a pneumatic pump so there was nothing else to do besides having more procedures. Yes it was and is much easier this time round as far as pain. Good luck to you and I pray everyone is having a pain-free day.

[@sturdywoman]

That's great to hear, @tammybarker2439! I'm glad that you had no problem getting your treatment covered and that it's going well this time around. I hope it helps ❤❤

[@1969strangelove]

what happened to you ? I miss your videos @@sturdywoman

[@babettestruttmann2256]

Hello everyone-and thanks, Rebekah for all of your helpful advice. I recommend to anyone who wonders if they have lipedema to see a vein/fat disorder/lymphedema specialist (MD) who has experience in treating this condition to confirm your "self-diagnosis" or answer your questions. Rebekah continues to say, "I'm not a doctor" yet her personal experiences provide so much hope and healing to alleviate symptoms and improve our body image and self-confidence. All of this, however, does not take the place of medical advice/treatment if you need it-including the actual diagnosis of lipedema. This can be difficult to achieve, however, since even in the medical community it is rarely discussed/diagnosed and swept under the "obesity/overweight" rug without addressing the underlying causes. I would research a knowledgeable professional in your area, and then use Rebekah's resources to help control your symptoms and stay motivated because her thorough knowledge and personal experience are priceless!!!

[@ruthgarrett277]

Great Sturdy advise on insurance coverage.

[@kamwatson6128]

Ahh Rebekah, well done 👏 🙌 👏 you for being persistent with your HR and getting your Vein surgery covered. I am blessed that in UK we have our NHS so everything is covered apart from Liposuction.. You take extra care of yourself and take time for your self care, we are all sending you big virtual hugs and cuddles. Thank you Rebekah for your uploads, your simply fabulous and amazing x

[@sturdywoman]

Thank you, Kam!! I have two more appointments to go then I should be good for a few years again. You are so lucky to have the NHS - I think you can guess that from hearing us talk about the US system 😆 Big hugs back to you. I hope you're still getting those walks in and drinking plenty of water ♥♥

[@kamwatson6128]

@@sturdywoman yes Rebekah, walks and drinks are essential and afterwards thanks to you I use the waver vibration plate, it gets rid of my tight calfs and after that I have lovely bath 🛀 xx

[@1969strangelove]

What happened to you Rebekah? Aren't you posting any more videos? I am worried about you....@@sturdywoman

[@Andrea_22222]

I have venous insufficiency as well…I’ve had 3 surgeries.

[@sturdywoman]

Thanks for sharing your experience @Andrea_22222 ! Did they help give you any relief?

[@katiewenning1382]

Did you do a vid on castor oil? I cant find it. Please post the link. Thank you so very much for sharing your experience!

[@maureenmoore6553]

I have had veinus reflux and had secondary veins ablation and smaller varicose injections. Covered on United HC. Years later now have this lipedema diagnosis and Edema in legs. Currently my left leg feels as you describe. Need to see Vascular Dr. However Husband layed off and now only have State Insurance. I will have to find all new Dr.'s since others not covered. Love your message of sturdy and your success.

[@sturdywoman]

@maureenmoore6553 thank you for being here! Isn't insurance the worst?? I was shocked last year to change jobs and find out the new insurance didn't cover vein treatment "regardless of medical necessity"! I fought it and won, but it was stressful. I'm sure you saw in the video I was having my ablation redone because, unfortunately, they aren't permanent. Keep fighting for what you need! Sending big sturdy hugs

[@g.3720]

I have lipoedema/lymphedema and venous insufficiency and tachycardia

[@julief6044]

So happy for you! Glad you were persistent! Thank you for all your helpful content 😊

[@ivawood8996]

Hi Rebekah! Question: Does Lipedema and Vein Disease typically go hand in hand?

[@lmitchrdh]

Thanks again, as always for sharing your experience. That is how they diagnosed my Lipedema too. Leg pain. I thought I had a blood clot. Nope, guess what, you have Lipedema. Luckily, my veins don't need surgery yet as of last year. Just compression and elevation...and currently I'm elevating my legs on my waver. Hoping to maybe get a result like you get from your pumps. Question to all of you... Does anyone have vertigo issues?? I do, and so did my grandma I inherited this from, thanks Grandma. Just wondering? ❤❤

[@sturdywoman]

Hi @lmitchrdh! I can't say that I have vertigo, but this article lists it as a symptom (though not a super common one). See page 4: www.lipoedema.co.uk/wp-content/uploads/2016/01/lipedema-fat-and-signs-and-symptoms-of-illness-increase-with-advancing-stage.pdf I wouldn't necessarily call it verigo, but twice I have almost passed out while having the ultrasound done on my legs. There's just something about standing still so long that seems to get to me. 🤣♥

[@kissybiz]

I have vertigo. I'd not had an episode in 10 years or so but last September It was so bad I couldn't move for 4 days and took weeks to get back to normal. I'm 63. I thought it was coincidental that I also started having pain so bad I couldn't move my legs or turn over in bed, or lift my arms. I just discovered lipedema videos a week ago. Never heard of it before but I definitely have had it my entire life. Killing myself to get down to a normal size and hating myself for not being able to. I have drastically changed my diet and already move a bit better. I get dizzy in bed sometimes turning my head to the left.

[@mariathunberg4743]

We have to pay ourself to in Sweden as you have to have leg wounds to get the surgery for free. Crazy it have to get so bad before getting op!

[@luckyone4881]

I have had multiple treatments over the years and I feel adjust keeps on getting more painful as I go

[@monichippewa2232]

I have all the same things you have. I have not had any treatment on my veins yet. I did have testing and was diagnosed but they just left it as that. Not a word about any kind of treatment. My left leg is also the one I have most pain in. Upper thigh area ,and size . Do you have any videos about the treatment or is there anything we can do to help or hurt it? Also do you have a video on your diet and how you changed it?

[@1969strangelove]

On the 6th of July I had foam schelotherapy. I’m still waitng for my follow up appoitment due on he 3rd of Oct. To be honest I’m not that impressed with this minor procedure. The veins treated are still bulging and painful too. I also had ablation and scherotherpay injections done in the past. Still lots of work to do and no insurance. When I had AXA they only covered so much then one day I was denied any new treatment. I know it’s important for lipoedema, to have our veins treated, right? Maybe you should have mentioned the relation between our disease and veins issues. It’s never ending .... X

[@JamieSweat]

Can you address the itchy skin I’m using different types of lotion but please help it anyone else is using

[@tcooper802]

I didnt have a issue at all for my approval for my venous reflux surgery. My Dr said it would probably be denied as they never approve it but THANK GOD they did. My insurance is Anthem Bluecross . I have mine Sept 19 .What compression brand did you wear after vein surgery? Have you ever considered liposuction for the lipodema ?

[@katerina1558]

Can you please tell us which is the best treatment for veins disease because there are a lot of options and I personally don't know which is the best and most effective way ...

[@lindanelson2100]

Can you sleep with the lounge doctor? How often per day is recommended? Thanks!

[@asesu4522]

Is it true what women with lipedema get blisters on the feet more often?

[@sangeetatiwari9058]

Can it be managed without any medical treatment lifelong?

[@sturdywoman]

Hi @sangeetatiwari9058! Things like compression leggings/socks, elevation, and staying active definitely help. I think whether or not you end up needing treatment depends on how serious your case is and depends on some factors outside your control. Venous insufficiency is inherited but can get worse with age. Unfortunately for us, carrying extra weight can also put extra strain on them. If you start having a lot of fatigue and notice things like swelling in your ankles or knees, it might be time to get checked out. Most insurance plans in the US will cover getting it checked - I just got really unluckily when I changed jobs. 💕

[@flipsideofhanz]

i’m not sure if i have lipedema because my legs look like stage 1 lipedema but they’re smaller. i have fat around my knees and i can kind of see the shape of my ankles, it’s not completely gone and my calves are generally ‘thicker’ than most. i don’t bruise easily and i don’t have any pain but i do have a ‘cottage cheese’ texture on my legs when i flex or squish the skin. my mom and grandmother have the same type of legs as i do and i know lipedema is genetic but i’m not sure if it’s just the way we’re built or? so yeah, i don’t know if i have lipedema or if i just need to lose weight? (i’m around 153 pounds)

[@pattyw7952]

@flipsideofhanz I have everything you describe. My Mom and Grandma (both now deceased) I think had lipedema. I'm 5'3" and 165 lbs. I also have fat around my knees and "cottage cheese" thighs. I haven't worn a bathing suit in YEARS because I'm so embarrassed about my legs. So embarrassed that I wear jeans in the hottest weather! It's terrible. I was very thin in my 20's but here I am (almost 65) and don't want to wear any kind of shorts at all. I will wear the dreaded "old lady" capris that cover my thighs and cut my legs off mid-calf. I'm so sad about this.

[@EnollaPhoenixRising]

doing castor oil wrap with flannel and plastic wrap on legs, butt, tummy ? does this help ?

[@Maddy-qd8eg]

This is something I intend to try to break up the fibrosis. There is definitely something behind this as I recently had great success with a cyst/fibroid in my breast that was gone after one weeks treatment just using a castor oil pack. (See Barbara O'Neill - YT)

[@helenguilford3136]

I have pain now at my one knee. I’m not sure if it is my veins, lipedema or I need a knee replacement.

[@sturdywoman]

@helenguilford3136 it could be a combination of all of the above! Some of the vein clinics offer free or very low cost initial ultrasounds of your major veins then will ask you to schedule more if they find anything concerning. As a starting place it might be worth checking to see what's available in your area. Google "saphenous vein" and see if that's where your pain is. That's a common one that fails but it can be any of them. Good luck

[@LipedemaGuru]

Hi!!! Great videos as always. I would like to personally connect outside the KZbin channel. We can charge a lot and help lots of people. I am in Canada. Medical professional, clinic owner, public speaker and educator. Just founded Lipedema Association of Canada. Would be awesome to have you involved, if you interested. Kind wishes Alla