Superior vena cava syndrome

[@scaryfunny9472]

I have Thymic Carcinoma and it affected my SVC. They replaced it with Teflon tubes. My body adjusted and grew new veins. I swelled up for like a month during my hospital stay. I was stage 4 at the time of surgery (They thought it was stage 3 before operation). They removed cancer from my pericardium, diaphragm, removed a lobe from my right lung. Still alive 4 yrs later. The operation was well worth it but a difficult ordeal to go through . Just an FYI for future doctors since this cancer is rare. Special thanks...to my surgeon. Great guy, awesome surgeon . Treatments in order after surgery: Took Cisplatin, Etoposide for 6 months. Radiation was successful (remission for 3 months) . Then we tried Immunotherapy (Pembrolizumab) for 6 months. Did more radiation.(Pain relief mostly) Currently on Affinitor for the last 6 months . Cancer is stable for now. No pain but really tired. All considered, quality of life is reasonable. Hopefully useful information since this cancer is extremely rare. If this information could be helpful for someone else...

[@jayshreebehera3341]

Where ru from??? Nd which hospital u treatment??

[@scaryfunny9472]

@@jayshreebehera3341 Canada. Operated in Montreal. McGill University .

[@mokhles703]

Thanks for sharing, helpful stuff.

[@uppaluridheeraj]

Thanks for sharing! Wish you the best!

[@greensage395]

It is nice to hear there are options...a Stent sounds fine by me! Seems that would be the cheapest way through it.

[@suzannenimmo]

Hi there. I think these videos are great and would love to use them for some of our Macmillan Cancer Support educational resources. How do I get permission to download these please and chunk them up? Many thanks.

[@julest3888]

Great info, many thanks.

[@dolanuscaesar1326]

In my textbook, for SVC, there is a recomendation of both CT angiography of vena cava and simple contrast CT for diagnosis. Is there any guideline how to decide which to use, or it doesnt matter that much and CT angiography will show the presence of trombus as well? My point is, how to decide if we should add trombolysis to the therapy. (Or call intervention radiologist for endovascular trombolysis)

[@kamaltahir6440]

Great video!

[@mohammedalmutairi4832]

thank you for this helpful video

[@sysamanthahope9033]

amazing video well appreciated

[@samphonnetgamgee5625]

Volume is too low... what a pity.

[@sysamanthahope9033]

are u a medical student too or an oncologist

[@nishajamal8663]

Persistent left svc is a big issue or not.. pls reply?

[@moolchand9790]

Thanks 👍

[@artisticwhistleblower1756]

I have this from poorly placed port.

[@kiwigal63]

Thanks for this information...I'm going through the facial swelling,and my nurse wants me to get tests.I had a pleural effusion,already,and mowing the lawn yesterday I couldn't breathe..so this all came on in a short month,with facial swelling,that rights itself during the day.I thought I had die try issues....well very interesting and have tests ahead. I hate the facial swelling,I thought it was just too much sodium, my nurse pointed this SVC Syndrome out,as I never heard of it....bit concerned now as I already have Cirrhosis of my liver...don't know if they are connected...Much thanks for your information ☺☺

[@WhiteAngelLovesEarth]

Hello, how's your health now? Are you feeling better?

[@kiwigal63]

@@WhiteAngelLovesEarth not too bad really.. I have lost alot of weight, get extremely tired and still have a cough, but haven't seen a Dr in months, last time I saw her she wanted me to have a x ray and Spiro.. To see how hard my lungs blow, but we went into lock down we are now just out of lock down and I'm too exhausted to go anywhere, but I will be fine. Thanks for asking 🙂

[@WhiteAngelLovesEarth]

@@kiwigal63 Hope you'll be feeling better and better. I've read somewhere that someone cured the cirrhosis using honey and honey related products, also lemon, maybe try some medical cannabis if you can. CBD oil ! Read about fasting and the benefits of it, it might be helpful. I wish you good health and if I could, I'd give you the most loving hug too.

[@ayudiahmayasari1182]

Thanks

[@دهدي-ي7خ]

❤❤❤❤❤❤❤

[@drnermeen7500]

❤❤❤✌✌

[@victorfernandes4732]

speak up

[@oncologyformedicalstudents6877]

Victor Fernandes try the volume

[@humammanzoorkhan8904]

@@oncologyformedicalstudents6877 i know its late but even with the volume all the way up its quite difficult to hear you. Good explanation tho.