Dangerous Doctors Betray Children With Tourette's | Sweet Anita Response

[@indigo.raccoon]

I have tourettes and live here in germany. Living with my peers has been so much easier since Jan started his channel and blew up. It's easier to explain that I have the same condition as Jan just without the swearwords and throwing stuff, than having to explain tourettes from scratch. Suddenly social workers know my condition. Suddenly teachers know of my condition. It's honestly really amazing how much he changed.

[@theblackbaron4119]

No to mention that they said that Jan Zimmerman is faking it. He's not faking it. How are they supposed to be medical experts. The kiddies faking it on Tiktok are awful, but it obviously hurts the ones that actually suffer from it.

[@WorthlessDeadEnd]

Not everyone with Tourettes has coprolalia. In fact, most people with Tourettes don't have it.

[@carina-nonbinary]

Yeah i didn't know tourette even existed until his KZbin channel blew up. And i'm really sorry for it, i wish we would learn about it at school

[@YornPopcorn]

yes i agree

[@CosmicCarrot8403]

“You’ll grow out of it” is probably the most frustrating phrase to hear with these things

[@Mitzrz]

I think the correct phrase to say "you'll grow into it" as in "it'll get worse as you grow" before high school my ADHD wasn't noticeable, but I noticed odd things at the start and recently got a makeshift diagnosis.

[@MrManMuffin]

i heard this so much when i was diagnosed with ADHD, i Have not grown into shit, my ADHD has just become more complex as i have become more complex

[@mathosplays]

My ex told me that because she grew out of her tics She doesn’t “ believe” I have tourettes but ive had tics since I was 9 and I am diagnosed. Im 21 now and she was like “youll grow out of it so you don’t have tourettes”. Never met a more stuck up person telling me what my own disability is like in my life

[@suhtangwong]

Telling someone with war ptsd "You'll grow out of it"

[@merissamakesstuff]

I was diagnosed at 11 y/o. A few years ago, there was an issue with my paperwork at the office who diagnosed me. My diagnoses disappeared from my list because of the computer issue when they digitized our records. Then, when I told them to put it back, I was told I am an adult and adults "grow out of it." I still have it... obviously, and other medical places still have it on my list of diagnoses, but because of that idiot place, I am now fighting for them to put it back. They know I have been diagnosed (a doctor from their facility diagnosed me), but the new people who work there just think you grow out of it as an adult. They even saw my tics when I came in. And a guy who works there has Tourettes as well. He verified that you don't just grow out of it and that he sees the signs in me, but they refused for three years and now that I have moved, I have to fight them from 300 miles away to send me my diagnoses papers so I can get it put in my records at the new place that I am going to. Hopefully the new place is not so stupid and ridiculous. 😡

[@informitas0117]

As a schizophrenic I'm used to being handled as if Hollywood's type of schizophrenia was the real one. It sucks seeing tourettes being dealt the same way. I wish people would just stop. Please talk to people who actually have it. I'm so tired.

[@AutomaticDuck300]

I'm bipolar and I only hear voices when I'm on the verge of falling asleep. I couldn't even imagine that all the time. How do you deal with that?

[@privacyandfreedom5344]

Do you believe in God?

[@nova756]

I experienced so many similar things it was really tough to watch the video, even though I also have mental health issues rather than tourretes. People can be really quick to invalidate invisible illnesses

[@rsukut5866]

I have complex PTSD and auditory hallucinations are a part of the diagnosis. It took 8 years to get a proper diagnosis because schizophrenia was the label they wanted on me, but none of the medications helped. Not only is the societal viewpoint/Hollywood stereotype dangerous from a basis of peer-to-peer interaction, but the fact that healthcare providers often are so dismissive with these types of conditions lands us on medications that can potentially be harmful if taken incorrectly. I feel desperately for any of you out there who has ever been dismissed or mistreated by peers or medical personnel like this. Thank goodness for a lovely, articulate person like Anita, I adore the fact that she's such an amazing advocate!

[@sumgirl720]

@@AutomaticDuck300 Not every person with schizophrenia hears voices. A better question to ask is, "What's been your experience?"

[@DailyDoseOfInternet]

[@jadenhamer1581]

Crazy to see you here

[@mitingtwotch]

30 likes and 1 reply das crazy

[@petwurscht]

i see checkmark i reply :)

[@dude8342]

hi DDoS

[@bluefield086]

HELLO

[@AlexinsArt]

Jan is a really nice guy. When his YT Chanel got famous in Germany, most kids were running around shouting his most know tick "Pommes" in any situation. They even made prank-calls when they ordered food. Jan had also to move places because he was terrorized by fans at home. He tries to educate people around him and made them realize that it's not always easy to deal with tourette. His ticks evolved and got worse during the time. He also start a series called "Zeig dein Gesicht" (literally show your face) where he met 2 other people with tourette and you see them coping each other. One of them is going to be a doctor, the other one is just in school. I love to see them doing what they love. But they still got judged. And that's horrible. I'm suffering from depression and most people make fun of people like me, not knowing how hard it is to deal with it every day. Anita I love your Chanel and you're an amazing person ;) just keep up being yourself!

[@GamingBrosPolitics]

I remember that well I always found that terrible

[@roy1701d]

I'm a lifelong stutterer (a close cousin to Tourette's). My first (and only) speech "therapist" told my parents that I was faking my stutter to get attention. The consequences were catastrophic.

[@nicktheloser2974]

Hope things are better for you now

[@123darkelf]

@@nicktheloser2974 same…but jesus….

[@guyknightley3499]

Someone should really just lose their fucking jobs over stuff like that.

[@crooked9210]

That sucks. For my entire life my teachers, especially english ones, have bullied me and told me how my dyslexia wasn't real. I struggled hard as hell in school because of this stuff. Ignorance in this world is horrible.

[@guyknightley3499]

@@crooked9210 it was bad for me where I just quit going. I wish I would’ve stayed but it wouldn’t have mattered when no one cared to even try and help me learn.

[@Star-ik5jc]

As a "child" growing up with tics in the UK medical professionals and teachers don't take you seriously. There have been times when I've cried because I was so scared of what would come out of my mouth and what my body would do. The awareness that people are spreading for tourettes is what saved me from a very big downward spiral, more people understand, I just wish that people wouldn't see these articles and automatically disregard children with tics, because it's already so hard to get a diagnoses and we don't need the added level of stupidness with articles like this. I hope you're okay.

[@AnonymousBosch3158]

I am sorry. I expect you are ok now!

[@fatboy3874]

This is discusting i an soo sorry for you and i hope u are okay I nearly cried listening to this and anita getting emotional its horible i think this article needs to ve taken down and the publisher needs to appologise if there is anything as a community we can do to stop these sick fucks plz let me know

[@jaredkinneyjr]

this is what media does. the media is owned & used by dirtbag people to shape the world into the way that THEY want the world to be & how THEY want people to think. true history, politics, "global warming", space, globe earth, dinosaurs & on & on. True (World Changing) Knowledge is ALWAYS hidden from the public. Someone once said "give me control of a nations media & I will conquer that country in 1 generation." To me, it is quite clear that the media of today is straight out of a Twilight Zone or Dr. Who episode. How there are people who cannot see that media is there to control your mind & shape your reality is beyond me, puzzling, & frankly, disturbing!!!

[@boonedogg7971]

​@@jaredkinneyjr This is not the media though! What she is referencing is an news article ABOUT a medical paper from a doctor at a center that specializes in Tourette's! That is just about as credible as you can get. And if you read the article the doctor is not discrediting Tourette's at all! I highly suggest you read it because Anita seemed to focus on a few things that the article said that she disagreed with. However, the medical paper's overall summary is much larger than that. It's the fact that a VERY large amount of kids are claiming Tourette's. After being seen by a specialist, the medical paper states while some of the kids did have mild forms of Tourette's, it was "VERY CLEAR" that most of them don't have Tourette's for "SEVERAL reasons". Not that it's unlikely they have it, but very clear and not just for one or two reasons, but they list like 5.

[@boonedogg7971]

I can relate to that, I don't know how much difference there is from UK to US with doctors/psychiatrists you would see. I don't remember having any doctor not take me seriously but there were a few teachers who didn't. However you really should read the medical paper and not just go by the video Anita posted. I love her videos but I think she either didn't read the whole medical paper or just focused on a couple things that the article about the paper said. The medical paper was written by a doctor that works at a center that specializes in Tourette's. That paper just states that there is a huge rise in number of cases among kids and only a small amount were legit cases (after being examined by the specialized center for Tourettes-seems pretty credible source) and the others were faking it for whatever reason. It even states their tics stopped very quickly after being told they didn't have Tourettes and in some cases immediately stopped. The problem is NOT with this medical paper, and it's also not with the KZbinrs who have Tourettes either. I personally think its great to see KZbinr's who have Tourettes because it does get exposure out there and show's people like us to be more normal than people may think. But the problem is with the kids who are faking it, for whatever reason they're doing it for. Please read the actual medical paper that is being referenced, because at first, I was upset about this just like you until I did my research

[@BigManSchwanz]

I used to have a friend I met online who thought I was faking my Tourettes. He said it was fake because he has a cousin with Tourettes who wouldn’t tick the same as my coprolalia and echolalia and instead only had motor tics. He also thought it was suspicious how whenever they brought up my tics they would get worse and used that as ammo to call me out. It really sad because I spent a lot of time with him but I couldn’t talk to him anymore because it would always turn into a fight.

[@MoA-Reload...]

It's the same sort of ignorance when it comes to most neurological conditions and it wrecks my head how it isn't obvious to everyone that we're talking about the brain. The sheer number of variables at play and possible variations are incalculable. Once you've met one Aspie, you met one Aspie. Same with people with Tourettes. You're still an individual who is unique. You might have some similar traits as other people but it's not a sodding check list that has to match or you're not in some special club. It's the very reason neurological conditions are also so hard to pin down as each case has to be considered from scratch because each case is unique. I sincerely hope you made other friends who are far more capable of resolving their ignorance and seeing you as you and not a condition that their cousin has 🤗 Also have a fantastic day 😊

[@VelaiciaCreator]

@@andrewhenshaw4067 Sorry what?

[@MoA-Reload...]

@@andrewhenshaw4067 wut the?!lol you OK there bud?

[@andrewhenshaw4067]

@@MoA-Reload... I'm sorry, I was trying to make a sarcastic joke by extrapolating it and grossly exaggerating it Like the, "oh you dont have the same symptoms as my friend, it can impossibly be variations so you must be faking! Aka the joke " I know there are white ppl who are racist, therefors all white ppl must be racist" That is obviously not the case I'll just delete the comment

[@boonedogg7971]

First, if that guy's cousin only had motor tics, then he doesn't have Tourette's. Tourette's is only diagnosed when you have a combination of motor and vocal tics. Also, just because he has a cousin who has tics (Not Tourette's) doesn't make him an expert. I'm sorry you had someone be that insensitive. I've had a couple people in the past not believe me and think I'm faking it, I just learned to to my best to ignore those kinds of people. They're not important enough to make you get upset

[@TiggZ_]

I love how passionate you are about this, the fact you didn't tick once during the entire video shows how focused and emotionally tied into it you truly are. I hope the mindsets of health care professionals changes dramatically so nobody else falls through the cracks and gets the help they need. Keep fighting the good fight Anita. We've all got your back.

[@jam2190]

She kinda tics alot, they're jus easier for her to control caused she is so focused on reading this trash, smear paper!!!!

[@ireallyreallyhategoogle]

"I hope the mindsets of health care professionals changes dramatically so nobody else falls through the cracks" That will never happen. Caring for people is considered a "cost" and you have to cut costs in capitalism. The pandemic could have shown the benefits of having a good healthcare system, but instead all we got was disinformation, conspiracies and excuses.

[@MrBuns-yi2hk]

The video is also edited so it os probably easier to edit them out.

[@The-kn33s_bee]

she ticked a couple times she winked a few times

[@Shark-8472]

I didn't even realy noticed it, assumed it was edited but you are right it isn't edited much at all.

[@lavenderlovesunderground]

I am one of these kids. I went to a neurologist, unable to do basically anything because of how bad it was, and she told me that I had "TikTok tics". My dad will not believe me when I say that it's not fake when I say that it hurts and that I can't control them. I'm scared, every day I cannot control my body, I can't control what I say. I'm so scared. It hurts.

[@MicWithTics]

If it started suddenly then your neurologist should have known to look into FND instead of passing it off as “a tiktok thing.” If you’ve had it even way before you knew what Tourette’s was, then they should have known it was Tourette’s and not “a tiktok thing.” If your tics started suddenly, look into functional tics rather than tourettic tics. Many people get wrongly diagnosed with Tourette’s instead of FND because the neurologist doesn’t care enough to ask about the onset of the tics. I happen to have Tourette’s, so I have tourettic tics. They started very young and gradually got worse as I got older. People with tourettic tics will often have a similar experience to mine, where they start young and get better or worse as they age. People with functional tics have sudden onset. It is not gradual at all most times, and onset usually happens later than with tourettic tics. Also while tourettic tics wax and wane gradually, functional tics often come in “flare-ups” that are more sudden. I hope you get the help you need with your tics. I hope you get put on a treatment that is appropriate for whatever disorder you have. And I hope it happens soon so that your life gets easier.

[@DayOldMeat]

​@@MicWithTicsthis is what I find weird when stuff is put off as just some kind of social contagion, because even if it's not the thing someone thinks it is, it might be something! And even people 'faking it' are exhibiting something psychologically important that needs to be addressed and treated beyond "oh, you're just copying the others to get attention" or whatever.

[@bexie1992]

This is the catch 22 with being public about your disorders. People can copy, but most of the time (from what I've seen) it brings people who are suffering out as they finally see themselves and realise that something is going on and that there is help out there.

[@bexie1992]

Also, I've seen another tiktoker who does Anita's whistle.

[@bexie1992]

I've also now shared this on my tweeter and Facebook.

[@brittanypanda9348]

Or idiots write articles like this.

[@luizcastro5246]

for every 1 persom copying your disease 50 more discover what it is and are properly diagnosed(maybe not officialy but they find out what they have).

[@ericandrewscott1994]

It's unfortunately risk that comes with awareness, similar to suicide hotlines wherein it reveals not just the option of help but also the option of death.

[@yippykiay13]

Did they ever consider that these Tourette’s influencers are giving these kids the confidence they needed to come forward and own their disorder instead of hiding it away?

[@NoBorderCanStopUs1776]

Well hiding it is better for me then people knowing and mocking and making fun of me about it

[@rasenganmaster101]

@@NoBorderCanStopUs1776 u can't hide it, if u let people know beforehand u won't catch them off guard and make them think you're either insane or trying to insult them

[@pumpkinspice0612]

@@rasenganmaster101 You can hide it, I also suffer from complex tics and it's painful but tics can be supressed or delayed if you know they're coming (kinda like how you feel a sneeze before you sneeze). There are times when they can't be controlled and you don't know they're coming but at least for me that's rare I know other people with tics will experience other things but that's just my take.

[@rasenganmaster101]

@@pumpkinspice0612 but i also know thats painful for most people to do

[@tinypierson1020]

Exactly

[@julians7268]

I have a rare chronic pain condition, Dercums Disease, and I can agree that doctors just do not seem to do a good job at diagnosing or treating rare conditions. It is incredibly depressing. I don't have tourettes but I am sure she is a superhero to people who do, because suffering alone is maddening. People who have tourettes have Anita fighting for them and it's nice to see.

[@scottessery100]

Hope your ok Julian

[@SeeJade]

I have a condition called Marfan's Syndrome(relatively mild, but major enough that I had multiple EKGs and an ultrasound every year until I turned 18 due to complications from it). Luckily, my mom also has it, recognized it in me and I was diagnosed before I was even 3. My mom, however, wasn't diagnosed until she was in her 20s. She struggled a lot in school and other things because of the way it affected her, but chronic conditions and disorders like these are rarely ever caught and diagnosed in a timely manner

[@yippykiay13]

I have massive vertigo spells, seen three doctors, and nothing has come of it so they obviously assume I self diagnosed, aka, I’m making it up. The first neurologist I saw claimed they were seizures, so every doctor afterwards insisted on proving his diagnosis correct even though he found nothing to support it. I begged them to stop looking for seizures, but none of them listened. I even suggested to look into post concussive disorder because this wasn’t a part of my life until directly after the third concussion I had received in a year, but I was straight up told it couldn’t be that because that’s a very rare disorder. My psychiatrist suspects it’s conversion disorder, and, yes, every symptom matches to a T, but no doctor will even consider it because, again, it’s rare, and God forbid anyone else besides a neurologist suggest a neurological disorder. It’s gotten to the point that I stopped seeking treatment. Now I can’t hold down a job, I’m terrified to meet new people who can’t understand me when I forget words, I barely ever leave the house. The medical world is ridiculous. They need to stop sucking each other’s d’s and actually listen to their patients.

[@fatboy3874]

I also have chronic pain conditions and i was told that im faking it and that i was an addict to painkillers but now ive been told its fibromyalgia Hope ur doing okay now i know the struggles

[@littleloner1159]

God same. Blessed be that one doctor who actually sat down with me and did everything possible to figure out what was going on. Doctors shouldn't judge and invalidate their patients. If someone's coming to you and being desperate, they are not making something up for attention. They are there to figure out what's wrong so they can learn how to deal with it. It's a doctors job to help people, not make them feel worse. Hope everyone is doing alright and know that you matter and your reality is valid.

[@anyonebutjudith]

I’ve scared myself to death about this article and thinking I’m gonna get “un-diagnosed” even though i had tics before i even had tiktok because I’m a 16 year old with complex tics and coprolalia. Thank you so much for speaking on this, you have no idea how much it means to me that someone i look up to understands❤️

[@ireallyreallyhategoogle]

Good luck with your diagnosis, and your life.

[@dgr4277]

JudeIsNotCool can you write examples of your coprolalia?

[@ireallyreallyhategoogle]

@@dgr4277 Why? Why would you need an example of that? Do you have a swearing kink?

[@dgr4277]

@@ireallyreallyhategoogle yep

[@margoedwards6729]

the reasons i havent been diagnosed yet actually astound me "it might go away after a while" "you don't want to go on scary sounding meds" "tourette's isn't common in girls" like my guy I just want to do my exams in peace

[@KittyCat260]

Funnily enough, the first two reasons are the same as reasons I was given for not being diagnosed with bipolar disorder years before I eventually was. The other reason they gave was "you don't want to be given a label at this age". 10+ years of terrible mental health later, they finally decided to give the "label" and "scary sounding meds" so I could live more normally. I don't see why it has to be such an uphill struggle where mental health is concerned.

[@ireallyreallyhategoogle]

@@KittyCat260 Because mental health is just as important as physical health, or so the government paid ads tell us. They'd rather pay for ads pretending that they are doing something, than to actually do something.

[@KittyCat260]

@@ireallyreallyhategoogle see, we don't do stuff like that in the UK. They're not allowed to advertise anything health or medication related, the problem here is mostly just that the service isn't well funded enough to treat everyone with mental health problems at a decent rate.

[@ireallyreallyhategoogle]

@@KittyCat260 Oh, private companies are not supposed to advertise medication, but they do it anyway. The government is free to make any ads it wants, they're the ones making the rules anyway. They love to make ads patting themselves on the back about what a great job they are doing, usually not too long before the elections. They make ads about driving too fast, about driving under the influence, and about mental health being just as important as physical health. All the politicians that have ever been elected in Québec say that healthcare is a priority, then as soon as they get elected, they cut the healthcare budgets. One idiot even offered all the oldest nurses early retirement. My mom jumped on the opportunity. She had and still has chronic back pain. Not a month after she retired, she got a letter asking her if she wanted to come back to work. They finally realized that once they had retired all the most experienced nurses, there was no one left to train the younger nurses. We've had a nurse shortage ever since.

[@KittyCat260]

@@ireallyreallyhategoogle in political campaigns we do get a lot of promises to better fund the NHS and mental health services in particular, but that's generally the same as what you're saying - it doesn't happen and often ends up with cuts instead. The rest of the time it's just not brought up at all - mental health is completely swept under the rug and the NHS just goes on quietly unless something pops up in the news about a rapidly spreading disease like covid or stories about hospitals with huge death rates or whatever. Many of our nurses were effectively forced out by Brexit and we've had similar shortages because of that 🤦🏻‍♀️

[@xenobyteedm9761]

I hate hearing the pain in her voice... You can tell she's genuinely upset.

[@najrenchelf2751]

I'll bet she definitely needed a hug after this stream! :(

[@gabe_dunn]

That and the fact that she's barely ticing

[@empireofthelight2651]

Good thing you're doing Anita. Educating people. Needs to be done

[@devilmaycomplain2663]

Anita, not to be really freaking dramatic, but you make me feel human again sometimes lol. I always second guess myself with my tics, and it gets worse with articles like this where j feel like maybe I'm doing this because other people do it, even though I know I've had tics longer than before it became widespread on tiktok. So, Thank you a lot.

[@salfisher5143]

I get this but I’ve had tics since I was 5 and I Tiktok wasn’t a thing then and I wasn’t watching KZbin then. I’m glad it’s not just me that feels like this. It’s almost like I’m convincing my self that i don’t have this condition that I’ve had since I was small because people are “catching tics” as if the condition is a germ. I don’t mean catching tics like tic swapping I mean catching tics where you go up to someone and then get Tourette’s just because someone else had them. Idk how to explain what I mean but it is heart breaking.

[@confusedSoulof2010]

You are seen. You are heard. You are human. You belong. You are loved. It's not much, but have a virtual hug and stay you. ⊂( ◜◒◝ )⊃

[@digitaldogs233]

@@confusedSoulof2010 I second this comment, my virtual hug 🤗💖

[@tinypierson1020]

This is how it is for me.

[@nova756]

If a person is told they're making it up enough times, most of the time they will internalize this and struggle to believe themselves. It's sad but i hope you know it's normal and your experience is completely valid. I hope you're able to find people make you feel heard and understood

[@teedr6149]

4:58 A lot of parents are bringing their children into clinics that diagnose common neurological disorders like ADHD, autism, and the such. These parents are being told their child is exhibiting certain symptoms and the parents will react with "Thats normal I do it all the time" only to find out that they have ADHD or mild autism.

[@carina-nonbinary]

My brother got diagnosis with adhd and dyslexia and my parents were just like "nope we're not going to treat that, he's just lazy". I was always good at school but other than that had clear symptoms of adhd. Now that i'm grown up i struggled a lot and found out i have adhd. It's in the family and my parents never gave a shit, they somehow think ignoring it and blaming everyone for acting differently is the best thing to do

[@mikuenjoyerXD]

@@carina-nonbinary I have ADHD and my mom would always call me lazy but she has ADHD too bruh. but we definitely present differently

[@Karl_Marx30]

I was recently diagnosed with tourettes after my tics started becoming far more evident, but for months before I got my diagnosis I was getting in trouble at school, getting bullied by people I used to be friends with, was punished by my family for "attention seeking and lying", and many more things. I discovered your content towards the beginning of when this was happening and it helped me so much to be able to put a name to what was happening and to know that I wasn't going insane. Now that I have a diagnosis it has gotten much easier, but I will never forget how much your content helped me during the most difficult period of my life. Thank you for being yourself and for helping so many of us Anita.

[@munkeefinkelbeen5395]

This is what I sincerely hate about a lot of doctors... that attitude of, "I went to school for the better part of a decade for this, and you think you know more than I do?! Bullcrap! I know everything, and you know nothing!" But when new evidence comes out, that a "know nothing patient" brought to their attention years ago, it becomes "I knew that all along!" After years of neglecting patients... makes my blood boil

[@oceanstaiga5928]

A good doctor should be able to say “I don’t know”. They’re not almighty either.. they should admit it and do more research to benefit their patients.

[@Iwas15whenImadethischannel]

this

[@morphman86]

The doctor that tried to diagnose my pain disorder sat by his computer the entire time. I asked if he had at least an educated guess, and he refused to tell me anything. He said the field of medicine is expanding so rapidly, it is impossible for anyone to keep up. That is why computers have been a godsend. Any doctor who claims they know just because they spent 6 years in school 20 years ago should not get to keep their licence. I much rather have a doctor tell me "I don't know, but I'll try to find out" and fail than "Yeah, it's definitely this and not that" and fail.

[@comicconcarne]

The best say "I don't know, but let me ask my colleagues who specialize in this what I *think* it is and we can work from there." But that requires functioning health infrastructure.

[@munkeefinkelbeen5395]

@@comicconcarne agreed

[@EternalSentinal]

Don't temper your reactions. You don't want a child with the same condition to be treated the same way you were, you want them to know it's not their fault, they aren't attention seekers, that people can understand. That article should be upsetting, and you did the best thing you could, you factually brought it to the attention of your fans and educated us on it. You didn't rage, you didn't set an angry horde on them (I'd be really tempted myself). You're using your platform to be a voice of reason. There is a quote I think fits here. "When the mob and the press and the whole world tell you to move, your job is to plant yourself like a tree beside the river of truth, and tell the whole world - 'No, you move.'"

[@boonedogg7971]

Did you read the medical paper? Not the article but the medical paper the article is referring to? If not please do. I love Anita's videos, don't get me wrong. I'm 33 years old and was diagnosed when I was around 7 years old and I've had my fair share of crap because of it like we all have. However, my anger shifted from the media/this doctor to the kids who are/were indeed faking it. First, the doctor who wrote the medical paper is a doctor who works at a SPECIALIZED center for Tourette's. The paper states that some of the new cases were legit, however it states that most were not Tourette's. It says "Although some patients indeed suffered in addition from mild Tourette syndrome, for all newly emerged symptoms, it could be clearly ruled out that they were tics for several reasons." CLEARLY ruled out for SEVERAL reasons, and they list 6 reasons why. Again, I really like Anita's videos, she's really positive and a lot of the stuff she has said has helped me in a lot of ways, however, I think she focused on the wrong parts of this article and missed the important parts.

[@adamsawyer5936]

She focused on the dangerous publicizing of misinformation which is empirically and vastly more important than mentioning how more people than usual are feigning tourette's syndrome. Particularly because the way this individual presented this phenomenon was damaging to the way tourette's syndrome is perceived. She did not focus on the wrong part. If kids fake tourette's and are found out by doctors, that's inconsequential next to promoting false perceptions about that condition. Anita is making a just, comendable, admirable and morally upstanding effort to prevent harm and suffering like she endured.

[@urusledge]

@@boonedogg7971 thank you. People have got to understand how deeply and fundamentally the internet has exacerbated the complexity of human social interaction. The idea that kids aren't wandering into internet communities desperate for attention and assimilating into said communities if they get that attention isn't a stretch. Even if it means imitating symptoms they don't really have.

[@urusledge]

@@adamsawyer5936 this is bordering on fanboying.

[@adamsawyer5936]

@@urusledge It was meant to be a reply to the comment above mine, not just a random non-sequitur.

[@greyscaleadaven]

I just love when people without any symptoms attempt to then tell the people with those symptoms how their own disability works (aside from medical professionals or experts in the field). As an autistic person, I've had people invalidate it (including my own father), and it's the worst feeling despite my diagnosis in early development stages in my life. All we can do as they try to pretend our disabilities aren't real is sit here and tell our stories, and I'm glad you use your platform to talk about these very important issues with misinformation regarding disabilities in the media.

[@caitieknott7675]

My step-grandfather still invalidates it... even though I got "re-diagnosed" to prove it since apparently 1 medical professional giving the diagnosis wasn't enough. I still don't see why it's us who has to bend over backwards to try to convince them about these things and that they can say whatever hateful stuff they want simply because they're too ignorant to even think about what life is like for us. This and having others try to invalidate our feelings about it and excusing their behaviour... people are so stupid sometimes, I wish I was born as a frog.

[@tinminator8905]

I am very curious about how you got diagnosed at birth. I am not an expert in the field and most my information comes from my mom who is a psychiatrist for children and teenagers, who works with many people on the spectrum. She told me that the disorder is very hard to diagnose correctly and most children are only able to be diagnosed at ages 4 and onward. I have never heard of a way to diagnose children at birth without them being able to exhibit autistic behaviour yet. Is there a new method I don't know of?

[@greyscaleadaven]

@@tinminator8905 So I say birth, but it's more like at a very young age. Practically birth is sort of what I meant. I was lucky to see a behavioral specialist who was able to give my mom an exact diagnosis that fit exactly what I had experienced. Eventually, when I was older and was able to actually read my diagnosis (Semantic Pragmatic Language Disorder to be exact) it fit me to a tee. Sorry for the confusing language, I guess I just got used to saying it that way or something, but I get how it could seem misleading at first.

[@boonedogg7971]

Did you miss the part that the medical paper this is about is from a doctor that works at a center that specializes in Tourette's? Please read the medical paper. It will completely change your opinion about all this. I have Tourette's, and at first I was mad at what I was hearing and at this article. After actually reading the article, my anger shifted to those kids that are faking it. Please read the medical paper

[@boonedogg7971]

Also, I'm sorry to hear about what you've been through with your Autism, I've had people do the same with my Tourettes even though I could show them documentation that proves otherwise. It's not a good feeling to go through that, especially when the stigma of either disease/disorder is not well received by many people already. Stay strong and best of luck to you

[@anaionescu8913]

This video is just heartbreaking. You can hear in Anita's voice how much she's suffered because of people's (un)intentional ignorance, and to see it happen to another generation, whether or not you have tourettes, it's just so tragic to think about

[@dgr4277]

Why doesn't she tic at all in this video ? She says tics come when she's distracted.

[@dgr4277]

@@dg7183 okay then she can always be focused and not tic , this is just an excuse , she's faking it

[@chaoticcasper5835]

I remember being sent to a hospital & them diagnosing me with "conversion disorder" instead of tourettes. When I asked for a reason why they told me that "because anxiety makes it worse" and when I told them anxiety makes everyone's tics worse, regardless of diagnosis... I got told "that would be true if you had tourettes" Not only did he excessively diagnose others with conversion disorder, including a girl with severe OCD, which isn't something that can be conversion disorder, but I was severely mentally and physically abused there. I had a tic attack in my room on the hardwood floor & they shut my door & left me alone. I was punished for my tics and given a "bully support plan" because they thought my tics were intentional. Nobody there was educated on tourettes & I was constantly blamed & told to stop cursing. I had to decide whether to let out my tics and get punished, or to strategically let out my tics at certain moments when staff wasn't paying attention or weren't around, and that didn't always work. I had to muffle my tics into my pillow at night. I was told holding in my tics was good because it meant I could control it. The punishments I was given were the taking away of privileges. I was made into a liar & faker, and even told "it's okay to tell strangers you have tourettes, but we're worried about you taking advantage of family members and friends by telling them you have tourettes when you don't" I was attacked three times by another patient & nothing was done. A 5 year old child died there & it was their fault. We were forced to watch triggering movies for group that involved physical and sexual abuse scenes as well as incest. I literally could go on forever. The doctor there was a pervert & when doing my examination, he brushed my hair back behind my ear and said "your hair looks so pretty when you tic like that" Because of my desperation to go home, I had to give up on convincing them of my tourettes being real. I had to figure out a way to strategically make them think my tics were better & controllable & that was not an easy thing to do. I really could go on forever. I tried to sue but never followed through. I am terrified of that place....

[@ImpulsiveLimbo]

You spoke nothing but facts! Many disorders and even illnesses don't get diagnosed early on for many people (especially women). I wasn't diagnosed with ADHD till I was around 20 and I'm 27 now. I've seen a crazy amount of people get their concerns wether it's physical or mental get turned down and dismissed.

[@scottessery100]

I hope your getting good help now as education is a nightmare with adhd

[@ImpulsiveLimbo]

@@scottessery100 yes I got on meds a few years ago I had to stop when I was pregnant and just recently started them again. Works been much better since I did. Paperwork is hard for me and time management

[@NeonNAX7]

When I read things like this I a very happy that I was diagnosed relatively early but it still feels late because of the amount of bullying you can receive in like 3 years of propper school I think I was diagnosed around 10-13. Also my mom tryed to push for some test early but doctors simply ignored it so yrah mental health ain't that good I gues.

[@smolmoru]

I also have ADHD, but was diagnosed when I was 7, tho that was it. no actual working therapy, no medication, no teaching my parents nor teachers how to deal with it. I had some form of therapy ... about socializating with other kids my age, got kicked out more than once mid session cuz I obv acted like a typical ADHD kid, not understanding neurotypical social behavior and got mad real fast. I'm 26 now and about a year ago I finally managed to get the therapy and medication and especially *knowledge* about ADHD that I desperately needed all these years. tbh learning about it made me finally accept myself the way I am, instead of forcing myself to fit into boxes and social standards. kinda sad if you think about it ...

[@smolmoru]

@@NeonNAX7 I'm the prime example that diagnosing doesn't mean you'll get the tools to learn how to deal with it or those around you get the knowledge how to work with you

[@That_BIack_Cat]

Giving your desease a nick name is super common. I have a cousin that refers to her condition as "Missy" I refer to my condition as "Heinrich". Neither of us have Tourettes but many people with a chronic illness give it a name. The fact that these kids are naming their Tourettes is just a way of coping.

[@jamesdukes1869]

She calls hers Terrence

[@That_BIack_Cat]

@solaria Sorry to hear about your loss. People with chronic illnesses deal with enough crap. We don't need doctors spreading misinformation about our symptoms no matter what those symptoms are.

[@christinaberrier9879]

I have multiple conditions, myself; and I have names for them all. It really does help in a strange sort of way.

[@confused_ufo]

@solaria I'm sorry about your loss. When I was younger and became ill I had a central line put in, I remember I named the different coloured lumens, Tilly, Milly, and Lilly, I definitely think naming them helped me get through it

[@iheartigloos]

You don't need to apologize for your content or for being a passionate, caring, and empathetic person! 🥺🥰

[@VULC4N0VA]

What this person said ^^

[@stoneddeer8646]

She never applogizes for those things what videos did you watch lol

[@R.U.E.Entertainment]

@@stoneddeer8646 I think what theyre trying to say is that when Anita started crying, I think she said sorry for crying and for getting angry at the article, and then the person said you dont have to be sorry for crying and being angry.

[@Duececoupe]

Don't why, but you popped up on my recommend list here on the Tube....what a joy and good laugh you are, needless to say, I've now subscribed! Wish you much love and happiness in the future! Greetings from a Swede in Glasgow.... "If the essence of my being has caused a smile to have appeared upon your face or a touch of joy within your heart. Then in living - I have made my mark." "I used to dislike being sensitive. I thought it made me weak. But take away that single trait, and you take away the very essence of who I am. You take away my conscience, my ability to empathize, my intuition, my creativity, my deep appreciation of the little things, my vivid inner life, my keen awareness of others pain and my passion for it all."

[@Zara_Beth]

oh hey it’s me! 😂 very well said, it’s so difficult for us people who genuinely have tourettes with all these accusations and “fake tic pseudo disorders” etc :( thank you for covering this!!

[@vixtodd2900]

I’m working on an autism diagnosis right now, and it’s because of seeing stereotypes disproven and seeing the full spectrum of autism SPECTRUM disorder displayed that I was able to overcome my ableist view of the disorder and push for a diagnosis. And I’m also unlearning all my masking, allowing myself, for example, to stim again, which helps me cope with sensory overload. I have tics associated with ASD and ADHD that I’m no longer ashamed about or desperately trying to suppress. This article makes me so sad. Edited to add that I’m 30. I’ve spent almost 30 years not knowing/learning to mask that I’m autistic.

[@SeeJade]

I'm curious: what's "stim" ing? And what is ASD? Sorry if this comes across as rude, I'd just like to know more

[@vixtodd2900]

@@SeeJade No worries! ASD is autism spectrum disorder, and stimming is short for “stimulating,” which can be any number of things. You might recognize hand flapping as a common, stereotypical behavior. I tend to snap my fingers, and more often I do this thing where I pinch the meat of my hand that’s between my thumb and pointer with my pointer and middle fingers. Sometimes I rock back and forth on my feet. Even clicking a pen is a stimming behavior. There are tools and toys specifically made for stimming, like fidget spinners. There are just times where I get overwhelmed with sensory input, and I feel electric. Allowing myself to stim, even/especially when I’m interacting with others, helps me to release the electricity.

[@SeeJade]

@@vixtodd2900 oooooooh, thanks for the clarification. As someone with ADHD, most of the things you mentioned for stimming(like clicking the pen) are pretty familiar Edit: I just don't think I ever looked into what it all was called or anything like that. I just knew I fidgeted and often had a hard time not moving around, attributed it to the ADHD, and didn't look any further into it or my diagnosis

[@vixtodd2900]

@@SeeJade Yup! Stimming is common and helpful in both ADHD and ASD!

[@comicconcarne]

You reach the highest level of autism when your special interest becomes disability rights ✊

[@syntaera]

Thank you for mentioning other divergent neurotypes too - Autism and ADHD are also missed in diagnosis far too often, and can have similarly damaging outcomes in terms of social risk and peer abuse. I’ve said in some autism support forums that it’s like being a cube on a pool table jostling with balls. The balls bump into you and because as a cube you don’t roll, and block their way, they assume you’re pushing against them, because that’s the only way a ball could stop them. They can’t comprehend what it’s like to live as a cube, to tip over instead of rolling, to resist all motion just by your shape - so they assume everything inconvenient to them that occurs as a result of your shape is a deliberate act, because for a ball it *would* be. At the same time, it’s hard for a cube to comprehend life as a ball. Like, why do they always roll this way and that way when the table just tips a little bit? How does a ball hit another one and just stop while the other one takes off at the same speed? What are the rules?! It’s maddening. The Double Empathy problem that’s often cited in autism probably applies at least to some extent in other types of neurodivergence. Neurotypical people have to try inordinately hard just to “get it”, and it’s also really hard to try and understand something from a neurotypical perspective as someone who’s not. These people, these doctors, probably genuinely think they are helping. It sure doesn’t though. :(

[@jomana1109]

Damn, great analogy! I’ve always considered myself somewhat slow in the head because I didn’t “get it” like the normies did intuitively, but I soon realized it was a disorder warping others’ perception of me and my sense of self. Access to quality healthcare can make all the difference in the world...Ngl, I still struggle with the self-perception issues in regards to my abilities.

[@notoriousbgc7734]

Great analogy. My dad has Asperger’s and I wish I could have read this comment when I was growing up. Makes me feel like I understand a little better now. Thank you for your wisdom!

[@rayhutchinson640]

beautiful analogy!

[@lemon3rd800]

Wonderful analogy. It really feels like you're a roadblock in the middle of rush hour. You always feel odd and like a cube that tries to fit in a round hole. It just put an unnecessary amount of stress onto me.

[@cheeto.burrito]

except the balls decided they know exactly what it's like to be a cube and refuse to put in the same effort.

[@Lili-uq4vg]

I noticed a huge amount of KZbinrs talking about how children where 'faking their tourettes' because they had similar tiks to tiktokers and I felt horrible. My own disabilities gets questioned but not nearly to this level. I feel for everyone going through this right now and am glad that disabled voices are starting to speak up and at least a little bit are being listened too.

[@tiryaclearsong421]

It's just as bad for ADHD and ASD. I got duagnosed with ADHD just before Gabbie Hanna went on her diagnosis journey and those videos showing off ADHD symptoms on TikTok became super popular. Now I see people on support forums being turned away before they can even be evaluated no matter what evidence they bring. Frequently it will be because they're over the age of 12. There are 40 year olds who don't watch TikTok getting turned away because there are a few teenagers faking or exaggerating symptoms on a random platform. It boggles the mind. My boyfriend strongly suspects he has ASD but he can't seek a disgnosis either for the same reason. He just wants a little support and help creating tools, but he wasn't diagnosed as a child therefore he must want to be a famous TikTokker. He's 30 with a PhD. I want to know if some of these doctors lost their common sense.

[@DeathProductions200]

@@tiryaclearsong421 I've noticed the more accepting people tend to be those who get later diagnoses. Or have a whole family with similar conditions. Its heart breaking. For my adhd diagnoses I had to lie about the severity of one specific thing to know for sure id get the help I needed. I am not proud of it, but thats with the ignorance the world has of these conditions. Where as those who have them. Know the smallest thing that usually can be dismissed outside of it, as a huge part of the condition

[@boonedogg7971]

Please read the actual article. The actual article is a published medical paper by a doctor that works at a center that specializes in Tourette's. Anita is a an awesome person and I love her videos but she focused on a couple things this paper said and didn't cover the most important parts of it. Please do yourself a favor and read the actual article. If you can't find it, let me know and I'll point you in the right direction since I cant' post links in the comments. Anita really should link the medical paper in the description

[@DeathProductions200]

@@boonedogg7971 the issue with the article is what she highlighted though, that cause the most doubt. Please don't say the article is good, when it has issues that can actually cause some major harm to kids.

[@boonedogg7971]

​@@DeathProductions200 What isn't good is reading about a ton of kids that are faking Tourette's Syndrome when so many people LIKE MYSELF were bullied and dealt with so much crap because of it when we were kids. THAT is damaging. Tourette's is not a common disorder, and yes, with more awareness there WILL be more cases. This paper doesn't say all the cases were fake. This paper says most of these cases were CLEARLY not Tourette's and lists like 6 reasons why (in case you didn't actually read it). What is dangerous and what is causing major harm as you say are the kids that are faking it. Most of the kids that were faking it also stopped having tics. If you're able to completely throw out the opinion of a doctor who specializes in Tourette's than there is no point in me trying to get you to understand.

[@robyn7579]

My son is turning 11 next month and I have been saying he has tics since he was 3 and we are still trying to get a diagnosis. There are NO services in my area to support Tourettes so haven't been able to get support. He has a screaming/yelping tics at the moment and it's really hurting him yet we can't get support. I have been told so many times that I shouldn't apply labels to my child. These labels are diagnoses not labels. It's so frustrating, I want to help him and have been begging for help for years. Schools are terrible too, they do not have the correct training for neurodiverse children. Thank you for this video. I am so sorry you have had to suffer. I was told the same as you when I was growing up, I was attention seeking but at the age of 36 I have been diagnosed with ADHD. There needs to be way more awareness of these things and a LOT more support x

[@Trecesolotienesdos]

I'm very sorry you've faced all these challenges. Keep on spreading this info, it's much needed.

[@ironoverheat465]

I have high functioning autism and was diagnosed when 19, even though autism is more popular in the public eye than Tourette's it still took so long for a diagnosis. The medical field is incredibly flawed and the fact that these so called specialists are unconditionally trusted is truly a sad reality. Anita, you are a wonderful kind person and I admire your emotional control in such a rage-inducing situation. I hope the best for you, and to every person with Tourette's!!

[@Patrick-857]

Most people don't realise that doctors don't really know much. Science is very limited. The human body and mind are unimaginably complex and these people are mostly just fumbling in the dark, winging it, or are outright charlatans. There's also tons of biases intrenched beliefs and vested interests in mental and physical healthcare. People like Anita are doing way more than any of the so called experts to help people with the condition. Just like I found out I had ASD through KZbinrs with ASD, because suddenly I saw someone talking about the exact problems I've suffered all my life, that I blamed on my childhood, or being useless, lazy or selfish. I beat myself up and hated myself for years until I came across people online who finally showed me an explanation. I don't have a diagnosis, I've never sought one, my experience with professionals has left me very disillusioned, and it's unclear if I will get one, what good will it do? Im learning to manage this slowly one own. I mostly would just like to meet others with this condition.

[@islabuck8441]

Not even joking, this video made me cry. I don’t have Tourette’s but hearing u speak about this really upset me. I really hope sometime soon that Tourette will get the medical attention it deserves

[@bluchu22]

It would be interesting to have these “experts” interviewed by Anita.

[@VelaiciaCreator]

Big agree. I would wager she has a clearer understanding on the whole deal.

[@boonedogg7971]

The doctor that wrote this was a doctor that worked at a center that specializes in Tourette's. I would consider that person an expert. Also, please read the actual medical article. There is a lot that Anita doesn't even talk about in this video. These kids (not all, but most) were actually faking it. And speaking as someone who has Tourette's, it makes me kinda angry that kids are doing this. Please read the actual article because I love Anita's videos but she didn't even talk about the majority of the article, she might not have even read the whole article because she said it got her too upset, which is understandable.

The ASD Level 1 is mine, J.Kendall.

There’s nothing you can do now, The ASD level 1 is mine by birth right. This is my story, not yours J Kendall.

[@mamajin8035]

@@boonedogg7971 I’ve read the article and it’s incredibly invalidating

[@nova756]

Thank you for making this!! I realized i had mental health disorders in my teen years (pretty severe ED, psychosis) and for years my doctors had diagnosed me and refused to tell me my diagnosis. I had to go to 6+ therapists to get someone who worked with me, believed me and didn't accuse me of making up symptoms for attention. This kind of bias is incredibly rampant in our medical system especially with non-white/male/cis patients, especially for 'invisible' illnesses. Edit: i left this comment like 3 seconds into your video and now that I'm half way through. i can't say how greatful i am that you're being vulnerable and bringing awareness to this issue, even though I don't have the same disorder. I feel your pain and frustration just trying to get through the document. It's truly just adding to the abuses, discrimination and mistreatment of people with types of disabilities (if you think of them that way) that are already misunderstood. It's scary that this is what doctors are reading but it explains a lot. I also had life threatening social struggles that forced me to leave multiple schools, jobs, college and still struggle to survive, not because of my disorder but because of the way other people perceive it and the barriers to getting help. More people need to know about this. Last edit: this is the longest comment I've ever left. I just wanted to say while it's true misinformation has the power to end lives, videos like this legitimately have the power to save lives.

[@TarachinArt]

I very rarely comment online but felt the need to in this case… I’m not sure how much it would help but I’d highly suggest doing a TED talk to reach/educate more people within the medical/professional field, even if merely through inspiring them to bring about change. If you reach 1 doctor, even a GP, that could mean 100’s of children’s lives would be saved. Coming from someone who has had a very traumatic childhood/adulthood and has been diagnosed with CPTSD (amongst other disorders) at age 38 (I’m now 41), I really feel for you. I truly do understand the struggles of having doctors deny treatment and say its all in your head. Fortunately after years of begging and relentless search for answers, I found a doctor who listened. Sadly, this only came about when I had become suicidal, the damage had been ingrained so deep that its effected my memory and my physical health. Because it had taken decades to be diagnosed, I’m now suffering far more than I would have if I had received treatment as a young adult. I’ve become a recluse, don’t trust anyone, am fearful of everything and sometimes feel like I’ll never escape this darkness. I’m just glad that I’m better than I was last year, that gives me hope at least. Maybe someday I’ll be able to be that carefree social butterfly I once was before my emotional and mental dam broke and destroyed my sense of self and reality. Thank you for sharing your vulnerability with the world, you’re a good soul

[@DocMcCray]

I'm going to pull the professional card. I'm a Registered Nurse. And I routinely go through academic studies for both my job and for fun. I have been taught how to read scientific studies as well. Also how to pick apart studies to see if they are relevant or are flawed. That being said, any study that can be boiled down to "I think..." or "I feel..." can be thrown out or disregarded completely. Any worthwhile study has hard numbers to back it up. With the background out of the way, here is how I would set up studies and eventual diagnoses: 1) Define what Tourette's actually mean. 2) From the definition and referencing previous studies, create a 3 tiered study; Survey based > behavioral based > neurological measured based.3) Repeat the process. Unfortunately what most people don't realize is that about 95% of studies are pure junk, failures, or produce unusable data. These tend to be the studies that "news" people latch on to most often. 4.8% of studies can either be successful or begin to show patterned data which can begin to be used in practice. Less than 0.2% of studies show definitive proof of anything truly scientific or provable. What this means for a normal person is that more often than not, you are a test subject in anything medically related. It is depressing as hell, but an unfortunate fact of life. I, myself, have doctors for several different reasons. In order to lead credence to my post, I'll share in saying that I have a psychologist, a psychiatrist, a neurologist, and an internist as specialists monitoring my health. During various visits they have all expressed uncertainty about my conditions which are much easier to define than Tourette's. TL:DR Tourette's experts...probably know jackshit about Tourette's

[@DocMcCray]

Now to further my point, here is how I would treat Gewitter. In terms of data gathering, I would toss out every stream where a handheld camera was involved. Handheld cameras tell me the person may be acting. Meaning that data is uncertain or useless. Next, I would take stationary camera data and seperate it into focused vs unfocused. Meaning is he performing actions that require brain power, or is he at rest and able to focus his energy on acting? To use Anita as an example, even when she is laser focused on a game, she will chirp, whistle, or cuss during times that a "healthy" human would do none of these things. Any streamer that can create complex insults while actively fighting against unpredictable humans is unconsciously using multiple sections of the brain that are not normally supposed to work independently of each other...

[@187Emanon]

I can even imagine how it is/was for people like you. Thank you for speaking for those that don't have a voice. Much love and hugs.

[@najrenchelf2751]

I can't imagine it, but the human voice is such an incredible thing that just by Anita speaking - I could feel what it must have been like... I was close to tears while watching this!

[@BentbrooksRambles]

You are a powerful and inspiring advocate. I’ve grown in my understanding of Tourette’s immeasurably from your channel. Please know your words resonate with the potency of truth. I don’t think you need to temper your reactions; they are real and wholly valid and have the power to open eyes and minds. Thank you, and take care.

[@Itsyaboikeefe]

I love what you’re doing Anita. Stay strong and keep pushing for awareness. Thank you for exposing the lies in this article.

[@klaotrixxx5476]

Hey Anita, I just found you here on KZbin and I'm from Germany and need to tell you that I'm amazed by you. You and all other people with medical conditions like tourettes NEED to spread awareness. My mom works at a school for physically and mentally ill children . A lot of them have mild forms of tourettes and get bullied so much by other kids their age and even older people. I hate to see it because I know how sweet they are and that they have the biggest hearts, like you can't imagine how wholesome they are and I love spending time with them. It tears me apart to see stuff like that happening to these kids and also to hear your story. I love your confidence about this topic. Please keep it up. Just like Jan here in Germany, you are probably a huge inspiration to those kids and will hopefully make their life easier when more and more people hopefully understand these medical conditions... I seriously love you for that, means a lot to me and to the kids. ❤️❤️ Oh and by the way. You're a beautiful soul. You care so much. Need to stop now otherwise I'll have a crush on you, fuck 😂❤️

[@sophi7929]

wild how emotionally / empathically removed the medical industry is. Less care, more judgement.

[@reallyanotheruser7290]

The E-Mail of the publishing Prof. is online available, she seems to be quite renown for her work regarding tourettes. I think maybe it would help if you'd write her an e-Mail where you at least send her the link to this video. I dont think scientists in this field are ill-intended, and at the same time they are the source for whats going wrong, so it could probably really help to make them aware that articles like this are not helpful.

[@LinWarai]

where can i find her email?

[@reallyanotheruser7290]

@@VicarAmelias There should be no language barrier, all scientists in germany know english well enough to publish and do conferences in english, this should be enough

[@reallyanotheruser7290]

@@LinWarai Disclaimer there should really be no random internet people spam her, its best if Anita writes a mail. If you have tourettes and are personally affected by this, then on the website where the article is published at the top are the autors listed, there you can find the email. I dont want to make finding the email TOO easy tho since the internet is quick with spamming and harasment and i really dont want me writing this comment turn into this

[@LinWarai]

@@reallyanotheruser7290 ohhh good idea!

[@maximilianraley2457]

Mine are reaching a peak again where they are pretty bad. My neck is hurting constantly from twitching. People at work no matter how much I explain tourettes syndrome, they don't seem to get it. And now I'm either made fun of or they think im faking it. I hate this stupid "trend" it is making it hard on us people who really struggle with it.

[@munkeefinkelbeen5395]

I know it's a stretch, but I pray that things get better for you soon, and sorry to hear about your neck pain. I can hardly imagine what that must be like 😖

[@WildArtistsl]

Wtf? I hope you get a better environment

[@maximilianraley2457]

@@munkeefinkelbeen5395 thank you. I appreciate it

[@maximilianraley2457]

@@WildArtistsl Thanks a lot. I'm currently looking for a new job. I work at Taco Bell and irs crazy how no one including the higher ups even try to understand this disorder. I've even offered to get people in the store together to do a class. I feel hopeless about it at times. But all we can do is keep moving forward.

[@munkeefinkelbeen5395]

@@maximilianraley2457 best of luck with finding a new job. The world's approach to mental health needs a serious overhaul, I tell ya.

[@TheMitts]

So sad hearing some this. I don't have Tourette's but did grow up with a very rare bone defect which impacted my jaw with growth that never stopped. I have been lucky, that with regular-ish surgery I could reduce it every 5-6 years when it got really bad, but I can really appreciate living with something like this. You bring real meaning to the word influencer. Go Anita, legend :)

[@TheBakugan585]

Your videos are helping me through my instability, seeing others going through similar issues makes you feel more human, like you’re not all alone

[@amin9339]

Oh yeah, this guy is pretty well-known in the German YT scene by now. Such a great human being. Never met him in person but he seems pretty decent. The first video I ever saw of him was before he was popular and trying to find a job in a documentation. Maybe there are some questionable people out there faking it - for whatever reason - but he definitely does not. Somebody who watches his videos only once or twice should see that right away and it's just disrespectful to claim the opposite.

[@AppleUploadsVideos]

he really is a great youtuber who brought awareness to tourettes, but unfortunately I even noticed kids in my class who were imitating his tics (who had never had tics before and generally were bullies)

[@rkitchen1967]

I appreciate what I have learned about Tourette's from your videos and how much more difficult life is with it than I had realized. Please know that you are getting the message across to many of us.

[@jsalsman]

Such an important perspective! Everyone needs to email this video to the authors of those oh-so-very problematic reports.

[@atrixcanada7204]

I just love how much Anita got passionate about this because of what she has went through as well. I'm just glad she's able to educate people who watch her on these things. Like at 14:00 she's just so passionate about telling her story

[@Zillah82]

I've been through a lot of being dismissed on my diagnosis for my health conditions and have known other people who have gone through the same. It's so frustrating and heart breaking. Sometimes, I feel like I'm coming off as preachy but someone has to say something because that's the only hope for change. Thank you for speaking up for those kids.

[@alan-sleep]

you're such a strong and genuine person, keep going on, I'm sure you already made a hell of a difference for a lot of those kids! you surely did for me, I don't have Tourette's but now because of you I know how it really goes so I can spread that information among my friends etc, and now I would never react badly to the people who have it and accidently occuse me. and you'd be a good scientist, it's sad that you couldn't but maybe there's a reason for it (I'm not religious but still), perhaps one of them is to fill in those gaps like you did with me. so thank you, Anita, from all my heart (sorry if I do grammar mistakes time to time, english is not my first language even though I'm about to move to England)

[@EricIsntSmart]

It sucks that people think faking Tourettes is a good thing, people need serious help

[@scottessery100]

It sucks that some people think people fake Tourette’s

[@xmeowpvp]

@@scottessery100 sadly some people actually fake them

[@TwistyKitty]

@@scottessery100 the problem is, there ARE people on tiktok faking mental health disorders. We know this because they've been exposed or have flat out admitted to lying. There's an entire DID community on tiktok that all their medical terms and knowledge come from a Tumblr and fandomwiki site with nothing that links back to any actual medical research. It's not all of them, but there's a significant enough of them doing so and it severely harms people with legitimate mental health problems. I don't have Tourette's, but I've spent nearly 3 decades of my life being belittled for my OCD and severe anxiety. Nothing like telling someone about your diagnosis and get the response of "I'm a neat freak so I must have OCD, too."

[@leadpaintchips9461]

@@TwistyKitty Not just in tiktok, but on a lot of social media and spreading from social media. Self diagnosed individuals with no or misrepresented symptoms labelling themselves. On the flipside though, you have doctors like this one not diagnosing correctly, leaving people with issues out in the wind with no support.

[@TwistyKitty]

@@leadpaintchips9461 The doctor issue is definitely another huge issue, and sadly one I've run into myself as well. I'm livid that a medical professional would refuse to diagnose someone on the speculation they would be "bullied" for their diagnosis, as though the child isn't already being bullied for their odd behaviors no one around them understands. You're a doctor, do your JOB. 🤦‍♀️

[@CrosswaIk]

Luckily my pediatrician had a daughter with ts so she could help me when I first started to have symptoms at 12. 100% if you're around another person with ts then I'll sync up like a metronome lol.

[@coldethyl]

Thank you for finally saying it. I'm in my 20's and only even found videos of tics BECAUSE I was searching my own tics and trying to feel normal- not as a weird way to 'study and mimic' tics I'd never experienced before. I can't think of anyone I know who has recently been diagnosed with tics that didn't have tics long before tiktok and youtube talked about them. If anything, its given us the courage to come forward and have them diagnosed after YEARS of hiding.

[@JustMeADutchGuy]

I got diagnosed with a form of autism as a forty-year-old. It is pretty recent because of a burn-out and depression I started with diagnostic programs. It is like so many traumatic and awkward situations growing up. Remembering every detail. And my mostly terrible time in the dutch schooling system having such a hard time with the social aspect and growing up as a result never felt fitting in the world after. Other than me being just wrong or bad. It's this way for so many many people I found out. I am trying to sort myself out with kindness. As we all really need to do. Take good care of yourself. You are so worth it.(sorry for the "Dutch" cheesiness.)

[@xXNoMoralzXx]

I'm so glad you uploaded this. Heartbreaking, but an important perspective. Unforgettable.

[@vincentowen2519]

With regards to GPs (General Practitioners), I get the sense that some of them are clocking in for their pay checks and not giving their jobs the due care and attention necessary. Best case is that its a result of over extended work loads due to there not being enough of them, worst case is that we are failing to vet prospective GPs for the appropriate attributes for the job, probably both and more. Certainly a bigger problem than can be solved by a comment on a KZbin video.

[@darkenedpsynoid]

Oh it's definitely just that,most of these doctors nowadays don't give a s*** hardly about their patients "Save a Life" more like "Save a Paycheck"

[@cassiusvoidkin]

As much as I love your gaming videos and silly tic compilations, this is definitely my favorite kind of content that you produce. I will admit that I pretended to have dramatic and inappropriate tics when I was at an amusement park with some friends during middle school. The old man whose sons filmed him, I think he was called Tourette's Guy, was really popular at the time. Years later I found out that several close relatives on my dad's side have Tourette's with very subtle symptoms. Now, at nearing 30, I've realized that I have actually had tics my entire life. At times they have actually been really problematic, painful, even debilitating. I don't think it's Tourette's so much as my OCD. The thing is, I didn't realize for so long that what was happening to me were tics because of the portrayal of Tourette's in media. I didn't understand why I genuinely couldn't stop or control these movements, even when they had become extremely uncomfortable for me. Or why if I tried to stop myself from doing them it became not only physically painful but would also cause me anxiety and make my heart race. What I really love about the community that you and others with Tourette's Syndrome have created online since then is that you are drawing people, with or without TS, to this topic with humor and gaming but then you're also educating them and they're leaving with a better understanding of themselves and the world around them.

[@carolinegoss6669]

I've dealt with tics for as long as I can remember, but I suppressed most of them or assumed I was just qUiRkY until I had a severe mental break in January/February of this year and started having a lot of tic attacks/episodes since. Having creators available to me while I work out what is going on is so important. Your channel has kept me from convincing myself I'm lying to the world and myself. Thank you so much for who you are.

[@alolaneevee2550]

I can hear the pain in your voice and as soon as I read this before knowing you had a video up I felt my heart drop and knew you'd be talking about it. I don't have tourettes syndrome but I have Aspergers and I Stim a lot, so thinks like tapping my hand on my leg and pushing/clapping/waving hands. I've had people say you're faking it, it's not real and it's so frustrating because I can't help it. I can't imagine how something like this that is finally becoming noticed and having more awareness is being backpedalled because of fake scientists and doctors wanting to pretend they know everything. I wholly support anyone with any disability, especially tourettes! You are incredible, every single person is regardless of anything and you should always have someone believe in you and support you because if we don't choose to believe and help people then we are scum.

[@AyubuKK]

Makes me very thankful that the moment I developed tics I got diagnosed. And I think it definitely helped a lot with figuring out it’s source before too long.

[@dizzy_ddigital]

That's amazing !! I'm also getting worried of developing tics, and now looking for a medical professional or proper diagnosis. Best of luck !!

[@AyubuKK]

@@dizzy_ddigital Good luck my dude

[@universal_stupidity]

Yeah I developed tics during quarantine and got diagnosed this year, and I never would have known so quickly what was happening if it wasn't for Anita and then other sources online (but Anita was the first person I watched with Tourettes), and I'm so glad I got diagnosed and can explain what's going on with a label and a doctor to back me up

[@onerian8178]

i have autism and i hate how people assume that because my disorder is invisable to them it doesnt exist.

[@SeeJade]

My brother has Aspergers(autocorrect is saying that's not a word, so please tell me if I spelled it wrong) and, while it was very obvious when we were younger, it's practically unnoticeable now.

[@dreamingwide]

I went through 2 psychologists until I got to the third who actually helped me. Whenever I told the others that I'd hear voices and would feel a very stressful urge to hurt myself, they'd say I was attention seeking and that I wasn't hearing anything. On the third psychologist he helped me and quite some time afterwards I got diagnosed with severe depression and borderline. That helped a shit ton for me to understand myself and learn grounding techniques. Mental illnesses are so poorly understood, had to learn to not trust doctors and don't give up even when they humiliate me

[@willburty995]

i hope you know you are one of the stepping stones, helping the public to understand & spreading awareness

[@gamingdork9660]

Thank you for bringing attention to this. People need to understand having Tourette’s isn’t “cool” and is very frustrating sometimes (especially during tic attacks, I hate them). I really appreciate this since you can tell thousands of people about this.

[@seanbarker4610]

Very eloquently put, such a sad situation when so called professionals are doubting and creating negative and dismissive attitudes.

[@DaelinD]

I am a nurse working in an emergency reception. I unfortunately often experience a similar phenomenon, which is, when we medical professionals don't have an easy tool for diagnosis, such as blood tests or scans, we (including myself) have a tendency to start doubting whether a patient is even sick at all. In my department, 9 of 10 patients present with abdominal pain, and pain is such a profoundly subjective symptom, there is simply zero method to accurately measure it; we can only ask and observe. And when we can't find anything objectively wrong with a patient, yet they continue to experience said pain, we unfortunately often disregard that perceived symptom. This is especially true when we get patients whose pain is more chronic in nature. It's not uncommon that doctors and nurses then start considering whether such a patient is expressing pain so as to have more pain medication, specifically opioids, like morphine. We begin to attribute all kinds of characteristics to patients that we really have no basis for, like that patient is an addict or just likes staying in a hospital, when discharging becomes difficult. I think this phenomenon often occurs specifically with neurological and psychological symptoms and disorders, like mental illness, and pain, and Tourette's, or any illness where diagnosis is just not that easy; when doctors and nurses are unable to diagnose or treat a patient, we can sometimes have this frankly lazy, very unhelpful, and maybe even callous reaction of saying "well, this person says they feel really sick, but they're not that sick", or "they say their pain is bad, but obviously, it's not that bad, I can tell by just looking at them", or "this person is presenting with physical and vocal tics, but they're clearly faking these symptoms, because they're not acting quite right or they're not saying the correct things that indicate Tourette's, and also, faking Tourette's is popular now." As I said, this happens when modern medical science becomes inadequate, and we have to rely on individual doctors' and nurses' perception and experience, and also really their personality. And in the end, it's to the detriment of the human being who needs our help. So on behalf of every medical professional in the world, I apologize... I guess? Sorry.

[@FallenAngelHiroko]

As someone who had to deal with a non-functioning gallbladder with gallstones occasionally getting stuck at the opening--thus giving me excruciating pain akin to giving birth but through the chest and upper back--they kept insisting it was "stress" for 4 years until one doctor decided to look deeper into it and finally removed it. Because that's one of the things I tell the ER people (who, at the time, knew me by name since I went so often for dehydration), that I was scared that they would think I was in it for the drugs when I wasn't. I don't handle narcotics well. Like I'm lighter than a light-weight drinker. I'm a wimp when it comes to them. The pain had no obvious triggers as I had tried every diet under the sun to include starvation. There was no pattern at all. Sometimes it lasted 6 hrs and sometimes it lasted for 30. It sucked the life out of me where I didn't want to eat or drink and all I wanted to do was sleep. I had to learn to cope by myself. And bless my mom's soul for letting me keep her up at night (of which I often felt guilty). And that coping turned into anxiety and depression where I would watch the clock like I'm counting down to my doom. It became part of my "normal" every day life. So when I get a doctor that is truly trying to help, I can't be honest with them. If my pain is a 7, I say it's a 3. Because I'm so used to dealing with it, I force it into background noise.

[@DaelinD]

​@@FallenAngelHiroko I know exactly how painful gallstones can be. I know it professionally (gallstones is part of my ward's specialty), I know it from multiple female colleagues, who've told me that gall stones are indeed worse than giving birth. And yes, I personally have gall stones, so I know it very much on my own body. I believe pain from gall stones and kidney stone 'attacks' as we call them, is probably the most intense acute pain there is. You can almost diagnose gall stones just by seeing a person with an attack. They behave in a specific way, very restless, can't stop moving, nothing helps. Gall stones can cause almost chronic pain, simply because they constantly plug up the opening in the gall bladder, as you describe. But I will say, gall stone pain is usually not among the type of pain we tend to "disregard". Not at my ward, at least, where patients most often come with attacks. I think that's because it's so apparent how intense an attack is. And gall stones are readily diagnosable, it's typically done with an ultrasound. It's also treatable, and that ultimately is surgery, to remove the gall bladder. But yeah, when you get an attack, it hurts, like, for real.

[@ItsJustValHere]

I've always been a person who doesn't show symptoms or feels pain that often. So I (or even doctors) would usually disregard me "feeling weird" because I didn't really have a headache or fever. Once I went to the doctor because I had been coughing a bit too much and even tho I didn't have any other symptoms my doctor (luckily) did an x-ray. I had a horrible pneumonia and he said the only reason he wouldn't send me to the hospital was because my lack of symptoms would let me go home and rest there. I'm so grateful he did that x-ray "just to make sure", he was such a nice and caring doctor. He really made me feel understood. I can't imagine what's like for people with conditions that can't be checked via x-ray or blood tests.

[@JayleeParker]

my tics started to develop after i watched a documentary about tourettes when i was 11 years old. because of that, i convinced myself i was faking it. it took a long time for me to be open about my tics, and the first time i did, someone told me i was faking it. i’m 17 and i still question myself sometimes, and articles like these definitely don’t help.

[@kannacraze]

Lmao similar shit happened to me. We were shown a movie in school once and ever since I always saw tourette related videos here and there. I noticed my hand or shoulder started having weird subtle uncontrollable movements for weeks until one of my classmates had a tic attack, and I picked up one of his tics. Ever since then I've had tics. I also grew up with anxiety disorder and my tics are heavily fuels by that. But my psychiatrist says my tics are abnormal,, but I mean I literally cannot control them. I thought I had them just because I saw multiple videos and a classmate have a tic attack so I get you alot. Now being told that my tics are abnormal just makes me even more like 😟😟

[@UylyYT]

Thank you so much. I've had all the symptoms of Tourette's for about a month, and I've been very stressed out about the fact that I feel like I'm faking, or that other people think that I'm faking. Its very lonely. My mom doesn't even wanting me calling my tics by "it", but it is really comforting to give it a name. Its so much easier to talk about and cope with by talking about it as if it was somebody else.

[@TheDrexxus]

This is a tough thing to deal with for a society because on the one hand it does hurt people with tourettes and can lead to people not being diagnosed properly, but on the other hand, teenagers ABSOLUTELY imitate things they see and think are funny. Even back in the 90s when I was in school, kids did it then. In the 2000s when my nieces were in school, they did it then too. It's not hard to imagine kids and young people still doing it today. I imagine they always have, as some part of their development they just imitate what they see and hear, especially if it is funny. In my family, we say very specific things under very specific circumstances. Not in an uncontrollable tic sort of way, but just because it amuses us and became part of our family culture more or less. My wife often goes up to me and says "Give me some sugar baby" because of that scene in Army of Darkness. Whenever I see a Sale sign, I say "By Grabthar's Hammer, what a savings". Whenever I hear someone use the phrase "making my way" I say it too because of that song and critical role. People emulate things they like naturally, and kids seem to do everything dialed up to 11 and they definitely do things just to grab attention. That is what makes it so difficult to take kids and young people seriously is because they do crazy shit like that all the time and they LIE a lot. One of my nieces for example lied all the time, so anytime she ever said anything everyone always listened in a "I bet she is lying again" sort of way, and guess what? We were always right, because she WAS lying. Eventually she'd fess up to it and admit it. So if she had some something and been telling the truth for once, no one would've believed it and that isn't our fault for not taking everything she said 100% seriously because she conditioned us through her own behavior to expect her to be lying and attention seeking. There was even a phase she went through where she went around telling everyone she was a lesbian and only wanted to date girls. For about 3 months she went through this phase and talked on and on about her "girlfriend" and things like that and we all just kind of quietly nodded like "uh huh, okay...". And then one day she was back to talking exclusively about boys again and she never talked about a single other girl, never went out with another girl, nothing. Exclusively males before and after. She did it because she wanted attention. She did it because other girls in her class were saying the same thing for their own reasons. I don't care how many gay pride parades you go to that may convince you otherwise, but for every girl in her school to one day all declare they are gay is not legitimate. It's like they all wanted to be unique or special or different or something, and being a lesbian just happened to be what they decided was cool at the time. Thats just what kids do, and ironically it makes all of them the same and they are emulating each other, but thats just how kids operate. Goth kids are like that too... They want to feel special or different or unique, so they dress in a particular style, but because all of them do, they all end up dressing just like each other but they all fail to see the irony in that. Or the irony in having to go to specialist stores to buy special clothing to fit their style while simultaneously criticizing the fashion industry. You cannot expect all of society to take them seriously 100% of the time when generations of foreknowledge coupled with personal, direct experience has taught us they are lying, attention seekers, and imitators. Ultimately the parents should know their own kids. Some kids lie all the time and their parents should know that. A scarce few don't lie often, usually just to stay out of trouble, and their parents should know that too. I think if parents just paid more attention to their kids and got to know them better, it could solve a lot of these issues.

[@tainted9244]

For the amount of years that i got bullied with my Tourette's, I feel really scared for the next generation. It seems no matter how much awareness there is society will always be the same and i only hope that. In the future we can get Tourette's Syndrome more mainstream so that people can be aware of it. I'm with you Anita, This is hard to hear.

[@micky2be]

I feel you. I would be reacting the same way about ADHD. Even if I went through it, I know I'm still broken inside, and it would break my heart to see many other kids to go through the same struggle just because of some stupid articles and doctors.

[@DaftFader]

I am 36 and only just found out I've most likely been living with undiagnosed autisum my whole life. I should hopefully get on the waiting list for a diagnosis soon, but I was actively dissuaded from seeking a diagnosis by two medical professionals before I managed to twist the third ones arm that I do actually want a diagnosis, and it's actually worth refering me for one. 😳 They kept telling me there was no point, and that there's not much support for adult autism (the latter is pretty true but it's besides the point)! I was like I want, and have a fucking right to know If I am autistic!!! My whole life's been a fucking mess as a result, and I thought for the longest time that I was just a useless human. But I just don't function like other people and can't help it, and I want, no NEED, to know for sure so I might stop blaming myself for not being able to eailsy do what other people seem to be able to do naturally without even thinking about it. When I told one doc I think I have autisum, they were like "oh so you struggled as a kid?" I was like I struggled thinking about making this dam call for the last 3 months, I struggled the moment I woke up this morning till the moment I went to bed. It doesn't just go away when you get older, especially if you didn't know you had it, and have no coping mechanisms cos you didn't even know why you are like you are. I wish doctors would stop for a second, do a bit of reaserch and then commence with the appointment. Most of them learnt a bit about everything 20-30 years ago, and never update their knowlage, and are missing out on decades of medical advancements and updated understanding on certain topics (seemingly more so in mental health areas).

[@ketrianrenolsin9608]

I am 46 and in the last year have thought of myself as being autistic. I am hoping to get diagnosed, but I don't think that will happen. I have been dealing with my own mental health for many years, I was hoping that this time I will have help, but once again, I think this will be something that I deal with on my own. Good luck to you in regard to getting the diagnosis and your future :)

[@DaftFader]

@@ketrianrenolsin9608 Thanks for the kind words, the same goes to you! I'm not sure where you live, but this can have a huge impact on what kind of responce you get. I'm quite lucky in a sence, as in the UK, although the NHS is really underfunded these days, I don't have to fork out a ton of cash out of pocket for a diagnosis if I don't want to (I still have the option to go private, or I can just wait 3-4 years on the waiting list). In the USA it costs a ton for a diagnosis, and in some third world countries I can imagin they don't even have autisum services and even the most severely effected will have little to no support and probably end up homeless or worse! 😢

[@nicbrunet4359]

As a person who does not have tourettes, I love your videos... I find your videos remind me of the effects of how I treat people, can have implications in their lives... we never know how the things we say can affect anyone... be they live with tourettes, genetic issues, or any kind of human issue... they just remind me to be mindful of the way we use language with people. I am sorry that you experienced so many negative experiences in your life in regards to your tourettes... but also happy it lead you to making important videos like these. Keep it up and love what you do as a fellow human being

[@Apostle_Tom]

You are here to tell the truth. We are here to support you. I have cerebral palsy, it's not tourette syndrome, but i can understand what you have been through. Thank You for being strong. I'm listening, supporting and praying for you, that's the least i can do. 🦾😁

[@JKingZero1]

Damn… seeing Anita crying made me wanna go through the screen and hug her. I really feel sorry for the experience she had to go through growing up and for her experience she had to go through with the medical professional who just didn’t care. She spoke nothing but facts and truth. People can’t just do this to people and dismiss them as attention seekers and not actually having Tourettes. There are many kids growing up who need the help and they can’t get it or people believe they don’t need it. I didn’t even know about Tourettes until I found out about Anita, but after almost a year of learning it through watching her, it just makes me so sad for everyone, no matter the age of gender, that’s had to go through similar experience. We need to be better humanity. We don’t know what people are dealing with. Bless you, Anita. And be safe

[@rowanlastname7868]

This same thing is happening with chronic illnesses, I've been ignored and gaslit by medical professionals for years. It took me 8 years to get diagnosed with CFS/ME despite having super clear symptoms for ages. Medical professionals are so undereducated about a lot of things and it is actively harming whole populations of people with disorders/syndromes/disabilities. If you are dealing with a healthcare system that does not respect or value you, I see you, your symptoms are real, I wish you strength and to cross paths with an understanding and good healthcare professional.

[@bee4123]

this article gives me "rapid onset gender dysphoria" vibes which was a study that claimed that kids claim to be trans because of having a trans friend. nothing more than writing off people/kids who are legitimately suffering and who dont fit the exact box of what they imagine something to be like. absolutely tragic

[@jam2190]

Nah the Trans be is learned, jus like ALL sex, it is something WE HAVE TO LEARN, touretts is something entirely and completely different!!!!

[@Th3timelord]

@@jam2190 hmmm yes the trans is learned! A well known part of the school curriculum, the trans. /s

[@ireallyreallyhategoogle]

Ya, or kids with dysmorphia being diagnosed with dysphoria because that's the current popular diagnosis.

[@Patrick-857]

That stuff is often irresponsible people in the child's life pushing them towards that diagnosis for their own reasons, and a lot of those kids actually have autism ect. It's extremely dangerous, because they are offering kids with a neurological or psychological disorder a false path to happiness, a feeling of belonging, and feeling like themselves. They instead end up being sterilised, on cross sex hormones with terrible side effects including depression, sexual dysfunction, suicidal ideation, and things like osteoporosis, and they get on the path to having their bodies permanently changed and disfigured by extremely dangerous experimental surgeries. Ask yourself this, why is a mental disorder being treated with surgeries? These kids are being failed by the same system that failed Anita with her condition and so many others. I'm not saying they are faking it, to them it's real, but the problem is they are being influenced, and encouraged to go down a path that for most will simply leave them even more alienated, alone and suicidal, with a bunch of physical problems to add to their psychological ones. This isn't treatment, and anyone who encourages this doe children is either ignorant or evil. Look at the post op vs pre op trans suicide rates ffs. It's obviously not working. What happened to the message of self acceptance? By the way, if an adult decides on that path, that's their choice, but they should be warned of the dangers, given the actual facts and never influenced to decide a particular way. Children should be off limits with the medical interventions, and the misdiagnosis issue needs more attention, autism and other related conditions are far more prevalent than people think, and as someone with autistic traits, I can absolutely see how gender dysphoria could seem like a nice easy explanation for why a person like me is never comfortable in my own skin, and feels like I don't belong on this planet. It's attractive, they get enormous amounts of praise and validation, they are treated like they are special, the adults in their life are so proud to be a parent/teacher ect of a trans child and get to display their virtue to the world, and best of all, there's light at the end of the tunnel. They aren't weird, they aren't a misfit, they aren't crazy, they were just "born in the wrong body" and the nice doctors will fix that for them and they can finally be "normal" and accept themselves. But it's a lie, and all that awaits them is pain, misery and an early grave, because the adults wanted to use them to feel good about themselves, or worse make money out of them. They need the kind of help that will lead them to true self acceptance, and true understanding of their own unique set of conditions. It's a problem with the brain, it won't be fixed by altering their genitalia. To me it's an extreme form of self harming that's being encouraged by professionals. These people could have amazing futures ahead of them if they just push through it and get real help from therapists who work with them to overcome their conditions and manage them. Love your body, love yourself, don't let them tell you that you're born in the wrong body, what a horrible idea. There's nothing wrong with who you are, we're all struggling in this life to find where we fit in. Read up on John Money and Alfred Kinsey if you want to know what happened to the kids they experimented on, and who was behind this toxic and destructive ideology. Be yourself.

[@ireallyreallyhategoogle]

@@Patrick-857 TLDR I read about half, and you're right about the misdiagnosis and lifetime consequences problems, but on the other hand, kids with gender dysphoria being misdiagnosed or not diagnosed is also a problem. Mental health professional need to be better trained, not overworked and made available. Then they need to be supervised to prevent misdiagnosis. Then actual solutions need to be available, not just temporary quick fixes that only partially diminish the problems people are suffering from. I was diagnosed with anxiety and depression in elementary school. I learned about it only at 30 years old, when i was in a deep depression. All they did was give me anti-depressants and tell me to go back to work. Now at 47, i take 4 different kinds of pills every day and i wait to die, probably by my own hands once my parents are dead. I stopped living 17 years ago.

[@CampervanCookout]

I think this is reflective of a broader problem in the medical industry. I remember going to the doctors years ago, after suffering with severe depression for 10 years +, I was at the point of ending it, I saw no way out, I had lost hope. After years of despairing joyless existence I finally got the courage to ask for help. Do you know what he told me? He said “go for a walk and snap out of it.” . It made me so angry, I pledged to try and break the stigma and be open about my battles. That was a turning point. Your passion and conviction is what will help change things and make things better for the new generations. Respect and love.

[@brentford2601]

I have Tourette's and two of my children do also; Anita don't stop and don't get discouraged. We are and will always be eternally grateful for your activism.

[@shinukisan2222]

As a man who has severe Grand Mal Epilepsy, I've seen and experienced many people who have faked this Neurological disorder. Back in the day, people who who diagnosed wrongly would have been institutionalised and dosed full of mind bending medicines, all while being imprisoned in a mental asylum for the wrong reasons. Anyone who fakes something that isn't easily diagnosed or is classed as a stigma in todays society, needs to really look deep down at what harm they do to those less fortunate than themselves. How can we fully seem to understand these afflictions that do so much damage, if the real damage is being done by those who have no regard for the wellbeing of the people who really suffer. I say to those who fake these serious medical conditions for whatever reasons, stop. Think about the damage you're doing. To those medical professionals who spent years training to only be stuck with tunnel vision, being a pen pusher instead of actually having a bedside manner and helping those most in need. Listen, be open and look with better eyes.

[@SiriuslyBlack7]

Been living with gran mal epilepsy for 37 years..People who don't have it think there's nothing wrong with you unless they can see physical effects of it..The pain,the shame of incontinence, the extraneous short term memory loss..They have no idea the amount of meds needed to keep me "even"....

[@jomana1109]

I’d say “fakers” once found out should have a long holiday in prison, it’s criminal.

[@elizabethagudelo7179]

This hits home for me, I'm in the autism spectrum and I am transgender, and this is the same kind of crap they're trying to pull with us trans people, "oh it's just a fad, oh it's just tik tok kids faking tourette's, oh it's just sudden onset gender dysphoria" It's so stupid, last week there was an article trending on twitter asking why there was a spike on autism diagnosis on women, and the article tried to bend over backwards to explain the reason without realizing the reason it's happening is because as mental health becomes slowly de-stigmatized more people will seek help and diagnosis will spike. I just don't understand why neurotypical people and cishet people, and everyone else that's considered "normal" seem so obsessed with policing and telling us, the ones that have to live with this pain, the ones that lost our childhoods to our conditions. I struggled and was shamed and ridiculed at school because of my autism, I became asocial and missed on my teenager gears because of my gender identity, all because some genius always had some other explanation, some other reason. Stop doubting us, stop trying to tell us how to live our lives, we need help and understanding and all these people can give us is excuses and doubt, we just want to live our bloody lives, why is it so hard for people to understand that, to have some empathy

[@andrewhenshaw4067]

Yes please

[@Spidertheidiot]

Exactly! People need to be believed. I went to my mother a bit ago, shaking because I was so nervous, and told her that I think I might have asd or adhd and would like to get some kind of professional opinion, and she just said "no", because she works with disabled kids and she doesn't think I have any symptoms... despite having most of the symptoms, just not to an extreme extent. She did the same thing with my anxiety and chronic uterus pain years until I got a proper diagnosis for those, she wouldn't even take me to a therapist for years in fear they would put me on drugs, I didn't have any friends throughout most of middle and elementary school because I had crippling anxiety, and would get burnt out very easily from any social interaction. I would get bullied and yelled at by teachers because sometimes I would hide and have panic attacks under desks since I didn't know how else to cope. She also did the same when I was having trouble with school- mainly relating to symptoms of adhd mind you "you're too smart to be having a hard time", and when I was having a lot of gender questions and hating my body for being afab (hard not to when you're in constant pain because of it). I feel like I can't even talk about it because I'll just be seen as a self diagnosing teen who wants attention, I haven't been able to bring it up to my doctor because I'm nervous she'll tell my mom. Soo.. guess I gotta wait a couple more years.

[@kittydemonoverkill]

After hearing everything about how disorders are usually just dismissed, I'm surprised that I got diagnosed with OCD, ODD, and ADHD when I was like, 6, and I'm only like, 15 right now.

[@anirbanbiswas949]

Anita, you are doing a such a wonderful job spreading awareness about Tourette's syndrome, and neurological disorders in general. Take me for example, previously when I would see someone act weird repetitively, I would think they must be mad, or that maybe they are under the influence of drugs, etc. ... in short, I would generally be dismissive about them. But now, I have empathy for them, I am accepting of them ... I try to visualize the person that is inside of them and how they must be feeling. You have brought this change in me, and countless other people like me. Thanks to you, now I know that even many doctors can go wrong with their statements and verdicts about such disorders.

[@DaisyStalls]

Anita, thank you so much for speaking up for such a horrible injustice. The feeling of being doubted and made fun of for having a darn involintary ilness is just awful and very worth being spoken up about!

[@ChaosTheBattleLLamma]

The fact that Anita had so few tic's during her monologues shows how much this means to her, goddamn this gutted me.

[@Daergarz]

I just wish people would keep one thing foremost in their mind when dealing with medical issues; doctors are naturally limited by how far the actual research has progressed. A doctor is just a person who parrots, hopefully to the best of their abilities, what scientists have managed to verify up to this point in time. Given how little we still understand about the most complex thing we know exists (our own damn brains), no "doctor" should pretend to be speaking pure facts like done in this particular article. Always seek a second, third and tenth opinion, and these days (a literal good thing about technology) always do your own research and fight back against ignorance. Edit: Oh, also, fake news is called fake for a reason.

[@treed5953]

Parrots is correct. Even for the simplest things. Reducing sodium is their favorite. They reduced my dad's so much, that after 2 days, he was tripping out of his gourd. Didn't reduce mine, tests come back normal.

[@flyerminer]

I hope you haven't lost your interest in science, Anita. I was sad to hear that you weren't able to explore your aptitude for it in school. Your story struck me, as I became a mechanical engineer and couldn't help but imagine how my course in life would have been different had I been in your shoes. For me, what I learned from science informs everything I do today. You seem to be a very articulate and intelligent woman (who is often interrupted by "Terrance the tic engine" - wonderful monocer by the way) and I hope that you know that it's never to late to learn something new. You might have to work at it differently, but you can get there. I believe you do good in the world. 'Sweet' is a good descriptor. Continue to inspire others and bring awareness to tourettes so that we as a soceity can makes steps forward, instead of backwards.

[@MEL.FreeToRoam]

I’ve only today stumbled onto your channel from your interview (Interview With). This is such a sad story and something I knew nothing about until today, you made me cry and I’m not one to cry that often. This world needs people like you! You should be an ambassador for Tourette’s syndrome and educate the uneducated self proclaimed professionals to the real truth and lives that people like yourselves have gone through. Please, as hard as it may be, never…NEVER be sorry for showing your thoughts from your heart and passion you dream of for others. This….YOU….Is what makes us human, we are all different and complex and there is no scientific book that labels how everyone should be born. You seem very educated, you’re pretty and you make people laugh…..well, cry also. Stay the person you are, be proud of yourself and when people reject you for who you, DROP THEM ON THEIR AZZ and move on. They’re not nice people to be around and keep only the good people in your circle, stay safe, stay proud and sending lots of love from down under 🇦🇺❤️

[@NarikGaming]

Seeing your compassion for people suffering is inspirational. You're amazing Anita.

[@Mikerille]

She didn’t tick once That’s how focuses she was on clearing things up, an absolute unit

[@August-p9g]

Some got cut out of the video too

[@Jay-Kaizo]

This video needs to be a mandatory part of a doctor's education. And, it's not just the stigma and disbelief for this one thing. There are so many mental disorders that are misunderstood. Along with the many levels of intensity each has and how common it is for people to have multiple disorders. It's so sad because it's so common, but people are ashamed of it due to articles like this. So, they suffer and hide it from the world because they are trained from childhood to believe it's abnormal and everyone else is fine because they just face their fears or stop ticking because it's that easy and they're all better. Mental disease is a huge problem and they just shove drugs down our throats and tell us to just do this or just do that. If only it were remotely that simple.

[@boonedogg7971]

Before I comment on this video, I just wanted to say I love your videos and content you put out there! As someone with Tourette's, you've made me more comfortable with being myself and it's given me a lot more confidence. You've also helped me come to terms with some things that have happened in my past because of my tics. So I can't thank you enough for all you do Anita! However, I disagree with some, not all, of the things you said on this video. At the end of your video, you said you couldn't finish the article because it made you too upset, I'd strongly advise going to finish the medical paper, because it might give you different perspective. At 11:10 you said you said "it's stressful to think of this being fed to the public as a justification to abuse people that are going through a condition that people get abused for." That's just not true. This was published by a Doctor at a SPECIALIZED Tourette's Center. That doesn't sound like someone who would have a prejudiced stereotype about Tourette's like you said at 14:35. Also, Tourette's is NOT a common disorder, and the tics that a lot of these new cases were exhibiting were the more stereotypical ones that are portrayed most in media, like coprolalia (obscene language) and copropraxia (obscene gestures). But these types of tics are RARE. So, just statistically, it didn't make sense. After reviewing and observing these kids by Doctors at their specialized outpatient center for Tourette's Syndrome, MOST were found to actually NOT HAVE Tourette's Syndrome at all. This is the quote from the medical paper. "Although some patients indeed suffered in addition from mild Tourette syndrome, for all newly emerged symptoms, it could be CLEARLY RULED OUT that they were tics for SEVERAL REASONS: (i) onset was abrupt instead of slow, (ii) symptoms constantly deteriorated instead of typical waxing and waning of tics, (iii) “simple” movements (e.g. eye blinking) and noises (e.g. clearing one’s throat) were clearly in the background or completely absent, although being the most common and typical symptoms in Tourette syndrome, (iv) movements were mainly complex and stereotyped and predominantly located at arms and body, instead of at eyes and face, (v) overall, the number of different movements, noises, and words was “countless” and far beyond the typical number of tics in Tourette syndrome, and (vi) premonitory feelings were reported with atypical location, quality, and duration compared to tics in Tourette's syndrome." Again, this paper is written by a doctor at a specialized clinic for Tourette's. And the words they used were “CLEARLY RULED OUT...FOR SEVERAL REASONS.” Just like you and most likely everyone who has Tourette's, I have had my fair share of being bullied and being blamed for “faking it” So the last thing I'd want is to make it harder for younger kids who are still trying to figure out themselves and on top of that have to deal with Tourette's and all the problems it brings. However, that is not what this article is doing. The ONLY thing that IS doing that are the kids that are faking it.

[@amandahugnkiss]

My neurologists(yes have has few) tell me it's just my "over productive adrenale gland" causing my "twitching" but it got so bad a couple weeks ago i went into what literally looks like a tic attack with a bunch of constant vocals i couldn't help but blurt in the middle of my own words trying to tell parents i need some help... Then I went into a "mimicking seizure" "caused by massive adrenaline dumps" and that went on for two weeks... Its literally 4 days since i was able to walk without a cane again.. I only remember snipits of the past three weeks and had luckily recorded some of these episodes... I understand why people want an actual diagnosis...so they don't feel insane and alone in this own personal hell with people staring at you like you're growing a second head..... I love you all. Thank you so much Hun for covering this and even telling us your heartbreaking story... I'm so happy you have been raising more awareness about tourettes. I live in the U.S. and all they do is drug us up to be zombies so we will leave them alone and they'll still get money.... It's truly gut wrenching and I'm trying my best to help the stubborn understand there's reasons behind being "lazy" "weird" "unusual" whatever the names they give... I truly want to help others not feel so alone in these invisible and misunderstood illnesses... Much love to anyone reading this. You're beautiful and I hope you have a wonderful day everyone

[@Madchris8828]

I know people from the generation that think that ADHD, OCD, and Dsylexia are fake and that kids just aren't "disciplined" enough. Unfortunately it's a bigger amount of people than you might think. Either way I appreciate these videos and it's good to raise awareness on such difficult topics.