Systemic Sclerosis: The First 2 Years - Michigan Chapter 2019 Webinar Recording

[@stmr1000]

My personal experience with Dr. Roofeh has been great for the fact that he has explained the disease in a way that’s easier to understand rather than surfing the net. Thank you DR. Roofeh.

[@lillyrocks2011]

My ex boyfriend who's a doctor always always told me that I have fibromyalgia and that I should stop looking for what I have. . . For years I've been struggling against ppl or doctors like him. Finally I know that I have this disease (without my ex bf help!) And it's so sad, discouraging to know that there's nothing to stop or direct treatments for this terrible disease. In my country doctors barely know about this disease and they are very harsh and thinking that I am crazy for the symptoms. I have another illnesses, besides Scleroderma but again doctors that don't believe me and that never listen. :-(

[@laurawilliams5363]

Great presentation Dr Roofeh. Thank you for taking the time to speak at the conference. I enjoyed listening to this webinar. I have diffuse systemic scleroderma, dx 2 yrs ago.

[@NatKos-xn8wf]

How are you now?

[@laurawilliams5363]

The disease continues to ramp up.@@NatKos-xn8wf

[@lillyrocks2011]

Please find a cure, or better treatments for this disease 🙏

[@janetgreen4440]

I have this disease . I live in

[@janetgreen4440]

Lewisville Texas I have a Rheumatologist, who diagnosed me 6 months ago. She did not order the tests or explain what to expect. My then PCP ordered all tests for my heart and a vascular doc. I have problems with my Legs and feet

[@janetgreen4440]

As well as lungs, trouble swallowing, tiredness and coughing. If you can connect me with someone here where I live I would b so grateful Thank you Janet Green