The Basics: Post-Exertional Malaise (PEM)

[@traveltheworld1870]

This is the most comprehensive easy to understand video about PEM I have seen. Thank you for putting this together. The short duration and ease of understanding makes this video perfect to share with family and friends. Thank you!!!

[@lowcarbveggie]

I agree. I’m considering sending it to me ex-doctors ;)

[@FortheBudgies]

It is very sad that 3 minutes is the most comprehensive.

[@traveltheworld1870]

@FortheBudgies It's amazing how much valuable information can be packed into just three minutes. Some people are full of hot air, while others provide useful clear, and concise content. I guess we know which camp you're in!

[@samari4341]

Thank you ❤

[@andeebee2530]

Thank you for this wonderful easy to understand explanation of PEM.

[@jimtsai7545]

Thank you for this comprehensive explanation of PEM. Will you do a video about how to live with PEM or if there is a treatment? Thank you.

[@jackiecauthron-schafer9554]

kzbin.info/www/bejne/pX2mY6eQgrWVqac They have lots of videos about everything. Mostly we have to pace, which is something each of us has to figure out for ourselves.

[@Zkbbkzzz]

This disease is insidious. I’ve had PEM for 50 yrs and increasingly more severe, especially after age 40. I wish I could have traded it for any other disease or cancer. Death would be humane at this point. 😢

[@lessons9745]

I usually get immediate and delayed PEM. Most frequently from physical and environmental stressors. Not a good way to live .

[@vmoutsop]

This is great and all but I already know this. I’ve been dealing with this for 7 years and I still haven’t been able to see an ME/CFS specialist in Boston. I keep getting that it’s a year wait and I’ve been waiting for 3 years to hear back from someone. So excuse me if I have issues donating when I can’t get anyone to work with me.

[@mariejoseeblier3614]

I have this illness since the age of 30 and now 68. So hard to support even if you know what to do, Why, ? because you have no more life. This video is very well explained but do doctor understand ?????

[@humanityandme]

😢 having this for a few days now. Tough times.

[@FortheBudgies]

I don't believe there isn't a treatment or explanation for this. It's just ignored and called malingering. I actually saw that term used in a chronic pain research paper very recently. FFS, people with chronic pain desperately want to be active.

[@Gina-dn6xm]

Sometimes, even breathing takes effort...

[@sætibeth]

Air hunger like you can’t get a full breath

[@TheIherbert]

I think I've been living with this after I had covid 4 years ago.. It comes and goes. Sometimes even a small excitement can cause fatigue, sometimes a normal conversation with a colleague at work makes me fatigued. I don't know if anxiety is also a result of this desease, i hope someone could explain

[@stefan_030]

Guys make sure you have sufficient fresh air in your sleeping room. Buy a co2 meter, trust me its worth it. If you dont have any heart palpitations, muscle twitches, then take 500 mg vit c a day/ a glass of ginger tea. If you do have heart palpitations, muscle twitches and many other symptoms, then in my eyes you have a mineral deficiency and you should cut all anti inflamatory supplements and restore this balance first

[@TheIherbert]

Thank you for your advice.. I'll try the co2 meter. I've had some of the symptoms you mentioned such as muscle twitches

[@stefan_030]

@TheIherbert for me the best was to just have the door of my sleeping room opened slightly, like ~15cm. Did you have the twitches since the start?

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