The Boy Whose Body is Growing too Fast for his Bones (Marfan Syndrome)

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Special Books by Special Kids

Special Books by Special Kids

Күн бұрын

Пікірлер: 409
@VelvetTears216
@VelvetTears216 3 жыл бұрын
Rest In Peace Steven. I also have Marfan syndrome and it pains me to see that you’ve passed at such a young age. Sending prayers to your family. You will be missed.
@jessicabeca1234
@jessicabeca1234 3 жыл бұрын
Did he pass away? 🥺😪
@kr4t0sg.28
@kr4t0sg.28 3 жыл бұрын
Wait what!! Oh man this is my first time seeing this and he had already passed away .
@pirefilms6460
@pirefilms6460 3 жыл бұрын
​@@kr4t0sg.28 literally same bro i am so sad i was so hyped to go look at all his content and the first video i see on his channel was from the 30th his fam explaining he passed
@thinkfiend
@thinkfiend 3 жыл бұрын
Rip to a goat🙏🏾
@salad2322
@salad2322 3 жыл бұрын
@@jessicabeca1234 a week ago
@adanice49
@adanice49 3 жыл бұрын
Rest In Peace Steven. I’m grateful to have watched this interview when it released and subscribed to your channel since then. I’m sorry I didn’t make more time to watch your videos
@dingdong896
@dingdong896 3 жыл бұрын
Rip
@haleygaume5063
@haleygaume5063 3 жыл бұрын
Ugh hey posted a stream 8 days ago? I’m confused.
@aronlelenora9572
@aronlelenora9572 2 жыл бұрын
❤❤❤❤
@cannedtuna360
@cannedtuna360 2 жыл бұрын
OMFG NOOO 😭😭😭😭 Rip beautiful boy! 🕊️👑❤️
@YuBeace
@YuBeace Жыл бұрын
Man I can’t imagine how empty it must feel for his family now that he’s gone. I hope they can find comfort and happiness with eachother.
@sadieyoung4547
@sadieyoung4547 2 жыл бұрын
My husband just passed from his marfan syndrome. He'd survived his first 2 heart surgeries and an aneurysm but didn't make it through this last surgery a couple weeks ago. He was a fighter like all the others! Miss him so much!
@chaotic1437
@chaotic1437 Жыл бұрын
R.I.P❤🕊 To your husband!
@happyist3719
@happyist3719 2 жыл бұрын
I laughed so hard when I first saw him and his little brother, such an amazing bond. But immediately after I saw the comments that he had passed... Rest in peace Steven. The world is so lucky to have been granted this little peek into your life and mind, we wish your time could have been longer.
@jobethk588
@jobethk588 3 жыл бұрын
What a good-natured boy with a great sense of humor. R.I.P. Steven.
@anyashah248
@anyashah248 3 жыл бұрын
Rest In Peace Steven, you were loved by many, and won’t be forgotten
@dolomedestenebrosus9564
@dolomedestenebrosus9564 3 жыл бұрын
Oh my god. I just watched this video for the first time and then saw the comments that he recently passed away and it felt like a stab in my chest. I was really touched by his sweetness and intelligence in this video. He was obviously a very contemplative, curious and smart kid with a great sense of humour and a beautiful heart, and my heart breaks for his family. I am so sorry for the loss of this very special young person. Rest in peace Steven.
@HeyGirlHaaay
@HeyGirlHaaay Жыл бұрын
SAME!! 😢
@gunnertlc7728
@gunnertlc7728 3 жыл бұрын
I havent cried in a while but I am crying right now. Little homie passed a couple weeks ago. Just found out. I dont follow this channel but still followed him. I am gutted. Straight gutted.
@awesome_danimal
@awesome_danimal 3 жыл бұрын
I cried too.
@dorna2325
@dorna2325 3 жыл бұрын
I am also really sad about it. would you mind if i ask you how you found out?
@gunnertlc7728
@gunnertlc7728 3 жыл бұрын
@@dorna2325 His family posted on his personal youtube channel. Steven T T is the name I believe.
@LordCowboyCat
@LordCowboyCat 3 жыл бұрын
Rest in Peace, Steven. I hope the other side treats you like the star you are.
@breezier1291
@breezier1291 3 жыл бұрын
He is dead?
@LordCowboyCat
@LordCowboyCat 3 жыл бұрын
@@breezier1291 Yes, he recently passed away.
@breezier1291
@breezier1291 3 жыл бұрын
NOOO
@craigward7691
@craigward7691 3 жыл бұрын
He's so well spoken, jovial and seems wholly unfazed by his illness, A shining example for all 13 year olds......nay.....for ALL of us
@snowypaw101
@snowypaw101 3 жыл бұрын
I'm 15 and I try to live my life as happy as possible :D
@snics0619
@snics0619 3 жыл бұрын
It's so crazy that he's gone! Sucks that he didn't find love an youtube "fandom". 😔
@uniquepurpose03
@uniquepurpose03 3 жыл бұрын
@@snics0619 I know right, smh
@raydenbartley
@raydenbartley 2 жыл бұрын
@@snowypaw101 most people do. You’re not doing anything special, just living normally
@LittleLegendBaby
@LittleLegendBaby 3 жыл бұрын
Rest easy and without pain, Steven. I came back to this interview and remembered how much I adored hearing him speak. His energy, his smile, everything… an absolute joy to the world. A casanova, comedian, and a real kind soul. His faith and religion, though different from mine, is inspiring. He finds love and acceptance in his heart. I sincerely offer condolences to his friends and family in this time of grief. But I like to think that Steven lived a great and fulfilled life, no matter its length. All of my love♥️
@snowpawprint6492
@snowpawprint6492 3 жыл бұрын
0:16 "It's a bomb! No just kidding!" LOL! Steven is so funny!
@sadieyoung4547
@sadieyoung4547 3 жыл бұрын
My 38 year old husband with marfan and a mechanical heart valve uses the same joke... I hope he can have just as successful a life telling the same joke for many years just as my husband has Haha
@nikkisovain9429
@nikkisovain9429 3 жыл бұрын
@@sadieyoung4547 Unfortunately he passed away
@sadieyoung4547
@sadieyoung4547 3 жыл бұрын
@@nikkisovain9429 that's so sad! I've got 2 very important marfan folks in my life. My husband and my youngest step daughter. Such a variable disease but definitely one that needs the visibility and continued research.
@nikkisovain9429
@nikkisovain9429 3 жыл бұрын
@@sadieyoung4547 I do agree. I wish you and your family the best.
@StressHaze
@StressHaze 3 жыл бұрын
@@nikkisovain9429 sauce ? Bahahahhahahhahah
@holysol
@holysol 2 жыл бұрын
I had the pleasure of calling Steven my friend - I wouldn't say we were super close, but I was there in his streams, I was there in his discord server, we PMd each other back and forth, we played a couple of sessions of D&D, and we'd scheduled more. Unfortunately he passed before we were able to complete a campaign. But to this day, I still think about him. He'll not be forgotten. Rest in peace, dude, we still out here.
@SaileshBalaji
@SaileshBalaji Жыл бұрын
bruh he died when?
@RosalieLato-km6mc
@RosalieLato-km6mc Жыл бұрын
@Saileshbalaji, he died on December 29, 2022
@RosalieLato-km6mc
@RosalieLato-km6mc Жыл бұрын
I think, I don't know since it was four years ago
@monaalisaa94
@monaalisaa94 3 жыл бұрын
My heart hurts to know you’re no longer here with us. R.I.P ❤️
@softouji
@softouji 3 жыл бұрын
What an old soul. He had an incredible personality. Rest in Peace
@singingmyblue8000
@singingmyblue8000 3 жыл бұрын
That's one smart young boy. I'd LOVE to be a friend of his! He sounds so kind and fun to be with. Hope he's safe. 🖤
@definitely_not_an_athlete1714
@definitely_not_an_athlete1714 3 жыл бұрын
Rest in peace Steve ❤. He was such a kind and jovial guy . Life didn't deserve such a pure angel .
@Tqueenboss1
@Tqueenboss1 3 жыл бұрын
He has a really good heart. Through everything he has the most positive attitude, I strive to be like that.
@Lumerem
@Lumerem 3 жыл бұрын
Rest In Peace Steven. You were such a positive soul for this world. My heart is heavy knowing you’re no longer with us. ❤️
@bsbznumber1fan
@bsbznumber1fan 3 жыл бұрын
I came back to this interview as i wanted to watch it again to see steven and his huge heart. I heard about his passing and wanted to send my deepest condolences to his family. Steven was so funny and kind and always flirting with those girls lol nothing wrong with that. Steven was a kindhearted person who was living his life as best as he could. Rest in peace my friend you will always be in our hearts.
@adamrie3484
@adamrie3484 3 жыл бұрын
Steven my guy, RIP, prayers to you and your family. You were a chill dude here on earth and I wish I coulda chilled w you, played some games, talked, do whatever but I know we woulda had a good time.
@gothgirl76060
@gothgirl76060 3 жыл бұрын
Steven you are absolutely wonderful and have a great sense of humor. My father also has Marfan's syndrome and learning about him and his life while growing up has been inspiring. How your voice is being heard and informing others is incredibly inspiring especially with your loving supportive family, thank you 👏
@Brandonlikesbananas
@Brandonlikesbananas 3 жыл бұрын
Rest In Peace, Steven. ❤️ I vividly remembered his interview because of his beautiful personality. Brought me to tears at work when I saw he passed. God bless his family.
@maxinepreston7601
@maxinepreston7601 3 жыл бұрын
Rest in peace sweet boy. Condolences to his family. 😞
@cstpa1
@cstpa1 3 жыл бұрын
wow i watched the whole thing and then saw the comments :( so sorry for your loss. steven had great character
@supernovaartsyt7014
@supernovaartsyt7014 2 жыл бұрын
Rest in peace Steven. You were loved and you have an amazing sense of humor!
@Leona000
@Leona000 3 жыл бұрын
And now he's in the arms of Jesus. Prayers for the family
@jillianoconnell862
@jillianoconnell862 3 жыл бұрын
I couldn't decide which of Steve's one-liners to put here. He. Is. Hilarious.
@nataligarcia4935
@nataligarcia4935 3 жыл бұрын
It’s so sad to hear that he passed. May he rest peacefully. I find it amazing to see the similarities between families. I see these boys and their mom and it reminds me of my boys and myself. It goes to show how there’s not much difference between families who deal with a variety of different challenges and our own. These individuals are so much more than their sicknesses and they can very well be our sons, daughters, moms and dads.
@starlight.6922
@starlight.6922 3 жыл бұрын
Hes one of the people that have stuck with me the most from all of your videos, especially since how kindhearted and funny he is. Knowing he passed breaks my heart, rest in peace you kind soul, you were loved and had a huge impact
@MeganKugs
@MeganKugs 3 жыл бұрын
All my love to Steven and his family. I hope you find consolation. Steven’s legacy and spirit will always be with us all. 💜
@candaceproud
@candaceproud 3 жыл бұрын
What a good big brother. They are so cute together. The mom seems so warm and loving. It's so nice to see such a close family. 😌
@BethRazz
@BethRazz 3 жыл бұрын
Had to come back and rewatch his video. ❤️❤️ I remember he made me smile so much. RIP Steven you touched so many people's lives! I'll remember you forever.
@Opal_jen_X
@Opal_jen_X 3 жыл бұрын
Steve, you are an awesome person with an awesome sense of humor. 😆💙
@lolly5453
@lolly5453 3 жыл бұрын
My thoughts and prayers are with Stevens mom, family, friends and loved ones. He will continue to live on in the hearts of all of the people he touched with his beautiful spirit, and his memory will never be far away. Rest in peace, lovely Steven 🙏🏼❤️🕊
@lcwinablackdress
@lcwinablackdress 3 жыл бұрын
I certainly hope Steven knew how worthy and LOVED he was! ❤️
@gmartinezz3886
@gmartinezz3886 3 жыл бұрын
Rest In Peace Steven 🥺 You’re in a better place now 🙏🏻❤️
@Mix-su4fm
@Mix-su4fm 3 жыл бұрын
So sad to hear the news. I'm glad he went in peace, sleeping. He was a kind soul. We should all subscribe to his channel to fulfill his dream and his family wishes. Rest in peace.
@chlonn2cute4u
@chlonn2cute4u 3 жыл бұрын
So sorry to hear about his passing. Absolutely loved his interview ♥️♥️♥️♥️♥️
@brendaseager7371
@brendaseager7371 2 жыл бұрын
Oh I am so sorry for your loss. I just read the comments and seen he had past. My heart breaks for him and his family. R I P Steven.
@amazinamy
@amazinamy 3 жыл бұрын
R.I.P Steven. Such a wonderful and sweet guy. My condolences to his family.
@Deluxual
@Deluxual 3 жыл бұрын
💙 R.I.P. Steven - what a wonderful soul you are!! You deserve all the love in the world & more!! My condolences to the family during this difficult time..
@Visitor2Earth
@Visitor2Earth 2 жыл бұрын
When I was a pre-teen, the docs thought I had Marfan syndrome. Turns out, I am just long and lanky and I sprouted up too fast for my chest cavity to keep up! Now, decades later, I'm still long and lanky...and love it!
@hannakinn
@hannakinn 3 жыл бұрын
RIP so sorry you died so young. You were an awesome young man. It was obvious that your family loved you very much.
@TheCryptKeeper8
@TheCryptKeeper8 3 жыл бұрын
So sorry you're gone buddy... Definitely not forgotten. My heart is with you Steve's mum, family and friends.
@BandoLyrix
@BandoLyrix 2 жыл бұрын
I swear to God, I like this guy. I binge watch these videos but i end up sad but appreciative of all life
@DetroitFettyghost
@DetroitFettyghost 3 жыл бұрын
Steve. Rest in Peace my sweet brother. My heart aches for you and your family but I know your in a better day then we are. Thank you for the wonderful interview you gave the world we can go back and watch it anytime. Much love.
@CarolineMosesComedy
@CarolineMosesComedy 8 ай бұрын
He has such a great personality! RIP, Steve. ❤️
@peter-jamesmmbago8721
@peter-jamesmmbago8721 Жыл бұрын
Oh man, I never knew Steven passed...RIP.. A cool dude with a smashing sense of humor :)
@nattenyonglaor9584
@nattenyonglaor9584 3 жыл бұрын
He is so likeable. What a smart, funny, and sweet bky
@Chantelle-iz1zd
@Chantelle-iz1zd 3 жыл бұрын
Rip 🙏🏾 your light is shining from above. I feel like your still with us. You was so amazing, you lived a wonderful life and your legacy will live on.
@jaysonlove5781
@jaysonlove5781 3 жыл бұрын
Rest in peace to such an amazing young man. I wish peace and healing for his family. 😥💔
@jennyrobinson3574
@jennyrobinson3574 3 жыл бұрын
Rest in peace Steve what a amazing young man you were. And the love your family have for you is beautiful. Sending so much love ❤
@bobbybrownvevo4748
@bobbybrownvevo4748 2 жыл бұрын
R.I.P man. You had such a mature, powerful voice. Sounded like a grown man
@Almondjoi2006
@Almondjoi2006 10 ай бұрын
True. I almost forget he’s 13.
@jitsislife2640
@jitsislife2640 3 жыл бұрын
Steven, u made your dream of being a youtuber and now, in the next life, you will be able to travel with your lovely wife and take turns driving and living a wonderful life of freedom and adventure. U inspire me to keep dreaming and live each day to the fullest. Thank you God for Chris and his partner, SBSK and the community, and all the wonderful individuals we get to meet through your wonderful interviews and videos. God bless us all!
@austin9321
@austin9321 3 жыл бұрын
Rest In Peace Steven, you really are an amazing guy. You will be remembered, you definitely changed me with this interview, I will always appreciate that.
@BeeAAAHHH
@BeeAAAHHH 3 жыл бұрын
Rest In Peace 💖 bright bright soul and talented kid. All of us, the subscribers, will remember you.
@adrianrincon8766
@adrianrincon8766 3 жыл бұрын
"fight me and I'll show you!" Such a power move right there! Love ya Steve!
@patshippy7831
@patshippy7831 3 жыл бұрын
What a great sense of humor! And he seems mature for his age
@spham713
@spham713 3 жыл бұрын
My condolences to your family and friends...what a angel on earth now in heaven.
@Ullisen
@Ullisen 3 жыл бұрын
Rest in peace, "BFG" 💜 Such a kind soul, and such a loss. My sincere condolences and love to this amazing family 💜
@starwolven
@starwolven Жыл бұрын
What a delightful soul! He shined so brightly ❤
@astridx7485
@astridx7485 3 жыл бұрын
I can't believe it. It's not fair. Rip Steve❤
@jobethk588
@jobethk588 3 жыл бұрын
Thank you for supporting Steven's dream.
@chessgenius123
@chessgenius123 2 жыл бұрын
I subscribed to him the first few days when this came out. Rest in peace steven. Your videos were funny and fun to watch
@sandravanderbilt5431
@sandravanderbilt5431 3 жыл бұрын
This interview guy is such a sweetheart
@Sidsebisse
@Sidsebisse 3 жыл бұрын
Rest in peace sweet steven. I am really sorry that you had to pass, this young. Buy you undoubtedly made a big impact on many people❤
@lazur1
@lazur1 3 жыл бұрын
It's fascinating that there's enough aural information in video games to play them blind.
@serenatsukino5252
@serenatsukino5252 2 жыл бұрын
Rest in peace Steven. You're a great guy who will be missed
@liimichh
@liimichh 3 жыл бұрын
Still can’t believe he passed away he was so nice Rest In Peace Steven
@monicahyland8641
@monicahyland8641 2 жыл бұрын
I’m so sorry to hear about his passing he looked like the happiest kid in the world.
@clintwestwood1895
@clintwestwood1895 3 жыл бұрын
You are one Cool strong and brave person Steven, Oceans of love from Nevada.
@LinkaBellGAME
@LinkaBellGAME 3 жыл бұрын
Heard the news he passed away, what a beautiful and gentle soul. Rest in Peace Steven
@jessicabeca1234
@jessicabeca1234 3 жыл бұрын
Loved him as soon as he talked Such a cool a funny young guy 🙂
@SushiBurritoPapi
@SushiBurritoPapi 3 жыл бұрын
Rest In Peace brother. Hopefully one day I can meet you.
@amysmith94as
@amysmith94as 3 жыл бұрын
Sorry for your loss. Steven has touched hundreds of people. Rip
@martyjohnston397
@martyjohnston397 11 ай бұрын
I love him man. Rest in peace please. You didn’t deserve the life you were given but you still smiled through it
@thequeertelope7941
@thequeertelope7941 3 жыл бұрын
"it's a bomb... just kidding" "fight me and i'll show you" what a LEGEND
@alicefryman3372
@alicefryman3372 3 жыл бұрын
Rest in peace , you were inspirational ❤️
@SushiBurritoPapi
@SushiBurritoPapi 3 жыл бұрын
Getting through the video… you are definitely worthy of love brother. And now you’re next to the Lord who loves you more than anyone possibly could.
@raymondmoya4798
@raymondmoya4798 3 жыл бұрын
What a beautiful young man ! May you rest in peace Steven. God bless you and your family ! 🙏❤
@GHx5
@GHx5 3 жыл бұрын
Here after hearing the unexpected news. Rest in Peace Steven. You were a loving kind boy
@traaaashmouse
@traaaashmouse 3 жыл бұрын
He's got such a good sense of humor lol. Seems like a really cool kid
@navygurl4182
@navygurl4182 2 жыл бұрын
I'm laughing at him and his little brother. It tickled me so bad when he talked about bugs.😁
@shelbytiger07
@shelbytiger07 3 жыл бұрын
The relationship he has with his family is awesome. You can tell they all really love each other immensely.
@lorenluxe8816
@lorenluxe8816 2 жыл бұрын
This was such a great interview 👏 he made me smile and laugh.
@snics0619
@snics0619 3 жыл бұрын
Rest in Peace, Steve! You and your family are in our prayers! I hope you're running and jumping in Heaven! ❤❤❤
@yeababywelive5340
@yeababywelive5340 3 жыл бұрын
Rest In Peace to this beautiful soul!
@kathyjohnson2043
@kathyjohnson2043 Жыл бұрын
Such a wonderful young man. I was so sorry to hear of his passing. I know he was surrounded by love and joy.
@chaotic1437
@chaotic1437 Жыл бұрын
R.I.P❤🕊Steven, such a kind and funny soul!
@frenchibristianbok8847
@frenchibristianbok8847 3 жыл бұрын
REST IN PEACE HONEY 💐❤🙏🏻⚘
@wraps777
@wraps777 3 жыл бұрын
Steven...You are in the loving arms of Jesus now. Able to see, to walk and run, to truly enjoy life. You brought happiness to many in this life, now it's your turn. ...From a Marfans' Brother.
@robertbarrasa1018
@robertbarrasa1018 2 жыл бұрын
I believe what you're saying Steven is in heaven walking on the streets of gold and no more pain he has a full body he can see and walk and he gets to sit next to God and Jesus God bless you Stephen you have open so many eyes and change so many hearts see you up there!
@nessie101
@nessie101 3 жыл бұрын
rest in peace! we will miss you 💕
@tessan613
@tessan613 3 жыл бұрын
Sometimes I wish I could give videos a second like when watching it again, now is such a time 😢 May you rest in peace 💕
@sukhdeepsandhu5885
@sukhdeepsandhu5885 3 жыл бұрын
Rest in Peace Steven
@bridget2197
@bridget2197 3 жыл бұрын
I enjoyed this episode with Steven..it might be one of my favorites because of how much I smiled and laughed..he has such a sweet and smart personality. God bless Steven and his family.💜
@elenahernandez9461
@elenahernandez9461 3 жыл бұрын
RIP Steven
@darlenearciga7888
@darlenearciga7888 Жыл бұрын
I LOVE YOU STEVEN Youre still an inspiration even to those seeing this for the first time your sense of humor is wonderful ❤
@amir_hamzah
@amir_hamzah 3 жыл бұрын
So wholesome; from The comments I know something sad happens in the end. But he and his family are beautiful.
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