The digital communities advocating and supporting families living with rare conditions

Developed and funded by Sciensus. Progeria is a rare genetic disorder causing rapid ageing in children. Life expectancy is about 15 years. Sciensus is dedicated to connecting people with rare conditions, like Progeria, through bespoke digital communities. These online communities enable people and their families to advocate and support one another in a secure, safe environment regardless of geography or language. Not only does Sciensus help connect patients with online communities, but they also help by getting them access to life-changing medicines.
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