The Exorcist Movement - Vestibular Migraine - Neck Pain = VM?

[@findyourchappiness5246]

its just hard Matt to find out which one is causing which becasue vestibular specialists say the vestibular issues are creating neck issues. but neck specialist say that neck issues create vestibular issues . but it is definitely an interesting topic

[@thebluntyorkshireman5161]

Yeah - it's mental isnt it. They need to up their game!

[@angiemacslilmitesanmore5090]

I believe now that the neck is the main reason for vestibular migraine,just been diagnosed

[@thebluntyorkshireman5161]

Yes, I believe it is the main reason, or a contributing factor for some people.

[@aliyaaahhhlps]

My neck was so bad! In VRT they worked on ju neck for a while & that really helped me out. & I was seeing a chiropractor & that also helped. I’m having all this symptoms again sort of a “relapse”. & my neck is so stiff these days! & oh wow! I’m definitely going to have my neck checked out again with a doctor. Thank you for sharing!

[@thebluntyorkshireman5161]

Yes defo get it checked. I need to resume some chiro now that the lockdown is ending in the UK. Even if it isnt causing my VM (I still think with me it's a wider central nervous system issue) my neck still needs treatment as it's a bugger.

[@xxsid1979xx]

I've had a stiff and wonky neck for years and am convinced it's at least exacerbating my VM symptoms and getting in the way of my brain fixing my faulty balance because my neck doesn't move 'smoothly' with the rest of my body so the vestibular exercises are difficult to do properly.

[@thebluntyorkshireman5161]

Yeah - I think there is defo something in this for certain sufferers.

[@jodeemackenzie]

This video makes so much sense!!

[@thebluntyorkshireman5161]

Thanks Jodee!

[@sesardiaz3785]

I'm at the doctor office ENT because I have all the symptoms of VM and had it since MAY. My doctor said I have migraine but I have all the symptoms that you have. All my MRI and CT scans negative. Symptoms: Dull headache neck stiffness ringing in the ear (buzzing) photophobia weaknesses arm/legs unbalanced (no vertigo) Can you help?

[@thebluntyorkshireman5161]

Hi Seasar. The only help I can give is via the videos (which give a lot of information on treatments, symptoms etc). I am not a doctor so I can't, for example diagnose you or provide treatments.

[@arslansulemani194]

buzzing in the ear is not a symptom of VN ,

[@kalokization]

I wonder if you have ever done an MRI on your neck?

[@thebluntyorkshireman5161]

I havent, Ka. Is it worth it?

[@aussie1273]

I have added a link to my clinic, I have VM and currently having my C3 vertebrae in my neck treated, which includes brain stem desensitisation and gentle treatment. I have gone from daily dizziness and weekly bouts of severe vertigo/headache etc to barely any symptoms, I am not on a migraine prevention medication either. They never really helped me and the side effects were awful.

[@kalokization]

Where is your link?

[@aussie1273]

@@kalokization hi, for some reason you tube won’t leave it on the comments. But if you search Brisbane Headache and Migraine Clinic you will find their videos.

[@thebluntyorkshireman5161]

Wow - Brilliant - I am please you have recovered. I think the neck is defo worth looking into for a lot of folks on here.

[@emmanicole2228]

@@aussie1273 Hey, I am seeing the headache and migraine clinic in Brisbane. Slowly getting there. Recovery takes time. This is the hardest thing I've ever been through

[@pebblesmiller9026]

Have you tried neruo pilates.... its very useful!

[@thebluntyorkshireman5161]

Hmm no. Tell me more?

[@pip1723]

I had a multi level cervical fusion a few year's back when I mention my vestibular migraine symptoms ( no diagnosis yet) my GP is quick to dismiss it most frustrating as my symptoms usually start with a tightness in the neck and loss of range of movement .

[@thebluntyorkshireman5161]

Really annoying, Pip in terms of your GP. But you like a lot of other people experience next problems and VM. I think there is a link (and it is one of the potential causes of VM).

[@kalokization]

I had for a few months what I thought were VM symptoms eg what you referred to as ‘de-realisation’, dizziness with a sensation of movement (in that sense resembling a mild vertigo), slight imbalance, heaviness in the head and also the whole body as you have a sinking feeling when standing straight. I did all the neuro and cardio tests and found nothing. I then had a quarantine in a hotel for seven days with a bad mattress that drastically exacerbated my stiff neck so I saw a orthopaedic doctor who told me to do an MRI which revealed that I have a disc prolapse in C3-6 to different degrees which could pinch different nerves that produce symptoms that match what I had. Looking back, I can envision all the symptoms I described as the results of a simple mechanism: my neck does not have the strength to carry the weight of my head.

[@thebluntyorkshireman5161]

Wow- that is really interesting, Ka. I think there is (for some people) there is defo a link between the neck and VM symptoms. Do you have to do neck strengthening exercises now?

[@kalokization]

@@thebluntyorkshireman5161 Hi yes, I go for physio for twice or even three times a week but I cannot say that it has fundamentally improved my symptoms. What it does though is to make the condition more comprehensible and in that sense give me a greater sense of security. Mine is an evolving situation and if I have any update I will share here.

[@thebluntyorkshireman5161]

@@kalokization Please do! Thanks for sharing with everybody.

[@kalokization]

@@thebluntyorkshireman5161 I need to give an update and hopefully clarify any doubt I might have sowed - I think I have PPPD ie persistent postural-perceptual dizziness- it sounds complicated but really it isn’t if one looks up the right resources - it is a newly recognised pathology hence almost no doctor I have seen has pointed it out to me but I now have found the right treatment finally and on my way to recovery!

[@thebluntyorkshireman5161]

@@kalokization Ah brill - KLY. I've always wondered whether PPPD is a unfortunately consequence of vestibular disorder. What treatment are you having?

[@homer3189]

Have you read about the Sternocleidomastoid muscle of the neck? It can cause vestibular, motion and ear/eye symptoms.

[@thebluntyorkshireman5161]

Oooh no. tell me more?

[@homer3189]

@@thebluntyorkshireman5161 It's the big muscles on the front of your neck that stick out when you turn your head. Sternocleidomastoid syndrome is a well documented condition with symptoms extremely similar to inner-ear conditions.

[@thebluntyorkshireman5161]

@@homer3189 Wow - interesting. I picked on another neck muscle a recent video. I definitely think it is worth getting necks looked at.

[@homer3189]

@@thebluntyorkshireman5161 Personally I have found that pressing down on the clavicular head of the sternocleidomastoid muscle reproduces a very distinct feeling of pressure under my eye. To me it proves 100% that the muscle is connected to facial pain through nerves.

[@thebluntyorkshireman5161]

@@homer3189 Oh yeah, I agree. There has to be a link!

[@aliyaaahhhlps]

Oh by the. Way I’m interested in the diet /food. Looking forward to it. And omg hilarious hahaha Ted bundy 😅

[@thebluntyorkshireman5161]

Haha yeah a bit inappropriate but I will be some times! I promise I am not a TB in the making!