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Emily Jefferson - Director of the HDR Alleviate Pain Data Hub and HDR Imaging Data Co-lead and Chair of Health Data Science and Director of the Health Informatics Centre (HIC) at University of Dundee.
Transcript:
I think a major problem for researchers is accessing data in a timely way and being able to find the data that's out there and then being allowed to use the tools that they want in order to analyse that data -so it can actually take researchers many months, if not years.
At the end of the day, researchers just want to get on with answering research questions and coming out with novel insights. They don't want to be spending time writing data governance applications and having to come up with data management plans.
I think the HDR UK Gateway will completely transform the way in which people can find data. Whereas five years ago it was sort of a novel idea, I think people are streamlining the process of actually linking data sets and providing subsets at scale in a reproducible way.
And I think the landscape very much changed with COVID in that people understand the power of data to inform public health decisions and also the priority of getting timely access to data in order to carry out research.
And so actually a positive outcome from COVID is hopefully that those processes will be streamlined, new architectures will be put in place. We still protect patient confidentiality and trust, but also enable a much more timely access to data for other diseases other than COVID.
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