The importance of having the correct care in place!! Key for maintaining independence!!

[@peterfslife]

Your strength is WONDERFUL!!! I also use a ventilator. I use a ventilator through a tracheostomy, and it has helped me so much!!! Your videos have inspired me in my walk in life. I'm going to keep up to date on your videos.

[@bhumikas9759]

Hi James, i watched all your videos... I have 5 year old son with DMD... I want to know how was your early days... I want to know from your percepective how should we as a parents treat him, care him... Your videos keeping me alive everyday... I watch you n tell life is really beautiful

[@jamesparkinlivinglifedmdstyle]

Hi thankyou and im glad that the videos are helping you. when i was younger i was unaware how serious DMD Is, that was a good thing because i could enjoy my childhood the way a child should. if i knew about DMD earlier than i did, i don't believe id be where i am now and as healthy as i am now

[@tedgarren4942]

Do you go to all Leeds home games?

[@jamesparkinlivinglifedmdstyle]

yeah ive been a season ticket holder since the 2013-14 season