The Miracle Mann (Thanatophoric Dysplasia Dwarfism)

Samuel was born with a rare form of dwarfism and not expected to live more than a few months.
At 11 years old Samuel has defied all odds. He is 25 pounds, 26 inches tall and a source of joy for everyone he meets.

[@azoor5881]

My daughter had Thanatophoric dysplasia type 1. The child in this video is literally the only child with Thanatophoric dysplasia to live this long. The rest suffocate shortly after birth because their rib cage is too small to expand.

[@jtx5199]

Зачем рожать таких детей? Кто нибудь объяснит? Для показухи? И смотреть потом как они мучаются и уходят?

[@nicolasriou8718]

Aren’t you aware of Christopher Alvarez? Dude got TD, he’s 25 with a degree in journalism, not taller than 1.5ft

[@purrspctiv]

@@jtx5199in the hope they will survive. in the name of love and the name of hope. in the way of even if it’s not the best life, it’s still a life.

[@somericanguy]

@@purrspctiv it's a life of pain

[@user-sp1zg9gc3l]

В Белоруссии живёт такая же девочка по имени Оля, у неё тоже есть свой канал, только она не может держать голову как этот мальчик

[@AoiUsagiOtoko]

this dude is legendary-- surviving a condition that has "thanatomorphic" in the name is absolutely nuts. that's awesome, hope him and his family are still enjoying life!

[@somericanguy]

with an absolute negative quality of life to show for

[@dorothybarrett1853]

@@somericanguy if you can't comprehend his smiles and laughter and the joy his folks feel, you're the one with the zero quality of life, bud.

[@somericanguy]

@@dorothybarrett1853 i watched some of their instagram stories. The lights are on, but no one's upstairs. The mom would do story times and you could see her get agitated just trying to get him to look forward. Zero. quality.

[@robo_t]

@@somericanguy It seems to me like he’s more capable, maybe it’s just because her Instagram is full of just positivity so she would only post the good days, she’s also religious so you have that. He can communicate and it looks like they’re constantly practicing and going after it, he uses his iPad to communicate as well by going through pictures. Recently they’re trying to practice with standing and walking, and he’s progressed from using a high chair to sitting at a table. With the books, I’d guess he doesn’t actually read and just likes the pictures and maybe the act of flipping through the pages. I don’t think he cares that he’s reading a book about why God loves him, and it’s also a way for Evelyn to promote her own books and other authors.

[@jtx5199]

А ты не хочешь так наслаждаться жизнью? На себя примерь

[@cindylunceford3626]

You are very wonderful parents to have that beautiful child Samuel in your life, 11 thats alot of Good times, my daughter passed at 5 1/2 of a brain tumor , she was terminal i enjoyed every moment i had with her...Samuel is very precious....God bless you....🙏🙏🙏....

[@Bevliever]

He seems to understand a lot or everything. And he is happy! That is the most important thing. ☺️

[@andreworozco3656]

He is so precious and so happy. I am so glad seeing him enjoying life. Big loves and respect to that little man.

[@kimikae4170]

Much love and respect to Samuel for sure... And also much love and respect to his beautiful parents.

[@tanyabarnes2920]

His parents are amazing. What a wonderful beautiful smart little boy!

[@jtx5199]

Хотите себе такого? Где красота? Человек мучается, лицемеры

[@Noneck1999]

Hi Samuel! 🖐🏾 I for one am GLAD you’re alive. Such a Beautiful Boy ❤

[@FazMaTaz]

Love this guy. He is an inspiration. Thanks for doing what you do for these children.

[@monicahyland8641]

What a adorable little boy, he brings joy to everyone around him. He has a reason for being here and he is showing the world that miracle’s do happen.

[@janwisz4070]

He’s not adorable be honest

[@Johnfallout-yg9hc]

@@janwisz4070 your fun at parties 😐

[@nindikaur2095]

Samuel is great and thank you for sharing his life with us 🥰🙏

[@stephaniemockobee1501]

Sir....I sometimes trip on how gorgeous you are and you talk to people Like The People They Are, not stuck on their outer appearance but as fellow human beings. And you don't flex who you are to be relatable to them. You're Very socially acceptable and make people who are drawn to the superficial, want to approach you. But You are drawn to the misfit human beings that some of us are. You're a Wonderful Human Being. I could go on but I'll stop there. Love You, Bro.

[@maryrenee18w]

Samuel is such a beautiful human being. Blessings to Samuel and his family. 💜

[@davidpressley3451]

That smile and laugh though 😊

[@mariafaria2256]

Thank you , thank you, thank you for letting us know of great human beings. They laugh, giggle, communicate, love more than any others who don't even enjoy what they have. ❤❤❤❤❤

[@jarayablack3619]

We need un update on this guy

[@kimmickal]

Beautiful! I hope he is still alive at 18 years old.

[@FleetwoodCaddy59]

Me too, I would love an update 🧡♥️🧡♥️His parents are such good people.

[@cherylsutherland9464]

Soooo precious , Samuel is sooo precious beautiful 11 year old 🇺🇸 Love from Perth Australia 🇦🇺

[@YochevedDesigns]

Same! I was scrolling through the comments looking for an update. I love his tiny little hands.

[@mwah]

God bless him! What a beautiful miracle, big up the parents!

[@matimus100]

But no zero blessings for the gay or lesbian or black community right?

[@mwah]

@@matimus100 Who

[@matimus100]

@@mwah says Jewdaisum Christianity

[@dorothybarrett1853]

@@matimus100 where'd that come from?

[@cicimora1402]

Keep up the good work parents. What a cute he is.

[@matimus100]

Says the cartoon

[@whosebuilderandmakerisgod]

I can’t believe this is from six years ago. I remember when it just came out

[@tracy4591]

What a wonderful loving family ❤ Samuel is a treasure and so smart ;) Wishing many blessings to Samuel and his parents 🙏

[@ruthmeyer5415]

Samuel letting his light shine is awesome! :D Keep shining, Mann family!

[@melindamorrison1]

I love these videos. I get to meet some of God's most precious souls through this Awesome man.

[@matimus100]

And your God did this?!

[@beautifulbonnie3463]

I love his beautiful smile! ❤️

[@janiceyoung7273]

He is such a sweetheart

[@gladysclausing8785]

God bless you for having your wonderful child. 🙏🏻❤️

[@mikecampos5123]

Hello Samuel I loved this video ❤️❤️❤️❤️❤️🙏🙏🙏🙏🙏

[@broganmaxwell2324]

What a smile!

[@grandmaDecker]

What a cutie, fun personality!

[@om.marym.2011]

مين جه من فيديو ياسمين وضني ربنا يعوض عليهم اللهم امين ويقوي كل واحد علي الا عنده

[@hebatallah9084]

الحمد لله

[@somericanguy]

The dad looks absolutely exhausted and halfway checked out

[@sen73nced]

wouldn't you?

[@somericanguy]

@@sen73nced no bcz that pregnancy wouldn't of made it out the door the same day me and my wife would of gotten that diagnosis

[@sen73nced]

@@somericanguy well, that's another topic, but I agree.

[@datemrzeadatisedive6291]

Are both of you not feeling an ounce of shame to comment something like this? Every human deserves a life, just because you have an idiotic personal opinion does not mean you should tell it to the person. Would you stop them on the street and say this same thing?

[@somericanguy]

@@datemrzeadatisedive6291 if you want to dedicate your whole life to being a 24/7 caretaker to a severely disabled kid you could of prevented from living a life of pain and agony, then by all means.. but i bet you wouldn't

[@JonathanHernandez-mm3nd]

May god be with Samuel and god bless his parents.

[@Cetrifuga1945]

Bravo grazie per quello che fai .

[@davidhutchison9556]

Thank you

[@user-hx9fh3hw9z]

Жалко родителей, не дай Бог ни кому таких испытаний

[@shaylanewlife]

Blessed his heart ♥

[@cheetodust1549]

He is so cute.❤️ God bless Samuel.

[@matimus100]

Zeus your God?

[@AngaihaSaiphai]

A va han hmelchhe beautiful tak em. Hrai hlum daih chi loh maw

[@corinneweisbein2895]

Samuel is a beautiful sweetie 💕😍💕🍬💕 Samuel love you loads sweet boy 💕❤️💕

[@latoriarichardson6754]

He's adorable!

[@cindysebryk5093]

You guy's are fantastic. Love your family!

[@matimus100]

Strange comment love your own

[@kimberlysevastyanenko3798]

@@matimus100 You realize you're just making yourself look like a dimwit, don't you?

[@FleetwoodCaddy59]

He’s so cute 🥰

[@melaniemonk9151]

Samuel's mum is a sweetheart

[@safaabdulmohid7904]

Just asking for myself which type does he have? Type 1 or 2? And was it lethal while in pregnancy?

[@Cetrifuga1945]

Ciao ti dico che sei un ramarro anche se nn ti conosco che ride alla vita con bambini e ragazzi più sfortunati yes cosa si può dire niente si vede tutto ciò che fai ❤con il cuore e l’anima gentile e amorevole ;

[@Crazyjn]

Any updates on this little Mann? 🤷🏻‍♂️💯🤔

[@melindaengstrom8910]

He is definately very smart! When he starts speaking he will say some intelligent things indeed!

[@nicolasriou8718]

Smart things like “GAAAAGAAAAA BAYBAYYYYYY!!!!!!!” ?

[@myoldvhstapes]

He knows some sign language. I saw ASL for 'eat' and 'more.' @@nicolasriou8718

[@pencopethati]

God bless.

[@helenwhite1748]

Sam has a beautiful smile

[@nurysflorez9656]

Que familia tan bella , es un poco fuerte , pero con la ayuda de Dios todo se puede. Amén

[@AngaihaSaiphai]

Love you

[@shellyannlewis2595]

At least you guys get to enjoy him every day,so cute.

[@user-cj4vw2ux2w]

Как хорошо, что эти детки имеют возможность жить и радоваться!

[@user-bg5ev9pw2d]

А вы бы радовались если бы родились в таком теле?

[@user-mw6zq3tc1r]

Вы серьезно?

[@SvetlanaSvoboduyaschinu]

@@user-bg5ev9pw2d Но ведь он же улыбается и смеётся. Значит радуется. И возможно этот малыш понимает цену каждому дню своей маленькой хрупкой жизни и поэтому он рад тому, что у него есть здесь и сейчас. Любящие родители, замечательный уход за ним. И он так им за это благодарен! Это невозможно об"яснить словами.

[@user-ks1gz6js5b]

​@@SvetlanaSvoboduyaschinu понимать он ничего не может, так как там разума нет. Ребёнок познал боль и дискомфорт с самого рождения и он к этому привык.

[@Dmitry-jq8gr]

@@user-ks1gz6js5b Самуэль с сохранным интеллектом, ещё есть Кристиан Альварес, которому сейчас 29, и он закончил факультет журналистики. Вот он полностью интеллектом развитый, речь слажена, ведёт свой блог. У него танатафорная дисплазия 1ого типа. А вот есть в Минске девочка с таким же диагнозом, только 2ого типа, у нее вообще интеллект на грани 8ми месячного малыша. Блог ведёт её мама Елена Чижова, вот действительно не понятно, зачем она родила такого ребенка. А так да, детки с сохранным интеллектом понимают, что всю жизнь зависят от помощи окружающих. Нельзя такое пускать в жизнь, просто мамаши под действием гормонов не хотят идти на аборт. (Можно ввести Елена Чижова и посмотреть видео)

[@anacristinamotalopes2740]

nice

[@samantha19985]

Hi Chris I have cerebral ataxia and I want my story out there

[@c4zx]

Email him

[@mcmlxii4419]

Ahh he does have a great smile.

[@enra9111]

I love him💗💗💗💗💗😘😘😘😘😘😘😘

[@matimus100]

Very strange comment

[@edolson9661]

Gorgeous!

[@snav3988]

❤️❤️❤️

[@lillymurray8408]

Is he struggling to breath? Or does his trach need to be cleaned?

[@mariyaivanishak7159]

Есть канал Елены Чижовой из Беларуси, у неё такая же дочь Олюшка

[@promaster5773]

Да есть но она не разгаваривает

[@user-ty3xk5fb9u]

U Eleni docj krasavica,po sravneniju,,,,

[@juliamacedosouza9058]

He so cute i mean baby boy !!!!! ❤❤❤❤❤💚💚💚💙💙💙

[@aimeefrosland5708]

Hi Samuel 👋

[@undeadgaijin4585]

Shawty trifling . He must be from dirty docks

[@kimberlysevastyanenko3798]

What?

[@batacumba]

@@kimberlysevastyanenko3798 he’s implying the kid isn’t the dad’s because of his skin color. I’m guessing maybe it’s jaundice or something related to his condition.

[@kimberlysevastyanenko3798]

@@batacumba oh. Ok.

[@leovanrossen6331]

💕

[@helenaguilar4138]

beautiful smiles and eyes

[@mobpod420]

based cheerio dude

[@ethansons7085]

Jesús 🙏 Amén

[@matimus100]

Awomen

[@eduss81]

He look like a good man

[@user-ss6ji5cu1j]

Мученье ребёнку и родител

[@Cetrifuga1945]

Si sì sono 20 anni si che tribolo ciaoooo state tutti bene

[@Heyymynameisjbells]

Awe how cute

[@arsalanabolfathi552]

❤❤❤❤❤❤❤❤❤❤❤❤❤👏👏👏

[@GabePickles3837]

My boi’s really passionate about his Cheerios.

[@jacks2663]

cheerio

[@user-cq8fs7yr6w]

Что их ждёт в будущем? Все ужасно

[@ralex1068]

I agree.

[@jtx5199]

Так они ещё и гордятся этим! За гранью 🤦

[@bartthegamer1354]

He’s an absolute trooper

[@matimus100]

Utter nonsense comment

[@stephenjacques554]

What a beautiful child and caring family you did the right thing to keep this child with you seems to understand most everything you say to him, smile warms your heart. SJ sending my love and prayers always for you and family and friends. SJ I'll be watching and enjoying his smile and love he shares. SJ

[@user-gj2zk3kd5r]

Это видео старое,а как сейчас дела у Самуэля?

[@user-ne8tt6yn5u]

Жив, в инстаграмме есть аккаунт его матери.

[@user-id8vi9bg4n]

MIRACLE MANN COMMENTS IS BACK !!!!!!!!!!!!!

[@annegleason8442]

OMG he so cute!!!!!

[@marleenninaka1303]

Hi everyone: It's so nice to see you all again on KZbin. I want to meet you all. Take care and stay safe.

[@Cetrifuga1945]

Ciaooo povera creatura fa fatica a respirare che cose ingiuste ok ride papà e mamma bella la ⭐️🌺❤️‍🩹vi mando un grande saluto di affetto.

[@user-ty3xk5fb9u]

Nu ocenj strasnenkij 😢😢😢

[@lubnarahman7130]

❤

[@user-el8ge9sr9q]

Как же это ужасно и страшно! Видеть это день и ночь!

[@user-gm2wc4xv4m]

Какая глупость. Это их ребёнок,их кровь и плоть. Они его любят. Может быть кому то и не понять, не дано, что можно любить свое дитя, каким бы он не был... Да, он не такой, как все в общепринятом понятии. Это неизлечимая спонтанная генетическая мутация. Ребёнку суждено было родиться и он любим семьёй, не брошен, как котенок или щенок....

[@user-bg5ev9pw2d]

@@user-gm2wc4xv4m мальчик имеет глубокую инвалидность с кучей патологий органов, это ли не страшно? Да, они его не оставили, любят его, но хорошо ли это для мальчика, может лучшее что они для него могли сделать это не обрекать на такую участь и сделать прерывание на стадии беременности? Если бы меня мать родила с таким диагнозом, зная о патологии у меня была бы к ней сильнейшая обида.

[@Dmitry-jq8gr]

@@user-bg5ev9pw2d совершенно верно

[@user-kn4zm7nl6l]

Как же этот ребенок похож на Олюшку! Может вы видели ролики про неё?

[@VetaAnatoli]

​@@user-gm2wc4xv4mА жалость?Намеренно обрекли на страдания,и теперь видят каждый день.И ещё при этом довольные.Они садисты?

[@michellehessman3683]

Hey

[@Fuckhotweels]

Qudon Bayles

[@landon-je1zd]

0:10

[@euniquecarpenter]

That is not no sammyo

[@sarahtremper4528]

He is soooo precious and keep working with him. God is good.

[@sawok7ds917]

Солнишка привет я украііни 🇮🇨 києв я жилаю агелочку крепкава здаровя я рада , што вас я увіділа на ютубе,,, Наталя 👼💖💖💖

[@patsyjones5578]

🙏🙏🙏

[@matimus100]

Superstitious graffiti nonsense

[@luxtruluv3136]

Little prince 🖤

[@anatolia6343]

Сделайте перевод на русский

[@TatjanaRimdza-ct9dj]

V belorusiji jestj takoje ze straholjudije Oljuska

[@monolyn]

why does the kid look so brown tbh

[@person3714]

Ask the mother.

[@VetaAnatoli]

Печень по-видимому страдает тоже.Ужас ,бедный ребёнок.😢

[@valentinabaskirova7529]

Танаторная дисплазия ,это пожизненное издевательство, никто не думал,что ему бывает очень больно.

[@user-gk1vj3vvb6]

Так это же сейчас самый тренд, зарабатывать на инвалидах, сколько каналов понаоткрывали и выставляют на всеобщее обозрение. Хотя, никто не спросил самих инвалидов, хочется ли им, чтобы на них все смотрели, пока они в немощные и в подгузниках. Канал про Симку, про Олю с танотофотной дисплазией, канал про деменцию, ещё и с подробностями. Только вот сами эти заботливые в кавычках родственнички что то не снимают себя, как они сами подмываются, как меняют трусы и носки, а инвалидов - пожалуйста, смотрите все.

[@user-ib2kw4gf5n]

@@user-gk1vj3vvb6 Елена Чижова из своей дочери с танатофорной дисплазией сделала звезду цирка уродов,миллионы ротозеев приходят на её канал, поглазеть на эту Олюшку со специфической внешностью, как на неведому зверушку.

[@VetaAnatoli]

​@@user-gk1vj3vvb6Ги де Мопассан.Мать уродов,она тоже наживалась на своих детях,и намеренно плодила уродов. Здесь же на Ютубе,сначала сознательно рожают,зная о диагнозе и зарабатывают на подписчиках.😮Днище.Очень жаль таких детей.

[@Hellohihey670]

Samuel is wonderfully and beautifully made by God through Christ Jesus 🥰

[@matimus100]

Superstitious nonsense

[@Cetrifuga1945]

Ciao bimbo ride scusate che problemi a ilnbamb bella la mamma mamm cosa rimane piccolo mi dispiace la ricerca come va dimmi ciaooo

[@natsdirksen9628]

Praise the Lord🙌 he made it far beyond the doctor's expectations, I salute his parents for not aborting him and giving him a chance of life❤️ God bless you all abundantly 🙏

[@bonnyfletcher1736]

Life? That's not exactly living much of a life.

[@giusyfilippin2166]

is this kinda life??

[@matimus100]

Strange comment slightly sinister

[@bonnyfletcher1736]

@@matimus100 oh come on, babies born with thanatophoric dysplasia don't usually live very long outside the womb and the ones that do spend their life lying on their back in a diaper hook to a ventilator unable to eat food by mouth therefore must need a g tube. It's not much of a life. That's why doctors term these pregnancies not fit for life. But there's always some moronic liberal who'll disagree 🙄

[@kimberlysevastyanenko3798]

@@bonnyfletcher1736 How do you know how it is for him? You're comparing his existence to your own. As long as he's happy most of the time that's all that matters, and it seems like that's a possibility.