🏥 THE MIXED EMOTIONS OF LEAVING THE HOSPITAL 😢 (8.14.18)

[@thefreylife]

Ok, here’s what you I’m most excited about ... 🛏☀️🌸🌳🐩☕️🎵. What makes you most excited about being home sweet home?

[@lizverde4309]

Being in my own bed.

[@heathersmith4774]

The Frey Life nothings better than your own bed!

[@analuisa1214]

Eating my mom's food, having nice and long and relaxing baths and my own bed - also, no one coming in my room every 30 minutes

[@invisibleinkling1474]

Same as you, Mary! 😊

[@lauragadille3384]

What I'm excited about is when my clinicals classes on August 29, 2018. I love home is my cat is waiting for me and my bed. Now that grandpa is home with me and I'm caring for him, I'm excited to come to him too.

[@OldsoulKilljoy]

I saw on your Instagram stories that you were heading home and I was so happy to see a smile on your face. I am sorry that you still don't feel well. Chronic illness seems so tiring most days. Also side note. Can we just acknowledge how Peters ID says parent/guardian. Haha the happy little joys of a children's hospital. I live you guys.

[@catoncloudnine579]

I like how supportive Peter is through all of this, it’s so sweet and heartwarming ❤️😩

[@alexysmommy]

I just came across your channel...this is like watching my life. I totally get every emotion you were feeling. I have lupus, 2 of my kids have autoimmune diseases, and I am a live in caretaker of my dad who is a quadrapalegic with a picc line. It is a crazy life, you are doing great living it as best as you can :)

[@kerismith1311]

Hey Mary & Peter! I'm so glad that you can go home this day! I wanted to let you know that I just got discharged from being in the hospital for the past 2 days for my asthma & diabetes. The thing that you will love to know is that when I was leaving the hospital tonight, Mary I was singing your favorite song that you sang tonight. I'm going home, going home, tell the world I'm going home! I was singing that as the CNA wheeled me out in the wheelchair. I automatically thought of you as I was leaving and sang it to my CNA too! I sure hope you Mary are feeling better now too! Prayers!

[@bobbihammett7823]

As a caregiver discharge is completely overwhelming! Our hospital that treats my sons many conditions is 3 hrs away so it’s scary to leave even though we want to go home when inpatient. Coordinating home meds, medical equipment and supplies are stressful!! Glad it all worked out! Praying you feel yourself again soon! High five to Peter too!

[@hollyosgerby1901]

Peter, you are an amazing husband! When Mary seems overwhelmed you have a very calming effect on her. Focusing on the " here & now" and not dwelling on the " what ifs". I am so happy that you can go home!! 🙏🏻🤗❤️

[@vhdalton17]

I think it is so sweet how supportive Peter is and how sweet and positive you are also. It is not easy being so sick for so long and be as sweet and kind as you are. You make a beautiful couple.

[@sophiepalmer-doran344]

glad the hospital stay was an over all sucess and that you are home

[@buckeyehockey1979]

Even Olie was excited to go home. Just being at home in your own environment, with your routine, will make you feel a tiny bit better. It is proven people heal faster at home (once it is safe/practical for them to be home). You are so blessed to have someone so devoted to you. You are are both very special people who inspire me a great deal. Thank you for reminding me there is always something to be greatful for.

[@mariannenogle6172]

I pray for you every day! You are a true gift and inspire me to keep going and I don't even deal with anything like you do. Your Husband is the best.

[@tinabreitfelder592]

I totally understand how you are feeling about going home. Whenever I'm in the hospital I cannot wait to go home but it's also scary to be away from all the doctors and nurses. You are lucky to have Peter to help take care of you. I love how he always says WE. Love you guys.

[@robinharris0562]

I just love the excitement of just being home with my family enjoying life. I love the simple things. Like snuggling with my hubby watching TV. I feel that it’s the simple things that make life so special

[@sarahkittle]

Even if you don’t feel like it sometimes, you two are so strong. Keep pushing (I’m rooting for you!!)

[@suethomas6719]

Glad to see the three of you going home! It's Wednesday now and I figure you're relaxed and healing, Mary. Loved seeing Ollie's tail wagging. He knew you were moving. And Peter, you must be breathing a sigh of relief to get Mary home. Imagine all that room now! Take care and God bless you both.

[@kimberlyhenline8934]

You and Peter make a great team! Welcome home!

[@rohanmullin2566]

The word maintain , really hit me because I do physio three days a week just to maintain what i have now

[@wolfsrule100]

Glad you were able to go home!! It always helps lift the spirits.

[@katrinasolomon8412]

Mary you are so brave and inspiring! Peter you are such a nice and supportive person! And sweet Ollie is such a great and cute service dog! Love you guys! Stay strong!

[@nicolareay8460]

It's lovely when you first get home, you just wanna hug everything as if to say hello bed I've missed you, hello sofa, I missed you 😊 it's too weird to explain to people who don't know, lol glad yr back mary

[@kpratt6685]

nicola Reay So true! Haha.

[@jacquicoder7160]

Yay!!!! Can't wait to see you at home again. Being able to sleep in your own bed, just having the comforts of home, that should make you feel better mentally, if not physically. Praying for the best as always.

[@AnAspiesPOV]

had a really bad day yesterday so just got to the vlog now, but i love how peter has the parent/guardian ID. you would think that with the CF clinic for adults being there, they'd have two types of IDs. so glad ya'll are home!

[@SuperMissblueeyes]

I'm sooo happy for you! I know hospital isn't a great place to be & how awesome it is to go home! Enjoy your lovely new recovery room.

[@karenvincent5202]

Hope you are back on the boat soon - Ollie loves his boat!

[@kathypickering9447]

So thankful you get to go home. Keep doing what you do and hugs from NZ are still coming over to you ☺😊

[@charliecharlton9782]

I went through a crazy depression transferring from ICU to a normal room. After such high care I felt abandoned instead of happy. Change of any kind is often stressful.

[@abbykuusisto3731]

Yahoo! I'm so happy your going home Mary!!!

[@jannalawlor5832]

Yay! So happy you're doing well enough to be able to go home.

[@anngabriel5455]

Best wishes Mary and Peter, I'm so glad that you pointed out that going home doesn't necessarily mean better. Sometimes you do what you have to do! Continued prayers are always with you.

[@aubreyrose3878]

That’s such great news, I’m so happy you’re going home! Thanks for picking up the camera, even when you’re having a tough day. Y’all are so strong and such an inspiration. ❤️

[@roseragan-mcwain2395]

I Love My Home! But! I MUST SAY, I used to CRY WHENEVER I was Discharged, because I didn’t feel SAFE. (Abuse) Now going Home is SUCH A BLESSING! Praise God! Glad for You & I UNDERSTAND!;)

[@Dreamer5211]

Hi guy`s , that is so great you are going back home. I truly enjoy watching your videos and the truth behind them. The love you both have is so special I hope you both have a safe and happy journey home. Mary , I am so glad you have Peter and Peter , I am so glad you have Mary. God Bless you both , thank you for letting us in on your magnificent journey of life. Take care , Gary

[@roseannpatterson377]

The calmness lol I spend a lot of time in the hospital too so I just love the quietness.

[@megancaldwell6805]

I’m so happy to see you going home Mary!!!Hopefully you can stay home for a while now

[@peggynelson2486]

I'm glad you all are going home my friends

[@terriehumphries6028]

Glad you got to go home. You will do great.

[@carriebowlen1574]

I am glad that you are going home!!

[@adrianajimenez4342]

I'm glad you will be going home soon!!! God bless you both!!!

[@FroggyGirl90210]

So excited for you! Praying for fast healing

[@Sonali11]

Yay I'm so glad you can go home to carry on doing your treatment! Nothing like home, and I find recovering at home is so much better! Enjoy being back at home in your own bed xxx

[@FunsizedStyle]

Cheers to going home!! Keep on keepin' on girl!!

[@barbcobbett7206]

So happy for you guys and I hope you start feeling better real soon! I'll keep you in my prayers! Much love from Ont Canada

[@ejavenger]

Zosyn and Vancomycin. I know those well. Two of the most common IV antibiotics I deal with on shift. Along with Azythromycin. Get better Mary. God bless you and your channel.

[@ShannonBenson678]

Eric Ferro don't forget Levaquin!

[@ShannonBenson678]

❤️

[@allinkedupalways4163]

Good job Mary girl! You've got this

[@sarahnelson7534]

So pleased all is going well. Enjoy being back home. X

[@casey12707]

Yay! So happy you are going home. Get better Mary!

[@fralinsandfriends]

I'm most excited about clearing out a bunch of boxes full of old equipment my husband was hesitant to throw away. Now I can show him the drawers full of plenty of supplies. He's an always prepared type. Oh, he saves containers too. Yup one of those but I'm so glad for him.

[@joyce755able]

So happy for you!

[@meowchicken-moo7035]

Yay!!! Home time!!!! Here's hoping you are settled and able to relax a bit. God bless you both. I will keep you both in my prayers Love from Anna

[@lorikean3405]

wishing you a better day tomorrow.

[@beebee2783]

Yay! Going home is always a good feeling! Hope your first day back has been a relaxing one.

[@hannahrosa5485]

Wow. What a long, hard haul for you both. Praying for you.

[@adet3902]

Thank God you’re going home!!! 🤗🙌🏼

[@croyabc123]

Best of luck on going home!

[@marilynmayhew6040]

I hope you feel much better very soon.😍

[@katherinebryant2641]

I'm so happy that you can go home and you can carry on with your treatment there. I've only been watching for a few weeks now buy you guys are inspirational. So Thank you for vlogging xx

[@mishellweiss3606]

stay strong i love you guys you give me hope i never thought id have before

[@deborahfobe1673]

You have to do what you have to do. Whether staying in the hospital because of your body or being able to go home. So glad you are going home!💗 Nothing is better than your own bed. Rest, rest and Peter you rest when you can as well. Ollie is so cute💗

[@phoebebrunt5971]

Really hoping that being home you get to relax a little ❤️ Really hope you can start feeling the benefits of all the hard work that you’ve been doing x

[@libbygibson5612]

Sending Prayers your way.

[@dawnwilson4286]

Praise the Lord for good news!! Nothing better than your own bed. Continued prayers 💜💜

[@ConversionDisorder]

I'm so glad you guys get to go home and like you said the struggle is real and the fight will still go on but being in your home and your own bed is a lot better

[@canaanherkamp3880]

Yay!!! Praying for you!!

[@PlanningWithCatherineElizabeth]

Yay...you are home...like you said REST REST REST and RECOVER...sending lots of love and prayers your way from New York❤️💋

[@patsymullins7338]

Thank God that u get to go home. Prayers that the sugary helps.

[@jimmyjohnstone7258]

Rest at home and get some energy back. Best wishes.

[@533134]

That IV Med schedule is crazy!!

[@sarahstuart3245]

Hoping you had a brilliant journey back and either slept or managed to enjoy the views and excitement of being outside x

[@jonki1980]

Excellent news that you are going home. Ollie was clearly excited to be heading home at the end of the vlog as well.

[@mtbenintendi2534]

One day at a time. Thumbs up on being home to recover!!!! Hugs 💗 Tori Benintendi

[@trishab2147]

Mary, you had surgery a week ago! Don't be so hard on yourself. It's okay to not be okay! SO glad you were able to go home!

[@trishab2147]

Also, even though you've done 2 weeks of IV's and aggressive airway clearance, your body is probably exhausted and needs rest. I feel like once you're at home you'll be able to properly recover from the hospital because you won't have people coming in every hour to check on you and you can get some rest you still have 1/3 of your IV's to do so hopefully you'll see some encouraging results next week :)

[@nicoleolivera31]

You're rocking it, Mary! I think being home is going to help you feel better! I love spending time with my little ones when I'm home, and making gingerbread steamers with my new milk frothing machine!

[@narcydishon8389]

Happy to see you are going home! My thoughts and prayers 🙏along with a extra special hug for you!!

[@jolenehauck7019]

So glad your home!

[@cherijane3776]

Yay thumbs up for Mary so happy for you Yay! 😁😊😉

[@rebeccaclavette2329]

Yay!!! I was in Boston seeing a new gastro on Monday. Was seeing positive vibes your way. Glad to hear!!!

[@BNHAalltheway]

So glad You're going home

[@DanaCook60]

I am so happy for Mary! Glad you all are going home. ❤️❤️❤️❤️❤️❤️

[@aprilhuffman81]

So glad ur home!!!!

[@Athlete1015]

As usual I love Mary’s shirt! You should make one light pink with silver foil that says “anything is possible”

[@avidfan47]

I understand. Always have to follow up w home care and although can be daunting....so much better than hospital! Prayers for a speedy recovery!

[@Darienlover999]

Yay! Go Mary! So glad you're home 💜

[@monamorgan9452]

How awesome, your going home😁🙏🏻😍 Ollie even looks excited lol

[@kiki0244]

Glad to hear things are getting better but sometimes health can fluctuate. I’m rooting for you though!

[@esthersmart1351]

Aww that is so good, to be able to go home, well done🙃

[@thania68]

Yay. You guys got to go home. Yay happy for you. I bet you will feel a lot better once you're home.

[@cagedtigersteve]

Welcome home Mary!

[@Elisa98438]

Woot woot! Home!

[@thenicholsonfamily6830]

Glad you are going home

[@yarncavedyeworks]

Mary

[@lavonnerobinson8446]

Glad you're going home

[@lindabow100]

You are a warrior!

[@crpssurvivor]

Thank you Jesus you’re going home you’re going home!

[@onepawatatime7925]

I love that peters ID say parent/guardian! 😂

[@rentechpad]

They started a new program a year ago at our hospital where you are assigned a discharge coordinator from the time you are admitted, whether your going to be there overnight or for some undetermined amount of time. This way they are on top of everything that will be needed and in place from the hospital side to the home health care team, to clinic followups, to any specialist referrals and to everything from the paper work to the bandaides they want you to take home. This has alleviated all the gotchas that used to just compound the stress of discharge day while you would normally wait for someone to contact home health and someone else to coordinate the last orders, to someone else getting prescriptions rounded up and then someone else coordinating all the teams signing off and so on. Instead of the family trying to remember that this team said that and that team said this and what one doctor wants you to do, and what another doctor wants you to follow up on, its all put together by your coordinator and they have done all the organization and scheduling, handled all the insurance issues and have everything just set up for you. They come in the afternoon before discharge with any bags of supplies that they have put together that they know you will need at home immediately before home health gets there - or that home health does not have, and a very nice folder with everything organized in it from your doctor's summaries, to their instructions, to when they want to see you again,or what tests they want done, and all the appointments are scheduled and set up, any tests or appointments that need insurance approvals are taken care of. Its all just simply completed. This has meant, for us, that by bedtime the night before the planned discharge everything is in place, anything that still needs to be done at the last minutes is set up and ordered and ready to go so we are not waiting around for anything and whoever is supposed to sign off on anything last minutes is already lined up for that purpose. Also, in place in anything that would need to happen if something last minute blocks the discharge so there is suddenly no issues with a bed already assigned to a new patient and trying to get continuity of care and keeping the same room etc. We know exactly when they plan to be finished up in the morning and they actually give us a time within about 15 minutes of when they will be fine with us walking out the door. Everything is organized and arranged and pretty much all tied up. This is also great for out home health team who then knows within about 15 minutes when we will be leaving the hospital and therefore what time we will be home to meet them. Its taken the most stressful time we seem to experience with being in the hospital, which is getting discharged, out of the hospital, running around getting everything we need and coordinating things to an experience that is almost completely without stress and you end up at home feeling pretty confident that you have what you need and all your support is in place. Your discharge coordinator also follows up that night to make sure that everything she put in place happened and then calls again over the next two days to see if anything more is needed. Its made a world of difference around getting discharged and going home and turned what used to be pretty chaotic and sometimes scary time into a very nicely organized process where you feel like your utterly supported. The reason they started this program is that they found out that, especially with more complicated patients, the rush of discharge and everything happening at the last minute and throwing things at patient and family from multiple teams and doctors to the point where people missed information or got it confused and it was resulting in patients missing follow ups, not getting medications they should and many times ending up with a re-admission within a week as they just were not following up on what they were told to do at discharge. By having someone involved from the start preparing the patient to go home they have removed a huge stumbling block from patient care in that immediate aftermath of discharge.

[@kpratt6685]

Pam Duncan This sounds amazing!

[@denycelamantia7758]

Yay for being out before your birthday!!!!!!

[@sarahsrandomvideos6965]

Great video guys. It's awesome you going home Mary 🙌🏡

[@lynnrose7562]

Thumbs up for Mary! Yay. You're a GREAT team.....

[@HeatherSC02]

So can feel you right now with the antibiotics struggle. I'm on Vanc and Imipenem. Love and prayers.

[@rwojdan5]

Woohoo! Your home!!!! Your own bed!!! You are suerwomam!!