HOME HOSPITAL TOUR | IV ANTIBIOTICS AT HOME 🏥 (8.15.18)

[@iceman22st]

Peter needs a Superman shirt. He takes the "in sickness and in health" part of their vows well beyond what it was likely intended to be. Glad you're home. Healing happens better when we're at home.

[@sophieleanna9391]

I actually thinks he takes it the exact way it was meant.

[@laureng4710]

So do I. To me, it's not right to act like people shouldn't stay married to folks with chronic illnesses. It's insulting to people who suffer enough already; I consider it ableist. The standard wedding vows are to stay with your spouse until death do you part. There isn't any wiggle room there. It doesn't say stay with your partner unless she develops a terminal chronic illness that requires help with IVs and other debilitating symptoms.

[@arasor5570]

Well beyond what is was likely intended upon? I definitely disagree, this is exactly what was intended.

[@TheFrosty69]

From the uk, your vlogs appeared on my KZbin feed. I decided to watch one and now I have watched around 15. I don’t have CF but I have chronic asthma. I know it’s nothing compared to what you have to contend with daily. I have never got so emotional watching anything like this in my life. But you two have really pulled on my heart strings, such a beautiful couple and there for each other through the trials and tribulations of normal life, let alone a life with what you two have to deal with is absolutely amazing. God bless you both 😊❤️

[@LauraLumos]

It must be nice having a recovery room separate from your bedroom! That way the bedroom doesn’t conjure restless memories when you’re ready to just relax there :)

[@09makena]

Wow, that is a complicated job to have at home. Peter you are awesome to be there for Mary. Not all husbands are so wonderful. I'm so glad you all are home now. Both of you take care of yourselves and get as much rest as you can fit in there. Praying for all of you.That includes Ollie of course. :)

[@yaeliabel901]

Mary; thank your lucky stars for such a supportive and loving husband. My husband found my CF irritating and a hindrance to his life, so he left.

[@lisaromero662]

I love you both but I wish I'd hear about Peter too. He is such a loving and devoted husband.

[@anjiliveach3267]

Would you guys consider doing a video specifically about marriage when one spouse is chronically ill/disabled? It's really hard to find resources on the topic (especially framed in a positive light!) and I would absolutely love to hear your perspectives on the subject. my health has really started to decline in the last 2 years (I have Ehlers-Danlos syndrome), and it's really changed a lot of things about my marriage. Can you give advice to both the sick/disabled spouse and the able-bodied spouse, esp for times when the sick/disabled spouse needs more support? I would really appreciate hearing what the two of ypu have to say on the topic, if it's something you'd be interested in discussing. 😀

[@VocesMiliaMyriamGaudreau]

😲 yesss that would be amazing if you could do that!

[@lynnrose7562]

The family is happily at home. Yay! I like the recovery room with the bay window and plants. I love the colors you are wearing and the blanket.

[@eej1983able]

Lynn Amidon i almost want that for my house lol

[@sophieleanna9391]

That room is perfect for home hospital. All that light coming in is good for the soul.

[@debbieschlemmer2746]

Nice setup at your “hospital home” 👍 you have a much better looking nurse too Mary 😁 you guys are such a team, and I give you 3 a big thumbs up for being so organized to enable Mary to be home sooner which I know will help with the recoup so much faster being at home. I love you guys so much. Love and hugs to the 3 of you, see you tomorrow! P.s and I’m sure it’s very comforting to have Ollie boy right there beside you to help you heal Mary.

[@FroggyGirl90210]

Amen! I totally agree!

[@ilonamollema6467]

I'm so glad that you're home! Peter, you're doing such an amazing job! You're almost a nurse. Mary, let the tears flow and let Peter comfort you! I admire the strength from both of you! The circle of prayers from all around the world is still there to pray for you!🙏🏻

[@socialbutterfly6318]

In sickness and in health! 😍

[@LisaMichele]

they're really the best

[@daydreamingarts]

that table full of IV supplies really illustrates your home hospital reality!

[@Iamelsbeth]

There are medication apps that are really helpful. You can input what it is, how often you need it, notes, alarms... And the apps seem to get better every year. You guys are doing fantastic. You are an encouragement to my day!

[@dawnmorrow1465]

I just want to say that the hustle for Mary declines, but chaos ensues for Peter. Folks don't know sometimes how vital caregivers are to living with chronic conditions, I pray he gives you both rest and strength to take care of each other. While we say thank you to our caregivers, most days it seems like a very thankless thing. God knows what all they do for us, and I hope they are blessed with everything for caring for us. I remember my 15 day hospital stay (my longest ever, thank God), but it felt like forever, I went and visited coworkers at work, went and got groceries and went out to eat, I slept most of the next day, but when you're stuck in the same room for weeks. It's heavenly to see something other than white ceiling squares. Bless you both, you remind me daily at how blessed I am. Keep it up kiddos!

[@arnolddavis1281]

FreyLife Rules! Mary,Peter and Oliver aweomeness.

[@sarakrueger494]

Can you make a video about how CF affects your menstrual cycle and dealing with it when you have a chronic illness?

[@catalinaguzmancantante212]

Peter is truly a SAINT.

[@buckeyehockey1979]

OMG those ballons are a life saver. My husband was on IV vanco twice at home before he passed. It was supposed to infuse over I think 1 hour. Well wide open it took more like 12. We were like this is not gonna work. They got him the balloons, so much better. He could just put it in his pocket and carry on with life. Still took longer than normal to infuse, but he wasn't stuck to pole the whole time. So glad you are home.

[@annaroseannadanna1]

So happy you’re home! As Dorothy from Kansas (The land of Oz) says...they’re’s no place like home. Love your home hospital set up. Now all u need is a little fridge for your bubbles.

[@mikenmonas]

Mary, your phone case says it all...amidst the trials and tribulations, you CHOOSE joy! You are a light in this world...what an inspiration to others. You and Peter are a beautiful match. God is so good. Stay happy and blessings on you both

[@yaelabelman6804]

Thanks. And to all us people of the CF community who are just doing their job on their own! We are overcomes!

[@laurwitster6386]

I’m a 15 year old an I just wanted to say that you and Peter are just wonderful! You have stayed so positive and I really admire that. God is good no matter! When ever I’m getting an anxiety attack I remember to just let Jesus take the wheel. 💕

[@mindycotton875]

Fellow medical nerd (and nurse) here. I love the idea of an alcohol filled cap for your line! I want our hospital to get those!!

[@nat-815]

I'm so glad to see you both at home :) I totally understand the leaving hospital emotions, its just the build up of everything. That is one hectic schedule you've probably talked about it but if you haven't maybe consider asking a med savy friend, parent or home health nurse to come help every now and again so you can all get at least a few solid hours of sleep in. Rest up guys 💖

[@cassandrafaith6470]

Glad to see how much happier you are being home

[@casey12707]

Keep pushing Mary! Look at Ollie keeping you company. Too cute. Love u guys!

[@angelafischer7608]

So happy you’re home! I love the bay window and plants, it makes it to peaceful and looks beautiful!

[@eej1983able]

I challenged myself today and did not complain for my entire shift at work. It's crazy how conditioning makes us complain so easily and so much. I'm a bit shocked at how hard it was to keep my mind positive all day long when i felt pretty awful but i made it and unfortunately explode in the car

[@katrinasolomon8412]

You guys give me inspiration to focus on the positive and to redirect the mind when facing challenges! Glad to see your home! Love y’all!

[@kzimmerman2211]

Aww. I wasn't the one in the hospital, but I remember when my grandpa was, I went to go eat an egg salad sandwich in the cafeteria and started bawling. :) I'm glad you're home! I hope the rest of your in-home treatments go well, and that it goes by swiftly.

[@Tiffanydw4]

My mouth dropped when I saw your table😮 My son has a lot of medical supplies but not all that, so sorry you’re struggling with all this you are really an amazing couple.

[@MrChipclip12345]

There is no better feeling than being home on IV's versus than in the hospital.. Yes it's very exhausting but so so rewarding.

[@luella2897]

I'm so happy for you to be home too !!! Looks like you have a pretty good nurse there, Mary ! Good Job Peter!! Both of you try to get as much rest as possible.

[@biscuitknots2262]

Peter is such an amazing husband. God bless you both.

[@crystalcroft8318]

I'm praying that you will feel more like yourself real soon! Love you guys!💜

[@astoryrewrite2268]

Watching you guys from my own hospital bed. Thanks for being you and sharing it with us

[@crystal3897]

I’ve only started watching you recently and you have really helped me feel better. I’ve had so many health issues lately and we have no idea why and it’s really starting to worry me because I haven’t had a blood test or anything like that done and I’m worried if it could be something that we just haven’t thought about. I’ve had a lot of problems breathing and pain everywhere and definitely a lot of chest pains and body aches. A lot more with that also. I’ve been told it’s so many different sicknesses on top of each other and I just don’t know what to think. But these videos have helped me stay strong. My mom thinks I’m stupid and that I’m milking it or something. I just think she hates seeing me like this.. but thank you so much

[@kimpossible7505]

Welcome home!! Those green central line caps are great. I’ve unfortunately had sepsis twice after receiving TPN, and it’s not pleasant. So prevention is definitely key!

[@emilywilliams3385]

I think being at home now your recovery will speed up xxxx sending blessings from Cheltenham, Gloucestershire, England x

[@krisy_87]

props to you Peter for handling all of this. an running things so well.

[@BethBoots]

Ha, not being asked how your poop is absolutely is a big bonus to being home😁 so thankful that you are home in your fancy recovery room, it's so bright and happy looking💞

[@tammyp7857]

So glad that you are home and can recover quietly. Chin up Mary, you are doing great! Peter, you are awesome! Need to clone your spirit and attitude. Hugs to you both and smooches to Ollie.

[@narcydishon8389]

So happy to hear that you are home. A home hospital is much better for healing💕! Love you guys💖💖

[@Lyn4817]

It is a plus for you when in hospital, that Ollie stays with you. Like if we go away etc., we have to board our fur baby. So pleased you are home, with no infusion pump clicking a way. I simply hate them. Through the night when a nurse comes in for obs etc., I always wake up. I am planning on using ear plugs and an eye mask from now on. Hospital is the last place you go in order to rest.

[@samhelmer3356]

Anyone else see the orb at 2:26? Mary, you've got angels helping you heal for sure. 1st time in a KZbinr's video I have seen that.

[@lil1andMe]

Yes! I sure did. I actually went back a few time to try and debunk a few things, but it truly looks like an orb. An angel for sure, it was so bright. God Bless them.

[@kierajade7264]

Yay for being home guys! Big hugs to you both and to Ollie boy xx

[@terriehumphries6028]

I know this has been a long hard hall for you guys and especially for Mary, but your videos are so informational. My knowledge of CF was limited to what I had seen on Movies and of course that was for from accurate. I do not have CF nor does anyone in my framily but this is just helping me understand the diverse needs around me. As always I am praying. God bless.

[@sarahsherrod2012]

Glad you’re home and you’re able to hook up the IVs while at home. I can’t imagine being in the hospital for 2 weeks. I’d go stir crazy! Prayers that you continue on the healthy path and that these IVs help!! 🙏🏻

[@rheagalarneau1366]

Tears are a good thing. I’m glad that you’re home. I’ve learned a lot from your videos.

[@cherylh1916]

So happy you are at home!! Continued prayers for you and your family!! May God Bless you always!!!💝

[@shirleypilger1705]

Glad you are all home. It is always hard for me the first day I get home. I always feel worse that day than the day before I left the hospital. But I was so happy to have the silence and comfort of my own stuff, especially my bed. Peter, you look exhausted. Do take care of yourself while you take care of Mary. She needs you healthy and strong for her right now. Sometimes caregivers over burden themselves. I am sure you know this! I have just never seen you look as tired. Remember, we all love you both. Peace, Love and Light!

[@reneepasich]

Five years ago my husband had a catastrophic illness. He almost died 3 times and was in the hospital 40 days. I brought him home to a regimen similar to yours. Feeding tube, drainage tube, pic line where I infused antibiotics. I crushed and dissolved meds. Saline flushes, heparin.... I had to weigh everything that went in and came out. Weekly trips to the pharmacy for all the supplies and drugs. He had thousands of mls of fluids drained out of him several times a week. Six months later my weak, scarred hero went back to work. Now I am chronically ill and they can’t figure out what is wrong. My hubby works all day and then comes home to do most all the housework and take care of me. God bless you both!

[@kellilarson6128]

Wow, I can't believe all the work you still have to do at home Mary! I bet it's more bearable in your own home though! ❤

[@penelopepolinsneemeyer4757]

So glad to see you looking well rested. Keep going sweetie, you can do this! xxxxxx

[@colormezebra2841]

Nice job you two, keeping things so organized. Anything to help allviate more stress. Hope you'll be feeling better soon Mary. I'm loving your new "home hopital room", it looks very comfortanle and Zen (as much as possible anyway). Hugs sweetheart, get some rest when you can Peter. You are a very important and much needed part of Mary's health. You both are very strong.

[@lorettatomplait3469]

Awwwwwe!!!!!!! I loooove how Ollie juuuust got in on the vlog!!!!!!

[@amyhull754]

I'm doing a Bike for Life ride on Saturday with a friend, and I'll be thinking of you, Claire Wineland, and my colleague's 5-year-old twins. I'm hopeful that the new medication the twins can start for their mutation gives them improved health and longer healthy periods to live.

[@springchikn3203]

Welcome home! You need a rear view mirror so you can see your plants in the bay window.

[@wheeliegirl1630]

Peter you are such a good and loving husband. You guys are the best.

[@jacquitomlins2759]

I am in total awe ... Gobsmacked ... God bless you all ... ❤️

[@joannebonnette4769]

Welcome home mary, Peter you rock trying to make Mary comfortable

[@peggynelson2486]

Mary I'm glad you are home you smile even though you don't feel good you all are wonderful im so sorry you have to have ivs

[@brittanym455]

Peter, you are an actual angel. I don't know if my husband could keep it all straight. ♥️

[@zackreynolds8905]

Glad to see you’re home Mary! Just got my “Let’s Do This” shirt and I’m loving it! Using it as an undershirt for work today for some motivation 👍

[@bonkers5416]

Peter, you are truly amazing.

[@mistycgrimm]

Hope you both can get some rest. There is nothing like being in the comfort of your own home. Love you guys!

[@paustinheaton]

I am so happy for you to be home. Can't believe all the drugs and equipment and mixing to stay at home. You two are amazing.

[@TaliyahMC]

Those curos caps (the green caps for the line) are awesome...we use them in the NICU for our babies (I'm a NICU nurse)...it is so nice not to have to worry about the caps that way...

[@jennisukulele6570]

I’m so glad you’re home ❤️

[@adet3902]

So happy you are home!!!

[@cillianblue]

That room is so sunny and comfy looking. A great room to recover in. Glad your home!

[@glendaruff125]

Good idea on the recovery spa. Hope you start bouncing back soon Cruising on that boat is in your future.

[@bostond2527]

Nice to see you home Mary it must feel so good there's no place like home!

[@ebonymarie7016]

Wishing you well Mary!!!! hoping you have a speedy recovery!

[@lindsaylivingston9754]

They are called elastomeric pumps. I prefer them as well. So much better than IV pushes or the hang bags. If you have pockets they can just go in the pocket! Hope you can knock out this next week or two and be done!

[@heatherknudson400]

So happy you are home! Where do you get your comfy looking blankets that you are always wrapped up in? Love them!

[@anitasmith6726]

God continue to be with you both. God bless you Peter for learning all this stuff. God knew what he was doing when He put you two together. He always knows what He is doing!!!!

[@FroggyGirl90210]

Yay!!!! Oh Mary, I'm so happy you're home (Peter & Ollie Boy too) keeping you in my my prayers.

[@AnAspiesPOV]

my domperidone for the gastroparesis is stuck in canada so my doctors are trying reglan until i can get my normal meds... here's hoping they work, since i just started my new job this week! sometimes health problems suck... but then ya'll always make my day brighter.

[@haleyaud7297]

Cheers to both of you! Love the Frey Life

[@sarajamesjulien7397]

Im so glad you guys are finally home!!!

[@katie9457]

So happy for y’all that your home! Hopefully this will be a quick recovery and IVs will fly by! Quick question, Mary where did you get that cart that you keep your vest and other stuff in??

[@JHCWillis]

Praying for you daily.

[@itssewxtra1713]

Home sweet home--YAY!

[@pattieknight7976]

Mary you look and sound much better than when you went in to the hospital

[@ambermorton4065]

Glad you are home. Feel better soon.

[@kathypickering9447]

So happy your home guys you are amazing. Peter make sure you get rest too. Sending hugs from NZ

[@LisaCorneliusJourneys]

Cheering you on, Peter and Mary!! Hugs.

[@schatzfarms4471]

Glad to see you home 🏡

[@schatzfarms4471]

Having a bed downstairs is a great idea. I’ve done the same ❤️

[@Laura-qn3tv]

How's your poop that part cracked me up. I hate that question of all the questions they ask of me I wish that wasn't one LOL. So glad you're back home

[@joanmilano5302]

Isn't it funny how Target is our goal? I'm the very same way - lol. I don't have CF, but I have another illness which requires lots of hospital stays, too... and that's one of the first things I want to do when I get out -- i want a real meal, good coffee, and a visit to Target. Many prayers for a nice, peaceful rest and recuperation.

[@MsMOLLYKINS]

Glad your home. I find it takes a few weeks to get over a hospital stay.its like jet lag only its last weeks not days xo

[@hipuppies2.foxgirl256]

I use the IV bubbles too. And the green caps

[@babybluecheeks]

Oh awesome you're home!

[@jaimehooker8453]

do you ever do hydration? Glad you’re home, resting in your own bed is sometimes the best medicine. Thx for continuing sharing your journey, it brings a lot of encouragement.

[@suethomas6719]

Good to see you at home, Mary, even if you are on trillions of IVs. OK, it must feel like it! I hope you're getting some rest between all that mixing of medicines, Peter. Don't run yourself ragged. Give Ollie a scritch for me. And, as always, I will see you tomorrow! (borrowed that from a couple that I know)

[@FolkertVeenstra]

Great to see you discharged from hospital!

[@Wasjigcrmso35]

😱😱😱 lard of mercy the amount of medical stuff. Peter I bow down to you your medical knowledge is mind blowing. It will take a while for you to use to your new medical routine but you can do it! 😊👍🏾

[@rylingauvin8172]

Im glad you guys are glad to be home😊🏠 Btw love your plants Mary!🌱

[@annettequinn2471]

I love those green end caps! Glad you are home 😊🌻🌻🌻