The most important ME/CFS study EVER? And Taking Part in Decode ME Research!

In this video I participated in the Decode ME study by supplying my DNA sample through the spit kit and discussed the aims, values and process of the research with a member of the Decode ME team and fellow ME/CFS patient Anna (@teapartyform.e on Instagram).
This study is a very important first step into the research of the widely misunderstood illness of ME/CFS which has the potential to change opinions and open doors to further research in the future!!
Find out more about Decode ME (and sign up!!)
Website: www.decodeme.org.uk/
Initial Findings: www.decodeme.org.uk/initial-f...
KZbin: youtube.com/@decodeme6153?si=...
Instagram: @decodemestudy
Reminder: everyone with ME/CFS is different! So you or someone you know might have a very different experience with ME/CFS than I do at the moment! Also, remember that chronic conditions such as these can change dramatically over time, so my life may look very different to this in the future (and has be A LOT worse in the past).
Thank you so much for watching!! Make sure to like, comment, and subscribe to see more videos from me most FRIDAYS!
About Me:
My name is Elinor, I am a 24-year-old sociology graduate who has been living with ME/CFS for 8 years. I also have anxiety and depression as co-morbid conditions! I started making KZbin Videos consistently about my experience with chronic illness and mental health struggles in June 2020! I also love fashion, connecting with people in the community and being creative!!
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Social Media:
Follow me on Instagram / ellellell_brown
Contact Me:
Direct Message me on Instagram / ellellell_brown
For Business enquiries [e-mail]
#Chronicfatiguesyndrome
#Myalgicencephalomeylitis
#mecfs

[@manic_or_jack2333]

Thank you elinor. I had no idea this was happening and had almost resigned myself to the fact this would never change.

[@ElinorBrown]

we are getting there!

[@echognomecal6742]

Looked up "Decode ME" & watched a video called "The most important ME/CFS study EVER? And Taking Part in Decode ME Research!" Flippin awesome, yay!

[@AlexClaire86]

I've also taken part, so grateful it's happening

[@ElinorBrown]

me too!

[@sarahh5988]

So excited for this study, thank you to all the DecodeME team

[@jacks2222]

Thank you for doing this Elinor. I didn't know about it but now I've signed up and completed the questionnaire.. You're an absolute star🌟and your vids have helped me so much xx

[@ElinorBrown]

I’m so pleased! Glad it was helpful!

[@beknight9399]

I sadly cannot participate (wrong country), but I hope a lot of patients will do so. The project is hope. Thank you for your work and sharing this topic 🌻.

[@WaterDay936]

Thanks so much for raising awareness of this vital study! I'm unfortunately not able to take part as I'm still waiting for a diagnosis but it's so amazing to see the community coming together to start solving this nightmarish condition.

[@larenafiandes8057]

Ive taken part in this, its a wonderful study

[@ElinorBrown]

I know! I’m super excited!

[@kaybrown3162]

It great to think that eventually the scientific community are taking this seriously. 😁👏

[@ElinorBrown]

I know, right?

[@Maycat133]

Great video. I took part in the spit and 2 questionnaires, I’m so excited to see the results

[@pippawhitten1081]

I hadn't heard about this study, signing up now!

[@ElinorBrown]

Yayy!

[@user-oi7hv9kt2e]

you are doing amazing work🎉🎉🎉

[@ElinorBrown]

Thank you so much 😀

[@solitaryrena2688]

Signed up at the beginning still haven't heard anything. It is a much needed study and doing great work.

[@andydc6421]

If you completed the questionnaire on their website then you will have been told straight away whether they will be sending you a spit kit or not. They have contact details on their website if you want to check with them.

[@MusicMatters_SC]

Great interview! And cool earbuds! Fab to see the octopus taking part too 😁

[@ElinorBrown]

Glad you enjoyed it! 😂

[@user-oi7hv9kt2e]

I am from India which test I do for diagonise cfs

[@christafranken9170]

I would recommend finding a local support group for patients with me/CFS. They probably know how to find a doctor near you who can help. I got my diagnosis from an internal medicine specialist, but that may be different in a different country

[@seansteckley]

Is it worldwide?

[@beknight9399]

No, it's England, Wales, Ireland etc. In the future eventually worldwide (see FAQ on their homepage).