Great video! I can highly recommend erin lessers videos for more ideas and inspiration

Ppl unbelievable

You are quite brave and positive. Your day in the video is like a typical day for me now. Sending love and hugs.

She is so pretty!

I love how you're so honest about the internal dilemmas surrounding ambulatory wheelchair use, but still exude so much confidence and positivity. It shows great personal strength <3 I've been living with long covid for about 2.5 years and got a wheelchair about 6 months ago. I haven't used it much as I still feel anxious about how I'm perceived in it and would sometimes rather stay home than go out and be pushed around. I want to come to a place of acceptance with it. Thanks for sharing your experience!

Such a lovely makeover! As a relatively new CFS patient, it’s great to watch you get things done yourself but also asking for help when you need it. (I still struggle with the latter.) Also, your dress is very pretty, all your outfits are! You inspired me to wear more than tracksuits again if I have the energy. 🫶🏻

What an excellent video with great advice on how to take care of ourselves while living with ME/CFS. Thank you so very much for sharing. ❤

I have fibromyalgia and I’m gonna have to quit working soon. I feel so guilty but I didn’t ask to be chronically ill

Oooh Boggle is a great analogy. Ive been saying its like a mischievous tolder messing up a sound mixing board. The old settings have randomly changed.

Who ever is making the dun dun da dun noises is awesome 🤍

Hi what do you think will happen with pip next month iv been so worried since April:(

When I read "I can't afford a wheelchair at the moment", and similar statements, I feel very sad for people. Here in Sweden they're free for those who need them. My wife had polio as a child, and when it came back when she was around 60 she got free ellbow crutches, and a wheelcheir after 70. These are on loan, and have to be returned when they are no longer needed.

I have hyperglycaemia vs hypo … I went to Poland to pay for some private Dr’s being desperate to do something about my lack of progress with my health, the Rheumatologist I saw (I have psoriatic arthritis as well as either ME/CFS or Fibro, Dr’s kind of undecided) she had me do the glucose test that some women who are pregnant get (you drink that awfully sweet drink and you get your blood tested several times) Turns out I’m not diabetic (pre though I guess) but my body just doesn’t handle the glucose properly as even after 3 hours of drinking the syrupy drink, my glucose is high. They don’t test that here in Canada unless you come up having a bad insulin blood test on empty stomach (which I’m always passing btw!) So yeah, my cocktail of meds includes a nightly metformin. If I hadn’t caught it though, it could have lead to diabetes, so it’s worth pushing Dr’s to check 👍

Hello, everyone. Umm, I don't know how to say this, but I'm not in the worst condition like you. I have been suffering from dystonia since 2020, and it's been very difficult for me to write and grasp anything, like a cup or a glass. I couldn't even grab the PC mouse, and I can't even hold my phone. It's very difficult to live like this. I used to play guitar, but my dystonia doesn't allow me to play it. Every hobby I loved has been taken away from me by dystonia. I failed my exam because it's very difficult to write on paper; I can't grip a pen like other people do. I'm feeling depressed and sad. After all of this, I just want to accept my condition. Please, everyone, guide me and help me. It's very difficult to ask for help. (Apologies for my bad English.)

MOBILITY SCHEME IS A SCAM COMPANY!!! THEY USE YOUR PIP AND CAN'T BUY CAR AT END AND LOSE 10K OF PIP AND THEY SELL CAR AT AUCTION.

My fatigue makes me feel heavy, and i can't be on the run all day, no matter how much there is to do.

I'd love to pack in advance but our apartment is so small there is nowhere to put the boxes! My solution to this is, go through everything in your house, declutter and dust the items and furniture, so thay when you can start actually packing, you can literally just put items in boxes as is. So prep your stuff for packing beforehand! I've declutter over 20 mid size cardboard boxes and over 35 regular trash bags' worth of stuff! When I was much healthier I didn't do this, I just decluttered and cleaned as I packed. Now I could definitely not do that.

This was very validating cause mornings are so difficult to me. It takes sometimes 6 hours for me to feel normal. I have depression, anxiety, dysautonomia and I suspect CFS too.

Here’s a Q for your next video about Motability please. Why do war pensioners get Motability cars about £1300 cheaper than all of us other disabled people? Many thanks. We should all pay the same surely?

So lovely ❤❤❤❤

why did you still go to school at all? sounds like too much effort

Thank you for sharing, you hit the nail on the head!! This is awesome. Learning to not feel guilty is a hard one. Learning to pace one self is not easy. But these are both important to know.

Thank you for sharing! Sometimes people will send me a text and say, I hope you’re feeling better, or get better soon, I used to write, I have a chronic illness, I’m not going to get better. Now, I just let it go.

Good advice, having a good GP is so important. Looking normal is hard, but I understand as a teenager it must’ve been so hard. All of your advice is spot on ❤

I have had those symptoms as well but not all of the time. I hear you, calling the Dr is hard but it wouldn’t be bad. I have the drunk feeling as well, I have the looking like I’m high because my eyes glaze over and are partially closed. Yup I’ve gone through the I don’t feel hungry and feel gross and yes I have to force myself eat.

I have had those symptoms as well but not all of the time. I hear you, calling the Dr is hard but it wouldn’t be bad. I have the drunk feeling as well, I have the looking like I’m high because my eyes glaze over and are partially closed.

I bought the Rollz at the beginning of the year and so far agree with all your points. It is very expensive and frustratingly all the accessories are also very expensive. Which when your on a small budget is frustrating. The Rollz is also available with air wheels but I haven't been a le to find anywhere I can by them, so I wonder what people do when they need replacements. There is also an electric version of the rollz, but afain I haven't found whether it possible to add that to the rollz motion or whether it can only be bought complete, which also would be a shame. At some point I will need an electric option and considering the money side it would be super if all the components were adaptable. I would not have nornally been able to afford Rollz ,I received a money gift that allowed me to do so. The agents that sell them often have financing offers, which might help those who don't have the immediate budget. I love the look, here in Germany where I live, I had a long wait for delivery and sadly not all colours were available, I would have love to have had pink too. Thank you so much for your review it's very helpful . Greetings from Germany 🩷🌸🩷

I'm 27 in a few months and have been chronically ill since I was 10... I've been progressively declining for the last 5yrs or so and I am now taking the leap to get a wheelchair... I always felt like I'd be seen as a fraud because I can wall or do walk sometimes or I stand up when in my chair... I desperately want to avoid conflict but at the cost of pretty much killing myself off... I'm less fun for my daughter in this state even though I thought getting a wheelchair would make me less fun... I see it as an energy preservation tool... Just need to find the right one and save up some money... Being disabled is expensive 🙈

Why on Earth would I get a boring cane if I need one? I'll get a pink, sparkly one, thank you very much. I don't get this logic whatsoever. Just because someone chooses to go with a nice looking disability aid it's suddenly not real? What the fudge? Also, all aids should have aesthetic options. I am so sick of all the hospital looking things I see on the websites when looking for stuff that might help me. I don't want my home ugly and hospital-y. I want it to match the rest of the home. I need orthopedic shoes. It pains me that most of them are made for people over 60, not young people. I'm 30, I'd like some nice shoes to go with my nice dresses. Options are very slim.

Thank you so much for sharing this ... watching your videos makes me feel less alone. When I am alone in my room in bed all day I feel so cut off from everything and it's easy to forget that there are others who know what it's like to live like this! Thank you!

Hi, I made a video about recovering from both ME and Anxiety by removing persistent pollutants. This lowers immune system activation and restores anti oxidant levels. Please take a look.

Please stop worrying about what anyone thinks. I have a power wheelchair and a manual wheelchair 2 Rollator and 2 walking sticks. I. I used to worry about what everyone thought but now I don't give a çrap. You stand up for yourself and do what you want

I need, at times, crutches ,canes etc. 73 and injuries to right foot. I'm intersexed xxxy and show as a woman in a nonunderstanding world. Canes could help out a lot ,thanks Josie

sucks being tired all the time no matter you do

Thanks so much for making this video! Have you found with pacing you can eventually expand your capacity (do longer or more intense bouts of exercise, engage in daily activities for more hours than before)? If so, how do you know when it’s time to increase your daily load without crashing?

I had a special offer from a friend, there are two of us in our household and I think I may have tried it for two weeks, I can't remember now. For me there was too much preparation, for instance the green beans I had for one meal needed to be chopped, and I can't do a lot of chopping so I found them quite difficult. There was too much rubbish. not all recyclable, and then of course there was the cost. When it's my turn to cook I either do really simple things or have ready meals so hello fresh would be healthier. I only cook 3 times a week anyway and my husband cooks from fresh. He helps me a lot to and even does the cooking on 'my' days as long as I tell him what we're having and what he needs to do - sometimes it's just getting something out of the freezer and putting it in the microwave!

I'm in a similar boat. I can't stand still for no more than a few minutes, and even if I'm constantly moving, I can't be on my feet for no more than an hour without being in so much pain. I have a thrift store wheelchair that had helped me tremendously before my surgery, but it's too big and way too heavy. And the feet stick out really far. I want to ask my doctor if he can give me a prescription for a wheelchair, but I'm afraid he's going to deny me. I have a trip coming up that's going to require me to be on my feet all day and I know I can't do that. My last trip I had to cut short and disappoint the people with me because I could barely walk after a few hours, despite sitting as much as possible. I need something small, very lightweight, and doesn't have feet that stick out. I would like to be able to walk with it as much as I can, then sit in it and finish my day while also being able to squeeze in shops and etc. But out of pocket wheelchairs are expensive!

Quite a while back I did a degree with the OU. As I had some mental problems at that time when it was time to choose a university for summer school I had a list of universities that catered for people with disablities and I choose Bath. At that time I was often very tired and weak. I had a room right in the centre so i didn't have to walk very far or use steps and I was actually really jealous of the students I saw whizzing around in wheel chairs! Later I found out I was wheat intolerant and once I cut that out I was so much better. I do have fibromylagia though which has worsened as I've got older so now I'm in my 70s I do use a wheelchair.

In the US the people employed by the airport expect a tip so be prepared

I have fibro which I probably developed in my 30s. It didn't seem to affect me too much then but looking back I can see how it did. It got harder is I got older though. When I go to 70 I then developed polymyalgia so that was a double whammy, a couple of times when I'd pushed my self to far I fainted, or nearly fainted and threw up. Eventually I wasn't able to walk as much as I wanted to so hired a wheelchair to go on a family holiday to Italy. After I got back and it has given me so much freedom. I did, and maybe still do, worry that people will think I have it because I'm old when, of course, in my mind I'm not. I've decided to decorate mine a bit now, inspired by your videos, to, I hope, show my personality a bit more. I'll see how it goes. I relate so much to what you say in your videos. Thank you

Congratulations, well after the event now I know. You're obviously very determined, brave, and creative. Well done you!

Grt video Very informal. How much do you pay monthly towards the motorbility

Hyundai i30 is a brilliant car

Thank you so much. This advice is really useful.

well done!

washed out sweater or you are "faking", no matter if its even visible or not. molly burke did a video like that once, was a great one!

moving pain sounds a bit like fibromyalgia

How about Diana Trent in Waiting for God? She wields her stick with great effect! Both she and her partner in crime Tom Ballard are great role models for older people - and everyone gets old eventually!

what is the sensations in your body when you know you need to rest? i'm trying to figure things out and having a hard time finding something where someone is describing how it feels when it's more mild. and if there aren't physical sensations than how do you know you need to rest?

I came across this when I was looking for reviews on a Rollz Motion Performance and it was one of the best/most thorough ones I found. I had been using a wheelchair on and off when needed but was beginning to think a rollator would really help my walking but didn't want to have two mobility aids and came across there. What I liked was that you just came across as so real and needed to rest frequently just like I would. I've now bought one and hope it will change my life, or at least, make somethings easier. If I want to look around a shop I can get out of the wheelchair and use the rollator, which will be easier than a stick and go at the speed I want. My husband doesn't understand browsing and generally goes quite fast or too slow! I'm working through all your videos now!