Рет қаралды 198
In the THIRD episode of the series we hear from Molvia who is the mother of Krystie. Krystie was diagnosed with a genetic condition and sadly passed away hence why Molvia is sharing her story. Molvia talks about her experience of genetic illness. She also discusses Krystie's legacy in the form of Melting Ice Cubes which is a healthcare literacy platform. You can find out more about it here- meltingicecubes.net/
You may want to catch up on the other videos in the series:
Episode 1: • The Patient's Perspect...
Episode 2: • The Patient's Perspect...
#thepatientsperspective #geneticillness #fredericksataxia