The Sarcoidosis Vlogs #2 - The Sarcoidosis Educational Campaign Update

[@dedelawton4516]

Thank you! My sister is having an endoscopy tomorrow and we suspect pulmonary sarcoidosis. Needless to say I'm on the internet researching and came across your vlog. Thank you and bless you for your efforts!❤

[@minabartstudio]

Dear Chad, I hope you are doing better today. I am glad I came across to your video. I have been struggling a lot to get an easy way to understand this mysterious disease. It feels great to find people like you who are sharing their everything related to this nasty disease. I feel you brother! and I hope you are getting stronger again and continue doing what you like to do. I live in Ethiopia and diagnosed for lung sarcoidosis two years a go when I did a chest X’Ray for my persistent dry cough. I also did CT scan and the result suggested likely sarcoidosis. It says I have Septal thickening but don’t have granulomas. There is no sarcoidosis expert in Ethiopia and only few people may have heard of this condition. I didn’t do biopsy because I am afraid of the complication if I do it here in Ethiopia. They told me the only medication available for this disease is prednisone. I started with 30mg and I am now on 5mg per day for more than nine month now. My overall energy and performance is deteriorating since two years a go. My cough and shortness of breath is persisting for more than 4 years. No body takes my situation seriously including the doctors, but I am sick. Now I am not sure if I am taking the right dose or if the medicine is working at all. I am still seeking medical advice from experts and from people who are sharing similar experience on internet. Chad, I am also interested to know more about your documentary project and its progress. Let’s hope for a better and effective remedy from the medical world.

[@calicowest]

Two of my sisters died from sarcoidosis, one of my sister's died in 1999, she said prednisone was something that killed her, be careful with that medication.

[@aki98jon]

Got the same condition stage 2 sarcoidosis

[@ashleyledbetter2805]

I have it on my skin and in my lungs. I live on inhalers and allergy meds

[@LinaMarco-f9r]

I feel sor I'm from philipines I have surcodosis

[@zeeshanahmed4830]

Thanks...what is the way to cure pulmonary sarcoidosis..

[@kizzyfarrell6156]

Dear Chad Recently still oct 2020 my back was sore then in jan I got uvetis They told me now that I got sarcoidosis march2021 Waiting to see specialist Am scared about the outcome had chest xray Swollen lymph nodes