The Sarcoidosis Vlogs #2 - The Sarcoidosis Educational Campaign Update

The Sarcoidosis Vlogs #2 - The Sarcoidosis Educational Campaign Update
The Sarcoidosis Vlogs
Uploaded: Jan - 1st 2019
Link to My fundraising campaign to start a nonprofit organization on a global scale to help educate people, create awareness, and raise money to find a cure for Sarcoidosis.
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Hello, I'm Chad Barrett and I have level 4 pulmonary Sarcoidosis. I was diagnosed with this 12 years ago, and it has been in remissions for the past ten years. It has come back and I have decided to share my story and to finally accept that this is my life and I have to deal with this instead of avoiding it. I want to make a difference and I want to help people understand what this disease is, and help the people who suffer from it.
It's all about caring and sharing, helping show people it's ok to be sick, it's ok to be weak, its ok to ask for help, we have to be there for one another. But you can never give up, you have to keep fighting for what you want and what you believe in. I'm no Tony Robbins or some Guru, I'm just an average guy who's had the worst luck known to man, led a very interesting life and I'm now learning to be positive, open-minded and optimistic. Take this journey with me and we all can learn together.
Videography has always been a passion of mine, I was once involved in it many years ago as a producer and director of photography, but never learned how to use the equipment. I work with various photographers and videographers over the years but as always life, money, and careers got in the way and I lost touch with it all. Fast forward to today, after seeing how the technology and industry have changed and how vlogging has become such a huge and obtainable skill it inspired me to jump in and learn the craft from the other side of the camera.
So be gentle and be patient I'm doing this solo, by trial and error, don't have many or any friends in the industry to show me the ropes, and I'm trying to learn what I can off videos but that doesn't do you any justice like hands on.
Believe In Yourself and Never Give Up
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[@dedelawton4516]

Thank you! My sister is having an endoscopy tomorrow and we suspect pulmonary sarcoidosis. Needless to say I'm on the internet researching and came across your vlog. Thank you and bless you for your efforts!❤

[@minabartstudio]

Dear Chad, I hope you are doing better today. I am glad I came across to your video. I have been struggling a lot to get an easy way to understand this mysterious disease. It feels great to find people like you who are sharing their everything related to this nasty disease. I feel you brother! and I hope you are getting stronger again and continue doing what you like to do. I live in Ethiopia and diagnosed for lung sarcoidosis two years a go when I did a chest X’Ray for my persistent dry cough. I also did CT scan and the result suggested likely sarcoidosis. It says I have Septal thickening but don’t have granulomas. There is no sarcoidosis expert in Ethiopia and only few people may have heard of this condition. I didn’t do biopsy because I am afraid of the complication if I do it here in Ethiopia. They told me the only medication available for this disease is prednisone. I started with 30mg and I am now on 5mg per day for more than nine month now. My overall energy and performance is deteriorating since two years a go. My cough and shortness of breath is persisting for more than 4 years. No body takes my situation seriously including the doctors, but I am sick. Now I am not sure if I am taking the right dose or if the medicine is working at all. I am still seeking medical advice from experts and from people who are sharing similar experience on internet. Chad, I am also interested to know more about your documentary project and its progress. Let’s hope for a better and effective remedy from the medical world.

[@calicowest]

Two of my sisters died from sarcoidosis, one of my sister's died in 1999, she said prednisone was something that killed her, be careful with that medication.

[@ashleyledbetter2805]

I have it on my skin and in my lungs. I live on inhalers and allergy meds

[@LinaMarco-f9r]

I feel sor I'm from philipines I have surcodosis

[@aki98jon]

Got the same condition stage 2 sarcoidosis

[@zeeshanahmed4830]

Thanks...what is the way to cure pulmonary sarcoidosis..

[@kizzyfarrell6156]

Dear Chad Recently still oct 2020 my back was sore then in jan I got uvetis They told me now that I got sarcoidosis march2021 Waiting to see specialist Am scared about the outcome had chest xray Swollen lymph nodes