Wauw after 4 months not a single reaction . Forgive my englisch , i am dutch . I have the same conditions you have . I started having this disease in 1996 . After taking a lung endoscpie . Also stage 4 , on my lungs . Using prednison for 18 years . I stopt using it my self , when i tought it was not helping anymore . The scar tisseu on my lungs , did a lot of damage . Do to this day . I feel the same , as when i ended the prednison . . And that is not good . Whenever you do somthing , you must think about it . Your mind is going 300miles an hour , but youre body cannot do it . Thats very frustrating . It wil never be better or go away Some people have this for only 3 months , i got life . That bieing sad , i also got lymphoma cancer on top of it So i got chemo therapy . 8x They warnt me about , getting even more less lung capacity . And they were right . So as of 2015 i am a disabled person . Please contineu , youre goal of informing people about this dissease . And the consequenties of it .