The Sarcoidosis Vlogs #5 - New Update, New Year

Рет қаралды 1,379

Күн бұрын

Пікірлер: 21

@JesusSaves3-16 3 жыл бұрын

Dont give up bro, I'm in constant pain, cant breath worth a damn, heart is hurting now.. but I know I'm still alive because God has a purpose for us still.. keep positive man..

@k.d.h.landscapingsnowplowi6229 3 жыл бұрын

Hi what's up bro I was diagnosed with sarcoidosis going on 9 years ago. I run a landscaping and Snowplowing business in Cleveland Ohio I deal with the inflammation but fortunately thru the grace of God my breathing is fine . Just keep on pushing 💪

@raybiggy1363 4 жыл бұрын

Thank you for sharing, I’ve been doing the intermittent fasting and I find it has helped me tremendously. I really had to take a serious look at my diet, and choose foods that wouldn’t cause inflammation. I’ve always been active, hiking going for a run, love the outdoors. So when I started getting sick it was quite frustrating, suddenly I felt limited as to what I could do. So yes brother, I know how you’re feeling, keep at it, thanks again for sharing. 🙏

@aki98jon 2 жыл бұрын

One day at a time chad ! Thanks for the videos.

@tiffanysmith7444 3 жыл бұрын

I was told I have it today. after a ct scan done on Friday I went from having pneumonia to having bronchitis to having to take four puffs of my inhaler

@nothing-lvrx 3 жыл бұрын

Sir,how are you?

@Mrpaullusje 4 жыл бұрын

Hi , i reacted to an earley video of yours . I must say i can almost write a book about sarcoidoses on the lungs . If you have any questions . Let me now .

@thesarcoidosissociety2109 4 жыл бұрын

Mrpaullusje hey thanks for reaching out... yes it would be nice to have someone to consult with, or even if you want to volunteer and contribute to our cause, with information, etc. Every little bit helps. As I mentioned I am a one man show here, I do get offers but most are empty promises. I’m sure they mean well but at the end of the day you have to mean it.

@Mrpaullusje 4 жыл бұрын

@@thesarcoidosissociety2109 , hey thanks for your reaction . Ofcourse i will answer your questions , if you think it will help you . But that being sad , a cannot help you financially . I am living on a diabled pension , and need all i get to live a normal life . All the things you say in your videos , i connect with For example , everybody dont think your sick , why ? "" because you dont look sick ,,,, . But they do not understand that all the medication did this to you . You got a nice round face , and a blush on your cheeks . A you can eat like a horse , all day long """Your not sick,,, duhhhhhh

@thesarcoidosissociety2109 4 жыл бұрын

Mrpaullusje oh by no means would I expect you or anyone with the illness to help out financially. I’m just looking for help with information, being an ambassador, stuff like that

@Mrpaullusje 4 жыл бұрын

Hi did your doctor ever gave this disease a name . Other than sarcoidoses . First thing i heard from my doctor , that it was cald Besner Boeck - Schaumann disease . With kind regards .

@zanonissaarendse8278 4 жыл бұрын

Hi there .Reading your video this is exactly what I suffer from. All the drama trauma. I was super fit, gym galo, social the whole drama. I had a good job, small business, all results was TB, Double amonia . Therapy etc. 2003 I was diagnosed with sarcoiddses, at present I ve in a mess, got lots of glands neck under arms. This is so pain full. I am losing my mind. Any advice hope you are well at this time.

@JoeBriers93 3 жыл бұрын

I've just been diagnosed got to have ct scans mri xrays biopsies I'm pretty scared I'm 27

@coquetabluenose2921 2 жыл бұрын

So were are you ? Why you stop making videos?

@MARKHERE-pl5gp 5 ай бұрын

May be he is no more

@longwayhometoday 2 ай бұрын

Are you ok now?

@shannonollis3821 Ай бұрын

I was wondering the same thing. I just discovered him today (I'm in the process of getting diagnosed with Sarcoidosis, Lymphoma, or Castleman's Disease. Sarcoidosis isn't great, but of the 3 options, I'll take it; plus it's the most likely culprit). I've been researching on Google scholar plus watching videos. I really like this guy. I appreciate his rawness and straightforwardness. I like his genuine willingness to help this community. I relate to things he said even without the Sarcoidosis (or whatever I have), as being sick is no new thing to me. I've got 2 college degrees but I became disabled with Isaac Syndrome when I was 32. I've been through a lot of medical crap. My genes are full of rare stuff. For extra fun, I have celiac disease. That's exactly what a single mother on social security disability needs: the most expensive diet! Awesome. Lol. Okay not really. But life unfolds the way it was intended and here I am, hoping that I have Sarcoidosis even if it's scary, because the alternatives also suck. But I'm here as a warrior, in spite of being so sick. I hope Chad went on to become a public-speaking advocate and that he has reached people with sarcoidosis, their families, and doctors to help gain & spread knowledge. I hope he's okay!