BLOODWORK & STRANGE SYMPTOMS 🏥 (9.25.18)

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[@thefreylife]

I made it one day without needing to get blood work 😂 so we had an unexpected adventure yesterday! Come join us!

[@f0r3vercursed96]

The Frey Life Hello I’m early!!!! I love this channel.

[@teresashort6331]

I love how you're so enthusiastic about the flower Mary.

[@ashleywomac2665]

If you need fluids and can't handle a lot by mouth give yourself a couple ofwater bolus through your J-Tube

[@chaney1]

still keeping my fingers crossed for you both and more good news

[@karenquave2237]

Wish I was getting out Fall clothes.....it's still HOT here in South Mississippi!!!! 😓😕

[@Neitha98]

The way Peter look at Mary will always be the way I dream to have someone to look at me like that one day 😭😂😂💜🙏🏽Love you guys Xx

[@moriganna67ify]

Hearing Mary cough just reminds me of how real you guys are. I really appreciate your time and effort it takes to get these videos out each day. Mary is so ill yet is a huge inspiration to me. Her latest saying of "My body is broken but my smile always works!" THis is me everyday.

[@debbiesanderson9466]

Ollie is so well trained to not even be looking at Mary and Peter while they were eating in the car 🚗

[@Lyn4817]

I noticed Ollie looking over the back seat while food was being eaten in the front seats. He didn't move u til Mary said about having a knife in her lung. He is so good, so adorable. My beautiful fur baby, begs with his eyes.

[@carolinedh5392]

Susan Darby If you give fries to your dog, or anything else, the dog will look at you while you are eating. I guess Ollie just never gets food from them besides his own food. That‘s how you get a well trained dog

[@katherineadinolfe1900]

I was thinking the very same thing! He is such a well behaved boy!!!💕💕💕

[@2listening1]

6:40 Mary, please take your oxygen saturation level -- the finger "pulse oxymeter" -- after coughing, to see how low it goes during a bad spell, and tell your team the result. Those red marks can be caused by oxygen dropping. PLEASE try that. I remember at your friends' house with the pool, you bought one. Walmart has them for about 12 dollars. please please check it OK?

[@simplydanlrene4276]

2listening1, it is not necessarily the low oxygen, it is the anemia that comes that can cause the rash thing usually because the platelets are low. It is not dangerous, just a side effect.

[@eileenmcdonald3162]

If her team wanted that they would order it

[@eileenmcdonald3162]

You are not part of her medical team. Doubt you know more than they do

[@2listening1]

She already has the device at home. She bought it when they were living at the friends with the swimming pool. :)

[@2listening1]

Wow! My goodness, I don't think I know more than the team, lol! She owns the device already.

[@lynnrose7562]

Mary is perkier today. You're smile is infectious/

[@JurassicArkSpeedway]

As a Respiratory Therapist for 25 years, I have seen my share of CF patients. God bless you, there are people out here praying for you.

[@penelopepolinsneemeyer4757]

Mischievous Mary is always a joy to see returning xxxxxxxxxx

[@carolinecardwell2163]

Thank you, Peter and Mary, for teaching me how to appreciate every day

[@greygiraffe1403]

Thank you for your constant light. Just know we are here for you when you need to cry too. God shines through your family, and I use you as a model in my own life as I try to be a witness for the lord. Remember God is there for us when we face things that are bigger than we can bear alone. Also, I placed my first order from your store. I cant wait to spread the message “I choose joy”.

[@cclaussen]

Omg so cute at :44 when Ollie’s nose pops into the bottom of the frame!!

[@ipickedjake]

Mary, you are looking like you feel better. Hugs and prayers.

[@cubears99]

Mary has been extra hilarious lately.

[@sharon3286]

Always smiles when the Frey’s are on !!! 🤗🤗🤗🤗

[@katiedelange6418]

Always in my prayers. Keep fighting girl❤️

[@heather4180]

You guys always make me smile. I’m currently back in the hospital 👎🏻. I don’t have my sweatshirt with my this time BUT the nurses asked if I had it! A few wrote the info for your store down this time. Not only do they love my original one they, along with myself, LOVE the new one! I will definitely be ordering when finances allow, (joys of chronic illness 🙄). Anyways, thank you again for putting a smile on my face during a not so “smiley” time. 💕

[@sherryl1275]

Have I told u today that you are the most wonderful husband in the whole world!...I just can't say how God sent u are for Mrs mary....hope an pray you numbers an blotches start to Evan out an go away!!....your such an inspiration as a team an the support is just outta this world.... #Loveiskeyalways

[@alexbravo5666]

You guys are adorable as always. Making my day just watching your daily joy!

[@caitlin1158]

Since winter is coming, that means I have been watching you guys for at leas a year and a half!

[@debbieschlemmer2746]

So nice to see you both so perky today! I love it! And yes, your smiles are so contagious. 😁 sending my love and hugs to the 3 of you, see you tomorrow!

[@carolynlyfordsullivan1377]

It almost sounds like roseola or fifth disease which are usually childhood viral infections. Both have the symptoms of a rash . Before the rash you have a 2- 3 day temperature . The rash starts out in a local area and then it is on your face , back ,legs and arms . Not all people have the rash all over their body . The rash is not on top of the skin (like a skin breakout ) it is more like it starts just under the skin. By the time you have the rash you are actually starting to recover . Just a thought from a nurse .

[@melissa-Ann]

How about an Ollie mug? 🐶 Or mugs that have the slogan "I Choose Joy" or "Gratitude" or "My body maybe broken, but my smile still works" OR here's a new one "Smiles are contagious, tag you're it" OR "Smiles are free, might as well give them away" ... would love to see mugs in the store. ☺ Glad you're a bit perky today!! Yummy, Chick-fil-a. Wasn't really a fan of there food until I tried the nuggets, pretty good. Breading sorta has a sweet taste though. lol, I *always* get Chick-fil-A and Chipotle mixed up. 😨 💙Glad you guys are getting some rest💙keep kicking butt Mary, you got this girlie💙 Its rainy here too. Last night about a mile from my apartment we had a tornado watch in place. Not fun, the watch passed and we ended up with flash flooding in the streets & some wind. Tonight were suppose to get some nasty thunderstorms. Eek!! Don't like those!! Its suppose to be fall weather, right?? Leaves are suppose to *gently* fall off the trees. Not be yanked off and garbage cans rolling down the streets!! All I know is Mother Nature isn't happy with something!! Sheez!!! Can't she call in a sick day?? Hmmm, wonder what winter will bring?? Okay, nevermind!! Not gonna put *that* out into the universe!! 🌼Have a great night🌼

[@joanneburns325]

melissa ann Awesome idea, Melissa Ann!

[@janaye7iverson]

melissa ann love these ideas too

[@terricajestice4889]

Thanks for the smiles!

[@PilarMGuapa]

I was waiting for this video 🤗😘

[@geraldinebayliss1154]

Hi you look so much brighter. I’m so glad but still hoping you carry on improving. One minute I feel better with my chronic illness then next minute I feel really bad and like you I don’t know why. I am going to carry on like you. You give me the will to keep going. Love you guys all the way from the uk. Hugs and kisses xxxx

[@samtrujillojr]

Mary, you're my hero. Praying for your healing. Keep fighting the fight🙏👍!

[@sarahclosser914]

Your smile ALWAYS brightens my day, Mary. I am grateful for you and all you do💜🙏

[@kimsouders]

Love the headband! Wishing you blessings today! 🌻

[@lirpa1981]

The power of life in death lies in your tongue. Speak healing to yourself Mary! I’m praying for you! Healing and miracles happen everyday! Your day is coming, hold onto faith! #PrayersforMary

[@Hallz18]

I love that you feel more human today and perky!! I can’t wait to order a sweater!!!!

[@vikkiparr1905]

Love how Ollie is just staring out the window, miles away!! Xxx

[@PHILIPPAHANNAOFFICIAL]

Really good news that platelets are on the up! Good job Mary's body 😊 If those splotches are broken blood vessels it may have taken them a few days to show up, so could have been from a few days ago maybe? Praying for you as always smile ☺ xx

[@kaylagrehl2490]

The new sweatshirt looks sooooo soft!

[@kB5TVP]

You two are the bomb.com! And im super happy yall are finally back home!!!!!

[@samiamisme]

"I feel human...with a tiny knife in my lungs"😂 I love your sense of humor. I call it the chronic illness giggles. It's a darker humor but humor nonetheless. I love that you two can make each other laugh and find the humor. Reminds me of my husband making me laugh all the time. 💗 I get that petichiaetion all the time with violent coughs like Mary has. Good to have it checked, but in my experience, Peter is right, broken capillaries from the tightness, stress, etc. Prayers and hugs💕🤗

[@MsLiz2005]

Always Praying for the 3 of you and your Family! Get well Soon Mary! Peter take Good care of her and Precious Ollie! Xoxo💖

[@billiebluesheepie2907]

The nasty taste in your water bag is from it being treated with iodine before it leaves the factory. If you wash it out with warm soapy water and rinse it, it should go away. If you don’t use your bag for a few days it will go mouldy inside - you can stop it by storing it in your freezer. - Billie from the UK

[@stickshiftstarship]

I've had success removing yuckiness from my thermos bottles with hot water and baking soda. Worth a shot.

[@elizabetholesen4538]

Feel better soon

[@ashleighmerchant551]

omg i had a mini water cooler too! hope numbers go up soon!!

[@cheryl_Anne_02]

I love your car dates❤️ Peter you are an amazing caretaker God bless you! I’m praying for all of you!!

[@brigit2470]

OLLLIE IS SUCH A GOOD DOG! He doesn't even watch when you are eating chicken, we all know he can smell it.

[@jaynaw4rv]

Prayers for more recovery! Get those kidneys a working! Big hugs, u 3!

[@keiholland6442]

I'm a band alumni from high school and I used a Camelback during band camp and rehearsals. After it gets used a few times the straw taste goes away. Frankly I had to deal because I live in southern Mississippi, and July and August are our hottest months and also when we had most of our band practices. No water equals heat stroke.

[@suehamilton8531]

You just about killed me when you said " a human with a small knife in my lung XD!! Glad you got to enjoy a date guys!

[@roseragan-mcwain2395]

SO GLAD for the PERKINESS! Peter MISSED IT, TOO. I can see it in His eyes. Living life having to ALWAYS PAY ATTENTION TO YOUR BODY is DIFFICULT. Love the new clothing... I’ve GOT TO ORDER SOME MORE STUFF!!!:) New nickname for Ollie...”Ollie BaBa.”

[@curiousone626]

The splotchiness you are noticing are little broken capillaries. They are called petechia.

[@lizagervais8621]

Yes, I’ve had that too.

[@darkbluematter1753]

Interesting, what usually causes it?

[@becca0668]

@@darkbluematter1753 low platelet counts usually cause them. I have a bleeding condition and always get them.

[@sophieleanna9391]

Probably a delayed reaction to low platelets. Or could be delayed antibiotic reaction.

[@curiousone626]

I get them around my eyes after an especially violent episode of vomiting. I'm sure Mary's low platelets have everything to do with hers.

[@sarahtennyson7260]

Glad platelets are improving...continuing to pray!❤️🙏🏻

[@charlottebarros2866]

I hope you can get relief from that cough I'll be praying for you

[@genevievemanuel888]

In Australia we rinse the bladders out with Bicarbonate Sode (white powde which fizzes a little in water). It helps get the bad taste out. We mainly use it in cooking and environmentally friendly household cleaning. :)

[@meghanhamilton7575]

Just ordered the choose joy sweatshirt and pop socket ❤️❤️ can’t wait to get it

[@kimlinstead40]

Sending you both hugs. Hope you are feeling better soon. Xx

[@eej1983able]

I miss chick fil a but sadly my IBS C can't handle fast food. Enjoy it for me and what a beautiful flower!

[@debradonley3825]

Try sushi. Very kind to your digestive system and YUMMY!

[@sayswice5621]

CFA makes me immediately run to the bathroom, but it's worth it 😬

[@eej1983able]

@@sayswice5621 oh i have tried sushi but not a huge fan but with chick fil a i typically feel really bloated and gassy for days after

[@cellogirl11rw55]

I don't even have IBS, and anything that has a high fat, sodium, and protein content gives me diarrhea, heartburn, and migraines. As delicious as it is, most fast food is just not good for anybody. I stopped eating McDonald's food 12 years ago, and I started feeling better just a few days after cutting their food out of my diet. I noticed that my stamina greatly improved, my migraines came less frequently, I missed fewer days of school due to having fewer headache days, and I had better focus. I still go to Taco Bell, Wendy's, Arby's, and Taco Time because they have foods that don't bother me as much, but, my rule of thumb is that, if it makes you feel bad, it's probably bad for you.

[@Goldenretriever-k8m]

i think you can make that style of chicken at home by marinating the chicken breast in milk and frying in peanut oil after coating it in seasoned flour! (fry it twice for more crispy!)

[@dawnwilson4286]

Continued prayers. Love y’all 💕💕

[@unejsshaba2139]

Mary you look so beautiful today😍

[@FunsizedStyle]

Yay for a perkier day!! 💪🏻💗

[@TheErinnj]

Mary, do you use heat packs on your stomach where the “rash” is? Sometimes heating pads can cause splotchy petechial “rashes” in sensitive areas! Hope you get to feeling better!❤️

[@kittymervine6115]

Oh Mary, Survivor Diary, how you can just make us all laugh! Get ready for the Fall...it's so beautiful, and I hope you both enjoy it...lots of trees already changing a bit!

[@19sandar]

Thank you for keeping up the vlog.

[@katieandkevin2633]

I just started watching yalls videos! I love how you always keep a smile on your face! I will be sure to keep you in our prayers ❤️

[@theartistdrunkonart]

Season's come and go but i will never change... i am on my way... I hope things start working out for you guys!

[@Ag53-e5d]

This made me really want chick-fil-a! I am so happy to hear that you are feeling better Mary!

[@fralinsandfriends]

Mary, I love that coat. The color is beautiful on you.

[@cleoh666]

Having a terrible morning and I'm so glad to have your videos to keep me comforted! Thank you for sharing your journey 💪🏼💕

[@arayofsunshine4556]

Chloe Rose Good morning :) I hope your day gets better 🤞

[@marat5617]

Prayers goin' up for you

[@stephentranter1977]

Love watching your vlogs your both are amazing and wonderful people. 💖

[@janetallen6813]

Praying daily for you both

[@annlesleysteyn]

Mary and Peter: I absolutely love, love, love your guys. You live in US and we stay in RSA so I stay awake until around 1am to wait for your blog. After that, I go to bed, but guess what the first think I check in the morn is? xx

[@Amanda---]

Mary you are my inspiration...💚💚💚💚

[@chronicallyangel9226]

i know how you feel about the knife in you're lung, I have pain in my lungs and coughing 24/7 it's not fun at all... I don't have CF but I have emphysema my lung function is at currently at 81% putting out 31% oxygen anyways you're videos help me keep a smile and keep me from wanting to give up as my lungs get worse monthly so I say thank u for that and keep up that fight

[@janewalls6254]

Its in the 90s here in La. Your cool weather looks inviting. I have my air conditioner running strong.

[@souldrummer687]

Can we get an all Ollie episode?

[@karenquave2237]

He is soooooo CUTE!!!!!

[@gogopowerrangers91]

I second this 😊

[@shelleylondry8959]

Wash your water bladder out with hot water & white vinegar! Then dry really well, it should take that nappy taste out of it! You are looking so much better Mary, praying you are on the mend!

[@SuperSpeedyToo]

ITP baby!! Whoop Whoop!! 🙁😢🙄😊 My Mom had more bleeding problems with a 'higher' platelet count, when it got into the really low numbers (single digits on the lab report even) her body seemed to kick in something unknown because she never had even petechiae. At first she always was hospitalized below 10 (due to portal hypertension) but after awhile she just stayed home and all it really did was make her tired... and her spleen got scary big but it never ruptured, just showed how stretchy it could be!

[@ellenleeschwartz-]

It could be an allergy to Levaquin. I got those splotches while on it; and had to stop.

[@eileenmcdonald3162]

Her team is well aware of her difficulties

[@ellenleeschwartz-]

Eileen Mcdonald I’m sure that they are. I never questioned that. My comment implies no such thing.

[@sarahsiskin6780]

Ellen Schwartz I was wondering the same . Seems allergic

[@expression3639]

Yeah her team is so aware of her difficulties that they started her on a full dose of IV Colistin which had the very predictable result of causing an AKI.

[@Judymontel]

Hmmm. Looks like an allergic rash. I LOVE survivor diary 45! Thank you so much for your videos every day. Blessings.

[@AnglkprJ11]

🙏🏼🙏🏼🙏🏼 Praying for you guys!!!🙏🏼🙏🏼🙏🏼

[@SharpLife4]

We finally have a week of sun after rain. I miss summer and it’s barely been gone

[@FreebirdTMH]

The jackets are cracking me up - here is Georgia it's still in the upper 80's - 90's! 😂

[@juliemoody6208]

FreebirdTMH I’m in GA too! Ready for it to cool off a little!

[@jodiemorgan6809]

Hi Today was our first beautiful sunny day here in Melbourne Australia 🇦🇺. I got all my washing dry. I’ve just got my summer clothes out. So weird that we are in opposite climates. 😊

[@joanpickart2719]

My daughter just came back to the U.S. from teaching in Taiwan for 4 years .... Styrofoam and many other plastics are strictly banned from that country. It's an island and there's just not room for plastics and other things that harm the environment. Not new for them. We need to learn their lesson.

[@sandraxx1596]

Mary the tiny purple or red spot on the skin is called Petechia. Petechia is a sign of low platelet counts. It's caused by bleeding under the skin, but Petechia can be caused after a bout of violent coughing as well.

[@jasmineleopard7593]

I don’t know if this is too personal, but I’d be interested in seeing the financial effects of cf. like the cost of meds and everything required and how much you actually end up paying after insurance etc. I would think it’s a lofty cost even with insurance but could be wrong

[@juliepurdum6363]

Just an idea - I put a crystal lite packet with water in our water pouch and let it sit for a day or so and it gets rid of the plastic taste. Take care of you - hugs, hugs, hugs

[@christopherpcreation]

Keep fighting young frey I totally understand

[@sarahbender9548]

Glad to see you smiling o 😁💕 I am Also proud of you Peter for taking good care of Mary👍😀

[@PurdueAlum01]

To lessen my clothes battle I turn all my hangers of clothes backward on the closet rod then when I do laundry I put the newly worn and washed clothes on hangers the right way round. At season change I know I haven't recently worn any of the clothes on the reversed hangers and I either start wearing those or donate them. It works. I imagine Mary's wardrobe is almost all merch recently....so other then the GO sweatshirt and the merch, the rest can go! Lol that only addresses tops, I guess she can sort the leggings!

[@brendametube]

Little Chick-fil-A life hack… If there’s no Chick-fil-A sauce Or if you become overwhelmed with a Chick-fil-A sauce craving at home and need to fix it immediately…mix your favorite barbecue sauce with yellow mustard and mayonnaise. Pretty much equal parts but you may have to adjust that a little bit and VOILA!!!! Homemade Chick-fil-A sauce! We do it for scrambled eggs and for our oat nut nuggets. It’s really yummy on everything! I’m always so happy to see my favorite human enjoy her Chick-fil-A! Even if she has to do it with a small knife in her lung🙀🤨🤪😌 We love you Mary!!!!

[@StefanieRoyMusic]

I'm so happy you're feeling almost human!

[@rylingauvin8172]

Can i just say i love watching you guys☺️❤️ love your shirt Peter👍🏻

[@sarahsiskin6780]

Too bad Mary can’t have home draws, especially when the weather rots. We are in NJ, sorry to have sent u all of our rain!

[@tayloralvord1976]

Lol Peter's & Mary’s face when they tried the water

[@lucifur6921]

It was such a dry summer here in Winnipeg Manitoba Canada now that we're getting rain the grass is green now not dead looking grass in the summer

[@noahmasse7926]

i have petechiae too every so often. blood diseased here ahah. it went better for a little while with corticoids, even though not for a long time. we don't know why my placelets aren't going up, but it's been a year and it's still fine, more or less, i got used to it. i hope you'll know why you have those and get better! but corticoids did fine, i went from 30 000 to 200 000 for a long week!

[@daynagreenspoon3594]

No Chik Fil A Sauce! That’s the worst. Happened to us once too. And it was so sad because we live in Canada so we don’t ever get to really go to Chik Fil A and it’s one of our fav restaurants. Luckily, they replenished the next day!

[@keric3673]

At 8:30 I legit said aloud: “you got this, Mary!” Thankfully I’ve told my mom about you guys so she knew what I was talking about and she even asked me what the update on Mary was. God bless and love from me and my mom (her name is Anne)

[@franciscacortes6131]

Praise God you’re back home God bless you guys and keep going 😘👍🏼👍🏼👍🏼🙏🏼😘

[@alyssahawkins7455]

I need one of those sweaters for my mom! She’s battling lupus and fibromyalgia.... I wish I had the money!

[@katherinecreamer8460]

Pretty hope you get well still praying

[@joanneburns325]

Definitely holding you Freys in the Light (as we Quakers) say! Joanne

[@kristinwallace6551]

I think what you mean is petechiae. It’s basically bleeding under your skin and it’s caused by low platelets which makes sense Mary if your platelets are still low

[@MsDkas]

Peter, your shirt has little Ollie dogs? I love it.