My Ovarian Cancer Story: "The Symptoms I Overlooked!" | The Patient Story

[@Mary-tj5qx]

Lost my sister to Ovarian Cancer. She was diagnosed when i was 28 and she was 31 and pregnant with what would have been her first child. She had a couple of occurrences and died 8 years later. It’s a real shame there is no screening for this. We need to do better.

[@MemeMeme-tu6fr]

Hi there, what grade and stage she had?

[@kathymorris4553]

Yes we do. So sorry you lost your sister

[@msJames-i1s]

Ma’am..What if any..What kind of birth control were you on prior to your diagnosis?? If so, what kind how long?

[@Mary-tj5qx]

@@MemeMeme-tu6fr I don't recall the grade. She was diagnosed at stage 3b. it was on the omentum.

[@kimberlyjeanpierre7540]

there is a test blood test ca125 sadly it's not routine , I have to request and I tell others to ask for it

[@marthatettenborn-ketocance3391]

Almost my story exactly! I was 58, in perfect health, got a 16 cm (and still growing) fluid-filled cyst (never had pain, just found it by fluke), had it removed laparoscopically, (ruptured), and then it turned out to be high-grade serous adenocarcinoma, Stage 1C2. Same surgical path and chemo regimen. And five years out, I'm fully cancer-free (q3months Ca 125 checks). You got this, Randalynn!!!

[@MemeMeme-tu6fr]

Hello dear, how’s your health now? And what stage you had?

[@aanaperdigao]

God bless you!

[@FreedomAboveAll4]

❤🙏🫂

[@erikas.1303]

Did you have any symptoms like spotting?

[@erikas.1303]

Did you have any symptoms like spotting?

[@backtothestartjft]

I was diagnosed with stage 3C Ovarian Cancer back in April 2017, I was 3 weeks short from my 45th birthday. I had the chemo, full hysterectomy, and debulking surgery, the avastian afterwards. I was told I had 6 months to live, I remember being so poorly. The symptom awareness is terrible, here in the UK anyway. I did really well on all the chemo drug's. The beginning of this year (Jan 2024) I went for CT scan so I could officially complete the 5yr remission. It now turns out I have one 3.5cm and 3 smaller cysts now found on my pancreas 😢 I'm waiting for more investigations to be done, but we know our own bodies. I'm scared, but I've fought once, I can do this again ❤ btw I rocked a bald head, showers were so much quicker lol! But shout out to all my Teal Ribbon sisters. We are truly built of strong sh*t. Much love to anyone waiting on results, going through treatment, post and in remission and to those dear angels that have passed from the awful disease 🙏🤧💚

[@livincountry]

Prayers sent your way ❤

[@PennySue]

You are a warrior! Keep up the fight! You will beat this again!! 🙏❤️🙏

[@sddrunner]

I am praying for you and all of us That sucks so sorry we are all needing s permanent cure 🥲

[@sddrunner]

Yikes you say seven years later? 🤔☹️

[@backtothestartjft]

Hey girls, thanks for checking in with me. I was diagnosed on 4/4/17, and the beginning of this year, I had a CT scan and CA125 (8!!!) but as I said above about the 4 small cysts on my pancreas. So on Friday (exactly 7yrs and 1 day after ovarian cancer diagnosis) I went into the hospital for an endoscopy and biopsy (not a nice procedure) anyway, when he took the biopsy the cyst popped and he said it was watery and clear (snotty consistent, is not good) so he's very certain that it's not cancerous 🥳👏 but that's been sent off for more investigation. So, all good news yayyy!! I see my (oncology) gynaecologist on 1st May and we will see what and where we go from there. I'm not gonna lie, I was terrified that it was back, the timing from the first diagnosis until the biopsy this year is just bad luck. But for today, I've been given another reprieve 🙏 thank you to all that sent prayers 🫶🫶❤️❤️

[@kathymorris4553]

I had an ovarian tumor the size of a football. I tried to get help from my doctor and he acted like I was drug seeking. I was sick, never felt good. I couldn’t use the bathroom. One night the pain changed. So I waited for the middle of the night to go to ER. They did ultrasound, then cat scans. Basically told me I was going to die. I never had any fear. When I left my home I knew I would have surgery and back home in 2 weeks. They sent me down south to university of Seattle. I said this healing prayers from my faith. Thy name is my healing, O My God, and remembrance of the is my Remedy. The doctor said it was a miracle. They did a debulking, took out some lymph nodes and the cancer didn’t spread outside the tumor. When they brought me to my room, on the nightstand was a beautiful bottle of lotion and across the top it said Remedy. I belong to the Baha’i Faith. Their prayers are amazing. That was in 2011. It’s now Dec. 2023, no recurrence of cancer or tumors

[@boraborabob1]

Same experience until I demanded a Pet Scan. Unfortunately too late Lung Stage 4. Probably growing for years.

[@bella7687]

Thank God you are ok!

[@kathymorris4553]

@@bella7687 Thank You, your sweet

[@jeanwillis7774]

Thank the Lord…that you are cured 🙏🙏🙏

[@kathymorris4553]

@@boraborabob1 Those creeps, I’m an Empath and Healer. Get a Baha’i Prayer Book and everyday I want you to read with your heart open. I will be praying with you. These prayers are very powerful, reading this prayer book will give you all the strength to beat this beast.

[@karencase8557]

I’m 19 years out from ovca stage 3b. I did have 6 carbo/taxol treatments and 12 additional taxol treatments. I now volunteer in a wig bank. Cancer pts are given free wigs and many additional services. I’m so happy to be of help to them.

[@xinixxagnix201]

Vaccinated?

[@OfficialWelshWoman8309]

Hello Karen! I LOVE this, very well done. I'm nearly 3 yrs since dx with OVca stage 3c. Doing well still NED. My hair loss was quite the journey as had waist length hair & was my image as a musician. I now LOVE my curly shoulder length regrowth. I'm thinking of volunteering in '24, my cancer centre has hairloss support groups. All the best to you ❤

[@MemeMeme-tu6fr]

Hello there, how you doing now? Are you free of cancer

[@amazingautumn12]

Did your cancer spread into abdominal?

[@karencase8557]

@@amazingautumn12 my cancer spread to my omentum. I am still doing great with no reoccurrences.

[@plw7930]

People who have/ had cancer are extremely brave. My husband is working through his second cancer. No words.

[@wendycayless]

Not brave. We have no choice.

[@TheShumoby]

​@@wendycayless💯%

[@5thdimension625]

Prayers for your husband and you too. It’s stressful for the partner too. I hope you’re taking extra good care of yourself.

[@plw7930]

@@5thdimension625 thank you, that’s kind of you!

[@RobertFreeman-dt4zh]

@@wendycayless That's exactly right. thank you.

[@tomatofaceddisgrace]

My beautiful mum was diagnosed with Ovarian Cancer on 21st Dec 2014 and died on 21st June 2015. They said 6 months and she had 6 months to the day. Her only symptoms were some backache and a couple of weeks of what seemed like the flu. Then bam! Stopped being able to go to the loo and she was in agony. Like all of a sudden. I was 6 months pregnant. We’d been shopping for strollers 2 weeks before. It was like a bomb went off in our lives. I miss her so much. So much. A year later Dad took his life. It was just too hard without her.

[@LindaHadley]

I am so sorry for your loss. Your poor dad, he loved your mom so much he could not live without her.

[@Adèle9988]

The word " mum" is for me the dearest word and I know how you feel for I have lost my " maman "( I’m french) 18 months ago . She was everything to me . She always had the right word to confort me and now tears arei rolling down my cheeks. What conforts me now is one day it'll be my turn and I’ll see her again . I really love it when I hear my children call me mum . It’s a beatiful name and I feel proud to be à mum .

[@vernan.9630]

my mom was diagnosed w/ovarian cancer n it was removed in 1974. It was the size of a grape fruit. Drs told her it was all contained so no chemo or radiation was reco. It came back a 2nd time, this time she had radiation tx, she passed in 1992. I guess she had a slow growing cancer? I hope n pray that you stay cancer free for the rest of your life. 🙏

[@onion6foot]

So sorry for your losses. At least you had a father who loved your mom. My husband of more than 20 years (and 3 kids) turned out to be a psychopath that was trying to cause my death. At least there was love in your family. Love would have been so wonderful.

[@zoeduggan3148]

I am so so sorry for you and your family.....this makes me so sad life is cruel x

[@caryngoldsmith6782]

So beautifully said, especially at the end. We have no control when we get cancer. Just choices. I was stage 3c ovarian cancer, an exceptionally rare type. Chemo and radiation for me. It’s been 17 years. I’m very lucky. I always say I got far more from the experience than was taken from me. Yes, I have neuropathy and lower back pain/hip pain, but I learned more about who I am and what’s important. I’m so fortunate. Let’s enjoy each day!

[@sddrunner]

Wow 17 years Really Blessed . May I ask did you have a reoccurrence ever? Did you have a debulking? I am so happy to hear how long its been. I am always googling looking for hope so many beautiful young wives and mothers have passed I followed on you tube 🥲

[@caryngoldsmith6782]

@@sddrunner I never had a recurrence. My surgery was extensive, with a lot of lymph nodes removed. My cancer was mostly retro-peritoneal. It was called endometriod andeno squamous carcinoma. Maybe 300 cases in the US per year. They took everything including the cervix. Lymph nodes were involved above the midline so it was staged 3C. There really isn’t/wasn’t any stage 2 for ovarian cancer. As it walked and talked like uterine cancer, I needed six rounds of Cisplatin with Taxol. I stage in the hospital for over a day to get Taxol for about 20 hours and the Cisplatin for two. Next day I had to come back for nulasta. That shot hurt a lot. I also had to take the one to boost my red blood cells too. I had to have home hydration for three days post treatment as my electrolytes got shot. On the three treatment, I had a heart episode and they rushed me to the cardiology department where they stopped and restarted my heart. Radiation was a breeze, comparatively. My nurses were all angels. I was very lucky all the way around. For the record, I was tested every three months until Covid hit, so like for 13 years. I’m now every six months. I’m also tested annually with Signatera. Shocked me the could find an old tumor sample, but they did. Extra insurance. Life’s a journey and this wasn’t something I expected. There is no history in my family. Wouldn’t wish this on anyone. I will urge all women to get a transvaginal ultrasound every other visit with their GYN. I had a history of endometriosis. Years had gone by with no issues. But I had pain that I couldn’t ignore. They found with the ultrasound a mass like this woman had - with hair and teeth. No one suspected cancer. My pre surgery CA-125 was only 64. The found the cancer during that surgery. Oddly, I heard them while under anesthesia, when the pathologist called into the room. First thing I asked my sister and dad when I woke up. Sorry for the long reply, but I hope it helps you and maybe someone else.

[@christinef7739]

What type of cancer do you have? I had granulosa cell tumor, which is a rare form of ovarian cancer. It was stage 1C but did recure 5 years later in a different location. I'm happy for you, 17 years is great!

[@caryngoldsmith6782]

@@sddrunner I thought I replied yesterday, but now am not seeing it. I’m not used to posting. No recurrence. Total hysterectomy including cervix. It was stage 3c because I had lymph nodes involved above the midline. Lots and lots of those removed. Let me know if you need more info.

[@caryngoldsmith6782]

@@christinef7739 it was - past tense very important! - endometrioid adeno squamous carcinoma. Maybe 300 US cases a year. Cisplatin and Taxol for six rounds. Then 31 radiation sessions. This cancer walks and talks a lot like uterine cancer…the radiation doctors were very puzzled as to why I was referred to them. I was lucky that the ‘discoverer’ of this type of OC was known by my surgeon, so I was advised to do both. I live in CA and it’s required in my state that if a hysterectomy is to be performed a gyn onc surgeon be present in the room. I didn’t know I had cancer going into this surgery. I had a mass like the woman on this video - with hair and teeth - and they were going in to remove that. At 47, with a history of endometriosis they said I just should take out my uterus.

[@JuanDiazSilvermyst]

I love how she explained all of this. I can tell she is aware of her diagnosis. Perfect to educate others.

[@sj9410]

Well duh, it's her own body and experience.

[@JuanDiazSilvermyst]

@@sj9410 watching so many patients cancer stories. That's not the case. Some are bad clueless and they rather not know much.

[@staceyhouston8794]

⁠@@sj9410well duh yourself, if you had more than a superficial understanding of the world & the patient story channel you might ACTUALLY understand the comment that you took a swipe at. The kind comment left by JuanDiaz acknowledged how articulate & compelling her story was. Not everyone is body aware. Luckily for her, she was. I would be interested to know why you felt it necessary to leave this ugly comment. Was it helpful to anyone? Did it make you feel clever? Did it advance the goals of the patient story channel?

[@JuicyPeaches504]

She truly did a wonderful job explaining everything!! I've seen a ton of these stories and she definitely stands out! Very helpful 🧡

[@tamarabradberry9299]

Lost my best friend to this in 1996, she was 35. Lost my mom in 2014 to this. Thank you for sharing your story. God bless you.

[@susanparker4550]

Sorry for your loss, God Bless

[@pallavisreetambraparni6995]

@@tamarabradberry9299 so sorry for your loss

[@MaureenJaenicke]

3-19-24 thank you for your story. I saw my Dr today and I am getting checked for ovarian cancer soon. I've gone through breast cancer 2 x with a mastectomy the 2nd time 5 years ago. It has been a long treacherous journey. I hope and pray I don't have to do this again but if I do, I will remember your words and take one step at a time. You are an amazing woman. God Bless!

[@maureenjones5808]

Thanks for sharing your story your saving lives…..my mom was so sick and dismissed in horrible pain and after a year finally was in the hospital she died 6 weeks later I now tell people keep going back and advocate for friends family yourself thank you

[@leeanntripple5792]

This was such a captivating telling of her cancer story, something I would not have imagined saying before watching this. Randalynn painted the picture of her experience so well, and told it so bluntly while personalizing it so much, and she was so easy to listen to (soothing voice, good pace). I learned quite a few things about the cancer journey, things that so many of my loved ones probably went through, but which you just don't talk about in this depth. Thank you for sharing your story Randalynn.

[@daphnesuarez5924]

Your story is incredible. I am so glad that you had all the support that you needed & it really sounded like you had a great support system. Unfortunately not everyone does. My gf in Alabama had to go through what you did all by herself. She literally had nobody to help her, can you imagine that? Imagine being alone while going through chemo? Imagine recovering at home all alone? You are so lucky & I think you know that you are. Blessings to you! Prayers for those that have to go it alone....

[@kathymorris4553]

I hope your friend is okay🦋

[@fifilafleur5555]

I went through my cancer experience all alone too. Even when a tumor ripped open my body and grew out of me. It was the darkest period of my life. My family are very disappointing and think only of themselves most of the time. My faith in God is what brought me through the storm.

[@garycollier6950]

My baby sister had what she thought was a bad cold for a couple of months.Finally went to the doctor and was told she had ovarian cancer this was on 3 Oct 20. She had her first chemo treatment on 26 Oct 20. She died later that day of her first chemo treatment from a blood clot.Her death devastated my whole family because she was the baby of the family and we thought she would out live all her brothers and sisters.Pam was 50 years old.

[@jujutrini8412]

I am so sorry for your loss. May she rest in peace.

[@xxluaxx6]

Gary 😭 I am so sorry. My aunt died of ovarian cancer. Because of her, I know my risk and I know my baby girls risk. I have two boys and a girl. I can't imagine my boys not having their sister. They are 3 peas in a pod

[@marlenegold280]

@@xxluaxx6 Boys (men) have increased risk of prostate cancer with these increased risk inherited cancers. All my uncles passed from the same prostate cancer.

[@xxluaxx6]

@@marlenegold280 hey, thanks for the heads up!

[@MMacAttack]

Rest in peace Pam

[@conniepfannerstill817]

My thoughts and prayers are with you. I don’t have cancer but have had LUPUS for over 40 years. I have severe pain but I take one day at a time. I have learned that how I react and deal with my health condition is crucial too my mental health. 💝

[@JoanVBruce]

You're a very brave woman. Thank you for sharing. The more people tell about ovarian cancer it will make drs aware of it There is no test for it and the systems are so general they are mistaken for less complaints. In my opinion all drs should routinely check for ova cancer in females at age 25+. Im 82 and was diagnosed in 2021 with stage 4 serous fallopian tube cancer. Inoperable due to my age and fitness. Ive had 3 cycles of chemo and am now on maintenance PARP treatment. Its not permanent but will keep me going until the cancer returns or I develope other problems. I had no idea I was so sick. Iwish you the very best on your journey.

[@DawnMcClelland]

Our stories are so similar. I started having back pain November 2019. I started acupuncture to try to help the back pain. I had two episodes of severe night sweats. Couldn’t make any connection. Then in July 2020 just a couple months after Covid started I was diagnosed with stage four lymphoma. RCHOP & radiation and now I’m in remission. Will be 66 in April’24. 🙏🏻 Thank you so much for sharing your story. I had tears running down my face watching it. Because I can relate. But I went through it mostly alone. ❤️

[@aanaperdigao]

God bless you

[@LindaHadley]

Dawn, congrats on being in remission. Wishing you a happy birthday!

[@DawnMcClelland]

@@LindaHadley Ohhh thank you so much!! My birthday is Tuesday and you’re the first one to wish me a happy birthday! ☺️

[@JulieHall-y8o]

Just had a 13cm mass removed from my ovary (lost the ovary & tube too) awaiting results. Still in a lot of pain! Suffered with symptoms for 2yrs, GP ignored symptoms so had a private scan, waited 6 months for surgery! Thanks for sharing your story, you are very brave & I wish you good health 🙏

[@MaryPoppins-tu1ms]

Is it in the USA? Terrible

[@observer1256]

What were your symptoms? Please list as it may help others? Ovarian cancers often don't have symptoms.

[@alabamajenny8751]

God bless you! You are an excellent example of why people need to stand firm in their protests for tests and scans! ❤

[@elizabethdenholm7967]

I lost my oldest sister to Ovarian cancer at the age of 20. Thank God treatment has improved since then. God Bless you Randalynn. You're a star x

[@SSSeagurllAndHex]

Im a stage 2 ovarian cancer survivor. Also had endometrial cancer same time. I had 0 symptoms until 1 day i had a cyst on my ovary burst & it was so painful i took myself to the er since it was midnight. And i was diagnosed that day

[@colettejaques2559]

I had the same thing happen...they just let the cyst drain through out my body....did nothing then I had a full D&C almost hysterectomy....they still haven't done anything...I get pain and throw up ...I had severe endometriosis my whole life...I wonder who I should see😢

[@SSSeagurllAndHex]

@@colettejaques2559 oh my. I would demand to get seen even if it at a ER. I took myself to the ER for pain and i was diagnosed with ovarian cancer on the spot and they did a complete total oopherectomy on me and i started chemo once i healed from surgery. Ill be cancer free jan. 28th

[@kathymorris4553]

So glad you’re a survivor

[@shoozu]

HAS IT BEEN TREATED YET ​@@colettejaques2559

[@sddrunner]

Two year’s remission Ca125 and Pet Scans every 3 months. Now it will be every 4 months thank God so difficult to have manual checks. I had Stage 3C and months went by Primary would not listen. I was dropping weight like crazy my stomach was big and I was constipated painful back and tiered. Finally I said I want an Ultrasound she made a colonoscopy appointment which would be 3 months away. I said I hope I don’t have cancer she said well if you do all they will do is cut you open and sew you back up! Went to Ultrasound the Tech said you need a CT Scan like today! Wow I got up early went to Emergency. Got a CT Scan doctor on duty said you have Ovarian Cancer. He told my primary she got me an appointment with a Gynecological Oncologist. I was shown the Tumor on my test results. I was numb in shock. He wanted a Debulk we set it up. Then a Cyber Attack they cancelled I had to reschedule. Clock was ticking. Went in 9 hour debulk surgery three blood transfusions. Your right ouch. Was awful everything out cervix fallopian tubes appendix ovaries part of my colon and intestines. Left with a ileostomy bag. Life had changed 87 pounds a bag and a urine bag strapped to my leg. Then later a Port put in and like you same chemotherapy drugs . Blood test port cleaning constant appointments. Hair didn’t fall out until after chemo was finished. Now have neuropathy in my feet snd wore cold booties snd gloves during chemo oh well maybe be worse if I hadn’t. Nine months later ileostomy take down bag gone. Now constant bowel issues. Hospitalized for a blockage wanted to die. Its been hell and it does change you. Always concerned don’t want a reoccurrence. Like walking on eggshells. I had Stage 3C due to so many delays cancer was spreading fast. They were pulling it off my bladder. I am very lucky can always be worse. Two years now 109 pounds exercise daily eat healthy pray a lot. I look great like a different human then. Sorry so much more but you got the picture Trauma and PTSD side effects. God bless

[@sierragold]

That is absolutely HORRIFIC! I'm so sorry :(

[@sddrunner]

@@sierragold Your wonderful Empathy is what we need more of. God Bless you too please be your own advocate. Take good care too many people getting Cancer. Pray 😘🙌🏻

[@davisholman8149]

Prayers coming from the Arizona desert for you.🌵🙏🏽

[@sddrunner]

@@davisholman8149 Very kind of you Merry Christmas enjoy your day 😘

[@clairebeever3038]

Sending love 💕 my cancer has come back … I hate cancer mentally and physically so hard … thank you for sharing ❤

[@MystikalWisdom]

My mom, had a distended belly and trouble going number two.. she went to her family doctor, who sent her to a gynecologist and did a fluid draw in her abdomen come to find out she had high-grade serous carcinoma… turned out to be stage 3C and she died 15 months later. This year it’ll be seven years and I still miss her.

[@Free4Ever-grace]

A tumor that grows teeth and hair is called a teratoma. My sister-in-law found out she had ovarian cancer when she was pregnant with her first child. As her baby grew so did the teratoma due to hormones and eventually there was no more room for both. She delivered at 29 weeks, and two days later she started chemotherapy. Thank God for big extended families - We all took turns caring for her and the baby 24/7 for the first year. My sister-in-law and my nephew are 100% happy and healthy 25 years later!

[@jackieanddashadventures]

@@Free4Ever-grace that is wild! Being a woman is hard work 😓

[@JamieMurray-m7m]

I was a medical liaison for my friend’s non profit for women with GYN CA. She was misdiagnosed for months, and sued the PPO for malpractice. She had 2 young sons, and lived until they both graduated from High School. YEARS after her prognosis of “months to live”.

[@pippadawg7037]

I have a good friend who got a diagnosis when she was 33. It rebounded and she said the hardest thing was telling people and having to go through their reaction. When it happened we had the internet but social media was something just for college kids. Now people have social media and can tell most everyone online and not have to endure everyone sorrow at once. God bless you, you are a beautiful woman.

[@wendykelcey1246]

You are such an intelligent, well-spoken person. What a challenging time you’ve had! Thank you for sharing. You just never know who you will help by making this video. 🤗

[@dnhacademic4535]

Oh my goodness! This is an insane story. I have so much love and respect for anyone going through treatment for any form of cancer. You are so articulate and self advocating which clearly has served you well. Stay strong.

[@lizzijansen6527]

Congrats on beating this cancer! You are such a beautiful young lady! Been there.

[@swifthealy2021]

Well done, and thank you so much for sharing, I lost my mum aunty's and sisters to this ovarian cancer HGSC stage 4, going through it now. Ginger root in canada has found helps. I miss my dearest precious sister and friend every day.. Hugmuggus warm heart felt hugs 💜 🙏🏿

[@susanclark8654]

Hi ladies.. I'm dealing with 2 forms of rare ovarian. I have mullerian endometriod type stage 3C and clear cell was found in the peritoneal wash after surgery. I've done 6 rounds of chemo and I'm in remission presently. I have to see my Onco every 3 months for a CA125 and pelvic exam. I did paclitaxel and carboplatin. I lost all my hair too and my big toenail started to detach!! I'm told I have a 70 to 90% chance for recurrence. I'm doing all I can to keep that from happening but I also have my 85 and 86 year old parents living with me. it's a little stressful. I had to help take care of my dad throughout all my treatment. he fell about 2 years ago and has been on a walker since, it involves a lot! Good luck to all you out there who are dealing with all this as well. I am also 18 years out from breast cancer, I'm 60 now. I was 42 when I had the breast cancer. take care of yourselves beautiful ladies.

[@fifilafleur5555]

Prayers for strength and courage! 🙏🏻🙏🏻🙏🏻🙏🏻 You have a lot on your plate for sure. You are a wonderful daughter caring for your parents while so ill yourself. That has to be very difficult. May God watch over you and help you each day to do what you need to do while caring for yourself as well. 🙏🏻🩵🙏🏻

[@MeadowDay]

Take some time and take care of your wonderful self, so important to take a well earned break 🥰

[@juststartingover2735]

Thank you for sharing your journey. You are saving lives and helping prepare others on how to get thru it. I cannot even imagine going thru what you have experienced. Stay positive and strong, you are truly a survivor.💖

[@SincerelyTiffany2U]

I have adenoid cystic carcinoma and the first thing you said speaks volumes. Once you get diagnosed you really don’t get a moment to process it because you become engulfed with treatments and appts. Thank you for sharing your story

[@Veracityseeker7]

God bless you

[@marn9739]

Thank you for sharing, I’m newly diagnosed and my surgery in 10 days, I pray that I will be as strong as you are🙏

[@Trueordie]

Oh my goodness you are a strong woman! Thanks for sharing your journey. My heart breaks for you.

[@Judith-wb3jl]

What an amazing job you did telling your cancer story. You are an inspiration to all. May the good Lord bless you and keep you cancer free, 🙏❤️✝️. Thank you for sharing your story!

[@india1422]

I was undiagnosed 15 months ago despite looking 6 months pregnant and being back and forward to my family doctor. Am I bitter? Hell yes!!

[@MemeMeme-tu6fr]

Hello there, how’s your treatment going? Are you fine now?

[@Lifetimelearningisbrave]

Resentment is like drinking poison hoping the other does. Revenge is best served cold. Please don’t hold it inside…let them have ALL your anger! No more will I pay for the sins and failings of others…I hope you join my revolution of the soul. It feels good to say the truth and tell it quicker and louder without a bit of shame.

[@sddrunner]

So horribly sorry you are going through this. I was not diagnosed at all ignored. Have to be your own advocate beginning to wonder about the title Doctor hmm. Hard to find a good one 🙏

[@sddrunner]

@@MemeMeme-tu6fr I have constant bowel issues since the resection of my colon and part of my intestines. Cancer had spread wore a colostomy bag 9 months and had a take down so its gone. Always scary worry about reoccurrence. Unfortunately the trauma changes you or at least me.

[@lauraooten7057]

Why do doctors get a pass on guess work on people I went not once but twice in one year for a scope and Dr said nothing to worry about…he was wrong

[@NancyBurtenshaw]

Our stories are so similar. I also had a malignant teratoma stage 1C. I have been cancer free for 22 years now. Stay strong, you can beat this

[@modestadewet6078]

You are a beautiful strong soul. Will forever be in our family's prayers. ❤

[@Sherrie561]

That just blows my mind. I had an ultrasound and an MRI for a mass on my ovary and they could not define what it was and she refused to do surgery until she did every cancer blood test there was and then my doctor did the surgery and it came back benign.

[@Veronica-tn2xc]

Great news 😊

[@pallavisreetambraparni6995]

Great news. Thank goodness

[@SatumainenOlento]

Oooohhhh...I hope that this is my story too!!! I have a "complex cyst" and waiting for my MRI.

[@rofl2966]

Keep us updated ​@SatumainenOlento cause same! I had a complex cyst on my kidney also and all imaging they're unsure about, even mri. Dr's just wanna cut us open and get the most profit.

[@jackieanddashadventures]

My tumor is the size of a basketball and I have metastasis in my lung and possibly my liver but we don’t know. I am grateful God didn’t give me children because I have a gene mutation that caused the cancer. It sucks. I am on chemo/immunotherapy and responding well, I’m only 2 rounds in so we will we where this goes. You are a warrior and one of the first videos I watched when I got diagnosed. You give me so much hope.

[@jyienger]

How are you doing?

[@jackieanddashadventures]

@@jyienger good! I had a hysterectomy last month and will have my fifth round of chemo on Thursday. As of now I am cancer-free! 3 more rounds for good measure and immunotherapy for life but that’s okay! Thanks for asking!

[@melissawilliams8210]

Do you mind me asking, what gene mutation? I found out I have RAD51-C. I also have a dermoid cyst but haven’t had surgery. My mom just recovered from breast cancer in 2021. I’m so scared 😢

[@jackieanddashadventures]

@@melissawilliams8210 mine is a PTEN malfunction. I wish you the very best- both you and ur mom!

[@MarieHobson-o3e]

My sister passed aged 60yrs of several years of illness symptoms - not once did a doctor consider ovarian cancer or order a CA125 - it was only done following collapsing at home and she ended up in ICU department they ordered a CA125 and it was extremely high ! She passed away with her family around her. Sorry to hear your story 😢

[@highhopeslibra]

Unfortunately ca-125 isnt always elevated with cancer

[@kathymorris4553]

If they use that wand that goes up vagina and can see your ovaries and catch it early

[@MC-cg2rr]

Women’s health, and everything that is related to them, is so under known it’s baffling

[@maureenmellott5738]

thank you for this. My Mother had ovarian cancer and my best girlfriend is going through this now.

[@Boma-vm5kr]

I'm sorry to learn about your experience, but I'm glad you've survived and you will continue to do so. My dad faced cancer years ago and successfully recovered without resorting to chemotherapy or radiotherapy. Through faith, a dietary shift, exercise, and supplements, his healing journey was lengthy, but he triumphed. Today, he's in his 70s, embracing life to the fullest.

[@kristinakrypto8827]

That's amazing. Did your dad have any surgeries or treatments at all?

[@Boma-vm5kr]

@kristinakrypto8827 Sorry, I am just seeing your reply. No, he never had any surgeries he is currently 70 years old, with no grey hair and living very well.

[@alabamajenny8751]

I am a retired nurse. Ive seen dermoid cysts with hair and teeth. It is crazy what the body can grow! Not grossed out at all! I’ve always wondered why people feel compelled to explain their type of cancer to anyone. Even if it was on your hiney 🕳️. Which might be embarrassing. But that isn’t anyone’s business! Tell them whatever you want to tell them. They aren’t going to know the difference. I don’t mean sharing your story, this is outstanding advice. And I hate you had to go through this! Tell your story but only share what you are comfortable sharing. 😉 You are a beautiful soul! I wish you the absolute best. I pray you live a very long time, love! ❤️ Edit: “type of cancer”

[@kathymorris4553]

I’ve heard of that

[@bettyconnearney7943]

Well said!! You were Awesome!! Praying all goes well in your future!!❤

[@KaraLey98]

Thank you for telling your story--if only other survivors were as personable and nice as you. Wishing you a long healthy life -and happiness with your beautiful children!!

[@Caligirl903]

My mom had Ovarian Cancer and I was her caregiver. Seeing and feeling all the pain and different effects she went through, I am not going to have any treatment.

[@godzillamanstreb524]

Hope you don’t have to make the choice 🌼🌸

[@StLsalsagirl]

I am currently my mom's care giver, became a stay-at-home daughter. TPN, bathing, meds, appointments, cooking, cleaning, etc. I was at the hospital every day of her 26 day hospital stay from diagnosis, to chemo, to surgeries, ICU, Med Step Down, and Oncology units. Advocates and care givers, do your research, don't be shy about telling the doctors what you want (tests, procedures, services, therapies, etc.), and ask for their reasoning, the pros and cons. Prayer is important and so is staying in contact with your own support system. I have also started talking to EVERYONE I interact with about ovarian cancer symptoms. Perhaps, in my small way, I can help someone else avoid finding ovarian cancer at stage 4.

[@crystalclink]

Wow! You have explained things so well! I don't have cancer but you have certainly given me a good heads up! Thank you!

[@maxinebellows741]

I had chemo for breast cancer. Yes, the nausea pills were needed. And that awful chemical taste! Ugh... My prayers for you to beat this cancer.

[@KK-111]

Wow. (This amazingly courageous, strong, and humble woman has been through hell and back. 😢) I'm so sorry that you had to go through this! Thank you so much for sharing your story- your incredible journey as a warrior! The medical system is replete with unexpected landmines, and those who don't know what they are doing. :/ Blessings to you, for getting through, against all odds~ and may your body's own natural and gentle healing processes take over from here!~*🌹

[@theamp1986]

Thank you for sharing your insights about how to navigate this. I advocated newer symptoms aside from my lupus symptoms which weren't taken seriously for months. I was gaslighted. It took me a 911 call for a CT scan and ultrasound. Now I am pretty satisfied with my oncology team. I have stage 4 ovarian. I sway in dark moments here and there after researching and watching clips. It's tough sometimes and I try to be positive. Thank you!

[@pallavisreetambraparni6995]

My mom fought hard. She suffered from ovarian cancer. She was diagnosed in 2007 and passed away in 2016. It's a really tough disease. It's known as the silent killer. It's really sad that even younger women are getting diagnosed with this disease. These days. And I really don't think that it's only diet, exercise and not having a good lifestyle that is contributing to this. But I think it's also air quality and water quality. Which unfortunately, nothing is being done about. And not just ovarian cancer, but also other types of cancer as well. 😢😢😢

[@sddrunner]

Your right I always ate healthy ultrarunner best shape of my life and Bam

[@annipsy2185]

I lost my mom to it 3 months ago. She didnt even get the exact diagnosis before she died. Only after they told us....

[@sddrunner]

You be sure to be your own advocate. Get your mammogram and pap smear . Get to the emergency and get a CT Scan if you have any symptoms . You would know be good to yourself. Tell your doctor about Mom you may want genetic testing. God Bless so sorry for your loss😘

[@MrsGator7]

I worked with a girl in 85 that had ovarian cancer, she was 19

[@pallavisreetambraparni6995]

@@sddrunner pap smear and mamogram can't detect ovarian cancer. It's a tough disease to diagnose in early stages. That's why it's called the " silent killer" The only way is if one starts having symptoms like bloating, early satiety, frequent urination etc.. The only two possibly reliable tests for ovarian cancer are pelvic ultra sound where ovarian cysts can be be detected. Most ovarian cysts are harmless and go away on their own but if one starts having pain in that area of the abdomen then they would probably need to have another pelvic or even transvaginal ultrasound and a blood test marker called " CA125" to confirm the diagnosis

[@aria9004]

I cried every second of your video! Can’t believe how strong you are. Where you were getting your strength from?

[@bobs1356]

Shirley here my mom had ovarian cancer. She always went for her test pap smears and the overlooked her ovaries. By then the cancer went into her colon she has a colostomy and other surgeries and lost her life. All the chemo for nothing. She survived 2 years.

[@patriciaedel5714]

Two years is not nothing. So far I have had two years and I’ve been grateful for every day. I do think the surgery and chemo was worth it for me, even if this is all I get. That said, I handled it all well and have not suffered too much so far. I hope your mom had some joy during those two years.

[@bobs1356]

@@patriciaedel5714 She did there where times we thought she had it licked she felt great looked healthy. She have her chemo and be sick for just couple of days then she would feel great. Then she be done her hair would grew back just enough she didn't have to wear her wig. Then it came back but this was 15 years ago they have more drugs today.

[@emmab.172]

Thank you for sharing your story and educating others ❤

[@bella7687]

My mom died of ovarian cancer. They found it at stage 3c. She also experienced uti symptoms. Nothing ever showed up on any tests.

[@MemeMeme-tu6fr]

Hello there, so sorry to hear it…. You guys did not start the treatment? Like chemo and surgery?

[@annipsy2185]

Same. They didnt even fully diagnose her . Only the night she was dying they told me ........

[@MemeMeme-tu6fr]

@@annipsy2185 hi dear, but stage 3 is curable… how come the doctors did not treat it?

[@TH-xx9cn]

Thank you for sharing. So sorry to hear of all you went through.

[@sarahcloer9261]

Im so happy youre doing good now. Youre a brave one! Prayers for you and your family.

[@mycaravanoflife]

I’m sorry that you are going through this. I wish you swift recovery. ❤ from the universe to you

[@elainecartwright1793]

God bless you you are a beautiful lady and strong ❤from ENGLAND

[@catherineepommett8526]

I was diagnosed after a long history of urinary problems until a CT showed stage 4 ovarian cancer. The tumor made me look like I was 6 months pregnant. After 3 chemos w taxol and carboplatin I had debulking surgery. The tumor was wrapped all around my colon so I have a temporary iliostomy. Post op I became septic and spent time in the ICU. 3 weeks later I was feverish and a CT showed a fist size abcess on my colon. That led to another 7 day hospitalization. Currently I just completed all 6 chemos. My tumor marker is 8!!! The comfirmatory CT is in 2 weeks. I’ve been blessed by God to have a great support system and the very best Gyn Oncologist!! All glory goes to the Lord!! 2:58

[@KaraLey98]

You are wonderful story teller and you have great appeal-SO much more interesting to hear your story than some others-Wishing you Grace and Health❣️🌸😊☘️🌺

[@samanthad2147]

Just came across this video. Well articulated. You sound like a very strong beautifully woman. God bless you and your children. I wish you all the best!!!

[@soniarivas9221]

So proud of your courage, thanks for sharing.

[@amandamalsbury7141]

My mother was diagnosed with stage 4 lung cancer NSCLC Exon 19 Deletion) in November 2020. She had developed a persistent cough that did not respond to treatment but otherwise felt fine apart from an ache in her legs. Referred for tests, and stage 4 lung cancer was a shock. Her oncologist prescribed a new TKI drug (osimertinib.) There were 15 months with a normal life, progression, radiotherapy, new drug, progression, and chemotherapy and whole brain radiotherapy that did not work. My mother died on 4th November 2023. She had a strong will to live and stay with her family, but her body had had enough.

[@kateswayne1708]

So sorry for your loss.

[@virsapiensfortisest922]

I’m so sorry

[@karenmcardle142]

❤

[@kathymorris4553]

I’m so sorry for your loss

[@margaritarivera9672]

Thank you so much for sharing. Hope you quickly recover

[@timeittakestoletgo1687]

Wow! You looked so, so sick! I can’t believe how we can overlook being so ill. ❤

[@cynthiacarlson6404]

I appreciate you sharing!! Hugs! Hope healing is permanent

[@janetbuder6066]

You’re amazing!!! Your recounting of your story and your tips are incredibly helpful All the best to you and thank you SO much!!!

[@carylfontaine3640]

OMG!! I had a dermoid ovarian cyst, removed, no CA. I'm so sorry you are going through this..😢❤❤❤ Take care of yourself my sister ❤

[@christys3305]

How did they find out you had it? Was it an ultrasound? I'm having pelvic pain for a few months now.

[@LadyFionaGH]

I had one as well. It weighed 3 lbs and was the size of a football. They found it on ultrasound for pregnancy. I had irregular periods for a couple of years, and they thought it was PCOS. I had a couple weird instances of sharp pain in my side that I almost went to ER for, but ended up deciding it was gas/IBS. They had to take out my left ovary when I was 13 weeks pregnant because there wasn't enough room for the baby to grow.

[@beautilfuldoveonearth5447]

You are such a beautiful person inside and out omg

[@Kim-xg1vm]

Thank you for sharing. Ovarian Cancer is not well understood like other cancers. Lost a sister who was 46, like you, with a large lump on her ovary. I pray that there will be a test like the cervical pap to help with early diagnosis.

[@amethystfeathers7324]

I'm getting a scan for this soon. My Doctor feels that I'm fine but he calls Ovarian cancer the silent killer of women and prefers to rule it out early unlike most Doctors. I'm very lucky. I'm so sorry to hear about your Sister, my Twin is currently battling the after effects of throat cancer 🥰

[@stacysmom2748]

On March 20 2024 I got the results from my ultrasound the doctor said it looks to be malignant. 10cm large ovarian complex cyst with multiple septations thick solid with blood flow I'm waiting on my gynecology oncology surgeon on April 2 202 I'm very scared but thankful for everyone's stories ❤ I'm 44 will be 45 in August

[@kerrynight3271]

@@stacysmom2748 I'm sure wishing you well. Can't be easy waiting.

[@EJMG22]

So glad you got great news. ❤

[@melissagayheart7716]

I had endometrial cancer and went into surgical instant menopause lol it was great fun lol luckily i only had to do a few sessions of radiation, which is extremely mild compared to chemo i had a few symptoms but they were so so mild and i am so incredibly thankful for that

[@JenniferMoore-q6h]

My mom had multiple myeloma. She had an anaphylactic reaction,as well during chemo.

[@jobielifehappens7102]

Thank you for sharing your story!

[@gaillynch9651]

I had Ovarian Cancer in 1985 on the brink of my 31st Birthday. Typically Menopausal women have it.Oncologist at Duke advised mine came from Endometriosis. I had a one time P32 Treatment Praise God coming up on 50 years 🙌

[@StLsalsagirl]

YES!!! My mom's CA 125 was 610 when they found her ovarian cancer. One tumor was the size of a football and had a total of six tumors removed. She just had her 5th chemo and her CA 125 was 14! 🎉. For 2 years her GP told her to drink more water and eat more fiber. She was malnourished because she couldn't eat and spent 26 days in hospital, with multiple blood transfusions. Talk about a crash course in medicine.

[@favour7944]

Thank lord my lovely sister she doing well now l pray everything we be ok

[@mw7882]

You are so incredibly beautiful! I am so glad that you are doing much better. Your babies are so adorable too.

[@Dkaur-ip2kl]

I was dignosed an ovarian cancer stage 3 in June 20th 2023 and still on treatment. After surgery and chemo now doctors put me on oral treatment Lynparza. I had symptoms for months but did not think of cancer. I had back pain for months, blotting, stomach was not right, feeling so much pain inside during intymacy with my husband.

[@MemeMeme-tu6fr]

Hello there, how are you and how’s your treatment going now?

[@lzzygrl9ify]

Where was your back pain lower or upper???

[@helenhines2712]

How do people work going through cancer? With all the doctors' appts and being sick, how do you continue working, or do you get on disability?

[@pamelcakes04]

When I had my genetic testing done, they said oh you have the good type of lynch syndrome. It has the lowest cancer rates. My doctor didn't understand that when you have a genetic defect, it does what it wants. There is no rhyme or reason. We with the pms2 variation get just as much cancer as the rest, there's just not as much data known about it. Cancer is an awful disease and I'm so grateful for these stories. They make me feel so hopeful. Here's to hoping for continued health for you friend!

[@pamelcakes04]

@SaraFrancis- get your spam out of here. You can't cure lynch syndrome.

[@Vitalia1111]

Excellent job telling your story! I pray that God will restore you to full health and that you will one day not have to do any more scans!

[@tinajimenez-spalding6804]

THANK U 4 SHARING YOUR JOURNEY ❣️ GOD BLESS U & YOUR HEALING PROCESS ❣️

[@SiberiaDreams]

The medical malpractice you have endured Randalynn is terrifying. I am so sorry.

[@LilouViviKiani]

Thank you for sharing ❤

[@christyborkowski6866]

Prayers sweetie 🙏🏻🙏🏻🙏🏻🙏🏻

[@leegruver4718]

My mother was diagnosed with ovarian cancer back around 1985-86. She wasn't feeling right for several months before that and she had gone to primary care provider two or three times before she got the ovarian cancer diagnosis. Doctor did pap text and it of course came back negative. Doctor couldn't feel anything in her pelvis so nothing was done until a piece of tumor fell out of her vagina. She had extreme tiredness and unusual pelvic pain before she was diagnosed. Unfortunately, they didn't have ultrasound or other diagnostic abilities they have now. I'm sure they would have gotten her an ultrasound scan and CA-125 test immediately when she first complained of tiredness and pain if she had been going now. Chemotherapy gave her another good year of life but it did not rid her of the cancer on her intestines so when they had to stop the chemo it came back. You know your body. If you have unusual tiredness or peivic pain tell primary doctor or ob/gyn to schedule you for an ultrasound immediately.

[@terencetaylor4600]

Thankyou for sharing your story.

[@LeanneRaynor]

I had an ovarian tumor that was the size of a grapefruit. My OB Gyno was so dismissive. It took 6 months to a year to get diagnosed. Thankfully, my cyst was benign.

[@kimbok5971]

Her nurse practitioner prescribed antibiotic for a "UTI", without seeing her or examining her??? My healthcare provider don't prescribe anything without seeing me, even if it's something I've been prescribed before or am in the middle of treatment.

[@loyaldogpublishingllc915]

Thats to bad....you can buy UTI test strips now at the drug store; If positive you just call the doctor.

[@amberdawn5672]

The infection can be treated easily, if that is the only problem. Covid made Teledoc Medicine a whole lot more accessible.

[@kimbok5971]

@@loyaldogpublishingllc915 Not my doctor or any doctor worth their degree. There could be more than one problem going on.

[@askquestions1236]

i was bleeding more than usual and constipated. Noticed i was getting a belly. I had a cyst 20 years prior and had it removed. Spoke to my my female primary care physician about my symptoms and she told me im just getting older and hitting menopause. On vacation, i was trying to get a nice photo on the beach and couldnt for the life of me hold my stomach in. It was pouching. On return from vacation, laying flat on my bed, i saw a mass finally pushing up. It was growing fast and kind of moved around. Went to the doc and had the ultrasounds and had both ovaries removed along with the cyst(s) one with cancer on it. It was the size of a baby and I am a thin woman. Giant scar from the surg and internal scar tissue Issues after. ER visits and hospital stays. another surg to clear out internal scar tissue. No other treatment otherwise. If only my pcp would have recommended an ultrasound when i first went to her. ive been thru a lot because of her not recomending. Thankful I am alive but it changes you. I get anxiety when i am not taking care of myself or eating healthy. "Chris Beat Cancer" gave me information on how to help myself. God gave me peace and strength. After surg, my oncologist told me that God was looking after me. Noone seemed to think I would make it, but me, "Chris Beat Cancer" and God 🙏🙏🙏

[@advocateforyourself]

I had ovarian cancer in 2009. I was told mine was unstaged because the surgeon didn’t bother to do a biopsy. He assumed it was a dermoid cyst. He did surprisingly get it all. They removed the right ovary 18 months later but left the uterus. They should’ve took it all because I’m have so problems. My new doctor has been trying to get insurance to pay to remove it for years and they’re refusing.

[@tayakelley2964]

Your story needs to be heard! You’re such a positive and encouraging survivor! I have worked for a specialist for endocrinology and I have a question … have you had a full thyroid panel? I say this because the left side of your thyroid in the video and also in a couple pictures, appears enlarged. Just a thought… Well wishes and prayers for you! You have beautiful children! God bless

[@Captivated2]

I was stage 1A fallopian tube cancer. They now think ovarian cancer can start in the fallopian tube. It's the same kind of cancer. They told me I had a 95% chance of never seeing it again, but two years later I had a reoccurrence. Apparently this cancer is really persistent. Tiny tumor, they removed the whole thing and I did chemo a second time. I was on a maintenance drug that I hated. 18 months later I had my second reoccurrence. I had chemo again. And now they've added a Avastin. I am five years down the road since my surgery. Aside from being anemic, and easily tired, I've never had bad side effects that couldn't be managed. And because they consider this disease chronic, I'm sure I'll be going through it again. But I'm always hopeful it will be a long break!

[@mariathorn2884]

If you don't mind, what symptoms did you have and how the tumor was found (scans?)? Was your CA-125 elevated?

[@LMNevada]

Wonderful advice. You are a beautiful woman. Thank you so much.

[@tiffanylindfield9157]

I really hope this woman is ok

[@laetitiavisagie-gg6kk]

I lost 2 friends to ovarian cancer (10 years apart). Both never used birth control or other hormonal therapies therefore never considering cancer of the ovaries. Both were convinced they had irritable bowel syndrome due to stress but had very healthy lifestyles. Both were at stage 4 - one died after an operation and 1 year of treatment and chemo and the other one died of heart failure before her treatment could start (from South Africa). I use HRT and go to my gynecologist every year for a full check-up. All women should go for annual check ups - with or without the use of hormones