This is hard.

PLEASE NOTE : Due to My Chronic Illness uploading can be difficult but I am trying to upload at least once a week. If you wish to donate to my channel you can do so below, thank you for supporting me, I hope you learn something from these videos and for as long as I can, I will continue to create videos ◅ paypal.me/themakeupchair
Thank you to those who have donated already, even the smallest donation are huge to me, so thank you so much. From the bottom of my heart.
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Brushes www.blankcanvascosmetics.com
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I N S T A G R A M
/ sineadycady
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TO MY FOLLOWERS
♡ Thank you for continuing to support my channel, I adore you all! Remember Makeup doesn't make you beautiful - its your eyes, your face, your smile!
YOU make the makeup BEAUTIFUL! xoxo
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WHO IS THEMAKEUPCHAIR?
♡ Hi I'm Sinead (Shin-aid) or people call me Sineady. I live in Cork, Ireland. I’ve been making videos since 2010 and I love teaching so if you have any questions I am here to help with eye makeup, foundation or anything at all. I also have JHS/EDS with CFS/IBS/POTs so I am part of the spoonie club.
Disclaimer ‣ Not sponsored. All thoughts mentioned are my own. Some links provided above are affiliate links. They do not cost you anything, but I make a small percentage from the sale.

[@TheMakeupChair]

Thank you friends ❤

[@kristaoregonian9971]

I've been watching you, from your beginning. Your videos are ALWAYS a treat ❤ and I always learn from you!! Yay!! I am glad you felt good enough to make this video❤❤❤ hoping that things calm down for your body ❣🌻❣🌻

[@cs-yq5ed]

Sinead, we don't need perfect. We just enjoy YOU!

[@DavidMarronMusic]

A wise woman once said, “be kind to yourself and be kind to others” 😉

[@TheMakeupChair]

My love ❤

[@dorsvenabili5573]

“Sick of being sick” well said! I have an autoimmune disease and I relate to this so much 😢 I’m so sorry you’re dealing with a chronic illness, it’s so so so hard! Thanks for sharing your thoughts and feelings with us, please know that you’re not alone ❤️‍🩹

[@abseurde]

I’ve been here since the beginning when you taught me how to cover up my acne. Back then I took an immense amount of comfort in the fact that someone as beautiful as you didn’t have perfect skin and was no less beautiful for it. Your videos now bring me comfort because they feel like real life in a world of online inauthenticity. You can rest assured that there are always people here who are grateful for what you create.

[@nenebops7744]

This video hit me hard, im stuck in bed, chronically ill and in pain, and to hear someone i admire describe what it feel like so perfectly... 😢 People never understand the limitations and pressure chronic illness put on your life, until they live through it with you. Im glad you have that support ❤ Your videos have gotten me through some very difficult days. We dont need perfection, we are just happy to see you and share this journey with you, knowing we are not alone ❤

[@bridmcgrath3606]

Hope u get better soon!!!!

[@lorettayoung4552]

❤

[@maryheinzl4423]

When my chronic illnesses flared up I felt the same way for a long time and still do. Having AS and hypermobile joints is… a lot. But I try to remember that perfect is the enemy of good enough, and I can only do my best when I’m treating myself well

[@Sparkysings2]

I feel your pain. I have four auto immune diseases. And yes it’s like a full time job being sick all the time. Trying to make up for the time you lost not being able to do things whilst also trying to not over do it and end up in yet another flair. Dealing with doctors and insurance issues, trying to work even part time is so hard. I am so sorry for you and anyone that has to live this way. I’ve done it for over 30 years and will continue. Just remember you are stronger than most just making it day to day and that is something to celebrate! Gentle hugs and love to you!❤❤

[@iwantascreenameplz]

I'm so sorry for your struggles. Please do whatever you need to make your life as comfortable as possible. ❤

[@Torch0362]

My heart breaks for you. I have a chronic illness and some other issues that as I get older have gotten worse. No cures for any of it. But you are right. You change the way you have to live your life. If I get even half a good once a month or so I'm thrilled. I live in pain 24, 7. My children are adults and understanding as is my husband but I still struggle with all my limitations. I wish nothing but the best. Hugs and healing thoughts. ❤❤

[@lauradmarin]

Dear,also in my Prayers. Be creative and do whatever You feel and can. I really hope You recover health. Love ..

[@melaniemurphyofficial]

This must suck so hard, Sinead. Sending you SO much love! People who love your channel are here for you, not perfection ❤️❤️❤️ I had to let go of a lot of my work goals and visions for my channels after developing weird health issues post Covid and like you, being a perfectionist…SO hard 😩 And having kids too I just really had to accept my limitations, can’t do it all, but I relate to the attachment to independence and just having a job you love…ahhh xxxxxx

[@miwof86508]

You are an amazing person. You were the very first youtuber I have ever watched. I'm watching you probably since 2014. So proud of you that you made it this far

[@nataliesavage5438]

sending prayers to you, you have inspired so many people with you videos and have helped me greatly ❤

[@elisabethjohn]

I resonates with you. That's all I can say. Well done Sinead for posting a video. I really appreciate it ❤

[@wot4me2]

The kindest thing you can do for yourself now is to find a way to TRULY dampen the perfectionism- it's really not your friend. No matter how that came to be, you honestly WILL still be loved, worthy, and valued as an actually imperfect human. Many thanks for uploading, and keep on keepin' on. ; )

[@AngiePhiffer79]

Huge hugs! I have a rare neuromuscular disease and now two rare cancers that have no cure. I understand your struggles and feelings 100%. Good luck.

[@AliP1970]

From one spoonie (×10) to another, thank you! (BTW I'm still about 90% sure that we are distant relatives). When I read the title, I got worried. I thought you were saying goodbye to us. I'm so glad that you aren't! I LOVE your videos. Not just the makeup tips, but the fact that you are doing this while living with chronic illnesses. You have given me hope and strength to know that I am not my diseases, they do not define me unless I let them. Please know that there are many of us that love and care about you!! 💜💜💜

[@liquidsonic9438]

I'm having one of those days, thank you so much for this 🧡🧡🧡 big hugs to you and my fellow chronic illness friends

[@debbieheng]

Sending you love and healing thoughts. You are perfect and beautiful ❤

[@GenXfrom75]

I’m headed to work right now but will watch when I get home. You’re in my prayers! 🙏 I see you commenting on some of my favorite true crime channels and I’m always here for your tutorials. Whatever you need, take care of you first ❤

[@inabind416]

Dear Sinead, don’t worry about perfection. I know it’s hard, because I’m a perfectionist myself. As I’ve gotten older I’m getting better at trying not be one. Just take the very best care of yourself and be happy. Thank you for teaching all of us the art of makeup 💄. It’s so very appreciated 💕🙏🏼

[@brittanybuchanan8409]

I understand being sick of being sick. I have Lupus and it's miserable. We love your videos. They are so informative. As someone else said, we don't need perfect, we just enjoy learning from you.

[@UnfilteredMakeup]

I hope that allowing your creativity to flow brings you peace and happiness. It's amazing how good that can be for both the body and the mind. 💖

[@tikru34]

That's hard, to not be able to be who you used to be. And not to do what you used to do. I feel it 100%. ❤

[@michelleelliot2068]

I can definitely understand a desire to strive for perfection, believe me, it is my greatest barrier to my art as I never know when to just leave something be. What I have come to learn though is that the people who truly love us do so mostly because of our flaws and imperfections. I love your videos, seriously, they have taught me enough to be that girl, you know, the girl that everyone turns to for makeup advice. You were my only teacher in that department and so thank you for teaching me so much and my heart goes out to you.

[@Jade_902]

Sending you love and prayers ❤

[@AM-xr1ij]

Thank you so much for sharing this video. I completely understand. Today I did a wedding make up trail, and I felt horrible. I have diagnosed with POTS and Crontic Fatigue last year and it is so hard. I am a profectionist too and I just felt that I just couldn't do the high standards that I am use too. Know one understands they think everything is OK, but I can have a good day and then I can drop and that's it I can't function for days ❤

[@lorettayoung4552]

I am right there with you, I have ME/CFS, our issues are very similar. I love to watch you , I relate to you so much. I am here for you, I stand with you. ❤ We will get through our down times.

[@ale_ale331]

I'm also sick of being sick. It's been 3 years since the diagnose and still I'm not ok accepting my new reality. I totally feel you and I hope somehow you find strength through this

[@debbiesmith4887]

It's OK not to be perfect. Just be you. You are surrounded by friends. Thank you for sharing.

[@tamarapace3036]

I have autoimmune disease and I think you made this video for me. I too have been a bully to myself. It stops for me now. Thank you 💖

[@lesleyc2704]

After my Covid journey which included 8 months in hospital and included an extended period of ventilation, I discovered Suleika Jaouad through her Ted talk ‘ what almost dying taught me about living’. I am now subscribed to her newsletter, ‘the isolation journals’. This represents a community of people who live with a variety of chronic disorders and use acts of creativity in their daily living. I only really became interested in wearing makeup when I became hypothyroid in my 40s and now as I approach 60, I am the grey haired lady on oxygen, and wearing makeup and looking put together has become so important in how I look and feel. I value your channel and videos. One of the first that caught my attention was the one on the Urban Decay On the Run Bailout palette which I panned. Suleika Jaouad wrote a book called “Between two kingdoms”. We live between the kingdom of the sick and the kingdom of the well. Health is not binary. We take each day as it comes. I have also spent over 2 decades working with children with chronic disorders. I know the work it takes to attend to one’s physical and mental well-being and the courage it takes to just show up some days. Well done on showing up today and making this video.

[@baby2185]

You are strong my beautiful friend you are loved appreciate and adored . Don't be hard on yourself hun much love.

[@emmacarroll3665]

I also have EDS and POTS. MCAS and SFN too. It is really hard to manage and I’m so sorry you’re feeling down about your limitations. You are more than enough. Any content you provide for us is more than enough 💜

[@Victoriah4]

I've had chronic pain and chronic illness for over 10 years now. I just wanted to comment here to send you support. People out there understand. You have a vision for your future that you've worked towards and now you have to figure out a way to reimagine your life. It's a grieving process and it's okay. Be gentile with yourself and know there are people out there sending you healing thoughts. Hugs to you.

[@IthilxIsil]

People rarely acknowledge that living with chronic illness requires a grieving process for the lives we wish we could have. I’m currently in the denial phase because it’s so hard to wrap my head around the fact that I may never be fully independent. But seeing your videos and those of other creators being so open about their experiences has helped me feel a little less alone. 💚

[@mahadewiiii]

Sinead…sending you so much love ❤ I subscribed many years ago for the makeup tutorials, but now it’s a good day if I manage to put bb cream on! I have 3 kids (2 teenagers and a 5 year old), have had 2 crappy marriages, and makeup is just not a priority as I rarely leave the house 😅 I can partially relate as someone who struggles with my mental health (that has impacted my ability to hold down a job) and also perfectionism. You are such a shining light though Sinead ☀️ The older I’ve got (turning 41 soon) the more I’ve realised perfectionism sucks. Just being present and “doing the thing” is so much more important than wasting time and energy on trying to achieve perfection (which doesn’t exist) especially when your time and energy is limited ❤ I for one am just so happy to see your beautiful face, hear your lovely Irish accent and hearing about your life. You are such a beautiful person, inside and out and we support you ❤ Sending love and strength from Australia xx

[@AnnieN99]

This made me cry. I'm trying to come to terms with my new limitations with chronic illness. I dont have any offical diagnosis yet cuz most drs here dont like to listen cuz I'm in my 20s but I'm not able to do what I i could in my teens. This video really helped me. I appreciate it. Your makeup and hair look gorgeous!

[@faithslayer500]

I've been subscribed for years and just wanted to say I'm so proud of you and the way you deal with things! The epitome of grace

[@Agz7zb]

dear Sinead. I know how you feel. I survived breastcancer only a year and a half ago and nothing is the same. They mean well when the docotors say you still look and feel the same before you got sick, but that is a lie. You loose not only your hair or eyelashes. You also loose pieces of your soul because i can not do what you used to love, like hiking, dancing etc. It took a long time to realize that having cancer means to see your self as a puzzle. You loose pieces of yourself. Day in day out, you're sad and angry because you lost them, but when the time comes you create a new you, a better version of you due to te lessons that you learn. piece by piece. Thank you so much for your honesty. This was the main reason to be brave and no longer feeling ashamed for being sick . Keep up the good work and i love to see more video's of you.

[@esmeralda42]

You are wonderful! Just be you🍀🙏 ❤️

[@sarahfurlong2508]

I've been here since the beginning, purchased your book and saw you at beauty shows in London. I'm sorry for your struggles coping with chronic illness, I fully understand, during this time og following you, I now have MS which is debilitating and painful. What ever you are able to achieve each day is good no matter how big or small. Praise yourself, and stay strong, what ever you are able to achieve each and every day is great X❤

[@handsomebynatasja2947]

Thank you for sharing🙏🏻 We love everything you can post, so don’t be to hard on yourself! Wishing you all the support and love you need❤️‍🩹 Take good care of yourself!

[@mariapopescu8479]

Thank you for speaking out. I admire you tried and were so successful, well done.😍 Take care, chin up. I'm looking forward to your next video. Biggest hugs 😘💕💕💕

[@evonheffken6552]

I sort of stumbled across your video, but I’m so glad I did. Coming to terms with chronic illness (or acceptance) can be hard. I have been through that too. And you can go through it and think that you have conquered it but it can come back up as a topic you have to address later on in your journey as well-that has happened to me. I can be hard on myself as well, but please give yourself grace. It is something I have to remind myself a lot of as well. Thank you for being vulnerable and sharing your feelings with us. I have been dealing with chronic illness for almost 20 years now and it did resonate with me and make me feel less alone 💜

[@layaalmubayed]

I wish you health and happiness 🙏

[@heathur25]

I've been here since the beginning. I started as a subscriber and you quickly turned into a friend. You are beautiful inside and out. One of the kindest people I have ever "met". I am so sorry that you have to deal with all of this and that you feel so poorly. Your illness does not define you, no one expects perfection. Anyone who is subscribed to you loves you for you and will love any content you share with us. A quote that gave me a push to keep going and I hope it can do the same for you is, "you can't wait until life isn't hard anymore before you decide to be happy". Hang in there girl! I'd love to catch up with you sometime soon ☺️

[@sumayahghamdi5550]

Sinead! The pretty shy princess. I am one of the longtime subscribers of your channel, and I enjoy your content. You have taught me a lot, and I am very grateful. I can’t imagine how tough this must be for you but I make sure to visit your channel occasionally to see how you are and how things have been going for you. Sinead, may the Almighty Allah grant you and Dave strength and reward your patience. You are both angels. I will keep you in my prayers.

[@Shade_K]

Your such a beautiful soul ❤️ I know this is easier said than done but, "don't let perfect get on the way of good"... No matter how you do it, people will find your videos useful, they'll learn from you and you will help them. I know this because I've been following you for a reaaaally long time and I've seen it time and time again, I've experience it myself and I've seen so many people comment the same. You're really good at this. But most importantly, If teaching makes you feel any better, if it's comforting in any way, that's the number one reason to keep doing it. Your audience (us), will always be here for you. ❤

[@LacedwithLacey2424]

Show me a perfect person.. and I’ll show you a liar. No one is perfect. This whole social media has skewed our minds into thinking it actually exists. ❤❤❤

[@R3APERxG1RLX]

I admire your bravery and vulnerability. I think you are wonderful. Yes. You're a great teacher, and you are also a beautiful soul so casual "do your makeup with me" videos like today would suit me just fine. Even though my struggles are different from yours, I did feel less alone and more hopeful after your video.❤

[@lexyismarchhare]

Praying for your healing ❤

[@qimzel]

So happy to see your face on here ☺️ I absolutely understand, I feel like a lot of us with chronic illness are actually such perfectionists.. Ohhh, the irony.. Sending gentle hugs 💜

[@anyfrazier8297]

You’re not alone, I am also sick of being sick and understand how you must feel. Only God knows why this happens to some of us. Be strong you are very beautiful

[@victorianess]

Thank you for sharing. Over the past year, I’ve faced significant limitations in my mobility, and I often find myself longing for the day I wake up feeling "normal" again. I'm only 39, come on! Coming to terms with the fact that this might not happen has been incredibly challenging. Accepting and embracing my new reality is difficult, and some days it plunges me into a deep depression. However, I remind myself that "this too shall pass," and it’s crucial to keep moving forward, making the best of every situation, and living with gratitude. You will be in my thoughts and prayers. Sending you much love and healing prayers.♥🙏

[@ALEXANDRABOAMPONG]

Hey 👋 hope you’re okay? Please take care of yourself xx🥰

[@hayleybarker2576]

Oh hunny I wish I could give you a hug, I myself have not been myself with my own chronic illness it isn’t nice and it makes me really angry and frustrated when people say they understand, they See the difficulties that chronic illnesses cause but when your the one who deals with it every day 24/7 it’s tiering and emotionally draining. I hope you’re better soon.❤

[@keely1368]

I have fibromyalgia, I relate to what you said. Don’t be so hard on yourself beautiful lady x

[@WackyLisa]

I'm legally blind and your channel was one of the most helpful when I wanted to learn how to do my makeup. I actually also have EDS. Your words about how there will never be a 'right time' really resonate with me.

[@justnora6360]

😢 I feel for you and everyone else who are struggling. I am one of them. I want to say you aren't alone and deserve all the love and kindness.

[@evahelen3511]

I have followed your channel for so many years and knowing that you also have Ehler Danlos Syndrome, I understand very well what you feel and mean. It is a tough disease. You look healthy but are sick inside. I feel for you and want to know that I understand you. It's important that you take breaks and take care of yourself and don't get your hopes up too high. Those of us who have Eds can easily overexert ourselves that it makes the disease so much worse. My EDS is tough and has enough to cope with everyday things and has to have a lot of help from my husband. Thank you very much for your honesty and for sharing EDS. You have a great channel and I have taken all the tips with eye make-up over several years. Greetings From Me in Norway

[@leahdisher2296]

We love you Sinead! Thank you for letting us share this with you ❤

[@shirinaktar8943]

I didn’t know anything about makeup. I learned almost all from you. Thank you. It’s hard to see you like this. I do understand how sick of getting sick feels like . I was like this last yr with my endometriosis. The whole 2023 I was in n out of ER. After 2 surgeries I am better now by the grace of Almighty. I was in my PhD final yr . It caused me the most imp time of my career

[@bethg7026]

I'm in the same spot as you right now. I also have EDS and I had a very bad pain flare at the end of March. I had several days where even holding my steering wheel was painful. It took 10 days to be able to day that I was "ok". 2 months later, I'm still not back to where I was, and I'm very scared that this is my new normal. I'm trying to accept it, to be proud of what I am able to accomplish, but it's hard to not compare it to how much more I was doing a year ago.

[@mishellegarrett9243]

I am so sorry sweetie. I've watched you and have been subscribed for years. Hang in there. No perfection necessary.

[@pamelamonzingo6931]

Thank you for being honest and posting this video. I am glad that you have a great support system.

[@melaniecraze8043]

you are preaching to the choir...i totally understand where you are coming from. i am still trying to admit illness...and since it's not visible, no one "believes." therefore...i try to ignore...

[@mandyratliff6285]

Take care of yourself, Sinead! Prayers for you

[@Shreds1016]

I wish you a lot of healing both physically and mentally ❤ It hurts me to see you sick. Sending you lots of love 💕 We love you so much and you are precious to us❤🥰✨

[@isabelab6851]

Happy to see you here. It is important to do what you can based on where you are and not look back. Embrace the new normal…and make sure you do things you enjoy! For me, it was post chemo + autoimmune condition that made me realize that I had to forge a new path. Perfection is the enemy of the good. Be present enjoy it and we appreciate you being here

[@nanushka]

I have EDS with pots and fybro and I fully relate to every single word you've said. I don't wish this upon anyone 😞

[@summersmakeupchannel9289]

I'm really so sorry you feel sick all the time, but I more than understand! I have many things I can't do any more. Simple things at that. I have sever fibermyalgia also so I'm always in pain. Your perfect just the way you are! I've always learned new things. And not one of us are perfect. Just be you. Sending much love and many prayers to you

[@snurfbee58]

Nearly everything you said in this video could have been said by my husband. I'm so very sorry that you are in such pain and I have some idea of how frustrating it is by watching my husband suffer. Please don't feel that you have to be perfect. That's his biggest thing and I know it weighs on him so heavily. Just do the best you can and I can say for myself, at least, that I will still be here watching you for as long as you are here to teach us. I've learned SO much from your channel and I thank you for hat.

[@lisalovesphotography]

We don’t come here for ‘perfect’, we come here for you, your golden voice, your sweet smile, and all the wonderful things you teach us. Sending good wishes your way from near San Francisco. ❤️

[@oliviarosas731]

Sending a big hug 🤗 I hope your doctor's can find a better way to manage your symptoms. You are an amazing strong woman thanks for your videos❤

[@shanrshan1]

Awwww ❤ I hear you Sinead. And I want to let you know- it’s okay if you need to go to the hospital. Also, it’s okay if you need to take time off. Let others care for you ❤

[@ednaflynn5987]

You are so beautiful and talented I really appreciate your lessons. Thank you ❤

[@amybolt9074]

I empathize with what you’re going through. Thank you for all you do. And it has been such an encouragement in itself to read the comments from all of the other subscribers here. What a strong and supportive community 🙌🏼💕

[@angelaram415]

I suffer from Chronic migraines for the past 15+ years. It has been so hard to manage. I’ve had years of depression. Sadness from realizing I will never be my old self. Guilt for taking my life for granted. But grateful for a good day or even a good few hours. I am still working on getting the proper treatment. I have lost hope many times. It’s such a roller coaster of emotions. But some how I get through it. I have pushed myself too much in the past which has just made things worse. So you really just have to come to peace and be patient with yourself. It’s hard. But you can do it. Give yourself grace. ❤ you’re doing your best! And you are amazing!

[@lindaespinoza3393]

You’re such a kind soul and I’m so sorry for your health struggles. I pray God blessed you. Please know I think you do an amazing job and yes please be kind to yourself. You deserve it.

[@jenessastrickland1555]

I feel this so much. I have hEDS too, with my main problems being my spine/neck. It was critical when I came to accept the fact that I may never get better, that the only question was really how quickly would my condition decline. It made it clear that my happiness could not be dependent on getting better. I have to find a happiness that is independent of how my symptoms are at any given time. It’s forced me to really focus on the present more than I ever did before. And then it is hard to allow yourself to feel happy and to enjoy your time when you’re unable to work and do all the things society expects you to do. But I am in such a better place mentally now than I was before I went through this process of acceptance. I’m so glad you shared this video. As long as it helps you, I hope you post all the videos you want. No matter how imperfect you think they are, we will still love and them and learn from them. Take care 💜💜💜

[@snudder.s.m.l.5026]

Please don't be so hard on yourself, being sick isn't something you can change, and the more you try the worst it wril get. we love your work and of course we do wrealy think you are wort wating fore. Sorry if Im misspelling or saying things wrong, I'm from Denmark 💝🌹🥰

[@DCHL5260]

Sorry for what you are going through through I am glad you are able to make a video It is so nice to see you take care of

[@kats8432]

You don’t have to be perfect. The way you are and the way you do your videos is amazing. You help so many people. Your style is your own. Your human. You’re honest and that is amazing. Chronic illness is not easy. Living with it day to day is not easy. People don’t always see it, nor do they understand it. It is very hard. It’s very important to take care of yourself. Finding a balance it is very hard. Dealing with illness is often a full time job. Please know you’re not alone. Please know that your content doesn’t have to be perfect. You don’t have to be perfect. Sending all the healing and positive vibes possible. ❤

[@sweetseasons2510]

I understand this deeply my spoons are limited often. Ebbing and flowing. Honestly sinead i prefer to see the real you anyway. perfection is an illusion ❤

[@robertaamelio6818]

You are wonderful. Love love love ❤❤❤❤

[@helenwitmer4815]

We luv u being u. Best of luck w/ future tests. We r here 4 u!! ❤😅

[@Takerslove23]

We love you for you! ❤ it's nice to just talk and have a get ready with me.

[@ericagomez-trevino6458]

As a fellow zebra and spoonie/potsie, I understand this so well! Gentle hugs and grace sent your way 💜

[@rebeccam9207]

fellow eds warrior here completely related to this video as i am also a makeup artist and have found it so hard to try and work with eds and it's other health related issues. just keep doing videos they are always great and informative.

[@cupcake50jh]

May the lord heal you and give you strength 🙏🏻

[@NikitaUnique]

G-HSD/hEDS, orthostatic hypotension/autonomic dysfunction, autoimmune issues, with spinal cord damage here. Also a perfectionist. You are NOT alone! I SO get it, and I’m so, so sorry for all your struggles! Not just each day is different, but it changes from minute to minute, which makes planning anything (or saying “yes” to things) very difficult. I just want you to know that I prefer videos that are imperfect, because that’s REAL. No one is perfect, and those that seem that way…things are often not as they seem. Much of anything online is curated, and gives such a false sense of what’s real. Real life contains struggles of all kinds. It’s wise and healthy for us to remember that, and be there to encourage others, even if it’s just via a comment section. I am SO PROUD of you for getting in front of the camera and making this video. Please know you are loved and prayed for. ❤️🙏🏻

[@natgl11]

i understand what you're going through and relate to it so much, perhaps because i also have POTS and HSD (used to be hEDS but they decided to kick some of us out in 2017 for whatever reason, so we're stuck with the even less known HSD label and taken even less seriously. oh joy/s). I also have ME/CFS with really bad PEM and am autistic. it's very difficult having to constantly monitor and manage all these conditions, it's so draining and keeps us from so many things we would want to do, but no one sees that. I really felt it when you said that we can't afford to be carefree or careless, not even for a day like a celebration, because it comes back to bite us with a vengeance. I really related to the struggles of having to accept the new baseline, that perhaps you can never getback to where you were before. I've been there a few times. every time I think that I've done the psychological work of accepting my illnesses, when they remind me once again that they're there and i flare up and my baseline get worse, I have to do that work all over again. I also struggle with perfectionism and not being able to achieve what i want due to the physical limitations. I'm trying to incorporate the mindset of "done is better than perfect", but it's hard. for what it's worth, as a viewer, I will appreciate any content you decide to put out at whatever pace you think is best. from your in depth tutorials to more chatty videos like this, I think they all offer something. what you said you hoped to achieve to comfort someone or make them feel certain kinship or understood, you have definitely achieved with me. i do hope you can get better again, but if you can't, i hope you can make peace with it and find happiness again. sending you the gentlest of hugs, lest something pops out of place 😅💖

[@junelawler4008]

You ARE perfect and the most beautiful person inside and out.

[@Faithers38]

I needed this,seriously. I am right there,thank you. Your channel just popped up! Thank you! Be gentle with yourself! You're beautiful!

[@stephjohnstone4204]

I totally relate to this ive been chronically ill since my early 20's now im late 30's. I try take one day at a time im ive learned more recently to ask when I need help rather than ware myself to the ground which means I have more better days. Be kind to yourself and take one day at a time. x

[@valeriestilwell1479]

Thank you for sharing and being so vulnerable. I have different chronic illness but they change how I live life as well. The strength it takes to be vulnerable is more than people realize. You showed so much strength in this video. Keep going and do what you can when you can. We will be here when you are ready.

[@starrynightsky3]

I can so relate being a perfectionist and having POTS, chronic migraine and fibromyalgia myself. It can be so frustrating just trying to get through some days and trying to live a normal life. You are not alone and we appreciate your videos, please do not feel that you have to portray perfection. Take good care ❤

[@johnjerusha]

I'm so so sorry! And yes I am so sick of being sick! Everything you said is so true and makes me feel seen and validated. Thank you for sharing! It is a full time job. I said to my husband that I just want to have a week off of thinking about and managing my life with chronic illness. I am constantly assessing and observing and monitoring, and I get so tired of it. Last week I actually had a planned week off of monitoring etc and even though I did end up having a flare up, I new it was coming so I could plan for that, but I still got the mental break which is what I really needed. I struggle with the mental and emotional side of living with chronic illnesses even more than the horrible physical ailments I have with chronic illness, as bad as they are. Thanks again, Jerusha