This Is Lupus

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Hey guys! This is a video to help those w/o lupus to realize how serious the disease is. Please share this video!! Hope you all are doing well.
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My name is Samantha Wayne and I have been creating advocacy videos on KZbin since 2009. I created Live Hope Lupus in order to create a space where those with chronic illnesses could get information and support. Please subscribe to follow me along on this journey!

[@jronco2]

I can live with the pain that doesn't bother me anymore I just can't stand being depressed nothing makes me happy I really miss being happy

[@24OakRaiders]

Subhanallah. please read the qur'an. you have nothing to lose.

[@bonnienewman474]

Honey my pain has done got to me God Bless u u r in my prayers

[@georgerangel6628]

My name is Whitney. I was diagnosed with Lupus July 18th of this uear. All I have to say is stay strong, not everyone will believe you when you say you're not feeling well, most ppl does not take it serious. However, I'm praying for each of you. Thanks for the awareness.

[@Allthingshome_byJesslee]

I got diagnosed with lupus when i was 23 years old ,im 30 years old now, I appreciate your videos because i can relate to so much on what your going through! Thanks for your videos! 💛

[@carlosnavarro9951]

I'm a 42 year old Latina mom and I was just diagnosed with Lupus. I initially was diagnosed with Hashimotos Disease a few years ago. The pain is the worst part so far. It keeps me from doing a lot and I have a toddler running around. Thank you for your awareness of this.

[@xXJoshuaisdabananaXx]

I was recently diagnosed with lupus. Surprisingly I am white, ten years old and a male. Strange but as she said possible. I have a friend who has lupus and her and I have formed a singing group to raise money for lupus research. If you see us on the tv show The Voice please vote for us, my name is Joshua Duran and the girls name is Dustinee Lohman.

[@lindsayparkes6086]

Thank you so much !!!!!! took 10 years to diagnose Lupus !!!! I actually as a sonographer had to approach my GP and say I am sure I have Lupus. !!! And push for a referral to a specialist !!!! who was wonderful and diagnosed lupus! now on medication . . hydroxychloroquine see how we go !!!!!! hope you are well and doing ok ? lots of love from Lincoln . UK xxxxx Lindsay. xx

[@pandabear81]

I was diagnosed with Lupus on January 19th of this year. I have many people in my life who are clueless about what Lupus is and what it does to a person. Thank you from the bottom of my heart for sharing your story and I have shared it with my family and friends.

[@ericsharrock5844]

Well done, I am one of the ten percenters. A 50 year old male. I was diagnosed a week ago but the symptoms have been with me for a few years. They have just now become hard to manage. Your video is the very first I have watched since my diagnosis. Thank you for putting a friendly face to this disease. You are very encouraging.

[@mistyhi63]

The good news thou is, she became pregnant just a month or so before she was put on dialysis treatment, Unbeknown to her or the medical team, until around her eighth week. Shocked by her med team, they told her she will have to get it terminated because of the risks she & her unborn would have to face. They told her either, she could risk losing her life, her baby or both! They rushed her to the nearest hospital that handled these situations 434 miles away. Luckily, for her this was in the city where I lived. When she rang me,she told me to expect her here the next day and told me the reason why she had to come up. I was shocked, but said to her I'll meet her there when she arrives..I needed to chat to her team about the termination. I argued with the term (my girl was left with mixed feeling) and told them to give my daughter a choice weather she wants to go through with this termination or not. I could understand what they were trying to do for my girl, but also to give her an option of how she felt in going through the risks! She knew the deal, if she lost her life becos she gave it to her baby, then that's what she was going to do! If the baby didn't make it, then, that's okay too..it was understandable by nature.. To make a long story short, she stayed in bed rest at the hospital for the rest of her pregnancy, so they could keep on eye on her & baby's progress. She had to undergo two operations & they had no choice but to give her antiseptic to help. Hoping & praying we weren't going to lose baby because of it was mind boggling too. My darling daughter (who is so so strong) gave birth to my first grandson at 30 weeks of her pregnancy. When he was delivered a few minutes after,he stopped breathing for up to 60 seconds, but he fort back & recovered (thank God, literally) Besides that, he turned out all so healthy (except his lungs weren't fully develop properly yet, obviously) and they both made it!!!!!! He's 15 months now & he's such an adorable little fella & know where he gets he's strength from. His mother had done a wonderful wonderful job & I love them both to bits. I also want to thank Heavenly Father for helping them both through their ordeal & also to the medical team, that helped them both..Miracles can come true :) :).. So sorry for the long comment and read..I hope lupus suffers will stay safe and very well and stay strong..God Bless..Thank you x0

[@briannasanchez9554]

I love how well you explained lupus. I was diagnosed with lupus when I was 15. Even this video made me understand it even more & I've done research since I was diagnosed. I feel like people this lupus is just a disease that is not that big of deal. I've had so many health scares and hospital stays that everyone at the hospital knew who i was. It affected my heart mainly with pericardial effusion, pericarditis and the chest pain was no joke. Thankfully I haven't had chest pain in over a year now but I still have pain in my joints and rib cage where I can't yawn, take a deep breath without agony pain. I can't even remember the last day I had that I didn't have pain. But i learned to deal with it because complaining or stressing over it was just gonna make it worst. That what's tough about lupus, it's living with it. I really hope everything works out for you, I hope you never have complications. I pray for you and hope your in full remission.

[@unstoppableserenity9839]

I was also diagnosed at age 15. I'm hoping everyday that the symptoms go away.

[@gypsyspirit8472]

Great job sis explaining our illness, that we live with everyday!!! One day I hope i will be brave enough to share my own story, like you have. I hope everything is alright with you today and all the others. Today is a sucky day for me, its raining where i live and my joints are inflammed and i'm in pain of course, but i'm still smiling.

[@bluevn2002]

Great video. I hope many ppl see this video and gain an understanding of what Lupus is and what can happen to a person who has this disease. Very well said

[@LeahsDolceVita]

I love this video! I have lupus as well and you did so well explaining the disease. You go girl!

[@pinkheartbren7]

thank you for explaining it . We need more awareness !! So we all could live pain free

[@FoxsterD]

The symptoms come and go. Went through many stages of denial, anger, & acceptance. And sometimes just totally pissed. During a pissed off stage I made the decision to never let Lupus define who I am. Bare in mind, my positive persona didn't come easily. Like climbing a mountain and then slipping all the way down. Pulled myself up and began to climb again. Slipped over and over and over. But, never gave up. Hope gave me the ability to finally inch my way to the top. And the view is mesmerizing.

[@Lifeinthesun11]

My recent major flare up is finally after 3 months subsiding. You are so right, people think because you look ok that you are ok. Only those close to me really know just by looking at me how my day is going. Once again thank you for sharing, hope you are doing well also :)

[@lovedancegreen]

you are strong!!! thank you for the information

[@traceyryderpromotingtammyt9837]

I can't thank-u enough for doing this video!!!!!!! I have been called a fake, there is nothing wrong with me....because u can't see it's not there to the people who don't believe me, thank-u from the bottom and top of my heart!!!! Tracey Ryder

[@ashes1534]

great video. I posted one on a bad day of mine when i was 22 because i was so fed up with how people treated me or how bad i feel everyday its so frustrating

[@Fierakja]

I have lupus too thank you for posting this video im 28 and i was diagnosed at the age of 7 it is very hard to live with but all we can do is fight and move forward thank you again for your video !

[@jco5881]

Praying for you!!

[@annim6367]

Well spoken! I'm in my early 50's and was diagnosed in May after spending the previous months crying in bed from joint pain. It began for me in 05 when I discovered that I had Mixed Connective Tissue disorder, Next, I was hit with Raynauds, but the lesions didn't show until this year. I was lucky to have one son at 36.I'm on meds now which have cleared up my facial rashes,but inside, I'm a wreck. I only wish to see my son's graduation. Good vibes coming to you and be as healthy as possible.

[@halfofmyheart3167]

I'm 30 I was diagnosed at 30. Thanks for making this video ♡

[@lulaalder8254]

Just watching this is devastating. There's nothing more that I want for you and fellow sufferers than a very effective treatment. I wish there was a standardized program that combines diet, exercise, medication (only if necessary) and natural remedies to fight this and prevent its progression. Sometimes its hard to have hope, but I have hope for you, and I always will. Please know that there are so many people supporting you, including strangers such as myself. Please take whatever accommodations you need so you can continue your education and to lead the life you want. There is never any shame in asking for help if you need it. My thoughts are with you. Here's to a bright future for you

[@Aretha1963]

Enjoyed this video very much. Often times I forget how serious lupus is myself. Gotten too use to hanging out by myself when I am in a lot of pain,and at that point I begin with addressing the pain without having the cause on my mind. But lupus is the reason for my pain more often than not. By the way I am praying for you when studying and taking finals. But you can do this. When God is for you, no person, place or thing can can hurt you.Keep pressing toward your mark.

[@hectorvasquez9111]

i am a 47 year old male i was diagnosed last year,is not an easy task the one we have.be strong am strong.you know i use to drive rigs but with this i can no more.but is just me don't let lupus keep you from what you want living.love the east.

[@julypatino6434]

Hi Live Hope Lupus, thank you so much for your video. Very educational and very true. I hate to say I am glad to find other people who knows what it feels like to have this medical condition. And I mean this is a nice way. Some days are harders than others specially when I feel so tired that I can barely function or when the medications like to play giving me side effects but just like the name of your video this is a message of Living in Hope. Although it is not easy, lets wake up thinking that we are survivors of yet another day to have fought this thing. I also focus on God and fill my spirit with the strength I need every day to deal with the people who dont understand what I am feeling or how hard this is to go through. Blessings to everyone and lets pray for this illness to be defeated forever

[@FoxsterD]

Thanks for your informative video. I have lupus too. As well, several other diseases. I have found that laughter and humor are great medications. Don't hurt on a daily basis. I do attribute my capabilities to a positive attitude. Lupus has been a part of my life for almost 13 years. I did spend almost 3 years bedridden. Pain so severe thought I would pull my hair out. Well, I didn't have to pull my hair out after all. I also have Alopecia, a symptom of Lupus. Lost most of my hair.

[@jeffreyoliver4822]

Thanks for sharing your story and information. I hope you are in remission and are leading your life as well as you can.

[@nollyhernandez6534]

Hello. My name is Nolly. I've had Lupus for aBout 25 years now. I've had everything from severe anemia, arthritis, fatigue, ulcers in mouth and nose, pleurisy, Sjogren's, low platelet count just to name a few. I am now receiving Benlysta. I had my first one a week and a laf ago. Second one is due on December 2. I feel nothing yet but I have Faith this will help me. I found a fb page by the name of Benlysta buddies and they are the greatest. I love the people there. They all have Lupus and we ask each other questions and just get to know everyone. You should look them up. Well it's been a pleasure watching you. Thank you for all that important input. And above all educating people about this disease. I wish you luck and I pray god heals you. I put my first video the day of the infusion. It was a bit crappy but again, it was my first. Still confused on editing. Well sweetie you take good care and have a gn.

[@roemelnicove7884]

Nolly, I may have something to help you, it surely helped me with my Lupus. E-mail me for more information: [e-mail]

[@NaysWays]

Thank you for this! XX

[@purpleflower502]

I have lupus too but you stay strong luv

[@mistyhi63]

My daughter was diagnosed with SLE when she was 10. She's 22 now thou, but she has been through a lot since then..She was on various medication since her diagnosis and doctors had told her she will never be able to have children..that was a sad thought! As she gradually became a teen, she stop taking half of the eight medication she had to take on a daily basis, she wanted to end her life many time, because she was tired of it all. She lost a lot of friends during her schooling times, because she was half the time sick (at home) or in hospital and family members (including myself) treated her like a sick little child and we never saw past the fact that she was turning into a growing woman. There were times when she just wanted to stop her meds altogether & let nature take its course! She was offered counseling, but turned it down. She used to be an outgoing, sweet, and caring little girl, but now she looks at life in so many negative ways! It saddens me to see her struggle with herself, but there's nothing I can think of to help my sweet lil baby. Because she had stopped taking half of her meds, she ended up on dialysis and has been on it for almost two years! Her body had a hard time accepting the hemodialysis tubes and what have you, cos she kept bleeding out. Then, they put her on the peritoneal (i think that's what its called) but, she used to get infections, which made it painful. But, it grew on her and she become to except her treatments at last (thank goodness *sigh*)..cont..

[@Rinapierre]

This was amazing thx for getting this info on lupus out there many people have know idea how serious lupus is...

[@dielemon]

Hy dear. This is a great great great video explaining the disease. Explaining invisible sickness to healthy people is really hard and i think you did a great job. :) hugs

[@loganpaulfanloganpaulfan9561]

i have kidney lupus since 2nd grade all the way to 5th grade and having to know now that i am not alone makes me feel better

[@cp_honey]

I'm so sorry for what you're going through! I've had lupus for 7 yrs, but got the correct diagnosis just this year ("teen girls simulate, they don't get ill"..) Despite no diagnosis I was on prednisone for a while too& know too well what you mean :( But it got back to normal within a few months of being off it. I so hope you're receiving good treatment& have good doctors, and that you'll be ok in terms of future job/university. I find that the biggest problem, but I know it's only for some. xxx

[@fab12749]

Thank you for this Vid! We just found out today that my younger brother 25 years old has a Lupus. This is such a heartbreaking news for us and most specially to my mom. :(

[@oebaywardhana1521]

I am a father of two toddlers who had lupus. As a working for living man, having lupus is amazingly difficult. Some of those healthy people thought that I was just being lazy when I had that sudden fatigue attack. And there are few times when I suddenly fainted on my work. I don't have any butterfly rash on my face, but I lost my hair and some of my teeth, and some other internal organ damaged pretty bad. Lupus is a disease that could only felt by the luppie themselves. Most people don't see it, but it's there. My best wish for all of those luppies out there is for you to have enough strength and courage to keep your head up and live as happy as you could earn. We all deserved those happiness.

[@kathysheehan1]

😓praying for you.

[@AngiesJonesPoetry]

wonderful video full of info, thanks for posting

[@TheAnnamarie49]

Very good video ,great way to explain,someone right now is searching for this information,hugs to you

[@milliethepomegranate]

You have a good attitude, stay strong 3 xx

[@Yogababe8]

Thank you for informing. My husband has lupus and has been on the prednisone and plaquinal. Plus now chemotherapies to try and put it in remission. I pray to see a cure in my lifetime.

[@writerinc]

Thanks for your post...you are beautiful inside and out. I was in high school when lupus started with me and I lost my kidneys, been on dialysis for four years but staying strong. I have much to share soon on my page but you are strong, keep your head up!

[@roemelnicove7884]

I may have something to help you, it surely helped me with my Lupus. E-mail me for more information: [e-mail]

[@munobulaale6335]

Roe Melnicove hi ihope u gud really would like to know what it can help I'm a lupus patient and I need to know what helps without medication I'm tired of medication

[@richjustrich8043]

My wife has skin lupus. Her friend Marie just died from her lupus from liver failure! She suffered for a couple years,until tonight at 10:30 pm. She also lost her mind quite a bit. But now is in a better place. Take care of yourselves. Both are white.

[@jennahatch2339]

CELERY AND PINEAPPLE SMOOTHIE WORKS FOR ME FOR INFLAMMATION OR MY HANDS. BLESSINGS

[@lemontea128]

I just recently got diagnosed in the middle of march and it was at the hospital. I ended up in the ER cause I had a fever that wouldn't go away and I didn't know why. I was also very very week to the point where I could barely get out of bed and barely eat which lead to 20lbs weight loss. In the ER the doctor told me that I could've died because my hemoglobin was very low. Having lupus is scary and it's hard to tell what will happen next. But going to the doc and having check ups now and then is the way to keep everything in check. I do hope they find a cure in the future for Lupus. I didn't even know Lupus was so common until I have it and I asked around and 10 people I know also knows someone with lupus.

[@nickirae2115]

You're awesome!

[@Praisegodnigg]

i got shingles twice now along with kidney issues and such..i was told i had lupus @ 14 also..i'm a professional musician and i can no longer commit to awsome giggs ..it sux..i saw ur other "rant" vid and i realize i'm not alone i guess ..thanks for this post!

[@lynnbenton880]

my sister suffered from avascular neucrosis as well as lupus.... Dance in Paradise Ginger Maureen!!! 4-8-11

[@trailblazerboards5973]

funniest video this week, your presentation, priceless.

[@wayneus3]

Very informative!

[@Dawnnamullen]

Great video thanks for posting this I shared it to Facebook :)

[@MGenterprises46]

Thank you for your courageous and authentic share :-)

[@Iceis_Phoenix]

I think I might have it I'm going to get checked

[@kittiebolanos5801]

I just had my first flare. I was diagnosed with Hashimoto's disease about 2 1/2 years ago. If you have one autoimmune disease you are more likely to get others. I have had the positive anti-bodies for lupus for about the last two years. The fatigue is awful. I gained a lot of weight and I thought it was all from the Hashimoto's. I think it's a combination of both. So far mine is mainly affected my skin. I belong to several groups on Facebook and they totally freak me out. I never realized how serious Lupus was.

[@mitshu182]

Thank you for your video... my sister has just been diagnosed and I am of course trying to understand... thank you

[@awatiffatima1825]

anan

[@SummerHelene]

Love what you has to say! While diet does help (my lupus is chemically induced), I did find a diet that helped dramatically, it is called the Palm Springs diet by a gentleman named Dr Kenneth Russ - since being in his care I have not been hospitalised, it is been two years and it was meant as weight loss diet and (it nothing to help me lose weight) but kept me out of the hospital from the moment I started it. It was never meant as a lupus a diet but I have recommended it to a lot of friends with Lupus (they have a mild version like I do) and they have the same effects I did, I did nothing for the weight but it helped Control the lupus (I do not know why and I do not know how) but it did help!

[@christineclarevilgos-mitch1955]

I have systemic Lupus, Ehlers Danlos Syndrome, Chronic Lyme Disease, and a few other tic born and autoimmune illnesses.

[@TanglesInTiaras]

I was just diagnosed with lupus last month, but I've been dealing with the symptoms since I was a preteen. I hope a cure is found soon. It sucks living with a disease no one really knows about.

[@chatj9832]

I was made to understand that in USA 15 million people add on per who suffer with autoimmune disease You look very positive! I’m sure many looking at this video will not say that ur SLE ! I’m sure the modem treatments and canaboloids have helped many ! A person whom I know is completely out of SLE the community and the government Should help to understand this issue and help them to move forward

[@LifewithKrystle]

Amazing video!

[@anaheim1997]

I have lupus as well. I was diagnosed at age 44.

[@sherilynlum-alarcon5007]

Thank you. I am learning more as we pin this down. I am just getting diagnosed and it most unwelcome but whachagonna do? Be well

[@lauralupusandsupport5802]

Great video!! Lupus is real....

[@mikemoreno7354]

and by the way im not a doctor or even a natural doctor im just extremely good on natural things and most of all just a really nice person.

[@HealWithSamantha]

I would definitely ask your doctor to check for lupus. Have them check your ANA and tell them all of your symptoms. That's how my lupus started out as well.. I had mono first, hip and back pain, extreme fatigue, and I got shingles shortly after. Best of luck to you. You can message me on here if you'd like.

[@sheilaacostagutierrez5103]

Hello my name is Sheila when I was a baby I had thing in my skin that doters didn't know what was going in with me. My joint always heard but I didn't know why was this happening to me. I was bullied and pick on all thought my life. Now I am in 7th grade taking lots of medication because of Lupus. I am 12 and still scarf even though I know what I have. Thanx for hearing me out. Sheila Acosta Gutierrez

[@madysonwest6030]

I was diagnosed at 14 as well.

[@KyleCaseySniperWolf]

im not sure but im quite sure that i have it :/ im a guy and i have the symptoms i will update my comment once i get a doc to look at it, until then keep this on your mind, "No matter what someone thinks and no matter what someone says you are always beautiful inside and out never let anyone get you down and just remember your friends will always be their for you."

[@enriquerodriguez1523]

Hi have not seen any of your videos in a while. You see I have lupus (sle) short term I had it then kidnys failed and I was lupus free and now I'm 1 of 5% that lupus comes back while on dialysis and also pericarditis issues this is hard. I have fallen meaning I had to start treatment for it all over but I will get up I will brush my self off and keep movieng so your not alone

[@PERBub95]

I had just turned 15 when I was diagnosed two years ago and this has been the hardest thing to deal with in my life. I wonder everyday what will happen in the future even though I am ok now due to medicine. All I remember is my hands blowing up and it getting hard to walk. I hope I don't wake up to that again.

[@gladysortiz89]

On monday 7/6/15 got diagnosed with lupus I am 26 years old Hispanic. 3 months ago I had my daughter. Ever since I had her I developed high blood pressure and also went into a depression and now this autoimmune :(

[@lupeguzman796]

hi gladys hru doing now? :)

[@calonacampbell9197]

Yes very scary. And the pain is unbearable. And on top of that I was diagnosed with fibromyalgia. Lupus SLE and CNS has changed my life.

[@calonacampbell9197]

@Francesca Culley I really truly believe if it was a cure someone would have came forwarded by now to help us and for the money. But no one has yet. Why haven't this person come forth with this so called cure ? Obviously you couldn't have had lupus. Thanks but no thanks no disrespect 💜

[@calonacampbell9197]

@Francesca Culley well I'm glad you're cured and well. Gn

[@LilMissEmo24]

After my lupus was in remission for 1 and half years it has reared its ugly head again along with ra and ist this was not the news I wanted to get . I was just to do have to start the benlysta infusions and I'm still on methotrexate . Scary isn't the word . I'm terrified . My sister passed away when she was only 26 years old and knowing what lupus can do that was really hoping I had more time in remission .

[@FarmusBoyus]

have you had a chance to look at seeing an upper cervical chiropractor (such as NUCCA)? If not I would highly recommend it. Lupus like all auto immune conditions is the brain not communicating with the body's immune system in a clear and coherent way. If you have a change in tone in your spinal chord, this can change the way the brain communicates with the body. It will send increased or decreased messages, or just the wrong ones entirely. I am not saying chiropractic will cure you, but it will enable a better connection between your brain and your immune system, and then who knows what your body can do. You were born able to heal yourself, why should now be any different? I wish you all the hope and love I can :) xx

[@natalianeves8680]

Eu também tenho Lúpus

[@DeshawnDoodlez]

I agree, I have Lupus and I'm a male African American at that but I go to one of the best hospitals in Florida called Shands its located in Gainesville FL, but it took almost 5 years of me going to the hospital every month and sometimes staying for weeks and weeks. To find out eventually after all these test I have Lupus, and its on my heart smh giving me CHF (Congestive Heart Failure) and way more conditions. Its like I'm an old man but in a younger body. But hey what can you do but HOPE! righ

[@roemelnicove7884]

Deshawn, I may have something to help you, it surely helped me with my Lupus. E-mail me for more information: [e-mail]

[@kileber5020]

My birth mom has it so there is 9out of 10 chance I will get it I'm scared but your video helped me understand more thank you

[@MsBlank]

I am 33 diagnosis at 21...lost my teeth at 22 2 heart attacks gallbladder at 21....so much more... I get it...

[@way2hotcuttie]

Ms. Blank wow you're so blessed to still be here .... I've had lupus for 20 yrs ....

[@PomPomTimy]

I have been diagnosed with lupus 1month and 2 weeks ago. Had a major flare up and nearly died at the hospital. I am only 19 and studying law in university. I will keep fighting no matter what. The things which I hate the most is that prednisone and nephritis makes you retain water, therefore I started noticing that my face is moon shaped and I am loosing so much hair... Its so hard to look in the mirror and not recognise yourself anymore... Skinny legs and arms, no curves and moon face.

[@davidfearon2772]

my friend has lupus, she is 17 and it has got worst to the point she has had kidney failure

[@willywilder6034]

I'm a white man with lupus, diagnosed this year (I'm twenty). This video is great, by the way :)

[@decembersnowfall]

Why is this disease never discussed? Why is this condition never brought to light? We hear so much about cancer, Parkinsons, RA--just last week the Today Show did a few segments on Alzheimers. "Good Morning America" did a segment on endometrium cancer. My husband had absolutely no idea what this was until I was diagnosed earlier this year.

[@dealovastudies]

My sister has Lupus and since then I've been meeting so many other patients who are in the same situation. And I swear most of them are girls, and pretty! like you. I'm not kidding tho. I hope you're doing okay:)

[@wendyhabimana7377]

Hey , I have lupus. I got lupus when I was 12 years old, I'm now 13, I'm currently on 5mg of prednisone but still have a moon face, I have a doctors appointment tomorrow to see if I can go down to 2.5mg , I hate my body, I used to be so thin and beautiful, now I'm fat & ugly, I hope you're holding up alright :) #GoodLuck ♥️

[@hectorvasquez9111]

wendy habimana, don't feel bad,i am 47 year old man and me to got lupus i take 40mg of the same, imagine me 40mg. don't let that discourage you from living a normal life.God bless you.

[@sophielapointe1136]

I have lupus I have been bullied and pushed aside because I was misunderstood I got diagnosed at 10 and now am 13 I have been through so much. I also do judo and that my main focus right now and it helps manage my lupus even if I am in constant pain, I take meds I find it un normal for a 13 year old to have to remember to take her meds, it's just a pain in the ass

[@Jacqueline17678]

@Diana Isajeva, is there any way at all to prevent the moon face? what if you ate very little and took water retention pills?

[@hiyachakma8452]

I was diagnosed at the age of 17

[@kathysheehan1]

My daughter might have this ?

[@khamikos1]

keep faith medicine is driving forward... someday remedy will be found and youwill get rid of the "scary thoughts" oofthe complications of lupus.goodluck

[@selenagarcia6551]

I have lupus too

[@waleska1963]

Part 2...I'm under my daughters account. Her name is Nicole Hernandez. I think it's under my 1st Benlysta infusion. I have a striped hoodie white and purple. GB

[@Sunnyux]

I wish you luck you are so strong :) I have chest pain reflux there's a chance you can cure it but mine isn't curing I know it's not like lupus but I hate this and I hope it cures some how 😊

[@JeezeEloise]

I know that everyone that is offering "cures" are coming from a place of love. But don't you think if something as easy as say yoga was a cure, suffers would namaste all day?

[@MsBlank]

the best one is the ppl that say "u just need to boost ur immune system"....but u can't just say..... no that just kill me faster

[@jeanetteblessed2647]

thank you one of the most anoying thing to hear is go on KZbin theirs a cure ? really !!!

[@MsChesireKitty]

I have a question. My eye doctor is requesting I get checked out by my doctor because she thinks I have lupus. I have a rash that looks identical to the Malar rash just not on my nose. At first my doc said eczema, then ringworm, and yet it wont go away. This has been for 4 months. I get head aches constantly. I had mono, and I sleep all day and yet am still exhausted. I have extreme hip and back pain. I also had shingles in November. I get sick ALOT. Im nervous and scared. Idk what to think:(

[@daphneygarcia2104]

I am 15 & I was diagnosed with Lupus about 4 months ago. The lupus attacked my kidneys right away..

[@rumali4800]

Who was thinking about Selena Gomez while watching this video?

[@MrUseless247]

!!RUMALI!! I think people are too busy are worrying about themselves.

[@victoriahaines8211]

Hi I’m new but i wanted Say I found this while looking at some lupus videos cause my mom is certain I have it.i break out into little rashes on my feet that is temperature warm and burns and today I recently found out that I’ve been getting the butterfly face. So I’m nervous

[@gabrielavalladares7202]

I'm scared, I'm terrified :(