This is not safe.

[@smartypantsjova]

Everyone in the comments expressing their frustration with America’s broken health care system, remember this when you vote. Remember Shane and others in similar situations when you vote. Remember to vote with compassion.

[@davidgabrie1302]

It doesn’t matter-Russia puts whom they want in Office!

[@betsylindsay8480]

We all need a Liz in our lives. Next best thing? You sharing yours. Incredible love and support from family, friends, and fans for you two.

[@eaylward95]

Betsy Lindsay Aw, thank you!!

[@betsylindsay8480]

Mama Bear I mean every word of it!

[@gardengirlgirl7595]

Liz is absolutely the BEST!❤️

[@singingpretty]

Liz amazes me. What a beautiful soul!

[@alzheimerslifeofrosie260]

Someone said they are emotionally invested in Shane's life. This is so true. I go on youtube daily to see their videos and if 3 days go by with no video I go into panic mode. I'll go one extra. When they say when he is going to appointments I always put it in my appointment calendar so I can give Shane a little extra thought and send positive vibes. I might need a life or a hobby. I have 5 kids and as if that isn't enough to deal with and worry about I have emotionally adopted Shane as my 6th kid lol

[@leahunfeigned5955]

This insurance foolery is so frustrating. I pray everything works out quickly.

[@GIDEONkjv]

Insurance is one thing... its the COST of the drug/drugs where the real problem lies! Apparently (squirmy and grubs can chime in if im wrong) they charge 100k per injection which is RE-diculous for a life saving drug!

[@dlday7821]

Leah Unfeigned when I turned 65 I found out I would no longer be on some long term meds unless I jumped the Mississippi. Stinks!

[@ChrisPage68]

I'd be more than grumpy if some pen pusher in a health insurance company had my life in their clammy hands. It's immoral to hold people to ransom in my country. In America, they call it "healthcare". 😤

[@carlos66965]

And tons are brainwashed to believe thats just how its supposed to be. Sad.

[@purplesage2621]

What country are you in?

[@ChrisPage68]

@@purplesage2621 🇬🇧

[@lorimcfarland1636]

It's insane that insurance can deny something your doctor thinks you need.

[@YTistooannoying]

Yup, I think it is immoral to be able to turn a huge profit with stockholders etc, based on someone's life and death.

[@jermiester7772]

Hey Shane, I get nervous when they’re drilling a hole in my tooth. But on a positive note, at least you have a spine. I’ve met many people throughout my life that were spineless!

[@donnawoodman6249]

Jermiester777 Lol 😂

[@shafrobert]

Hang around with Senators a lot do you ?

[@maggiecarreiro]

Best comment ever lol

[@KDu400]

Jermiester777 you must know a lot of politicians 🤣🤣

[@cherylf.9131]

😂

[@apeekintomyworld8941]

I love all the support that Hannah's family give. Hannah and Liz look so much alike, 2 beautiful women and a handsome man. Thanks for all you guys advocate for. You truly make us laugh and smile through everything, thanks guys!!

[@CatsBestFinds59]

It's easy to forget that doctors and radiologists work for you. In essence you really are the customer even as a patient. If you want your injection like you have always had it, they need to make that possible for you, in addition you absolutely have a right to consult with the radiologist ahead of time, if for no other reason than to reduce your stress. You guys are incredibly nice people but often I find you have to be really firm and direct when it comes to medical needs. The squeaky wheel gets the grease, no pun intended. 😉 Love you guys and your channel. Keep up the good work! 💙

[@allaboutthebeard9309]

This is amazing, my nephew has SMA type 2 and he’s just turned 10, he’s so creative, bright and brilliant. I see a lot of the same mannerisms in you as I do in him. I came across you both from a post on Instagram you both are an inspiration, I’ve got him watching your videos and laughing with you both already. Thank you for bringing light to the world. We’re in the U.K. and unfortunately Spinraza hasn’t been made available for us yet. But i hope it will be soon!

[@evazylla]

Why am I so addicted to you guys? Simply Awesome LOVE

[@mjireland1]

Shane your poise during these heartbreaking setbacks is unbelievable. You guys are both so gracious. I'm also glad you wore your "I Voted" stickers. This upcoming election is for the soul of our country and is so important for those depending on affordable health care.

[@deloresmascari8597]

Sending you both love and prayers. Shane, you are going to be just fine. You are a strong man and fighter. You are like Rocky ...

[@debbaxter6615]

Hi Liz,, you are a wonderful supportive person.

[@ou8venus2]

I’ve never commented before up here but you know I can’t help but say I adore you both! It is so sad how too many people base things on first looks only. The more I watch Shane the more I can totally see the attraction. I love his smile best of all and a sense of humor is so what I look for. I wish you both many days of happiness and continued love. You both just are made for each other! So many of us never find our “person”. You are both so lucky! Thanks for letting us into your life. I hope you guys continue to get more subscribers. I can’t wait for the next video every time! Xoxo

[@sarahh4927]

Seeing that you guys had posted a new video was the one of the only good parts of a really terrible day for me. I have a genetic disability that, among other things, impacts my immune system, and today was tough because someone told me that it doesn’t matter if I die of the Coronavirus because I’m “weak” and that’s “darwinism.” I know that the person is unbelievably ignorant and completely wrong, but sometimes hearing that kind of cruel and hurtful stuff gets me down even if I know the person is just being bigoted and ridiculous. Then I saw that you guys had posted, and my heart got a little happier. So I just wanted to say thank you guys so much for sharing your lives with us. On days when the ableism of our world starts to crush me, watching your videos is one of the ways I can find strength and self-love again. Anyways I know this comment is long and rambling and not really related to anything, but I just wanted to tell you guys how much your videos mean to me and how much I appreciate all the good you guys are doing for the world 💕💕💕💕

[@dawnhicks7133]

Ok, I watched 1 video of you on Facebook, and totally fell in love with both of you. I am now watching your vlogs from the beginning. I am disabled due to a variant of spina bifida. I watch you guys right before bed so that my day can end on a good note. Thank you so much for the positive content!!

[@wheelie26]

You two are so endearing and you always manage to make me laugh, even if the topic is quite serious. Good luck with all this and I hope you get your last injection really soon, the things we have to go through!

[@trapps99]

Keep fighting the both of you. You deserve the best care available. Good luck on getting appointments and approval quickly

[@CookingwithLouise]

I love how you two can laugh and make jokes about such a serious procedure. Also, you both look great in this lighting.

[@deborahmontgomery2812]

Please do keep us updated...You are incredibly brave. As if insurance nonsense isn't enough to wade through, it really does seem reasonable enough a request to speak to radiology ahead of time for both parties to familiarize & compare notes. You sure have my support! Love you guys.

[@rebeccarichter4767]

Thank you for showing us what true love looks like. All the ups and downs and you are still there for each other 100%.

[@joyamuedo5820]

I would INSIST on a conversation with your anesthesiologist before day of!!! Your peace of mind and confidence in both the procedure AND the physicians is very, very important!!! That being said, attitude is everything and you have to decide to trust The Force, Luke! You got this!!!❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️

[@itsmeekers]

We all love you both very much oh and thank you for putting the intro back with audio!

[@lindaferguson2264]

Omg, when Hannah hauled out that drill I almost died! Shane, you're something else. And that baby talk was so CUTE! You guys are amazing. As you were explaining drilling the cervical spine hole, I could feel myself getting so anxious. I'm sure everything will turn out okay because you've got the best doctors in the area. I can't say I appreciated that doctor's airplane analogy. Love you guys!

[@kristinwarner4277]

Just popping on to tell you that my 2021 goal was to watch through your videos from the start (since ive only been a subscriber for about a year). So far, im here (its Jan 19th). I also bought both books and am about half way done with strangers assume (the other hasnt arrived yet). Thanks for being such a fun uplifting ray of light during these otherwise crappy times. Love you both (and Chloe!)..

[@sonyah3583]

You are both such good people, wishing well and sending love to you both.

[@Mickeyminime]

I saw a video on Instagram about the two of you. I wish you both the very best and a successful perfect future. Despite what your going through Shane, you're a very lucky individual to have such an angel like Hannah who's there for you. You both look very happy together and if you ask me, if you love and enjoy being with each others company, the world is yours for the taking. The fun, the travels, the memories. It's a shame people judge and assume things, sadly we all do it, but I'm so happy to see how you both find away to make things work despite how difficult it must be. At the end of the day, relationships are built on trust, faith, love and teamwork and from where I stand, you've got it all to make your relationship a lovely one :)

[@bearfamily5524]

I am in the uk and we have nhs I cant imagine how frustrating getting insurance for health care must be! Hope you get your spinraza on time Shane X

[@PrevaiLingArt]

Love how kind you are to one another! Love is cool.

[@Jazzy.girl.Sarah2023]

I love how you both always find humor in challenging situations.♡ Wishing you strength on this tough journey.

[@CraftCollector]

You two are hilarious together! Thanks for the videos

[@nayner2005]

Sending you good vibes and hope you get what you need. I know you are a strong advocate for yourself and what you feel you need. I am happy you have Hannah and her mom by your side.

[@malorielayne3805]

Keeping y’all in my thoughts and prayers. Sending a lot of love towards you two! Hopefully y’all won’t need to have a hole in Shane’s spine and everything works out💗💗

[@valero9620001]

Shane, I hope all is going to go well for you. Don't forget there is the patient's bill of rights and they can't stop you from talking to the Radiologist. I just saw my Neurosurgeon on Friday and she is going to do a spinal fusion of my C4-5-6-7 after some nice shavings down of the vertebrae and put in prosthetic discs since I have none left to speak of. I went through 10 years of injections and they are not fun. I'm a little baby too since I have been putting this surgery off for 18 years. but the relief it should bring will be welcome. I will say prayers for you. If you ever need a Great Neurologist, mine is wonderful and she is right downtown MN at Healtheast Neuro Sciences. All the best bro

[@stacywilson4790]

I pray everything goes alright .What ever you chose to do.

[@CC-xk6cp]

Hi again S&H Keep those positive thoughts going and your prayers too! Don't blame you at all Shane! Don't think anyone would be thrilled to do the hole thing! But if you must have it then it becomes a VIP thing and you will be glad you did!!! Hope all goes good leading up to that with all the particulars. Take good care you two and thx as always for sharing... God bless

[@elizabethrussell9445]

You got this guys!!!! Shane, my thoughts are with you, you’ll be just fine!! Hannah, girl, you are the absolute strongest. I aspire to be more like you in my relationship

[@susanlevine779]

This is ridiculous. Insurance companies need to be taken down. If your doctor says you need the Spinraza, that should be sufficient. They shouldn't make you jump through hoops. Insurance companies are only concerned about their bottom line. They have no concern about the welfare of the patient. This infuriates me. I have had my own issues with insurance companies. I wish you luck and hopefully you can get your treatment soon.

[@eealexander2167]

Positivity and best of luck

[@deniselaforgia874]

I’m so sorry that you have to go through this stuff. It’s ridiculous really! To know for sure that something helps, it’s sad! Makes me want to say bad words! I’ll be thinking of you Shane! and Hannah, I’d want you on my side! Love to you guys

[@kookasaurous3336]

Thank you guys for another wonderful video

[@jmdudley3859]

My thoughts are with you Shane ! You are one tough guy ! Cheers 👍

[@ardithmckeaigg548]

I will praying for you Shane that everything will work out for the best.

[@isnoo1]

HUGE HUGS to you both!!!!

[@heatherkerstetter7477]

Hey, I get mine in my lumbar spine through the side. So if you need someone to chat with about the option, I’ll be around!

[@lafamanca]

Is good to be able to say "hello everyone" from far away with everything that is happening with the corona virus 😅 be safe!! I follow Squirmy and Grubbs from Argentina. God bless you all.

[@kimkincaid5667]

54m4n74 corona much less than Ebola or swine flu.

[@lafamanca]

I don't know. They are talking about it more and more and you wonder if there is more to it than what they are actually letting us know. Don't want to be neurotic about it, I had it in mind when I commented. Be safe, wash your hands 😂

[@veronicasantos8269]

@@lafamanca I recommend you watch Doctor Mike's videos about the Coronavirus. Of course, take all the necessary safety measures but there isn't really much cause for panicking. Besides, a lot of people have already recovered from it. Stay safe!

[@99zebster]

Love both of you so much!! Came across squirmy and grubs Friday and have watched almost all your vids. Lol. Can you say squirmy and grubs binge... love the realism and love shared between you both. Shane you’ve really inspired me. 7 years ago I was diagnosed late on set CMT and mobility has gone down but love your positivity. Squirmy and grubs keep up the good work and God bless.

[@redheadlady41]

I will start a S & G prayer chain for you Shane! Think positively, and pray that the Insurance Co will work in your favor. We're rooting for ya! 👍👍😁

[@michaelgray5021]

I Have seen a very Big Change in the past 3 months. Especially since January. Last Couple of Vids I have considerable noticed a very big improvement with Shane; considering I became aware of this treatment 3 months ago I was concerned about his discomfort going thru the appointment. Now after seeing for myself and hearing testimony and seeing improvement from this medicine I can definitely make a conclusion that Shane will inevitably have more function and more body movement than before. Shane will be able to stretch and move the body as well as maintain more healthy body and muscle fat relative ho him.

[@christinakindler4281]

That's crazy! No drilling holes!!! I would want to talk to the Dr that is going to have you life in their hands too. It will go smoothly and you'll be on the oral meds before you know it. Much love to you both

[@frankendoll1455]

Insurance companies suck!!! THIS shouldn't even be an issue!!!! UGH Makes me so upset!🤬

[@rachelmarkley3967]

We're Spinraza twins! I'm getting #6 on 3/11. Feeling the slump so hoping you get it soon!

[@evonchristie2549]

I confess... I am one of those people that you mentioned in your previous video that got worried when you didn’t post a video for awhile. That’s when I realized that I may be a little to invested here lol. This is the only channel that I watch faithfully. You guys are just so hilarious and I love the adventures you go on. ☺️

[@evonchristie2549]

And I think it is RIDICULOUS that Shane needs Spinraza or not is even a question. But the joy you two carry though the stress is beautiful.

[@EmmaLisaRoux]

Sending you my love and support! Thanks for sharing this kind of info with us, and showing us how this shit can be scary. But it shows how strong you are, hoping the best for ya!

[@stephanieburgess8217]

I’m surprised you can’t talk to the Radiologist until the day of. I had a significant surgery at the Mayo Clinic in AZ and I was required to have an appointment a week before my surgery to discuss details of the surgery and answer my questions, instead of meeting with him right before surgery which I also did. It was very helpful.

[@jodyburke8328]

Praying everything moves fast and forward. It will be ok.

[@kgold5962]

Prayers coming your way.

[@GrimesFinds]

lol y'all are hilarious love this channel. Love the positive attitudes. New Subscriber.

[@rachelwisecrawford1820]

You two are absolutely precious humans who my hubby and I would for sure become fast friends with... bless you and your growing family

[@stevehampton4410]

I always love your intros ..great work!!

[@gigidodson]

When you have a medical problem and have to deal with medical professionals and INSURANCE in the US, you are guaranteed drama , delays and frustration. You are in my thoughts.

[@quintoncassar2729]

You saw me on the Skype inter view in the libary

[@kimkincaid5667]

Gigi Dodson uh hmm like when you’re in a country with socialized medicine doesn’t take forever to get to see a dr. Thanks, but I’ll take my chances here where I don’t wait months to see a specialist.

[@lindaplaidduck]

@@kimkincaid5667 Um, I have cystic fibrosis... a genetic disease that I was born with... my family and I have been dealing with insurance since I was a child. I'm 54 yrs old now and I have amazing insurance and I've never waited at all to see a specialist! USA is an amazing country I'm happy to live here!

[@sunflower7045]

Wishing you the very best. I’m sorry the insurance companies are such slimeballs. Shane, your sense of humor is EXCELLENT. I wish more people had the attitude you do. 💪🏼 ✨

[@emilysurges6610]

Hey Shane! The medical mess that is insurance and communication with doctors can be so taxing! Praying for you guys and that situation! I know how frustrating it can be! My own medical issues has caused bumps in the road with insurance. Hang in there! Excited that this may be your last Spinraza injection though! Hoping that the oral medication won’t be a ridiculous price like all new meds!

[@58jennypenny]

you two crack me up, your humour is amazing, I hope everything goes fine, and no 'risky' holes..

[@SMee67]

Mate, that's good but scary news! I seriously hope everything works out 100% perfect for you. 👍🏽

[@DrgnRdr1231]

I can only offer thoughts and prayers, but I really hope for the best of luck on your prognosis. The two of you brighten mine and many others days.

[@melissahromanos8751]

Hey! It’s your favorite mom fan from NH! The one who sports your bumper sticker and met you at the meet and greet in NYC :). Anyhow, I work in Biologics (have for 21 years!) and I’m hoping there will soon be a gene therapy that treats SMA for Shane. I know there is one in clinical trials for SMA 1; my company currently produces monoclonal antibodies for many illnesses and recently has entered the cell and gene therapy arena and it’s very exciting science. Good luck!

[@stampedinhisimage1]

You two are sooooo funny! You asked for a finger and she immediately just did it! The love between the two of you is AWESOME!!!

[@danna660]

I'm praying for you two that this works out. Best of wishes that it can be done the way you want it to be done. Much love to you both.

[@betterwiththeirish]

I just love your sense of humor!

[@suechase1924]

Love the "feeling like a baby" concept ! And lots of prayers for positive answers for your treatments.Hannah your mom is so sweet!

[@notrightnow3995]

welcome back to town guys!

[@andrewlorenz3139]

Despite its problems thankful for the national health service in the UK. Best wishes to your both and can not imagine what seems to be a health lottery in the US on top of all the other issues you need to address

[@MisplacedPixie]

Ahh! What a predicament! All I can say is I pray for the very best outcome whichever route must be taken. Love and hugs to you both!

[@joanhenschel3511]

Lately I'm finding you really, really funny! I guess I've turned into your humour 100% now. Thanks for your lovely vlogs. Love and hugs from South and

[@sandrastiltner4024]

You all are so entertaining. I hope that Shane can get the oral meds and no holes needed. 🙏 Prayers for the best on your Spinraza day.😃

[@xrax_readyx8095]

Hi Shane and Hannah, i have recently found your guys' story and i really admire your relationship and it brings me joy whenever i watch u guys.😍

[@ruth6360]

love you guys!!! Wishing both of you all happiness and joy!

[@nawanamcgaha6065]

You got this ! I will pray for you both

[@JD-dh7bk]

The thumbnail for this video is the best! Haha hahaha Haha hahaha Haha hahaha

[@ayannacole1919]

Sending all the good energy your way!!

[@mindyvaughn8217]

I cannot express how upsetting it is for me to hear what a difficult time you are having getting your Spinraza injection. The whole entire thing is ridiculous. From not being allowed to continue your injections in the hospital where you have been having them. It’s almost like the insurance company is once again trying to make it as difficult as possible for their patients to get what they need. And you can bet your bottom dollar that every ridiculous decision they are making somehow increases the money in their pocket. It makes me sick. They absolutely don’t care at all about their patients. I’m sorry but I’m just so upset and pissed off that you both have to go through this. Hang in there. I will be praying that it all works out and that you feel better than ever Shane. Love to you both💖

[@justmelhobbs]

I LOVE your tips on the thumbnails and titles!! Much appreciated :)

[@jodyburke8328]

Shane your humor is so awesome.

[@oxXMewKayaXxo]

The haters will be so pleased to hear about your transition. 😂 Also, the hard audio cuts from the music to Shane talking was 👌 imo. Good luck with everything, guys. A lot of that does sound scary, but I know you two will make the right call and get through it. ❤

[@dustiesheets]

I love y'all. Any situation y'all make light of. Positivity radiates from y'all!!! ❤️❤️❤️ From Arkansas!

[@Box2able]

Had a shitty day. Came home to a Squirmy & Grubs video notification. Day saved. 👍 Wishing you guys the best of luck with everything!

[@debrazaborowski7625]

Aww. So sweet! Insurance companies need to wake up and realize that some people just need to maintain and not improve. Be positive like you always are and let's hope the FDA approves oral form of Spinraza ASAP and that somehow you get the radiologist to talk to you before the procedure! Love you guys. And Liz. Lol.

[@griceldamason5785]

Praying for you guys. You guys got this ❤️❤️

[@kirachriston6285]

You are both beautiful and amazing people who are amazing together. You have both got so much to face what you are both having to go through and that you have Liz too. Amazing family. Thinking of you all. Xx

[@christinewebster9533]

Hope u feel better soon and wish u all the best

[@eej1983able]

New video! Yay! Most of 2019 was medical drama for me. I can relate a tiny big guh. Thankfully it's settling down for the moment. Insurance is a pita

[@yeetking824]

Hey mate x2 just saw your video on Unilad, instagram. Just wanted too come subscribe and say you two are amazing and I hope the treatments are going well This is some genuine real love you never see nowadays and it made me smile cheers for that btw. Keep up the great content I will now be watching your videos on the daily. Awesome stuff

[@judywood-stockrahm9181]

Wishing you the best of luck!!! I hate how frustrating healthcare can be...

[@phantomwheeler81]

praying for you

[@moeoverthere3640]

Love and support before finishing the video 💛

[@carlwadsworth8329]

Fingers crossed that it will all work out for you Shane. Stay positive. Love you both ♥️

[@dragonfly1745]

I wish you all the best Shane, and that whatever procedure they do to get that Spinraza into you, will be successful and with no issues afterwards. I think Hannah is right, if you only need one more dose like this and then can do the oral afterwards, it's not worth it to put a hole in your spine. That's crazy! I don't blame you one bit for not wanting that - I don't think anyone would. Hope everything goes well! Looking forward to an update about that! Take care :)

[@marilynmartin8417]

Yes insurance now does suck thanks to "prior presidencies". SO many people are suffering because of this. I have worked in customer service for 30 years and have seen the changes and it was SO hard for me to try to convience the insured how their coverage will work for them. I pray for you Shane to be able to get the treatment you need AND get the coverage you dserve!!

[@yvonnelopez6115]

I love watching you guys....funny and great insight on things.