Exercising with Chronic Fatigue Syndrome | Do's and Don'ts

[@juliaw9835]

Earlier this year I slid back enormously due to a doctor mis-prescribing me exercise. I stupidly trusted them and it landed me in the biggest crash in years, I genuinely became fearful of any movement. Thank you for acknowledging that fear plays a role here, too. It's always so humiliating to admit out loud that I'm scared of moving my body.

[@CFSHealth]

Thanks for sharing. We’re sorry to hear you went through that. We have a great episode that goes deeper into movement here. kzbin.info/www/bejne/fZ-vinlobqp1fq8feature=shared If you’re after a proper appropriate recovery plan for you that teaches you body wisdom so you know what’s right for you. You can apply for our Online Mentorship Program and my team will send you all the details. www.cfshealth.Com/form

[@madhuriland4xananna]

I’m sorry you had to go through that. I hope Toby’s idea’s are helpful. They have for me.

[@clairerobinson8166]

I absolutely get it

[@aprililes8355]

I totally hear and validate you!!❤

[@maiqueashworth]

I've been following your advice and it's working. Talking to extremely fit friends and through other sources,. I've realised that it's normal to have ups and downs. The difference with those is us who are recovering from someone serious is that on the bad days we can get so weak as to be disabled. Then you get all kinds of other problems coming in, including psychological ones, because it's scary and you don't know what's going on. I'm not competent better now, and as I'm determined to get really fit, I inevitably keep overdoing it. I'm getting used to the occasional crash, and better at just accepting it and building up slowly again. Except that now I'm fitter, the down time is much less.

[@IragmanI]

In my journey, once I learnt to keep heart rate down, movement and exercise became far more restorative. Light callisthenics training (push-ups, pull-ups, dips, some weights but no cardio exercises) as many days as I could with extended recovery time between sets got me into into what felt like full remission after a year. Unfortunately a series of high stress events and COVID destroyed me again a few months later. Another 2 years on I'm fairly stable again but have to hold back the world to keep it there. I must say though, from my experience (>12 years CFS), I completely concur with the advice in this video. Thinking in terms of 'movement' rather than 'exercise' is a paradigm shift that should be pushed in medical education of this condition

[@AbigailRakhlin]

I would love if we were able to access/ purchase modules separately. I would love the exercise/ movement one, someone else might like the emotional/ mental health one, etc etc. I think it would be great if we could pick and choose and get whichever ones we want. As far as I know, I think you can only get access to these currently if you join the whole big program!? 🙏🙏

[@lindawitt9063]

Very good point. I totally agree.

[@jrr239]

Yes, because it's about them making money. I notice they did not reply to your comment, but have to others not asking the same Q. Whatever he says, he is talking about 'Graded Exercise', and in the UK the 'NHS NICE GUIDELINES' has stopped all recommendation for Graded Exercise & CBT if one has ME/CFS. And yet they are promoting this. When someone has severe ME/CFS, just getting out of bed & moving around the house IS their movement, not the stuff he is selling which will only make severe sufferers more ill, and is very irresponsible in my view.

[@GiolaPressacco]

Thank you Toby for your dedication in helping others ❤. Things you said were spot on! Your explanations add clarity to how and why things are the way they are. Thank you again!

[@CFSHealth]

Thanks for sharing! Glad it’s helpful!

[@loveishappiness7330]

Thank you, this is very helpful. I like what you say about those with CFS are not lazy, but type A. So true. But I do think in stage 3, as you call it, it can still be easy to over do it when your trying to recover alone. I do find the medical medium protocols help, especially find i crash less and recover quicker. I find what he says does really work. But exercise intolerance i find is the thing I struggle with most. And I love walking. “Consistency over intensity” is a very helpful guide. Thank you Tony, you are doing really great work, sharing these videos. 🙏💛

[@BunnyRabit-yo3lx]

I love walking too.❤

[@theresarose1052]

This makes so much sense. I finally get some understanding my lack of sleep at times. Also my better understanding of excersie now refer as movement, which makes more sense. Thank you.

[@deelicious1610]

It's concerning that there's no pricing information on the site. I have found that those who don't give you any pricing information up front are very expensive. I don't want to waste my time or their's if the pricing is out of reach.

[@stephanieconroy6421]

Brilliant! Just heading into stage two.😊

[@inangelskeeping]

Thank you - this was really helpful for me.

[@cuddleme75467iojhhi]

Thank you that's was helpful can't see to get help with cfs no one ones to no no one understands 😢😢

[@Jane-pg8jv]

Thank you soooo much !!! ❤❤❤❤❤❤❤

[@CFSHealth]

You're welcome 😊

[@LebenskompetenzForum]

Very clear steps, very well explained. Extremely helpful. Thank you!

[@CFSHealth]

Glad it was helpful!

[@deepderp9957]

I pushed through the acute phase thinking exercise was going to help (it’s also one of the things I love doing) and it was obviously a terrible decision. 4 years in and even though I’m less fatigued overall, my exercise tolerance is pretty low. Thanks for the reminder to not be ‘all or nothing’ about this. I’m shifting my focus from pushing myself with intensity to just being consistent with some kind of movement. I was weight training before o got sick so it’s hard to let go of that progress but I need to reverse course and come back at it in a different way. Otherwise I’m never getting out of this pit.

[@janicehill-es1br]

Your videos are excellent Toby, thank you, am glad you're on KZbin 😊

[@traceyalexandra2410]

Thanks for your great videos in stage 3 doing well

[@CFSHealth]

Glad you like them!

[@RoseThomas-hx3mp]

Dear Toby your advice is so helpful. Thank you. Also the subtitles are really great as I am poor hearing.

[@CFSHealth]

Glad you like it!

[@angiekereakes6551]

What a blessing your understanding of this is! Thank you.

[@CFSHealth]

Glad it was helpful!

[@donna25871]

I had a rheumatologist tell me last year that to cure my chronic fatigue I had to ‘get fit’ (they were her exact words). Just to say that she is no longer my rheumatologist.

[@loveishappiness7330]

Good for you. I highly recommend the book Medical medium by Anthony William. He has a gift as heard an Angel all his life. The Angel of compassion, compassion for people with chronic illness. Taught him what causes CFS and other conditions and how to heal. CFS is caused by an aggressive virus that targets the nervous system. When we get run down or face stresses or injury, the virus takes advantage of our lowered immunity and attacks the nervous system. Its goal is to stop us moving, this is because movement creates oxygen in the cells and oxygen is antiviral. Read the books by Anthony William or his free blogs and podcasts. It works!

[@multiheavenscent]

I'm in a place of all in and then burn out. Stuck in this place what seems like forever.( I would consider myself a type A person) Though I am fully aware of PACING AND CONSISTENCY. Yesterday I went for a walk, really pleased with myself for achieving that. Did some stretches afterwards. I ended up sleeping in until nearly midday.

[@teachmywordministries277]

Brilliant! This is spot on!

[@Earthenergy100]

Great 👍 topic to cover 😊

[@CFSHealth]

Glad you liked it

[@Sonja_alexandra_]

Do you have a video with multiple joint movements?

[@granialockley127]

Yes I was going to ask this too! Great video and it makes so much sense. I guess I'm between stage 1 and 2 (and very happy to be here!) but some guidance as to the types of movements to introduce, of course when all ducks are in a row etc, would be tremendously helpful 😊

[@deanablythe9394]

Thank you, this has been most helpful.

[@CFSHealth]

Glad it was helpful!

[@bryndevaney]

You sound like someone who has listened to me without us ever meeting

[@christelledavison9881]

Thank you for this video ❤

[@cathycoppin5682]

Hi toby I have cfs. Fibo have now got diabetes. But it says with diabetes to exercise. Feeling overwhelmed with every think. How much is your problem pls. 💕xx

[@dddddbbb]

Just walking is the best exercise - or use the eliptical if your joints struggle. No need for anything extreme of even working up a sweat. Slow and steady.

[@georgebordeaa]

So would you say it’s better to train 5-6 times a week 30 min than 3 times a week 1 hour? (That’s what I do and can handle now)

[@kirstenp3875]

Would you still be i the acute fase if you keep getting worse and worse? I’ve been pretty consistent with movement but it feels like energy is leaking out of me

[@anna-marieeasmus7529]

The most important thing you can do is listen to your body. It is trying very hard to communicate to you what you need. I hope you find a plac from where you can start to improve.

[@jenniferfoster2200]

I'm similar in that I feel like energy has been leaking out of me last several years.

[@BunnyRabit-yo3lx]

You could see if you are zinc deficient and then look at Bvitamins (they give you energy.) I've found whole foods with high RDI better than supplements. I'm not recovered yet but this has given me some improvements and now I WANT to build my muscle tone. Whereas before I was scared exercise would just make me crash.

[@BunnyRabit-yo3lx]

I agree that rest is so important. Don't over do things if you have support or the choice not to.

[@rainbowwarrier1469]

Is this about ICD G93,3????

[@joannebate-shawcross4653]

100% ❤xx

[@AnrupB]

Where can we get access to Movement Mastery program? I just has a relapse but I do notice my body is recovering faster than before. I’m trying to navigate life because I have urgent tasks that only I can do coming up.

[@amandamassyn7227]

Hi Toby, Gosh, this was so helpful. Thanks. But, I wished you spoke a bit more slowly, with pauses. I felt myself get anxious listening after a while, I had to stop. I guess one forgets that some of us can't handle this type of stimulation. The session with the teapot on 20th August 2024 was a great pace. ❤

[@CFSHealth]

Glad it was helpful! ❤️

[@Briardie]

Go into settings on the screen, its the little wheel like symbol, you can press it and it shows the word speed, it is set to normal, press the word and you will be able to slow down the speed of his speaking. To be honest, I hate to say I am like the Gen Z ers, I want to get to the point. I like bullet points, chapters in the info bar, or some way that I can easily define the main pieces of information, through the lots of speech given. I am a Boomer btw. managing Fibromyalgia, and it is tough.

[@cathycoppin5682]

Hi toby I have cfs. Fibo have now got diabetes. But it says with diabetes to exercise. Feeling overwhelmed with every think. How much is your problem pls. 💕xx