Transverse Myelitis VS The Heat

[@sharrison8155]

Thanks for sharing because this is important info that is not discussed nearly enough!!! My son was diagnosed with MOG Antibody Disease (MOGAD) in 2019. (MOG patients can have transverse myelitis, optic neuritis, ADEM, etc.) He experiences the same issues with body temperature regulation with heat or cold exposure, and when he gets a cold or virus . Also Uhthoff's Phenomenon…It’s likely you experience this too. No one explained Uhthoff's to us in the beginning and it often makes a person feel as though they are having a relapse.

[@theadaptivefamily]

I have never heard of Uhthoffs before. I am going to have to take a look into it. Thank you

[@KaranSingh-io6ds]

Do you still have numbness in your legs or did that go away? Are you able to feel temp on legs?

[@theadaptivefamily]

Overall the numbness on my legs have gone but I wouldn't say feeling is restored. I can't really tell texture very well and sometimes my legs twixt because they don't know what's touching them. My right leg for sure cannot feel temperature but certain parts of my right leg can. It's very weird

[@shaniqueedwards6476]

I have NMO, and the heat is doing me really bad.

[@theadaptivefamily]

I'm sorry to hear that. Hopefully you can make some progress towards it

[@shaniqueedwards6476]

What you said really motivated me,I do realize since recently that during summer symptoms increase and the body gets weak but I have been overlooking it. But now that I know, and as you advised regarding nutrition, being hydrated... Gone try that thank you.

[@theadaptivefamily]

I'm happy to hear that. Follow me on Instagram and we can communicate through there so I can attempt to help you out on your recovery

[@shaniqueedwards6476]

I did... And I have recently messaged you also. #nyquese/Shanique

[@russellfisher3103]

God bless you, thank you for sharing. Sounds like you are doing well but staying in tune with your body, thank goodness for your wife and family, god speed

[@theadaptivefamily]

Thank you so much