Transverse Sinus Stenting for Idiopathic Intracranial Hypertension w/ Dr. Aaron Bress | Ep. 371

[@sarahrobinette2164]

I was blessed enough to receive two TVSS, 6 months apart. My IIH diagnosis has now become irrelevant in my life. I got my life back and couldn’t be more grateful for my neurointerventionalist and his decision to see me and fix me. The only issues I have is the 325 mgs of aspirin every day for life. This has caused ulcers a couple of times. I will take the bad with the good though. Much better than being on an overload of diamox, seizure meds, seeing the ophthalmologist weekly, or sleeping in a chair so I’m up right, IF, big IF I did get any sleep at all due to the extremely annoying pulsating tinnitus. Thank God that horrendous time in my life is over.

[@danchente7660]

My headache/head pressure symptoms came on as it was discovered that I also had chronic sinusitis and rhinitis. Sinus surgery completed last year, still having issues. Not once did my neuro ever mention this potential treatment as an option. Can chronic sinusitis be primary condition to iih and venous sinus stenting.

[@Sunnydreamer1470]

I recently lost sight in left eye by loss of blood to retina . Is this from my IIH?

[@HananIbrahim-cb3wb]

What was your symptoms u have ear ringing

[@ashleymason2587]

I’ve had iih for 9 years. And recently found out I have congenital hypoplasia of the right transverse sinus. 😭

[@tasha9650]

Question & you're free to not answer if its tmi... I have iih as well & also right transverse sinus & they're talking about possibly stenting but I haven't been seen (I go in July). Im curious do you also have anemia? I know I haven't met one of us that isn't and I find that interesting... I also find interesting that it was research that for some they treated the anemia & it improved and or went away. As well as maybe check vitamin D & b12 levels...My Vitamin D were low and I know a few of ours was low as well. I know a girl from a (IIH study) and I speak to many others on forums. I find it all very interesting but I was able to stop my visual disturbances completely once I corrected my vitamin b12 levels. Anyways, hope you're doing well!