Travis Bray - Living with familial adenomatous polyposis (FAP) | Ambry Genetics

[@jonathanbrandt3071]

My son just got diagnosed with FAP this week. He is only 15 months old. This video was helpful and hopeful. I hope you are doing well.

[@nelsdawgy]

Travis.. You are so strong. I am very inspired by your story!

[@christophercrowe6648]

I'm right here with you.. I waited a Lil too long thanks to my step dad for not taking my health serious.. thankfully I'm still alive

[@michaelseger903]

I was 26 years old in 1993 when my intestinal bleeding led to a diagnosis of colon cancer. Five months later the doctors at the Saint Louis Veterans Hospital asked Dr Gardner to come consult on my case because I had growths the whole length of my large intestine. I was diagnosed with Gardner Syndrome. In 1994 I underwent the 27 hour surgery to remove my large intestine and getting the J pouch. I had the dreaded ileostomy bag for two years. Sadly I do not remember any of the doctors telling me that I will pass on the defected gene to offspring. After 4.5 years in the hospital and the loss of 153 pounds. I meet a lass and we married and had two boys. Our oldest at age 12 in 2013 and our youngest at age 11 in 2020 both started bloody stools that led to the doctors finding out they had colon cancer and they as well now have J pouches. It is nearly impossible as an adult to find a doctor who knows about Gardner Syndrome. It is IMPOSIBLE to find a child doctor who does. Adding two growths in our sons bile duct makes finding any doctor who knows what to do now has been impossible. So it is just the normal 6 mo scopes to check growth. I do wish there was such a thing as a talk group but our sons Physiatrists do not know of one and the veterans Administration tells me I am the only veteran with it so no talk group. I applaud your facing it head on attitude. Our family (my wife, me and our two boys) have adopted a laughing at it to cope. Their continued intestinal bleeding and abdominal pain when they try to be active limits any desire for that.

[@brooklynnmilroy6715]

God Bless You Travis, I have FAP and it's great an comforting to know there is other people like me out there an talking about this as it is rare an very tough! 💙🙏💖😭

[@agiantslayer5170]

I too have FAP and recently had the second surgery. It’s an adjustment and I look forward to life returning too normal. I too felt how short my life would be and take consolation in them saying in todays age we could live to be 80 years old. I am also sad that the foundations website appears to be shut down. With him as the founder it concerns me. I hope to find out all is well with them.

[@missadventuresmotorcycledi2773]

I wasin the snowboard industry in the early 90's in NZ, that's were was also diagnosed. I have a had a total colectomy 6 years ago now for A. F. A. P, lots of polyps in stomach thyroid shot but still want go on adventures.

[@michaelramos3616]

I need someone or group to talk to. Help

[@tiffanylewis2207]

💪🏾🙏🏾