Understanding Infantile Spasms - Symptoms, Diagnosis & Research

Pediatric neurologist Dr. Steven Wolf & Patricia McGoldrick of the Mount Sinai Epilepsy Center discuss Infantile Spasms, also known as West Syndrome, a rare form of childhood epilepsy that typically affects infants within the first year of life. Learn how to recognize the seizure clusters typical of Infantile Spasms, why early diagnosis and treatment is paramount, and what is being done in the field of neurology to end Infantile Spasms.
In honor of Infantile Spasms Awareness Week, share this video with friends and family, and help us bring awareness to the world.
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www.efmny.org/ | epilepsynyc.com/

[@mightym0okasaur23]

i came to these folks at the end of my rope, every other neurologist i had seen was not willing to work with me, one told me, "this is all there is, you're just gonna have to deal with that". Doctor Wolf and Patty saved my life, they were so caring and involved, fought with me, and scolded me when i need it. these two are angels in my book. Their open hearts, their dedication, the deep knowledge they both poses, and the willingness to take the journey with you until you are in control and no longer fear epilepsy. i'm thankful for them, my mother and my family are thankful fot them every day...

[@msleesa1001]

My son started having this after he had a febrile seizure and I’m so happy i seen this video

[@medbiblee5907]

Clear and informative video .Thanks from a medical student

[@pandachanzena]

Thanks for sharing. This is important to learn more about.

[@patriciamcgoldrick6299]

We have now moved to Boston Children's Health Physicians of Westchester and Connecticut- with office in Manhattan and Westchester

[@red-lotus1]

My grandson just experienced something like This tonight. I’m so scared! He’s 7 mos old. I know what constipation looks like and tantrums tnis was not either. He did it at least 4 times. We got it in video I’m so thankful for this video. We are taking him immediately

[@kinzahussayn479]

What did the doc say?

[@red-lotus1]

@@kinzahussayn479 they did an EG he is absolutely fine now. There was no seizures seen. I am so thankful. I have no idea why he did that but he isn’t doing it anymore!!!!

[@kinzahussayn479]

@@red-lotus1 thats great

[@nonjabulohlongwa2305]

M so happy for you also my twins are doing it and m so stressed

[@DrJunaidIrshadKhan]

Is there any method to send you a video of a baby to know whether its a spasm or not.

[@jeanzreanzares1524]

i have a son having that sickness and i need people with good heart to help us his sickness

[@jonathanspencer1852]

My son has suffered over 120 seizures in 5 weeks. These seizures started 5 days after his "8 in 1 vaccination" Dr's say no link but how can this not be linked????

[@PrincessDiyaCouture]

How is your baby now my baby is also having this spasms after vaccination

[@saimondodelmondo5884]

I think, it is very important to inform parents about making EEGs to exclude infantile spasms, when necessary. But it is also worth showing, that most of strange looking baby movements are nothing to worry about. This is mentioned in the last sentences as a conclusion, but me it would help to explicitly show it. Could you show differentiations to something "normal" ? (like for example kzbin.info/www/bejne/iWbdlIJpetxmftU ) Thanks for your great work.

[@mauibless3606]

Godbless u all..i have a son who have that kind of desease ....and we need help to fight against tsc ....we are very thankful if anyone will help us to seek medicaton and assistance

[@sucharitaghosh8611]

How is he now?

[@louizahochola6259]

My baby behaves just like this after 5 days from birth till now. Cranial ultrasound was done to check if there were brain damage but everything was normal.we then did an EEG Which showed cortical dysfunction. When I asked the paediatrician he told me that maybe it is because of luck of enough oxygen in the brain at the time of birth, like the baby did not cry as expected. Three months now he's been on epilim syrup and Nootropil tables. I hope this seizure will one day go. I'm trusting the process and believing in God.

[@saravanch2003]

How’s ur baby now?

[@louizahochola6259]

@@saravanch2003 he's still on Epilim syrup and vigabantrim (sabril), the seizures are not intense as it used to be

[@saravanch2003]

@@louizahochola6259 thanks for your response. My kid is in 4th month now and diagonized with infantile spasm. We could not Believe such a rare disorder will affect her. But eeg confirms it and now taking Viganext 500mg. The episodes are around 6-10 times a day and lasting for about 30 seconds to 2 mins and the baby is crying. Taking an mri soon. We are also worried about her. She is our first kid. Hope doctor and god helps her to be better. I may come back here for more responses and updates. Wish ur kid a speedy recovery. Take great care of him

[@louizahochola6259]

@@saravanch2003 God will remember us, I believe, because these babies belongs to God we are only their caregivers. I am also believing that they will outgrow these conditions because it hurts as a parent seeing your baby suffering and crying helplessly and there is nothing you can do. I would advise you to start your baby on occupational therapy as as soon as possible like I did so that your baby might achieve her milestones early and quick and it also make her to be physically fit. Good day, may God give you and your family peace of mind, strength and wisdom during this time. All the best dear.

[@mercyotieno5561]

My baby too has these symptoms,I have just realized now,and the milestones are so slow but I trust God

[@madhumitaburagohain1962]

Can levetiracetam syrup work to stop infantile spasm?

[@avnishkrishna3352]

My son has also discovers with IS and doctor recommend levetiracetam . Does it help in your case

[@nic_chandelia]

Please help me , my 4 month baby is facing infertile spasms , can this be treated successfully in India ? Please help me

[@celciyavaran5755]

Hi,my 6 month baby facing infertile spasms.I ' m from tamil nadu.plese help me .which treatment can be proceed your son

[@pramodteli2953]

Hi I am from Maharashtra, How’s you baby now.? My 1 year daughter has same problem. What treatment you gave to your baby..

[@karthikhbk8690]

@@celciyavaran5755 tamila

[@vigneshwari6320]

@@karthikhbk8690 same my baby son eppo age 5 one day5or6times ayrevedha treatment full ok ellai please reply enna pandrathu theriyalla nanga enga enga ponnumo poitom bangalore Nimans hospital niraya edam parthutom onnum clear agala please reply romba kasta paduraan

[@HafizahHoshni]

Thank youuu 10/7/2018 ! 👶🏻

[@drguliverkhan9049]

My daughter has been diagnosed with West syndrome today , my wife is epileptic .. how can i contact them

[@meghakarbhari9391]

My daughter does this but her eeg report is normal... So is it due to colic or any disorder

[@abdulrazak-sv8ty]

How iur daughter dors

[@ogwanggodfrey9969]

My baby is 5months old and she has infantile spasms....it started when she was 2 months old And she has head drop...

[@nonjabulohlongwa2305]

Hi did you get any help how is your baby now

[@crislynramayrat4407]

My daughter have also a seizure, I hope someone's can help me.

[@isabiryerobert7952]

Ohh God my baby has it all plz doctor help me find the best treatment am in Uganda please

[@navinkumar-wz7zz]

which medicine i give my 1.5 year old son has also infantile spasm

[@anjalijaybhaye2346]

How is ur son now

[@itskuhulifestyle8949]

My daughter is also survived please help 😭🙏🙏🙏🙏🙏🙏

[@ahmadnasir3141]

Thank you my baby is under treatment he is now using sabril 500mg which give us good improvement

[@pramodteli2953]

How’s your baby now? My baby has same problem.what can i do.?

[@carinaayu2028]

How is your baby now? My baby is on oral steroid but still has spasm everyday

[@213tammy]

Immunizations is what causes this an as they get older it gets worse an turns into LGS an seizure happen EVERYDAY more then once my daughter is 22 now an she has 2-6 seizures daily!!!

[@mayimendez1463]

tammy goodall my grand daughter is almost 2 years old and she has infantile spasm when she was around 6 month old she still gets them.

[@ShoveUrVaXxUpUrMaSk34]

tammy goodall Look into charlottes web everyday advanced

[@SplendidViews]

This is a hard journey. Perinatal hypoxic ischemia...6 months relatively normal dev...gentle spasms that looked almost like morrow reflex upon waking...EEG showed not full blown hypsarrhthmia...ACTH course worked with endless appetite and a month of being zoned out...3 days After ACTH ended spasms started again...heartbreaking...on the 3rd treatment now...It is soooooo hard to watch and be able to do nothing...Reading about the prognosis is burdensome in the extreme...Does anyone have a time machine?

[@meenakshisingh6706]

What is developing Hypsarrhthmia

[@jamilarivera9562]

My baby has seizure disorder.high risk pheumonia with hypoxia.that cause his infantile spasms.he is 1 yr.4mos right now.the Doctor give phenobarbital as maintenance for his seizure.

[@aswathiramesan4494]

Hi how is ur baby now?

[@priyankashirol235]

12 months complete baby please help my Indian Disha Yevadu Heli sir🧠🧠🙏🙏😢😢 please help sir

[@gandhi399]

Best way to cure spasms for 8 months baby

[@ahmadnasir3141]

My baby was 8 months when he got sick you need to visit doctor he will apply medicines step by step my baby is now taking sebril 500mg and giving us good result

[@HafizahHoshni]

Thank youuu 10/7/2018 ! 👶🏻