Pain and Fatigue in Parkinson Disease - 2019 Parkinson Educational Symposium

Dr. Christopher Hess speaks about pain and fatigue in Parkinson disease and what doctors and patients can do about it.
The University of Florida Center for Movement Disorders & Neurorestoration is founded on the philosophy that integrated, interdisciplinary care is the most effective approach for patients with movement disorders and disorders involving a group of circuits in the brain called the basal ganglia. The Center delivers motor, cognitive and behavioral diagnoses as well as various treatments all in one centralized location. Care is coordinated and provided by leading specialists from many advanced medical and surgical services.
Our website:
movementdisorders.ufhealth.org
More about the University of Florida National Parkinson Foundation Center of Excellence:
movementdisorders.ufhealth.org...
More about Deep Brain Stimulation at UF Health:
movementdisorders.ufhealth.org...
UF Health on KZbin:
/ ufhealthscience
University of Florida on KZbin:
/ universityofflorida

[@greenflyblue1]

I have watched this so many times and have passed it to the physios in the nursing home where I live . I have days where the pain and stiffness are sooo bad that I cannot move . When the pains and stiffness are at a stage where I need strong medication , I also use Neuroplasticity exercises to get through the day. The one that works for me is playing an instrument and singing which can help to take your mind of the pain for awhile. I have a couple of videos on my channel, entertaining at the home where I live, and concentrating on the music and the words of the song, can help to reduce the pain.

[@dorisolin8673]

Oopouyjh

[@shirleyflynn8792]

P

[@md.shahidulislam5990]

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[@vcr210]

Thank you so much for highlighting this part of Parkinson's Disease. I hate to be a complainer, but the discomfort and pain and fatigue are a part of my life. Some days are very very mild, some days I feel like I was hit by a bus. Some days I don't have the energy to take a shower. (Thank goodness I live alone!)

[@gurgurgur]

Spiritual knowledge keep mind positive and makes good behavior .for body eat fruits and vegetables

[@8489mary]

Just please find us a cure xx

[@jimelson9672]

@@gurgurgur iiiiiiiiiii

[@lorenzomaximo1818]

@@8489mary I have Parkinson’s Too . Such a rotten debilitating disease. People have no idea. Mine isn’t as bad as some people’s but it’s becoming more than I can handle. The only pain I’m having is in my feet. A cold stinging sensation. Not to the touch just a sensation. Some days I don’t have it other days I do. I don’t think they will ever find a cure for Parkinson’s because only slightly over 1 million people have it in the United States. That’s only one out of every 330 people. Not enough to justify finding a cure.

[@yournamehere6939]

@@lorenzomaximo1818 do you try vitamins like taking extra vitamin B’s and different types of magnesium?

[@catherinewarren6592]

Thank you for your clear definitions of PD symptoms. I have studied PD for about 15 yrs but never realized that PD can increase your perception of pain. My husband had a very high tolerance of pain and now 10 hrs into PD he is very sensitive to touch and small scrapes. I didn’t understand how his perception could change. He definitely will talk to his doctors about pain and I’ll make sure he gets the help.

[@coppertuberon937]

.,. Manny today ,

[@leonidagannaban6041]

Ppp

[@miekel8663]

At one point in time, cold hurt me. Not anymore.

[@Chakyfin]

I'm

[@gloriakern2429]

Exercise

[@gregorybalchunas3895]

Praying In love In Jesus name amen, God bless all hospitals and caregivers and all afflicted

[@margaretstone2123]

After watching this I realised that although I always felt that the first sign of my Parkinson's was my frozen shoulder, before that came the feeling that I was often battling with fatigue. Although this is all retrospective I find it reassuring that there was actually something wrong when I assumed it was just a lack of "control" in me and felt quite down about my apparent inability to deal with a lack of motivation.

[@kennethlager6668]

P

[@joankarron5833]

Really helpful didcussion

[@RAINYDAYS00505]

I presented the same way....2 decades before diagnosis....I love how he explains how there are five or six different things mucking everything up.... I have recurring ovarian cysts and kidney stones along with reactivated epstein barr, cervical stenosis, thoracic and lumbar degenerative disease... its nuts...and speaking about all of this on top of the signs they find considering parkinsons is overwhelming and sounds so dramatic. Its not easy.

[@sukhpalkaur1641]

M

[@elaineingham8549]

Psa

[@CJ-oz7xg]

This presentation nearly. brought me to tears. To have ratified the plethora of pain you feel throughout the day and majority of the night as a debilitating consequence of Parkinson is empowering. Both in validation and in being able to request consideration of it as a major symptom with your clinician. It also is reassuring that albeit not straightforward there are measures to mitigate that can help. Again the recognition of the impact of fatigue and the difference to sleepiness, although both may be experienced, imparts that same validation and empowerment. Thank you Dr Hess, thank you.

[@gayaninanayakara4073]

My father suffering pakinsan's decease please whatsapp me

[@dickhyde5118]

Necrottic',,','

[@RAINYDAYS00505]

THANK YOU SO MUCH! This video explains so much and in a way thats easy to understand. I am dealing with ALL of this! These are the things we want treated/taken care of that doctors are not as worried about.

[@arijitchowdhury70]

9 🐦

[@annmarie1569]

I was diagnosed at 38 years old. Im now 46 and I feel pain and fatigue all the time. I sleep a lot. Im now having more bad days than good but it's winter time too. In the summer time it's like I'm a new person. I love to be outside and swim a lot.

[@nancytylicki1824]

I have to swim in the ocean every other day

[@deborahnolan9360]

Thank you for making this video available. Have you seen patients that suffered from BOTH fatigue AND excessive daytime sleepiness or narcolepsy? I was diagnosed with PD in 2006. Research has come a long way since that time. It is reassuring to understand that what I experience is completely normal, especially in the non-motor symptoms.

[@rebeccabrown3898]

This video has been very helpful to me with PD and I intend to share it with my son so that he may understand what I go through on a day to day basis. I admit I have a habit of hiding my symptoms quite well, claiming to be fine when the truth is just the opposite. I have noticed there are some positive comments re this video with 0 replies, responses and or likes. Do all of you take note of that as well?

[@amylevine8878]

I found this talk very helpful. I have thought in terms of anxiety exclusively re: the range of symptoms given here in terms of ohysival pain. I, too, tend to Denny the physical, with a little prodding from psychiatry. Get your anxiety under control, they say.

[@cheryllewis7548]

I am from Trinidad my doctor's never explain like you guy's thank you beginning to understand my illness more have for 10 years now

[@s.a.jodikaehn3721]

I had to go to the internet after diagnosed with PD for answers.

[@kassayedemena6650]

L

[@robertkaley5459]

🎉

[@susanedghill6597]

Also from Trinidad. I’m sure we were around all the hazardous sprays that were used back when n the day

[@lennartreimstad6232]

😊

[@susanandersen3034]

This information will definitely help me to communicate with my medical team much better and get better care. Thank you

[@dragabebic2924]

L

[@PEMF.Hydrogen.LLLT.Experts]

Learnt a lot from you, thanks!

[@ginahunter5913]

Thank you for sharing your time God bless you

[@sittingindetroit9204]

My 2nd symptom was what I called rouge stabbing pain. As an example, I could be standing washing dishes and feel like someone shoved a very large needle into my leg or hip or hand or shoulder. These were severe enough to put me to the ground or drop things from my hands. They usually lasted from 1 to 10 seconds and would be gone. Very rarely happened when I was just sitting still or lying down.

[@davidtay8405]

😂🙏 to

[@susanedghill6597]

OmG I was looking into neurologists in the area like Ocala and Gainsville. And I came upon this Drs Name and thought … He looks like the one I should try and see … and here you are Dr. I pray that I can get to see you. 🙏🏻🙏🏻🙏🏻

[@reflexandmassagetherapyram8263]

Thank u for this video it helps me understand about Parkinsons pain and fatigue

[@harisoanirinaramahenina1252]

the symptoms are very clear and full

[@troyhagen587]

THANK YOU I'm lucky to go to the NEW F.S.U. CLINCE. I see Doc. Rust and Matlinde BOTH are GREAT. This is EPIC INFORMATION AND VIDEO THANKS EVERYONE GOD BLESS. I HAVE Parkinson's learning the NEW MEDICAL Science.

[@dorothyalexander3246]

Troy Hagen ):! qa

[@jewelleryaddict]

Was very useful, sent to brother in law recently having park the past few years, he had many questions and concerns his doctors here not addressing, this was great help to him. Having chronic illness very hard I have had fibromyalgia, chronic fatigue syndrome over 20 yrs. myself. I facilitated local support group that long people need answers and help not always given here by their speedy doctors. Thanks again for making this video available.

[@davemack]

Excellent presentation. Than you. Helped me a lot!

[@melindaharty9249]

Definitely an eye-opening presentation on Pain & Fatigue. I need to get in touch with these medical professionals.

[@Cruella-Deville]

This is a good understanding of PD it resonates with me!

[@neeta25011958]

Extremely Helpful and thank you very much.. God bless you and continue with such videos for us who dont understand our loved ones with PD

[@cherylpearson3348]

Thank you for explaining so much. I probably had this for a while now longer than June 2021

[@sunnyvibes8528]

Excellent! Thank you!

[@sfnick1970]

Thank you!

[@Garyganeu]

I learned more from this video than talking to my mds I have had in seven years.

[@sandrahalldorson4338]

Very good information. I have spent years seeing doctors who could not diagnose my condition until this last January. It's amazing to me how our local doctors cannot diagnose PD if most of your symptoms are non-motor symptoms. I've had most of them since I was a child. Has anyone considered bringing continuing education to local doctors?

[@amylevine8878]

Dr. Hess and his colleagues have made an important reach into my and other PD people’s’ experiences. By foregrounding the very symptom-pain, that is, the very intractable and wayward symptom that marks this disease, they are aligning themselves with us. Does anyone know where to get further support around this issue?

[@FixelInstitute]

Amy, we would recommend that you have an honest discussion with your Parkinson's doctor about the pain or tiredness or fatigue you are feeling. They may be able to recommend some medications or therapies or lifestyle changes to help. Of course, we would love to see you here in Gainesville if that's possible.

[@gracetsien621]

​@@FixelInstitute❤

[@lilianflynn198]

A very detailed symposium I feel very lucky to have stumbled on this ..Thank you so much for the upload on Pain with Parkinson's I feel very educated

[@FixelInstitute]

We are happy that you found this and found it useful. More videos are coming from this year's symposium and we have our past symposiums on this channel as well.

[@jasmineholdbrooks9340]

I was wondering if young people can develop Parkinson's disease?

[@FixelInstitute]

@@jasmineholdbrooks9340 Yes it is possible. A person wondering about that should definitely consult with a neurologist and if possible one trained in PD and Movement Disorders.

[@sherronurban9865]

​@@FixelInstitute48:08

[@lorieauchter5880]

This is wonderful information, looking forward to more of your videos!

[@FixelInstitute]

There are more on this channel and more are coming from this year's symposium

[@James-ws6du]

Mine is in the neck area head will not stay up.

[@KarlSterling]

This is sooooo great. Thank you

[@FixelInstitute]

More videos are coming from this year's symposium and we have our past symposiums on this channel as well.

[@catherinewarren6592]

We certainly will attend more symposiums both on line and in person. You gave my husband the information he needs to talk to his doctors regarding his PD and get appropriate help. I would like to hear more of your seminars.

[@FixelInstitute]

We are happy to provide this information. Please check out the rest of our KZbin channel for more information like this that we hope will be helpful to you and your husband!

[@christiankiemle6781]

@@FixelInstitute g

[@MsSkysong]

Thankyou so much for the informative lecture. I am looking after a family member with advanced Parkinson's. The detailed information has helped me to understand what is happening to my sister's body, mind, and spirit. It is tragic to see such suffering . I pray for a cure .

[@FixelInstitute]

We are grateful this has been helpful to you. Please check out our other videos for even more tips!

[@ninanovakova5838]

@@FixelInstitute 0., ,,9.... ,,

[@nusratkhan-cheema1908]

@@ninanovakova5838 .

[@TomeRodrigo]

You pray? Your god shouldn't allow such suffering on innocent people in the first place! You need to beg the god for helping people with cure for parkinson? Sounds like oxymoron. Did you pray to your parents as a toddler to be loved and feeded by food? I hope they loved you and nurtured you unconditionally, the same as god should be behaving towards us people. WTF.

[@allantimbol9695]

That was very informative

[@gregorybalchunas3895]

Yes true thanks

[@gregorybalchunas3895]

Praying for a cure

[@jerrym1070]

Not happy to just find out I have PD . However I must say this is one if the most informative medical presentation I have ever heard . Exceptional video with a wealth of info , thank you so much for this video .

[@FixelInstitute]

Please check out the rest of our videos for more helpful information on different topics. And we'd love to see you in Gainesville if you are ever able to do so.

[@jerrym1070]

@@FixelInstitute I will be researching more on your channel for sure . Nothing like finding people at the top of there game and the 2 videos I have watched so far of yours , definitely puts you in that category. Thank you so much for your valuable information . Thank GOD for you and putting your video in front of me last night . May Blessings come to all that are a part of your dedicated videos .

[@elvahadaway4614]

CD Fr r

[@maureenpierre3811]

❤

[@steverobertson3249]

Thank you! I am 10 X this pain but it is caused by this.

[@lynze5010]

Thank you for all the wonderful information. This is pretty spot on to what I have been dealing with.

[@miekel8663]

I’ve started taking high doses of vitamin B1-thiamine hci. It’s only been a week and I’ve already seen positive change.

[@trents5864]

I'm started on b1 too benfortiamine

[@TomeRodrigo]

So how is it after 1 year?

[@miekel8663]

@@TomeRodrigo I’m actually doing much better, but I can’t say it’s all due to the Thiamine.

[@TomeRodrigo]

@@miekel8663 So did you do any other life changes that make the situation better for you?

[@miekel8663]

@@TomeRodrigo well, I’ve been releasing a LOT of trauma from my body including the trauma that I believe (know) caused this disease in the first place. I had always believed that three things caused it and it was confirmed for me recently with signs and synchronicities. You’d have to have an open mind to believe me. Since releasing the trauma, my body is much better aligned. I still suffer from the disease, but things have improved. I have not actually been consistent lately with the thiamine but recently started again.

[@amandacrowe5280]

Gastrointestinal pain & cramping is so very real! It is difficult to explain.

[@suzannesaladino5368]

I've had stomach issues since birth. Then they stopped until I became pregnant 42 yrs ago. I've had hernia surgery. Now I have to go to the gastro dr every 3 months and have cells that cause cancer removed.Its called asphgus with displacia. I don't know if that's the correct spelling. the dementia is getting so bad also. I have so many non moto symptoms. I have terrible tremors...

[@alineleveille8686]

I have profus sweating from the time I get up, just getting up, dressed and make bed. Up at six till 10 pm, I have to change twice in a day. Is this also part of Parkinson? Diagnosed since 2009.

[@mochyncochyn9113]

My husband has the same profuse sweating as you describe and it is one of the known symptoms.

[@larryrobinson6914]

I'm 74 so being tired is part of the deal anyway. Had disease now four years and ok on one cane

[@HaleyMary]

If it is blepharospasm, eye dystonia, would it be considered on or off? I usually wake up with a stabbing pain in my eye in the mornings on cold days when the weather changes, snow, rain, etc and the pain goes away if I eat fruit or nuts, there are other days when I need an ice pack for days because the eye is in so much pain and doesn't want to open up.

[@FixelInstitute]

We can't answer medical questions like that here. Definitely ask your PD doctor. If you'd like to see us, here's our contact info: movementdisorders.ufhealth.org/contact-us/

[@rosalindathais4726]

its possible give me this conferency spanish , thanks very interesting

[@FixelInstitute]

We do not have this talk available in Spanish. We do have a previous series of talks that was done in Spanish. You can find that here: kzbin.info/www/bejne/an-yompvq9WjgLc

[@gregorybalchunas3895]

Thank you for your service, I heard diet and exercise and some sort of vitamins can really reduce Parkinson's stage 2, is that right,

[@TomeRodrigo]

Did you make any more reseach on it? Can you share?

[@konijntje1536]

So where does a person go to seek a solution for themselves? In Canada? Thank you!!!!

[@annettetom1564]

Perfect explaination. I will forward to my Doctor

[@barbaramckay1307]

Anyone ,know what help is there .in auckland new zealand?

[@FixelInstitute]

We'd recommend asking Parkinson's New Zealand: www.parkinsons.org.nz/

[@gayaninanayakara4073]

Within one month you feel better

[@gayaninanayakara4073]

Xfb

[@therockpile6734]

I have had for the past couple of days pain in my biceps to the point I can't extend my arms fully. I have never experienced this before. Is this common with PD?

[@FixelInstitute]

We recommend you discuss with your neurologist. It could be related but might not be.

[@sandrakfriel4342]

I have similar pain in my right arm as well as dystonia and rigidity. I have had Parkinson's for 21 years plus and I have experienced all sorts of weird sensations and symptoms so is is quite possible. You should check with your doctor though as it could be something else. When you have Parkinson's it is even more important to take care of your general health as you can't afford to lose anymore capacity to move

[@mochyncochyn9113]

My husband has the same as what you describe. The pain/cramp in his shoulder and arm is awful and he gives it a 7 out of 10 in terms of a pain score.

[@johnsworldtour958]

I am going through a frustrating time of 'assessment' for possible Parkinsons' Disease. A missed history for 20 years, the above presentation has been most informative and encouraging and has helped to capture so many of the symptoms and difficulties experienced. Is the slide set used by Dr Hess available as a download as it will help me to organise my thoughts and recounting my history with my neurologist. Many thanks.

[@Nonalove]

The te

[@susanedghill6597]

My fatigue makes me feel too exhausted to even take a breath sometimes

[@TheRasheed35]

Thanks again, 0

[@janehafensteiner5909]

Very hard to adjust

[@johnmckinley6839]

I have nerve pain daily 24/7 and have all these issues

[@simflyr1957]

OMG... after watching this I have come to the conclusion that I DO have PD

[@lizardladyfla]

I do too,at age 60

[@FixelInstitute]

We recommend you discuss with a neurologist, specifically one trained in PD and Movement Disorders. They can help find the right diagnosis.

[@GoProGoalieUzi]

@@lizardladyfla me age 40

[@dickhyde5118]

❤❤❤

[@janehafensteiner5909]

My family doesn’t understand the disease at all

[@AshokaDesilva-yo6lx]

I want to translate to. Sinhala. For Parkinson's disease

[@johncorbyn1430]

*

[@greenflyblue1]

My neurologist refuses to accept that P. D and pain are related. Even though I have been hospitalised a number of times for extreme musculoskeletal pain he will not accept that it is Parkinson’s related. I have had P.D for 18 years now and live in a nursing home.

[@sandrakfriel4342]

I was told that it wasn't possible to be in pain because pain is not a symptom of Parkinson's by a Parkinson's nurse specialist. I felt humiliated and frustrated because I was in agony during my off time. Fortunately the specialist treated me anyway and I have managed we'll ever since.

[@gurgurgur]

Spiritual knowledge helps to make mind positive and for body eat fruits and vegetables helps

[@soniaortega4055]

IS very important to have fresco aire eatly morning. Oxígeno natural and moverse walk etc and good food

[@oniebaloney]

can you have fatigue and daytime sleepiness together

[@milacasas9573]

Hi! As part of treatment can we find solutions in the kind of diet one eats like Mediterranean diet?

[@barbarasonnenblick2730]

Hi 2 years later. Good News. Chances are you”😂😂🎉re still alive Only being Ring run over by a truck (or falling or Fe and/or bad case of neumonyah or Covid will kill you.

[@barbarasonnenblick2730]

@@milacasas9573 thanks

[@barbarasonnenblick2730]

I lost typing //As you can see. You may also be relatively pain free. Remember , you’re old too.

[@barbarasonnenblick2730]

It took me a while for me to hear that. Including hip replacement

[@Halfcrowindian]

I have a very complicated medical history. 19yo: Severely beat (head L to R/raccoon eyes/swollen purple face/stitches above R eye/broken nose/grabbed by ankles,jerked to ground; pulled then quickly twisted around); raped; sodomized. MIGRAINES immediately. Diagnosed with PTSD. (anxiety/panic; insomnia; nightmares; flashbacks, etc) 28yo- several specialists. PAIN: Neck, Stiffness (knees bent inward; legs bent; back crouch); TREMORS. (PrimaryCare said to prepare myself-checking for Brain Tumor; Aneurysm; Parkinson’s...) Diagnosed- FIBROMYALGIA (Baclofen- returned to walking normal. Pain, migraines, tremors remained). 32yo- Weak; increased pain; disabling- Neurologist said can no longer work. Still tried-lost 4 jobs in 1yr. (additional traumas- Diagnosed Chronic SEVERE PTSD, agoraphobia, OCD) 38yo- Stroke symptoms started-L side numb-(hospital few times 35-45yo) 1st time tested- Diagnosed: PINCHED NERVE NECK & TAILBONE; Fibromyalgia (again) By 48yo- Ambulance-Percocet,Vicadin still couldn’t walk even with cane-Hospital-isolated room-Severe Migraine (loop); Morphine drip (didn’t relieve pain but could walk again). Was embarrassing. Also, Snapped Cartilage R KNEE; 2 BULGING DISCS at tailbone; limited mobility-unable to maintain exercise routine, etc. BLOATING/ CONSTIPATION 52yo- fell down stairs. (18mos ago). Severely BRUISED RIBS; Vaginal bleeding (no period for 2yrs); Painful Bloating-specifically R side below ribs; Diagnosed Thoriactic Arthritis; Mobility decreased to 15-30min (neck/back pain is severe); recent new symptom- L foot turned inward when waking up; can’t walk/stand upright 1st 2hrs due to full body pain. Hospital said back situation is worse contact PrimaryCare. [nothing done in 6mos found another; nothing done in 6mos; now Covid-can’t get help😔] Have lived in several states from 19 to present. Several Dr’s/Neurologists. Often dismissed as PTSD & same tests-Brain Tumor; Aneurysm; Parkinson’s... I’m convinced of Parkinson’s resulting from assault /symptoms since tremors age 28- all research supports & this video describes my life- the downhill slope. Have tried drug therapy- opiates didn’t work well enuf to be risking kidneys, liver & addiction. Been to physical therapy numerous times. Tried every drug free alternative-braces; expensive bed/pillows, etc; sleep/ diet/ exercise, etc. Haven’t been able to get referral for neurologist in approx 4yrs. The last good Dr was age 28 & he did increase quality of life. Now I’m lacking both quality/quantity. This is the shortest summary possible. Concerned-1- I keep hearing the sooner diagnosed the more quality years RE: Parkinson’s. 2-internal damage (in addition to preexisting Gastrointestinal issues; psychiatrist said the swollen, painful area is where colon is😳 (lots of painful pressure with slow digestion/bloating) 3-tailbone, entire lower back, numb/a pain line down L leg-worried about paralysis. What do I need to do/say to get medical attention/diagnosis update? My health issues means compromised immune system (agoraphobia helpful🙄😁) so its a catch 22 going to hospital during 2nd wave of Covid😣. Any advice would be greatly appreciated💞

[@FixelInstitute]

We cannot give medical advice over social media, unfortunately. If you are able to get in to see a neurologist, that would be helpful. If you want to see our team, please call 352-294-5400.

[@Halfcrowindian]

UF Health Center for Movement Disorders & Neurorestoration Looked you up- very far away. I’m persistent enuf. All else fails I can move-kids grown; single, etc Thank you!!

[@arunmukherjee6823]

L of

[@dianawalker1622]

You described my life since age 9. FIBROMYALGIA. Took many years to get a diagnosis. Was in my 40s when I got diagnosed. Add to that all the spinal problems you described and osteoarthritis.

[@LivingWithScience82]

Sounds like certain types of Myotonia and paramyotonia can lead to parkinsons disease.

[@TomeRodrigo]

Can you share more information about this?

[@janehafensteiner5909]

I just was actually diainoise with parkinson

[@christaparenteau9430]

My husband was diagnosed with PD 1 1/2 years ago and his Neurologist has never done a follow up,never even called to see how he is doing.We called the VA Clinic several times and left messages and got no reply.Very upset how the system works

[@troyspain7073]

I was diagnosed 3 days ago from a va contract neurologist he seems ok, but I wonder how I am supposed to build a team of doctors as is recommended through the va? One wants me on this medication the others say no, between general doctor, neurologist, gi doctor and psychiatrist and physical therapist it is very frustrating. I think they all care but pardon my French it seems like a dick measuring contest.

[@oscarflores3601]

​@@troyspain7073 Mm

[@dianechampion9936]

My sympathies! I have had basically the same experience. I should have been connected immediately with PT, OT & SLP. Did not know this until my sense of balance was almost gone & my voice too. I strongly suggest you get a copy of "Every Victory Counts." It is full of information that we all need.

[@alanwood5215]

Bbb

[@gailcline9023]

@@troyspain7073 0:00 0:00

[@janehafensteiner5909]

It’s very hard to understand Parkinson’s

[@markkoons7488]

Your several mentions of having only 5 minutes for a doctor/patient meeting to deal with complex situations underlines the unfortunate reality of commercial medicine. Writing from the patient side of the equation I can state with certainty that entirely incorrect diagnosis are not uncommon. I think any honest medical practitioner realizes this. I hope every patient has an unlimited reserve of persistence, access to dedicated and well-informed clinicians, and money to spend. What do you suppose is the likelihood of all that?

[@nightowl6260]

I wonder how many patients diagnosed with fibromyalgia are actually suffering from early Parkinson's Disease.

[@sylviakahn197]

I have fibromyalgia. Chronic fatigue , kidney failure, high blood pressures etc. Very difficult

[@Debbie_Bcool]

I was diagnose with fibromyalgia in 2002. My doctor did some test she thinks I have Parkinson's disease now that I am shaking Fatigue has gotten worse sense fibromyalgia diagnosis, increasing memory problems and speach problems, also balance. I am going to do a MRI this month and I have appointment with the neurologists in November. I have the same question as you. Have I had parkinson's all this time?

[@vanessajohns2981]

I was

[@vanessajohns2981]

I was misdiagnosed.

[@susanpennells988]

Iv often wondered , iv got Parkinsons and fibromyalgia,

[@juliebrooks306]

The

[@ruthanngentry2886]

Q❤

[@lorenzomaximo1818]

I have Parkinson's and feel bombed out all the time weak and tired. Just have no energy. Can't seem to get any answers from anybody as all the Professionals in my area are a bunch of amateurs.

[@FixelInstitute]

Lorenzo, we would recommend that you have an honest discussion with your Parkinson's doctor about the tiredness or fatigue you are feeling. Try to describe it to them as best you can. They may be able to recommend some medications or therapies or lifestyle changes to help. Of course, we would love to see you here in Gainesville if that's possible.

[@lorenzomaximo1818]

@@FixelInstitute Where are you located? Is that Gainesville FL ?

[@FixelInstitute]

Yes, we are in Gainesville, FL. Here's our website: movementdisorders.ufhealth.org/ The address and phone number are at the bottom.

[@Nonalove]

j

[@alandean6001]

Star trek 4

[@janehafensteiner5909]

My one foot turns out walking on my side of my foot

[@jostorr4036]

.

[@AshokaDesilva-yo6lx]

Translate to sinhala😊

[@ghorpestad]

This is totally out of reach for normal people to understand

[@Purnama1008]

Doctor never talks of a good diet, meditation, swimming and overall quality of life for a PD patient. It’s all about pills 💊 and supporting pharma. I have PD and have barely any pain. I take no other pills and have a diet beneficial for PD patients.

[@Sr-vw5nn]

Hi My mother is waiting for a diagnosis but she has the typical sings. She's nearly 78. I was thinking to be proactive and try swimming and yoga with her, more just helping her with balance and increase her core strength. Do you think this will help her ? Also can you please give me advice on the diet I should address for her . Thanks

[@Purnama1008]

@@Sr-vw5nn Yes yoga and exercise is imperative. Include meditation. Diet: Vegetarian diet with legumes, greens and nuts. Almond and olive oils. And finally spirituality will bring her happiness and courage. It’s how you deal with challenges that defines life.

[@ses118]

Mi

[@laylakhamisa8067]

O

[@trents5864]

Very uninformative.

[@phils6946]

don't tell why and how I have pain. Get to the point- stopping the pain. Your speech could have been 15 minutes

[@ghorpestad]

This video is not for «normal» people Difficult to understand