Non-Motor Symptoms of Advanced Parkinson's

[@suetreadgold2482]

Thank you for all the information you give to us. I have been diagnosed around 4 years. When I’m feeling down about my diagnosis I can usually find something that will make me less isolated. Belong to a support group and we have a specific PD exercise class now funded by our local council. Living in Australia 🇦🇺

[@noelig4152]

I'm in the PERSEVERE Study, and I recommend it for all who qualify. The material is pertinent. It requires less than an hour a week; longer if you have a mentor; or for a few extra requirements of the study. My mentor has prepared me for unexpected circumstances and is a wealth of info.

[@davisphinneyfdn]

Thanks for sharing your perspective on the study!

[@Michael-he7xn]

There’s soooo much applicable to my situation right now. Thank you very much for posting.

[@davisphinneyfdn]

We're glad you found value in this. We're here for you!

[@Michael-he7xn]

Thanks for doing what you do guys.

[@NancyMellon-b8d]

This was so good. You explain everything so well. Thabk you!❤

[@davisphinneyfdn]

Thanks for the feedback, Nancy. We're grateful to Dr. Fleisher for sharing her time and expertise.

[@jvargas454]

May I ask if there is a down side of using edible cannibis everyday to sleep? Before being diagnosed with Parkinson, I was not a user of cannibis, but having tried it, I am aware of the affects. I have had a long battle with insomia. It was not uncommon to finally fall asleep exhausted at 3:00 am, then waking at 6:00 am. I don't use it to get high and I only use enough to get through the night, which is normally about 6 hours.

[@davisphinneyfdn]

Thanks for your question. There has not been much high-quality research into extended use of cannabis by people with Parkinson's. There are multiple small studies and anecdotal reports that show positive impacts on sleep, though. There are some general risks to be careful about: chief among the risks is the risk of falling when waking (for example, to go to the bathroom, due to the some of the effects of cannabis. Other risks include some elevated enzymes levels, which may be impacted by the specific strain of cannabis ingested, and worsening of cognitive symptoms, but again, this list isn't comprehensive and there has been limited research. We'll reach out to Dr. Fleisher to see if she has any additional comments to add. If you choose to use cannabis, it is a good idea to talk with your care team about this, and to seek advice about the best delivery method for you. Of course, there are also legal issues to consider, which will vary depending on where you live. Here is a 2022 report that discusses multiple studies of cannabis and Parkinson's: journals.sagepub.com/doi/full/10.3233/JPD-212923

[@jvargas454]

@@davisphinneyfdn Thank you. Yes, I did consult with my care giver and I was told to try it and see if I benefit. Cannabis is legal in my state.

[@splashesin8]

❤😊

[@roberthead375]

Thank you for all you do. Davis Phinney was one of the first places for information I found after my diagnosis in late July of this year. Your information has really helped me not feel so isolated with what is happening. Symptoms, issues etc. I have seen significant improvement in my motor symptoms with sinemet, low dose naltrexone and Rasagiline. My non motor symptoms have not improved as much and have issues with agitation, anxiety, apathy, multi-tasking and peripheral hallucination Speaking of that, and I may be the only one, but I find the blurred background and the "morphing" edits somewhat difficult to watch. Although I do recognize them for what they are, there is a split second I wonder if it's Parkinsons related. Just an observation. This topic of addressing non motor symptoms is very informative and helpful. Thanks.

[@davisphinneyfdn]

Thanks for your comment and your feedback. We're so glad you've found our content helpful. With regard to the morphing edits: that these could be difficult is understandable. We'll explore whether there may be suitable alternatives.