Understanding the Persistent Symptoms in Lyme Disease | Johns Hopkins Medicine

To avoid persistent symptoms in Lyme disease it is crucial to recognize the Lyme disease rash, when present, and diagnose and treat early and adequately. Persistent symptoms can be multi-system and debilitating, and include severe fatigue, musculoskeletal pain, cardiac complications, neurologic symptoms, and cognitive problems.
May is Lyme Disease Awareness Month. Educate yourself about Lyme disease and tick-borne disease and how to keep your family safe. Learn more at the Johns Hopkins Lyme Disease Research Center website - www.hopkinslyme.org

[@nonstickmeat]

Getting Lyme when I was 22 changed my life thus far. I got two bullseye rashes in June of 2017 and was treated within the week. I still have extreme fatigue, lower back pain and decreased memory to this very day. Gave up my college aspirations and had to quit my job. It's been a rough three years and I hope that one day I can live life once again and do more than sit on my bedroom floor.

[@spookshow6999]

Same. They wouldn’t listen to me. They didn’t test me till 4 months later. I tested positive. They treated me with antibiotics, and I’m having even worse symptoms two years later.

[@Hmy8799]

KM same, but never initially treated. Bitten when 6yo followed by a year of severe knee pain (arthritis) that multiple doctors attributed to growing pains. Had random bizarre symptoms that would come and go but doctors always came up with some sort of explanation, then it would disappear. Getting mono when I was 20 was what let all hell break loose (I have all the coinfections, but did get rid of RMSF after finally diagnosed at 25-after seeing 9 doctors NOT including psychs hah). 29 now and have been focused on getting my body in a healthy state as I could no longer handle treatment that caused die off, and slowly detoxing. There are silver linings if you open yourself up to them, but it sure would be great if we weren’t so overlooked by western medicine (in my experience, completely dismissed a couple of times bc of doctors werent ok that I knew more than them about what they are paid to do). I’ve been lucky enough to have financial support from family, and feel so awful for those not in a similar position, which is most! I’ve already decided I want to dedicate my life to that subset...but I literally didn’t have any idea what Lyme even was until my mom saw ally hilfiger promoting her book on tv and she had a story that was so similar. I will never understand why it’s been so cruelly overlooked for so long, and do believe people will someday look back and be appalled by the system

[@MK-co6uf]

It’s me/cfs

[@alanschauer8255]

Excellent video! Great to see Lyme getting attention. Our family lived this nightmare of persistent Lyme (my daughter) for too long. We had to come up with the diagnosis and finally take her to a doctor that understood Lyme. Most doctors do not and you end up going in circles.

[@jesscvideo]

I got Lyme, had a rash that literally spread over my body and flu symptoms with a fever. I then got tinnitus from it that I still have today. I was treated with antibiotics for 30 days, but still have symptoms including knee pain and neurological problems, shaking.

[@ctsingletrack]

I got treated for Lyme months ago, but it still seems to be getting worse. My joints and eyes hurt. Sore muscles, fatigue, and losing my eye sight as well.

[@AnneloesF]

Finally it seems that true steps are being made to unravel this illness. I hope there will be an actual cure soon, but simple recognition and orevention will already be invaluable. Best of luck to all researchers!

[@Hmy8799]

But why not a focus on the people who were never initially diagnosed (A MUCH higher number than those who were) who fall severely ill (where lives are put completely on hold for many years after the immune system allowing the Luke to completely take over) suffering unimaginable pain both physically and psychologically. My entire 20s were spent on my parents couch/bed at their house, and although I’m finally able to stay awake long enough to live on my own and take care of myself at age 29, I’m still unable to treat further than i initially did with my first LLMD, due to my toxic load. I have to slowly detox before killing anything off. 2 years of this. And I don’t remember the last time I had a conversation without having word recall issues, for the simplest of words. I went to the most difficult high school in my state and a top 15 university...please help the millions across the world that had more similar to my experience, but can’t afford not working and living on their parents’ couch due to a year-long “Lyme flu”

[@Hmy8799]

Nonetheless I’d like to thank you very much for your dedication to researching Lyme in whatever capacity/type it may be. I don’t understand how more hasn’t been done by now when millions of people are suffering and for some reason there’s still some sort of taboo, as western medical practitioners were not properly educated on the disease in med school. Awareness is key so thank you for all you do and for putting videos that legitimize Lyme disease online!!

[@faxmurder]

In France, they don't reconize the illness. Country of Pasteur and lobbies...

[@JP-xs5lo]

Not everyone gets treated right away after tick bite and rash and the difference is huge everyday this infection goes untreated. There is no talk about this and there only treating one size fits all 14 day your cured treatment that’s the PROBLEM!!!!

[@birdiel7182]

When did Chronic Lyme Disease become an accepted diagnosis? For years, I’ve read that the infection itself does not persist.

[@stylishskater92]

@KM Because it is... there should be no controversy about this at all. The science is all there, aswell as clinical proof and experiences.

[@cassidy-beaukitt1972]

i had it for a decade