Utah girl who lost her battle with Batten Disease is the subject of a new film

[@deefoose2385]

I've never been so moved by a movie like this..this really pulled on my heart...I bawled like a baby..I'm so sorry

[@atongwangsa3038]

Thank you so much Kennedy for you love and messages to us... You have made so much difference in our world.....

[@candyapple2358]

Love this movie! It has such a touching message. Highly recommend it to anyone and everyone.

[@jeaninecleirbaut218]

My stepson is almost 17 and has juvenile battens disease. He's been blind since 5. He in his end times, and I'm doing all I can to give him a better life. 💔

[@snakebitepellehue]

I'm very sorry, but please keep doing what you're doing. He may soon be gone, but for now, he's still here. Embrace that precious time no matter how short it is.

[@TheCybertiger9]

stay strong Jeanine stay strong

[@foreversisters3661]

🙏

[@2listening1]

Love always to you.

[@Chris-w8e6g]

It's been 5 years I just wanted to check on you and make sure you are ok

[@peggytoes99]

Recently saw this movie - excellent job on the movie and also viewed stories of other Batten Disease kids on youtube and discovered that most if not all of the videos I watched told of similar spiritual knowledge that they were needed back home or just a peace from the next life. Thank you for sharing!

[@keciaaskew5166]

What is the name of the movie

[@emmilyn362]

Love, Kennedy

[@seanlucas8812]

Thank you for sharing Love, Kennedy with me and the world.There is a sad ending to Love, Kennedy my problems seem small. This girl had so much bravery courage and faith. She was a light for others that were lost and had no hope. She is a miracle

[@raeannaschnittgen1875]

RIP Kennedy and RIP Charlee. I just finished watching the movie and i cried at least 5 times.

[@seanlucas8812]

Same maybe more

[@AndrewBouvier-ix8ot]

@@raeannaschnittgen1875 id love to watch this movie 🩵🙏🏻🙏🏻

[@TheVestini]

Fly High Kennedy - Fly High Charlie ~ gorgeous children

[@StephAnie....]

Amazing parents. Heart touching

[@bonnievanrees9976]

We love and pray for this family

[@kirbypi37]

The second I finished this video I went and watched the movie. I just finished it and it broke my heart. She really was an amazing person ❤

[@grobanite4ever85]

I bought this movie and it made me cry!

[@latoyanance3815]

Made me cry also

[@terralee6177]

Thank you Kennedy and Thank you Jesus. I love you heavenly Father

[@natashachosebygodclark9616]

This is a touching story and it was a good movie 🙏🙏🙌🙏🙌😢😭❤️💕

[@Miss__Cowgirly]

I watched Love, Kennedy and it absolutely moved me beyond words. I highly recommend watching it (with a full box of tissues)

[@shevaunvan-hoff4069]

Treatments for this rare disease are available. Enzyme Replacement Therapy: This is currently available for one type of Batten disease (CLN2). It involves infusing an enzyme directly into the brain, which can slow disease progression. Gene Therapy: Research is ongoing, to replace the mutated genes that cause Batten disease with healthy ones.

[@abstractness]

Kennedy looks gorgeous!

[@latoyanance3815]

She is beautiful

[@LayingInAMeadow]

Oh man my heart

[@Lilnuggie04]

I saw the movie it made me cry

[@luisg6535]

the hardest heart any parent has cries with her history movie😢😢😢❤❤ (love kennedy movie name)

[@tonyaboggs5367]

Watching this movie now :)

[@marioarroyo2006]

I hate the term “lost their battle”. It’s not really fair, there was only one outcome that could be had. She fought valiantly. That’s what should be remembered.

[@seanlucas8812]

True, we forget God has a path for all of us. God is with us always

[@laurahale9309]

Such love!!!!!!!!

[@nailakhan987]

Lovely beautiful girl but very sad ending I feel for parents

[@hailegirmay5051]

I will pray :3

[@sorakanzoku1748]

My daughter was just diagnosed with this. I'm so scared

[@bigmoneygrip6561]

How is your daughter?

[@sorakanzoku1748]

@@bigmoneygrip6561 she's struggling with emotional range. It seems to just be that everything is a major problem and comes with lots of yelling screaming and I hates you... I know some ia normal, but it's like 24/7

[@Adriana-vp1rm]

Maybe Pans?​@@sorakanzoku1748

[@emmaartamonova7974]

Donate to lifesaving childhood diseases research and help save children’s lives

[@shannonerickson2772]

Wish I could watch this movie, but don’t want to subscribe to a streaming website just to watch it. Is there any other way to get a chance to watch this. I have never heard to this illness. I am so sorry my heart goes out to the family who lost their loved ones to this

[@reidchambers2521]

"it turns out better than you could've expected"? A dead 16 year-old, who suffered immeasurably...

[@lanasparadise4341]

poor sweet angel. I should have gotten batten disease, not her. our family has never been religies, but im going to pray every day and see how kennedy is doing. I know god wante her home and it was a part of the plan, but i want to see the the plan. I love you kennedy and please come down to see me. I want to talk to you

[@daphnerondeau841]

That's so sad

[@janroach1852]

I hope this movie donated most of the money to a cure for Batten Disease. It is rare so there is not much or even any government funded research. But the title "lost her battle with Batten Disease" implies she had a chance to live. She had no chance at life. It is progressive, causes great suffering and always fatal. The families of these children take one day at a time and make their children's life as full and happy as they can for as long as they can. The children and the parents are heroes. Many of these diseases they don't screen for unless they suspect you are at risk but maybe everyone should be screened for a number of these rare diseases during pregnancy. No child should have to suffer like this.

[@davidabner8885]

So sad that just a few years later there would be hope for a treatment

[@deloresm7494]

Pray for a cure

[@crakghoul]

😭😭😭

[@Shirley-ux1bs]

❤❤❤❤

[@emmaartamonova7974]

Donate to lifesaving childhood diseases research and help find a cure

[@djayrainstorm7834]

Saw the movie, and it made me cry. Like the comment if you cried too ;-;

[@abbasiimran4801]

Hello sir my country India My son 3 year age male Variant details PPT1 Battens disease My help you please sir Poor 😭🙏

[@grobanite4ever85]

This is just as bad as tay Sachs disease

[@missgregory5491]

my freind harry rolphwills died from batterns disese

[@HTSS8]

Mormons?

[@anthonynettleton4854]

Yeah but that isn't the point is it .. I am mormon too

[@HTSS8]

@@anthonynettleton4854 It most certainly is The point. Mormon theology is Satan's message. Sadly the girl definitely reached the age of accountability for her Sin nature and personal offenses against Christ. She chose to stay in your father Satan's family religion, and regardless of what happened to her body and mind after reaching that age, she's died still unregenerate. Mormon god is fabricated mask of Satan. Which planet did she go to be the God of at her death? Classic human Self worship and desire to be God. So just make up the story that you get to be a god later somewhere else. Mormon theology is that the Bible is only talking about a god of this planet and not all creation and all galaxies. It spits in the face of the The True and only God and slaps Christ in the face.

[@anthonynettleton4854]

@@HTSS8 technically God knows when a person actually understands and to be fair you only get judged according to what u know and understand .. also I dont see how its satan as everything we as lds is following christ and everything we do is for christ

[@HTSS8]

@@anthonynettleton4854 just because you type "technically" before some statements, does that mean the following statements are irrefutable? Of course not, but it is common behavior by those trying to borrow credentials for their opinions that actually are completely unfounded. Are you ignoring the theology mormons teach that the god (and christ too), is only of this planet? And since it is so, then it is a god and a christ, that is a figment of Joseph Smith's wicked self righteous heart. He did everything the Bible said would be done by those unwilling to submit to the One and only Holy God and Christ, he imagined a variation, a "another christ" and made a god (not God) of his own choosing to serve his personal will. That is Satanic. It is Satan's ploy and plan to defame, disgrace, and demean the True God and Christ for a counterfeit. Any idol god and "other christ" is of Satan (the Occult), as God says, no matter how nice the followers pretend to be or how sincere appear to be. There's only one God and one Savior Christ. No others, on or for other planets. And no created man will ever become a god of anything anywhere/else. You are in a Cult of the Occult, Satan's administrative tentacles for leading men away from The God and The Christ.

[@HTSS8]

@DARK KATACLYSM ok, right. But what is with your profile name here? What does Dark Kataclysm mean?

[@Lauren-vd4qe]

I wd b terribly endlessly curious as to HOW it developed in her body...vaccinations? medical drugs? Illicit drugs? gotta have a starting point...

[@noahfence9088]

Lauren it’s genetic. Both of her parents are carriers of the gene.

[@TigTig-Kitty]

It develops in the stage of eggs meeting sperm and the DNA being produced in the first stage of pregnancy.

[@gloomycandy101]

It's genetic. Vaccines and medicine have nothing to do with it.

[@robingarrett3171]

Illicit drugs. Yes, the scourge of all 6 year olds.

[@michaelhilton3481]

You are a b***ch