Vlogging with EDS: Escaping the Hospital, Jekyll and Hyde, and GIVEAWAY | Week 100

[@iceeyes4478]

My dear, the fact that you have even posted any videos this past month when you have been so sick and in the hospital is amazing. I don't care if they're late, and I would completely understand if you didn't post at all. Give yourself some credit because you did amazingly well.

[@Alaxl]

So happy you are home! I am just starting my EDS journey. I was diagnosed a few weeks ago with EDS, after ten years of trying to overpower a chiari malformation. I've delayed surgery on my neck bc I'm so scared, but seeing you gives me courage. I'm going through the rounds of specialists now (cardio echo tomorrow), and I'm guessing I'll end up having chiari and fusion surgery next year. As far as I know, I will go back to Cleveland clinic bc I have a retroflexed odontoid, which makes ordinary zipper surgery not an option. It all gets so complicated and scary. Also, I really wish I had your mom. She's amazing! ETA: I forgot to say I found your vlog by searching for EDS braces. I'm anxious to find devices that let me walk without falling, sleep without wrenching my neck, etc. I'm so grateful you've shared your experiences, and in a way that I don't have to read tons of material. My brain stops processing after a few long paragraphs, so videos are a blessing lol! Thank you for making me feel a little less like 1 in 5,000!

[@lisawinters4681]

I will keep you in my prayers!!! You can do this just take it one day and a time and that's all you can do...

[@maryreynolds5310]

Christina, it’s so good to have you back! I know you will get a much needed proper sleep now that your back in your own bed. I honestly don’t remember the very first vlog I watched of yours, but I know this vlog for me is the best ever! The reason, we’ll...this trip to the hospital had me pretty scared, and I hope I don’t ever have to worry like that about you again! This stay really had me worried..I prayed so much, Shed a tear or two, so very afraid. Christina I hate that you struggle so, things not doing what they are saposta do or breaking or coming out of place etc etc. I just wish there was a magic word or something, click your heals twice then poof....your all better! Your a pretty special person Christina, to many people, including complete strangers. You just have that something special to where the world just falls in love with you as a person. You could be having a totally miserable day, but you somehow find the strength to make someone else smile, or give someone the hope they were looking for. This world would never be the same if you were not in it....so just saying, you better plan on sticking around for a very VERY long time! Wow, I do have a tendency go on and on so I better stop. Again, welcome 🏡 You sure have plenty of fun things to keep you busy :) Have a great week ahead, and same to your mom..welcome home! Peace~

[@mrjcdc241]

Christina!!!! Put the brakes on girl! You just got out of a lengthy DIFFICULT stay in the hospital! Multiple surgeries, on and on and on.... You said you are weak too. You seriously need to get your strength back and take care of yourself for a while so you can start functioning.

[@SellyNue]

YES! I heartily second this!

[@alexandrac591]

So glad you are home! Honestly, walking around in stocking feet to feel the ground is really good for your brain and walking! Smell the things, look far distances, all the good stuff. Your eyes are probably tired from staring at the close walls of the hospital room. So glad you love rosemary, I love it too!

[@tylerbennett4908]

That first breath of fresh air leaving the hospital is always amazing, so glad to see that you finally got to go home :) I found your videos about a year ago sitting in bed with my own chronic illness...they’ve been inspiration and comfort to me that I can keep going and also that rest is okay. Love the painting!

[@Doodlebear16]

It's so nice to see you back at home and comfortable. Even though you had a smile on your face at the hospital it still wasn't as bright as it is when you are back home. I believe one of my first views of your vlog was just about a year ago when I first had the pleasure of meeting you, or shortly thereafter. 😘💓💓💓

[@NeSsA994]

The first ever video I watched of yours was one of your living with EDS series. It was the importance of a diagnosis & early intervention. I found it on May 2017, when I was first diagnosed, and have been watching you ever since. You are the highlight of my week. Be gentle with yourself, Christina. All my healing wishes from all the surgeries...

[@caitcook]

Hi Christina, so glad to see you finally out of the hospital! I'm a fellow spoonie - I suffer from severe Myalgic Encephalomyelitis and am usually bedbound due to the vertigo, nausea and fatigue from walking and standing. I started watching you videos maybe 6 months ago - I found the EDS video and then went back at started the vlogs from the beginning! I think I finally caught up around week 80. You also introduced me to The Frey Life and I'm now addicted to Mary, Peter and Ollie! Thanks to yourself, The Frey Life and Jessica Kellgren-Fozard (another KZbinr with a disability), I finally got the confidence to request a wheelchair when I went to IKEA yesterday and I was blown away by how kind the staff were! I was super anxious they'd tell me no or make me explain my illnesses (don't invisible illnesses suck!) but the whole experience was really validating. My partner and I had the best time - I actually got to feel human again without having to worry about my energy levels or collapsing as soon as I got to the car, and he didn't have to wait while I walked super slow or had to take rests every thirty seconds. I never would have had the confidence to consider a wheelchair without having seen your blogs and all the hard work you put into advocating for people with disabilities and invisible illnesses. A massive thank you for all that you do, my world is a brighter place for having you in it :)

[@luminousk8879]

I've been watching for a year maybe. I found you when I was researching EDS. I think the first video I watched was you video on your diagnosis journey. It actually have me courage to approach doctors with what I thought was going on, and find specialists who could help me... so thank you!! I've since been diagnosed with hEDS, POTS, MCAD and MALS. After 37 years of random health problems, it is such a relief to.know what's going on! Thank you for sharing your journey with us. I'm so glad you're home and doing better and that you got to see your show. Musical theatre is LIFE!!

[@gennamang9280]

My first video was your rehab story! Your videos are so uplifting to me, and you are such a lovely person to "spend time with" through these vlogs. Chronic illness is hard, but having people like you and The Frey Life bringing light to it, being honest about it, and just living life, is so valuable. Watching your videos is healing for many people, I think. Much love!

[@thejarrellfive]

My daughter Grace and I love watching your videos. I found you by searching for videos about EDS to show her in hopes of helping her understand what her diagnosis was. I started from the beginning and then started watching some with her that I felt would help her. Thank you for being real and perfectly you.

[@calibateman]

I can’t believe that it’s been 100 weeks. You give me strength through the videos, your smile is contagious and your outlook is amazing. I have been watching ever since the What is ehlers danlos syndrome video. It’s been a happy, emotional and exciting journey with you. I’m so happy that you are willing to share your journey with us.

[@neen42]

I think all of us with chronic pain/illness are super excited when we find things that might make our lives better - and elated when something actually does! I'm so happy the brace attachment relieves some pain ☺

[@darkbluematter1753]

Back on schedule! We are all proud of you too. So exited for you getting a backstage theater tour. It’s things like that which make hard times a little easier to bare. You are loved!

[@faeriesmak]

I don’t even remember what video was the first one that I saw of yours. I think that it might have been where you talked about your braces or your feeding tube. It just popped up on the side and I watched it and subscribed. It’s good to see you back at home again. Take care of yourself and have a good week.

[@addiewoodruff5730]

The first video of yours that I found was in August called "Living with EDS: Mast Cell Activation Syndrome / Vogmask Giveaway." I came down with adult onset of Cutaneous Mastocytosis (CM) in 2006 but was just given a proper diagnosis in Feb 2018 so I have been researching anything and everything that I can get my hands on about mast cells and came across your videos. I just adore and admire your uplifting spirit! Your vlogs remind me that there are a lot of people out there living day by day with incurable diseases, but can live with smiles on our faces. I will be praying for you and your family! I also wanted to thank you for being so articulate when sharing your health information. Getting & giving proper information, absorbing & sharing oodles of knowledge and maintaining a strong self advocating mindset leads to healthier living, keep up the good work! God speed in your recovery!

[@Jannuk76]

Yeah, home sweet home. The vlog that brought me here was "Living with EDS: The Importance of Diagnosis and Early Intervention". It helped me a lot to explain to other people why I needed to visit many doctors, instead of trying to keep swimming, when I was already drowning. Thank you!

[@colormezebra2841]

I started watching your vlogs with the EDS diagnosis journey. Then I binge-watched about a year's worth. Ive been caught up and have been watching as you've uploaded for about 5 months. Your vlogs have been very informative. Thank you for supporting the EDS community the way you do.

[@sophiesara4404]

The video that I seen on your channel was the one when you had your emergency jugular stent placed! Since then I have watched every video of yours, and every week I look forward to watching what you have been up to. I also feel like you are the realist you tuber when it comes to chronic illness, you are not afraid to show the good, bad, & the ugly! Thank you Christina!x

[@EleanorNicBhatair]

Living with EDS: all about my feeding tube FQA was the first video of yours that I watched and I've been following your journey since. I don't have EDS or a chronic Illness but you inspire me to live life to the fullest and to not let anything get in your way. I'm so happy that your now home and that your now on vlog no 100!!! Here's to the next 100 weeks :) With love from Eleanor (Glasgow-Scotland)

[@lorinewcomb4717]

I can't remember which one was my first video but it was when I was trying to find out more bout Eds after my diagnosis...so thank you! Xoxo ❤ You are so special and I am glad you are home and still sharing your life with us. I am grateful to you!

[@ewa2691]

Happy 100th video! I feel like a dinosaur, been watching since before the vlogs had numbers... I was going through a strangely stressful time in my 2nd year of uni and I stumbled upon your... feeding tube video Q&A, I think? I found your voice incredibly soothing, and here we are, two years and 100 vlogs later! x

[@yoma65]

Congrats on video 100! I think you caught my eye with video 68 that was suggested on my feed for some reason and as I had spinal surgery in college it caught my attention. You were sweet and a fighter with a chronic illness I never knew existed but I could tell right away we were kindred spirits of different generations. I’ve since gone back and watched every one of your videos and enjoyed them all. I love crafting, music, theater and art and your talents and interests in these areas are a large part of why I enjoy your content. Praying always for your health and comfort, also for your sister, and parents. Take care!

[@jamiemp0762]

I actually found you first by your shunt video. I was diagnosed with left vertebral artery dominant dolichoecstasia along with chiari 1 and idiopathic intracranial hypertension and degenerative disc disease with ruptured discs throughout my spine. I was already diagnosed with hyperadrenergic pots, congestive heart failure and 24 other not fun diagnoses before hand. Needless to say it has been a very long and uphill battle. I was trying to find out more about VBD possible treatments when I found you. My children and I love to curl up and watch your videos together. The diagnosis of VBD doesnt afford me a whole lot more time on this earth with my little ones so we try to make the best out of what we have left. Laying in bed is about all my body affords me anymore. Thank you for doing what you do and being a bright light beacon for us that struggle in the darkness too! It helps give us strength to keep battling on. Keep on keeping on. Love and prayers continue for you and your sweet family.

[@tamberjune]

It's week 100 of tor weekly vlogs, Christina! Congratulations! That is almost two whole years! I've been watching your blogs since probably the 3rd or 4th one and I have the missed a week if I Was in the hospital or something... but I am I glad I have gotten to know you, your mom, and your cool family through them! You make me strive the better ad I look forward to your blog every week even if it is late. Just making sure to are doing ok a and sending you and Lauren things when I can, makes me Happy! My sister and I want to put together a package for you guys.. I already have set some stuff aside! I think you will like it. I remember when I used I wait not phone/laptop to see when your vlogs & videos would be posted! You make me believe in myself and the locket you made for my sister with the dark purple stone(her bendadryl locket), has Saved her life! Thank you for all the awareness you spread and the hope and joy an ideas you give your viewers and friends! Thanks for everything, Christina & Co. Sending love from southern California! You're a true warrior with those staples! I am so proud of you and congrats on your Wegohealth nomination! You're all wonderful! I hope you're having a good week this week and that your mast cells are behaving and your gotten to see Trish! You have helped me through a lot of tough times and I will be forever grateful! Thanks for being a friend! 💜💜

[@poetjames]

I’m glad you are home! I hope you get some good sleep and that your health stabilizes in a good place. You have been through more than most of us will ever face. You deserve a break!

[@michellewright6733]

I started with week 68 and got hooked and now I've watched almost all of them. I'm was a nurse and never heard of EDS and was so interested with all aspects of this disease. I've also had cervical and lumbar fusions and going back in for another cervical fusion next month. So I'm just so inspired by your positive attitude through everything that you have to endure. GOD bless you and your family.

[@juliescheie5495]

Congrats on 100! My daughter, who has EDS, told me about you quite awhile ago. I started right at the beginning with you first video where you were painting. Now you can go to PT again! Yay!

[@tessapal]

I found your channel in October when I started my journey to getting diagnosed with EDS. We’re pretty sure I have hEDS, and I was told to do research, so I watched your day in the life video as part of that, and I’ve watched every week since. Glad you’re back home with your family and that you got to see Jekyll & Hyde! ❤️

[@sarah67titmanmccurdy55]

Your video was recommended to me by KZbin. I think it was from watching Clair’s videos. Although I do not have EDS I do have fibromyalgia, rheumatoid arthritis and various other autoimmune problems. Watching you be so strong and gracious reminds me that although chronic pain sucks it can be handled. Your an amazing young lady. Thank you for sharing your life.

[@skye1767]

I am so happy you are on the other side of the shunt saga. 💜 The first video of yours that I saw was when you got a stent in your jugular! I was amazed by your cool demeanor and your sense of humor. I appreciate your videos so much! As a newly dx’d EDS-er your videos have given me so much info and so much hope.

[@Luma994]

Please be kind to your self and Lt your body rest. So many operations in such a short time is a big stress on your body. Give it time. And please don't stress about the vlogs, I happily watch what ever you post when ever you post it. I have watched your videos since before you started blogging every week. You are in my thoughts, wishing you well my friend. Glad to have seen more of your loving mother these past weeks but I have missed Luren, your dad and your cute dog (whos name I can't spell). Please rest and be well and I will see you when I see you (no stress). Much love and healing thoughts ❤❤❤❤❤

[@sharonrobertson9062]

I was just diagnosed with EDS in April and found you shortly thereafter. I have gone back to the beginning and watched nearly all of your videos. Thank you for sharing with us!

[@Ash-yb7fx]

Congrats on 100 weeks of vlogs!! So glad that you are finally home and can recover from a place of peace! I hope that you can spend some much needed time in your garden! I have been watching you since your How to dress like your favourite Broadway​ character!!

[@christyhedges3290]

Your Living with EDS: What is Ehlers-Danlos Syndrome video is the one that bought me to your channel. I was so confused about my symptoms, I thought I was lazy and whiny and maybe everyone felt like I did but just got on with it. You showed me that my feeling were valid and I was able to get a remarkably quick diagnoses. Without you I would still be struggling. So a great big thank you!

[@brookenelson37]

My first video was week 21! Anticipating travel and packing! Thanks so much for all you do for the EDS community!

[@loiscassels8966]

🏆🏅🎖🎉👏🏼💯 Congratulations Christina! Can’t wait for the next 100 videos. You are so awesome!

[@NoelSeymourEST2023]

I’ve been around since you did your 1,000 subscribers video I believe week 11 or 12. I love that you share the good, the bad and the ugly. I also am pleased you share your faith!!!!! Keep on fighting! You are in my daily prayers!!!! 🙏💜

[@ashleyarrington6684]

my first video of yours that i ever watched was the week 79 vlog! i found your insta through the mightys post about eds awareness month and then followed you and started watching your vlogs. thank you so much for what you do - you are such a beam of light in the chronic illness community.

[@jessalovely9931]

I've been watching since May 2016, the first video was "Living with EDS: Journey to a diagnosis", and have been along for the ride ever since. My husband even watches now. I knew I had EDS since 2012. I was diagnosed with hEDS in 2014, but unfortunately I live in East coast Canada and there's little to no help available to people like us at the moment (we're about 10 years behind). I've had Drs tell me that I'm "outta their pay grade" or "just too complicated". At this point I've been bed ridden for 3+ years. I also currently have no health insurance.... it's been rough. I have an amazing family that I love very much and they do their best to support me anyway they can. But your videos have brough a different kind of support and have ment the world to me. Through think and thin you always manage to smile and look at the bright side of life. You are a pioneer for us suffering through the battlefield that is EDS, and you give me hope that someday the techniques you've had access to and in some cases even help develop, will become available to me. (Drs around here havnt even heard of saline therapy for goodness sakes!) It's been a long road and will continue to be. Your fight helps give me the desire to keep fighting; to keep advocating for myself and Educate those who wish to learn. Thank you for all that you are and all that you do💞

[@rosierose5310]

I want to say that you're so incredibly strong! Please take your time. You've been through so much last months. I love watching your blog, but your health is more important then everything else. Love seeing you home and going to the theater. I love to go to musicals also. I've found you in youtube searching for more about EDS. I've watched you from vlog 75 OR so and never stopped. You're the only person, where I watch long vlogs and they still seem short. Thank you and please take your time to heal.

[@kellymyers7506]

I’m so glad you made it home!!! I just wanted you to know I think you are awesome! I’ve learned so much about EDS and POTS from your channel. I am newly diagnosed with EDS and POTS and I also have been having seizures. You’re channel has helps me feel that I’m not alone. God bless you and your family!

[@ravenshad]

I don't remember which of your videos was my first. I remember it was a year ago, watched 10 minutes, paused and started watching all of them in order and have watched each one since then. :) I am so so glad you are home!

[@inspiredmuse97]

The first video I ever saw was your Living With EDS: A Day in Your Life. It was surprisingly encouraging after I had just been diagnosed with hEDS and was soon going to be tested for POTS. Thank you for being so positive and giving me such inspiration to keep going and to educate others on EDS, POTS, Gastroparesis, and MCAS.

[@jennamontgomery3195]

Yay! You are home!!! Can’t remember the first video of yours that I watched, but I for sure remember your video about your CCI surgery. Enjoy being home lovely!!!!

[@kimbertree]

So happy you're home! Take care of yourself and don't be harsh on yourself if you're behind schedule. We will always understand!! I've been watching since around week 50 (although I've seen every vlog)! Ive learned so much about EDS from you, and by watching your videos I finally found a doctor to diagnose me with EDS as well. I'm eternally grateful to you!

[@MariahFries]

Hi Christina, I've been watching you for probably about a year now. The first video of yours I watched was Living With EDS: My Journey to Diagnosis. It was your channel and a few others around social media, who helped me figure out my own health issues and work toward my own diagnosis'. I've always got other chronic illness warriors on my mind, sending them good thoughts. I love the community you have created here :)

[@Beatuy1016]

I found this channel a while ago when you posted a video showing how your feeding tube works. Im not a spoonie, but I have watched all your videos since. Im so glad to see you at home again, I hope your recovery keeps going smoothly!

[@michellemusik4858]

So glad your back home! I found your videos searching EDS. Your kind face and good vibes had me hooked! I’ve learned a lot from you thank you for putting the time into this channel💗 love and light

[@shelby.kat.darling]

Thank you so much for captioning your videos❤❤❤

[@celinesanborn5798]

So thrilled that you are finally home! I believe that your POTS video was the first one that I watched since I also have dysautonomia. Your videos on your port surgery were also super helpful when I had mine placed this past June. Thanks for being such a great resource!

[@merlingrey2568]

I was brought to your videos because I wanted answers for why my joints are more fragile than my friends, my shoulders can subluxate just from the weight of my arm itself, and I had no idea that wasn't the norm. I went searching for answers and came across your videos, and your positivity through rough times is slowly teaching me that it's ok not to push myself and to have time off.

[@Sakire1]

It’s been about two years ago when I first found you I believe the video was Living with EDS: what is Ehlers-Danlos syndrome. Way back. We made to week 100! Yay!! ❤️

[@twiggy042999]

So happy you are home! Please, please, please be kind to yourself. We love seeing you but don’t ever feel obligated to ever have a deadline. We ourselves know some of what you endure and would never want you to overdo yourself for vlogging. Sending love and continued prayers as you bounce back to the norm. I am thankful to have found you while searching for EDS Cervical Instability and have learned so much from you. My little guy and I were diagnosed in 2016 with HEDS. I also carry an Aortic Rupture risk due to a defective MYLK gene (oddly unrelated to VEDS). Since being diagnosed and having an insurance chance due to disability finally being approved, I am finally heading in the hands of doctors familiar with EDS. Sadly, much damage has been done in my neck. They’re trying to exhaust all non-surgical options but I know by how I feel and the issues I’m having when my neck decides it’s not behaving that I will be looking at surgery at some point. My guess is sooner than later. I am currently undergoing testing/treatment for cervical instability and Chiari and trying to get on better meds for my POTS and OH. Testing for MCAD is in December. Even though I’m almost 39 and went through so much hassle for a diagnosis I feel I’m finally heading in the right direction. I am glad to see you up and moving after being in bed so much this past month. I spent a week bed bound laying flat at the end of August due to a CSF leak and am still not back to myself. Slow and steady wins the race so make sure you take extra good care of yourself and don’t put that progress on a deadline. 💜

[@atlasbeck3313]

Your question is my favorite because my first video is your what's in my bag video! It's also my favorite! If you ever wanted to do an updated version my would make my day. 😊 it's so good to see you smiling a lot again 🌻

[@opoop45]

The first video of yours that I watched was your a life in the day of having EDS. I was awaiting my own diagnosis and doing as much research as i could. After seeing that video your channel was the one i would always go to if i had any EDS related questions. I've been watching for about a year now and I have loved following your journey with you. You are a genuinely kind and caring person and you have such a beautiful soul

[@Metalmandy8]

I found your videos around week 68, tbh the thumbnail with the giant incision caught my attention and when I watched the whole video your personality kept me here! I was hooked and ended up binge watching almost all your older videos lol ♡

[@crystaltaylor5931]

Hey Ms Christina!! This is THE VIDEO that led me to your channel. Isn't that AWESOME?!! Now, that I have found your channel, I'm gonna have some super. Then, I'm gonna all the way back to your beginnings and start binge watching your videos. Hope you are feeling better and I'm praying for you and your family EVERYDAY. GOD BLESS YOU SWEETIE!!!

[@cyndizebra6119]

Ok I’m commenting for the give away! I started watching with the “What is EDS ?” Video, 2 years ago!! Wow I can’t believe how time flies! Love you Christina!

[@cocolions]

I am so proud of everything you managed to do! You are such a wonderful, compassionate, warriorhearted soul. Thank you for all your videos, they have helped me so much in my own EDS journey. I found you through a day in the life 😊

[@charliefowler4411]

Day in the life with EDS. So glad you are home.

[@brittbrat878]

The first video I watched of yours was around 2 years ago! It was a Q&A all about your feeding tube! I’ve been following along for a while now and your positive spirit just keeps me going and feel uplifted :)

[@scarecrowmax1192]

I'm so happy that you're home and feeling better with your CSF issues. The first video of yours I watched was the one where you explain what EDS is and some of the various slang related to it and that video helped me understand so much.

[@hollywittenberg7031]

I’m so happy to see you’re home. Your first vlog was what brought me to your channel.

[@AngieHelloKitty25]

Yayyy! Going back home from the hospital is always a great feeling! I found you just by browsing and ever since I wish you the very best!

[@Stress-relief-insights]

Welcome back beautiful ❤ So wonderful to see you at home :-) You already have your sparkle back! Go you!!! Big hugs xoxo

[@mauragrier6958]

I want to say the first video of your I watched was the "day in my life video" from one of the EDS conferences in Baltimore. From there I have just fallen in love with your channel and personality!! As a fellow EDSer who's spine is messed up too you are really the first youtuber/public figure that I could really relate to. Thank you for all you've done for this channel and your subscribers no matter what your situation is, it is so greatly appreciated ❤️❤️

[@Firetalon02]

Good to see you home and feeling better! ❤ The first video I saw was after my girls and I were diagnosed with ehlers danlos the video was on abbreviations and buzz words. It taught me a lot about what kinds of things to look for and to understand that there were diagnoses for the way myself and children have been feeling. Your videos have helped me advocate for my girls and myself with doctors and family members. Thank you for your vlogs.🙂

[@hannahmitchell2573]

I found you through your braces video. I then went back and watched every single video you had made. I have been watching you in real time for a while now. You are so inspiring and I am SOOO happy that you are home

[@Torchita]

Yay glad you had such a positive experience with the nurses! I'm a young nurse too and I'm so proud to be part of the nursing community!

[@carolinemoore3771]

The first video I ever watched on your channel was "Living with EDS: Spinal Instability". It was a scary time in my life when i was first diagnosed and this video really helped clear up some things for me!!! Thank you Christina!!!!

[@jamerayton50]

Iam so so pleased your looking better and your out of hospital,it's been or seems a long time that you've been in there bless ya and your mum she's ace , pleased you got to see your show also ,just take things steady day by day and it was lovely seeing your smiley face again gentle hugs sent to you and your family x

[@oneandonlyone1]

Hi Christina. I found your videos almost a year ago. I googled stent in jugular. That's when I learned about Ehlers Danlos. So I want to thank you. You are so brave. I have cried and laughed along with you. I love crocheting as well. The grey sweater that you just made is really nice. I'm finally getting the help that I need. I have a rheumatologist and cardiologist now. I have no idea how many people in the world have jugular shunts. I don't know whether to go through with it or not. But at least now with all the info that I have learned, I can make sure that my kids will get proper diagnosis and treatment.

[@flufflyeh]

Hey Christina congrats on getting to go home! I don't comment much, but you have such an amazing community here and the few times that I have commented I've been met with nothing but kindness. I remember asking for tips on getting a nerve conduction (EMG) last year on one of your videos and I got great responses so I wasn't scared to get it done. The first video I watched of yours was the vlog from when you got your jugular stent surgery and I've been following you since! It's crazy how time flies.

[@BeverleyButterfly]

Congratulations on 100 vlogs, on getting home and for being a WEGO finalist, my you tube channel was a nominee I felt so proud as I’m sure you do too. I’m so glad you got to go to your play and you looked so beautiful, keep resting and healing we don’t mind waiting for videos so don’t worry xxxxxx

[@simplepurewhole]

You continue to be in my thoughts and prayers Christina! Your first video I watched was How do I stay so positive with chronic illness and I was drawn in by your realistic yet positive attitude. Thank you for all that you are doing to inspire and educate

[@chemicalbreath]

You need to not feel so bad. You always seem to do more than your body and mind can handle. You are my favorite KZbinr. You are also crazy beyond beautiful in all your videos.

[@meaganwhite7201]

I'm so glad you broke out of the hospital!!! I hope that you continue to feel relatively okay in the coming weeks!!! Sending prayers and spoons! My first video of yours that I watched was your feeding tube faq. Watching that really helped me prep for getting my NJ!

[@Sobit21]

Hello! I don't remember which vlog was my first, but I'm grateful for all of them! Your honesty and openness is constant inspiration.

[@debbiesanderson9466]

Sending 🤗 hugs and kisses 😘 . You are so positive and it helps me with my own battles - ty and so glad you’re home 🏠

[@elleblu1774]

Wonderful you’re home! My first video I watched was your rehab story I think and it was so relatable to my experiences I was hooked. Since then I’ve gone backwards and watched bits of your journey and keep up with the new. Congratulations on 100🎊

[@Splashes_]

Oh wow, I barely remember what I ate today, let alone what video was my first! I remember watching your Living with EDS videos before I started watching the vlogs. Maybe it was about your diagnosis journey? Unsure. It's crazy how it's already been 100 weeks! Congratulations! Thank you for being so informative and positive. The zebra life is hard, but you handle it with grace and inspiration ❤️

[@LazyGirlOtaku]

I have been following you since Week 68! I feel like it has been so much longer- because I feel like we really to learn about/ feel close to you and your family.

[@SubtleSmiles]

I found you about 1 year ago with your video on braces and splints. I was doing research into getting my own ring splints after starting my EDS journey last year. Congrats on getting home and thank you for continually giving us hope!!!

[@themagicalzebraunicorn1776]

I am so glad that you can finally be home and resting in your own bed. I'm sure your father and sister missed you alot. I think one of the first videos I watched of yours was one in the living with EDS series if that's the right term lol. I think it was the one where you were talking about your feeding tube. When I finally got diagnosed I searched EDS into KZbin to see what I could find, and I found you. I'm happy I did. Hope you continue to heal well at home :)

[@mmww1324]

So proud of you and you are doing awesome through so many surgeries and multiple health issues. You’re doing awesome!

[@lovestool4738]

Christina, I'm so happy that you are home and feeling better! You are my favorite KZbinr and helped me so much to live with Eds etc. The first video from you I watched was the braces and splints one . Hope you are feeling better soon!

[@SticksWithPicks]

I've been following you since your first EDS themed video (Living with EDS: What is Ehlers Danlos Syndrome?) and love your content so much! You have helped me a lot with my own EDS journey and you're in my thoughts a lot. I'm so glad your shunt is finally working and you're feeling better. I hope the upwards trend continues with all your other comorbidities as well. Lots of love and gentle hugs to you, Lauren & the rest of your family! Groetjes from the Netherlands, Anna Diethe

[@elizabethseaberg7785]

Hi Christina, happy 100!!!! Welcome back to MA! My first video was week 3. I found you through searching chronic illness videos on KZbin. Hope you continue to heal and feel better after your surgeries.

[@button4631]

I am glad you are more comfortable with the new neck brace. It looks like a great problem solver for the pressure on the metal. I first found you from your "Whats in my bag spoonie edition" video. It was the first time I found someone do a relatable whats in my bag and have been here since.

[@Michelle_994]

I first came across your videos when looking into EDS, so much before you started blogging but I am so happy you have been vlogging and sharing your story with everyone who needs, so thank you!

[@jentenerowicz2910]

I have two body pillows and find they are never big enough. How did I not know these bigger ones existed.... The very first video I watched was of you explaining about living with EDS and having a feeding tube. Glad that you are home and recuperating.

[@MandieZangora]

I’ve been watching your videos for so long I can’t even remember which one was my first lol! I’m so glad you got to go to your show, I definitely know what it’s like to be stuck in the hospital and know that you have something you HAVE to do coming up!!!

[@leslieiannottacronin2176]

Welcome home from another Massachusetts family!

[@autumnmiller9225]

I don't remember which video was the first one of yours I watched, but it was just after I had been diagnosed with EDS and was searching for it here on KZbin to see if there was anyone who talked about it. I've been hooked ever since!

[@de-vine2168]

I remember being in the hospital that was 7 yrs ago. I was in hospital for 19 months because my calcium kept dropping so the doctors had to monitor me! But in regards to the nurses I've been through some hell with them here in Canada! So I definitely understand!

[@pleiades_b]

The video that first brought me to your channel is Living with EDS: My Journey to Diagnosis. It was the first time I heard about Chiari malformations. Thanks for making these!

[@GoFishOffice]

I don't remember which video was the first that I watched. But I found you on youtube while looking for others dealing with autoimmune issues, POTS (postural orthostatic tachycardia syndrome) and other general ailments as such. I deal with POTS and its nice to be connected to others in similar situations. I am so happy you're back home, that has to feel really nice.

[@lucytrieshmann2825]

I saw Dr. Liu on Monday - I'm so glad you got to go home, but I wish I had been able to come say hi :) I started watching your videos when I received my official EDS diagnosis around a year and a half ago. I made the four hour drive to Liu because you speak so highly of him, and he will hopefully be able to fix my high pressure!! Thank you for sharing the resources we all need but have so much trouble finding