What is Lipedema? The Disease They Call FAT

[@raghadabuajamieh510]

Thanks so much for this documentary. I really cried when you mention lipedema with veins insufficiency. I tried a lot of diet plans and workout for over 11 years with no sufficient result. I Know what it is really. I am so grateful to find this documentary full of support, love and encouragement. Thank you from the deepest point of my heart

[@amyleefrance5665]

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[@LipedemaSimplified]

I hope you have found support - please join us if you haven't already - facebook.com/groups/LipedemaSupport

[@cathyl4622]

I had tree trunk legs by the time I was 11 or 12. I am 57 now and recently I needed a hip replacement. My doctor told me to lose 20 lbs before surgery. Knowing that my leg size would not change much I started a pre-surgical diet that is intended for 10 days and continued it for 3 months. The doctor was annoyed when I went in for the surgery and was relentless with my husband until my husband told him I could lose 50 lbs and it wouldn't make a difference in my leg size. His response was that I didn't lose any weight and it caused him extra time in the operating room. I can't wait for my follow up to educated this putz.

[@barefootkid592.0]

​@@Adixonnz you sound so much like me, I was so active when I was young, but when I turned 10 I started gaining weight out of nowhere.. my mom was a lifetime member to Weight Watchers so she always kept my eating as healthy as possible... but it didn't matter I really didn't eat all that much, and to this day I have been fasting pretty much all my life not on purpose. I'm just not a big eater, and have been eating once a day for at least three decades.. I was at the gym 7 days a week, I walked four miles a day, in fact I walked everywhere, if it was walking distance I walked..I was extremely active, but I could never keep the weight off..It's extremely frustrating to put so much into staying healthy and still being fat..no one ever believes me either.. I started carnivore and it has been working for me..

[@fayee8986]

God bless you may the Lord help you and heal you!

[@rararara7009]

Wow... So recently I've just heard of this and it always takes me back to my ER visit over 15 yrs ago. I remember the young doctor telling me how my fat was compacted from my waist to my knees. And that was the perfect way to describe my bottom half. I want to see if there's a doctor, perhaps Cleveland clinic that knows about this. My mom has the same shape as I do. This started at a young age of possibly 12 yrs old. I was extremely active and avid biker. Then in my 20s my legs became misshaped and since then I've always known I would never have legs like other women. Now I'm in my late 50s and just learning about this

[@LipedemaSimplified]

so sorry that happened - we are working to educate healthcare providers - here's an ebook that might help - learn.lipedema-simplified.org/ltdtcf

[@janettidswell2092]

@@LipedemaSimplified Is this ebook available to give to my GP in UK. He told me in May this year he knows nothing about lipoedema, lymphoedema or angiomyolipomas!

[@sarareimold3151]

"i started dieting chronically when i was 13 years old". Wow, this really hit me hard because that definitely explains my strategy also and i suspect it only made the issues worse. I'm 41 now and have been dieting almost my entire life and I hate that.

[@robertabarragan3211]

I was in my freshman year of high school when a boy in my class made fun of my legs. I didn’t realize until then that they were so ugly…stove pipe straight with zero indented ankle. Fast forward to this year, at age 78, and I’ve just learned that my now so heavy and “fat” legs actually are a lymph issue! Thank you for this information which I’m taking to my new primary care doctor. At least I don’t need to feel shame any longer as I know what has caused this.

[@janettidswell2092]

My sympathies Roberta. Same here, I was 75 when I found out, years of futile dieting to boot. Also, because the lipoedema was undiagnosed for so many years from puberty, I now also have developed mild secondary lymphoedema so a double whammy.

[@robertabarragan3211]

@@janettidswell2092 I’m constantly being misdiagnosed with Lymphedema…many doctors don’t know the difference!

[@kyasidre]

I wish every Doctor were required to watch this video. It’s not very long and could help prevent a misdiagnosis. I was diagnosed with everything else until one day a therapist told me I had Lipedema. Not to mention all the procedures that doctors said would help or “cure” what they diagnosed me with. I had already been in pain for 8 years. People still look at me like I just made it up when I try to explain my diagnosis.

[@Lisa12T82]

Good documentary, however I would disagree with the recommendation of a plant based diet. I have gotten amazing results with my lipoedema with Carnivore diet. It has been amazing. Decreased pain, inflammation, bruising, and most of all decreased size, which I didn’t think was possible. Even my skin dimpling has decreased significantly. I also know Dr SEO is also on carnivore. I’ve had lipoedema for 28years, and carnivore is the only strategy that has made any significant change in my legs and buttocks

[@LipedemaSimplified]

Hi Lisa, thank you! Carnivore diet is one of the diets we encourage now in the community. It wasn't mentioned in this documentary because this was the time when we are still in research of everything. As we learn and move forward, we found out that Carnivore diet works too for inflammation, decreasing pain, etc. Thank you for sharing your story, Lisa! We appreciate it.

[@Lisa12T82]

@@LipedemaSimplified you’re welcome ☺️

[@regina5749]

Dr Brooke Goldners anti-inflammatory protocol reverses numerous diseases using cruciferous veges, omega 3 seeds and water. Its very simple but not easy. Helps me dramatically. Guess depends how much we want it.

[@yourcelebrant]

So how long were you vegan (Whole food plant based) when you decided is wasn't working for you ?

[@velvetindigonight]

Totally agree went carnivore in Spring 2022 and for the first five months lost about 7lb a month and down to size 14 which I have not been since the 1970’s. For me giving up sugar and gluten was key. My hips and thighs were always two sizes bigger than my hips. It all just melted away and I was never hungry. Also lifelong clinical depression resolved and other inflammatory conditions. Win win win. Sad though so late as Im in my sixties…… Great for young people to know what we did not. I feel like Im in my 30’s! Enjoy

[@maddyo2589]

It was so painful having doctor after doctor telling me to diet. I'd be like I am! Let me show you my food log! Ask my kids and husband. I was treated like I liar, and it was soul crushing. We suffer, and yet our voice is considered not worth hearing. I'm so grateful I recently found a doctor who finally cares. We are starting to work together to fight this.

[@fayee8986]

God bless you dear! And God bless your doctor! Good luck in your Heating!

[@JanetMacCallum]

That’s the worst part. People think we are lying about our diet and exercise. I’m sick of discussing and justifying my body.

[@fayee8986]

God bless your heart! I suppose people don't struggle with their weight really can't understand and I feel for you cuz I'm one of those people. It was nearly overnight that I just blew up and gained weight. I touch my skin and it hurts terribly I am so thankful there's help out there God bless you dear and I hope you find the help that you so need good luck

[@fayee8986]

@@JanetMacCallum I hear you I hardly ate myself I cannot lose any weight so discouraging especially when you deny yourself the food and enough of it to satisfy. But yet I have not lost any weight. I know people look at you and think that you're a blunt. And most of our cases we are not we barely eat. It's a horrible situation and I'm thankful that some of the doctor says recognize that to be something else besides overeating. One day they may can help us.

[@JanetMacCallum]

@@fayee8986 yes, people can be so cruel. I think it’s important not to judge a book by its cover.

[@AK-jt7kh]

~28 min mark - that’s where the “persuade you to eat healthy & exercise” starts, in case you’ve been waiting for it. I just found out about this disorder in the context it was presented here, but I have had success with these techniques I’ve tried: - Cold Showers (don’t if you have heart problems or breathing difficulty) - Fasting (intermittent & long-term) - Self lymph massage (Book of Lymph) - Self massage for fascia release (esp in high-fat areas) - Foam Roller - Nutritional Therapy (learn it yourself) - “Body shaking” (learn to shake out everything on your body like a belly dancer or a wet dog, do this multiple times a day) - Breath Work - Graphing mood, pain, focus sleep, and factors which influence them Here’s what hasn’t worked for me: - Eat lots of fruits and veggies - Exercise - Walk a lot - Avoid fat - High carb diet - Low carb diet - Calorie Restricted diet - Food diary - Therapy - Motivational and inspirational content I realized my problems had to do with metabolism and fat distribution. Fasting helped me “train” my metabolism to switch over to using fat for energy. Breath work helped me activate it and decrease strain on my heart (Wim Hof method). I educated myself on vitamins and nutrients, discovered I had non-clinical signs of vitamin deficiencies, and addressed those to great effect. Now I eat a diet that targets what my body needs more of (like vitamin K). I also have had luck with probiotics & learning about electrolytes (esp for fasting). Charting my mood, sleep, energy patterns, and so forth helped me depersonalize successes and failures and turn them into data. I could then use that to see what works and what doesn’t over a long period of time. Lastly, shaking out my body and doing that on a daily basis was a complete game changer. It seems to have “fixed” the issue I’ve had with my knees since highschool. Also back pain, leg pain, stiffness, lack of mobility - it’s has worked for everything. Now I do lymph massages as well and that has made a huge difference. Avoid Gluten. It’s not hype. Here’s what this cheesy, conventional health advice did for me: Exercise made my chronic knee problems worse. Eventually I started to get sick after exercising, and extremely cold. Then I got a few ankle injuries which became so chronic I was afraid to walk down my driveway despite having lost a good deal of weight. Exercise never seemed to have any affect on my weight. At one point I was walking for 10 miles a day. Following the generic advice of “eating healthy” correlated with a number of mysterious health problems, one of which was chronic for two years and undiagnosed by 12 doctors and which had me believing in college that I would have to drop out and was possibly reaching the end of my life, because I couldn’t eat anymore without crippling, paralyzing pain. (Turned out to be low stomach acid). Eating a low fat diet and avoiding meat and dairy cost me in terms of mood stability, focus, memory, sleep, and worsened my symptoms of ADHD & auditory dyslexia. This conventional health advice is harmful to people like me. I had metabolic and circulatory issues and was malnutritioned despite a healthy diet. This crap advice harmed me continuously until I learned to do my own research. It’s not as difficult as I thought. The more I learned, the more I wanted to learn, and then I finally was able to put the pieces of the puzzle together. I went to the root of the problem & fixed my metabolic & circulatory issues. I eliminated sources of brain inflammation, cultivated good gut bacteria, and fixed the tension, fluid buildup, and restrictions in my body. I feel healthier now than I did when I was a teenager. I hope what I say here helps someone else, because I’m so frustrated by repeatedly hearing this harmful bias. Fruits and veggies are good for you, yes, and so is exercise - but these are triggers of the metabolism and if your metabolism isnt working properly, they just add to the problem.

[@kathrynfrancis7400]

Thank you so much for your comment here. I'd love to get in touch with you to compare notes.

[@christinajones7696]

Thank you for sharing. I am on this journey now that I have been diagnosed. It’s 2023 and it’s a shame that medicine has not improved.

[@dimadifallah8124]

Thank you so much for sharing ❤ this helped me a lot

[@alicewilliams9301]

Thank you for sharing your story. An anti-inflammatory diet can look different for different people. I resonate with your experience fasting--that was the first thing I tried that actually worked. For shaking do you use a vibration plate? I'm new to the lipedema world (have lived overseas during most of the last ten years in places where this isn't recognized yet) and I'm hearing about vibration a lot. Regarding diet, it seems that people eventually fall firmly into a couple camps for most metabolic problems including lipedema: Keto/LCHF or carnivore and Mediterranean or whole-food plant based (oil free, but not necessarily low fat).

[@janettidswell2092]

@@alicewilliams9301 Alice - please read my comments above about what happened to me using a vibration plate. When I see the Consultant on 17/10 I will ask specifically about using vibrtation plates affecting tumour growth. There are many medical contra-indications which prevent some people using these machines. See Kelly Sturm;s video on youtube where she covers this.

[@leyahruizdeloreto6420]

I feel for these people. Society is brutal!❤❤❤let’s give love! It’s SO important.

[@skonopik]

How on earth am I supposed to pay for any of this medical help? No one ever talks about this in any of these life changing programs.

[@LipedemaSimplified]

It can be challenging - I dedicate funds the same as I do for health insurance premiums and copays etc. Good luck @skonopik!

[@pamjones1678]

Thank you so much for putting all this information together. I willed my fat legs to a very skinny girl @ Jr. High graduation because I hated them so much. 26 inch waist with 23 inch thighs. All jeans wearing thin on the inner thigh. Severe pain from any touch with pressure. Hurting having my children or pets crawl on my lap. Minor bumps leaving terrible bruising and bad bruising leaving hardened tissue. Doctors truly don't care/know, saying "diet, exercise, compression....". Arthritis and joint pain have set into my feet pretty bad making exercise very hard. Perimenapause has made everything so much worse. You have given me a few more tools to cope. Thank you 😊

[@pammolina4293]

I am 65 years old, in the summer when I was 12 years old I weighed about 105 pounds. And the boys started calling me big legs that was the year I stopped wearing shorts. I just found out about this disease about a year ago. My mom didn’t have big legs my dad didn’t have big legs then one day I saw my aunts that’s where I got my big legs from. I was always covered in bruises, I thought it was normal if a little bit of pressure was on my legs it hurt. I don’t know if I have this disease I would love to try and find a doctor to find out. I have spoken to three different doctors and none of them have heard of this. Where do I go ? I live in Ohio.

[@candia5815]

Dr Stephen Dean OSU vascular

[@GirlWithAllTheFlowers]

This was an outstanding high quality production, very educational while also empathetic. Loved the dancing bodies, they just exuded confidence and beauty.

[@LipedemaSimplified]

@@MyPronounIsGoddess to some degree this is accurate - the model for the dancing body is a plus-size model who has lipedema - in reality while her lipedema is more evenly distributed, that is not the same for many others - lipedema can show up differently for everyone - here is an array of photos on this webpage - Do you have lipedema? Quiz lipedemaproject.org/do-you-have-lipedema-quiz/

[@bunnyfontaine]

Gives me some hope back because of the doctor collaberation. Question: bromelin for the fibrin in the lyphatic tissue. 2: proper protein to increase albumin to help with interstitial fluid reuptake by the vessels. And 3: vibrating platforms to help move lymph. I am a nurse watching and wondering aloud. Thank you for the work you have done.

[@bonnarlunda]

Even when I was 19, weighing 52 kg and training hard, being mostly muscle and bone, I had a sagging stomach and flaccid upper arms. Gaining weight was never a problem, but regardless of how much I dieted (Weightwatchers, LCHF, keto) I may lose a few kg, and then nothing happens. I even fasted for two months a few years ago. Nothing happened to my weight. The docs don't believe a word I say, of course...

[@san8524]

Interestingly I have a high resting heart rate 70-80 beats per minute, my husband has a slow resting heart rate 40-50 beats per minute, I lose weight easily, he struggles to lose weight. I think people’s metabolism is different and it is definitely a factor in weight gain. He has to diet 4 x longer than me to lose weight and also finds it easy to gain weight eating a pretty similar diet to myself.

[@fayee8986]

I know the feeling! It is so heartbreaking and humiliating to hear some of the comments at the doctors can give you. I can't seem to lose weight either even though I starve myself, I say starve I really don't have an appetite. I cannot lose an ounce. I know people look at me and think I'm a glitter. Which I'm not even an eater. Hang in there girlie, thanks will get better! May the Lord bless and heal you!

[@julierosa9335]

Here it is, in a nutshell. Thank you so very much. We needed this. Now we go from here....

[@kimberlydominguez8370]

Thank you for this documentary. I’ve learned so much. I have just one question, which will give rise to many others: is this a 20th century problem? It was discovered in the 40’s during the height on chemicals introduced to our air, food and water. Did this happened during the Industrial Revolution? The Middle Ages? The Roman era? If the lymph system cleans out toxins, we obviously have too many toxins for the body to handle. Fat keeps toxins imprisoned away from organs. If this level of lipedema is not consistent with history, then it seems this in an environmental issue, and we women are showing the physical manifestation of this toxic overload. It might be worth researching if rural areas have the same percentage as urban areas of lipedema.

[@brie1987]

Most probably hormone disrupters in the environment including food. Research has shown hormonal imbalance has become epidemic. And women’s systems and conditions such as auto immune conditions have been ignored and blamed on the women herself. Woman are very connected to their bodies snd deserve the respect of their bodies

[@giatasha2181]

I would also be interested in the correlation of the invention of hormone interventions such as contraceptives and artificial hormones in our foods.

[@eScorpiónA-801]

Makes so much sense. I think you may be on to something.

[@lorriac1]

Thank you so much for finally giving answers to me. I've been on keto for 2 years and it's helped me to lose 140lbs. But have stopped losing and I believe it's all the lymph fluid now. Can you recommend a specialist for both these diseases, I live in Central Florida. God Bless you, my Friend.

[@carolecoffman4276]

There is a physician in Florida with the Mayo Clinic I believe

[@theoriginalhippychic]

Thank you so much for putting this together. VERY informative. I feel like I know what's going on with me now and have a map that let's me know what direction to go in now. I barely stumbled across Lipedema on someone's Instagram page and saw how much they looked like me and felt like me. I've been researching for the last 3 days to see what my next steps are and looking for a Specialist here in San Antonio, Texas to get consultation, diagnosed and treatment. I don't want this horrible disease to progress.

[@melissaandrews1603]

I had no idea! 😟 I got an email of my medical record from the hospital after an emergency room visit. It had lipedema as one of my diagnoses. I thought it was a mistake. No one ever talked to me about it. But, after seeing this video it all makes sense now. I weighed 140 lbs in the 6th grade and 200 by the time I graduated. I weighed 230 when I got married and 263 when I gave birth to my son. I’ve lost and gained the same 50 lbs a dozen times. I’ve tried WW several times. Keto worked for me two years ago at age 50. I lost 75 lbs. But, in the last two years I’ve gained 50 of those lbs back, eating the same diet! Thank you! Thank you! Thank you, for opening my eyes!

[@tzivigoodman9668]

Try Fast Like a Girl from Mindy Pelz. She's all over KZbin. Her ideas about cycling and refeeding helped me suceed with keto after I had gained the weight back.

[@lizzvictory932]

I'm just seeing this now, 2024. For years, years, I have been misinformed and not even investigated as to why I can't move this weight from my lower body. No one, except for a colleague, making the statement, 'you might have what my aunty has', with a lapse of the name, has anyone else addressed this reoccurring problem. NO ONE! It's so good to see this documentary. I wish it had been around 40 years ago, when I could have got on top of it all, without the pain and heartache of fluctuating weight and attitude to my struggles. My question then is: has anything change or progressed in 10 years?

[@LipedemaSimplified]

Yes there has been progress @lizzvictory932 - a group of 10 top experts, doctors, researchers, etc. have just published a paper for Case Definitions for Lipedema which is basically a diagnosis roadmap. There's also conferences, support groups, online courses, all focusing on what actions can be done to stop the progression and make it better. doi.org/10.1089/lrb.2023.0062

[@rubberbiscuit99]

It pains me to see how extreme lipedema can get, and still medical professionals prefer to blame the sufferer for suffering from lipedema. So disappointing.

[@Irish-Triplet]

I have this and never knew why little grandkids would make my legs hurt so much! Now it makes sense!

[@dianneturner47]

Thank you for this informative documentary. Shall share it. My mother myself and my daughter all suffer with this disease. Diagnosed 25 years ago and use diet exercise yoga and massage everyday which assists in being able to lead a healthy life, just a little different than others. Only own long pants that have to be wide fit, live at the beach and swim in long pants and tops. I have a fabulous husband who helps at parties and eats my cake for me😊 also gives great massages. The pain is the hardest when they hurt to much to be touched. At this time walking in water helps most. Sending healthy vibes out to all with this disease and thank you to the doctors who understand.

[@LipedemaSimplified]

@dianneturner47 many say the same thing about the pain - we have a 3 Day conference event that might be helpful - learn.lipedema-simplified.org/lipedema-lymphedema-event

[@debcash4006]

Thanks for sharing this, I will be following up because you gave my problem a name!

[@christinaadams4187]

Thank you! I know I need to go in, but have struggled emotionally and physically to get motivated to get back to the specialist. My spouse won’t take me and I hate getting rides from my medical service. I knew very little about it, just that I hurt so bad and never looked normal. I also have EDS, and they think they’re tied to each other. I want to feel better so bad! I will have to force myself to go.

[@jemmah4723]

This is a great documentary. I have only recently become aware of this disease but have seen many people throughout my life with it, that likely have no idea that’s what is wrong with their legs. I think my young cousin has it and doesn’t know. I plan to show her this documentary as I don’t want it to get any worse for her.

[@Meggyp0p]

My doctors have constantly said I have excess weight due to high dose corticosteroid use, and my bruising is from Lupus. But this is an eye opener.

[@budgetsdreams]

This is an amazing film. Thank you so much for making it 🥹

[@LipedemaSimplified]

Thank you too!

[@elizabethadams3513]

Thank you for this information. I’ve just recently heard of lipedema and pretty sure I have .

[@lunagray-wolf2404]

From the time I became a teenager up to this very day I have been accused of overeating and that my weight was my fault. I have my sisters I can tell you first of all I'm very careful about what I eat as well as I'm very careful about the chemicals I put in my body, I always knew that there was something wrong inside my body that kept the weight on and now to find out that I had a disease all this time and the weight was not my fault makes me very angry at the doctors the nurses and the teachers as well as my own family that blame me for eating too much and not doing enough to keep my weight down now we see how anorexia became a big deal. I will go on this journey because my mother had this very same thing and I will find out and get help thank you very much

[@dcantwell119]

I wonder if it’s caught early if there might be a hormone treatment that should be explored and researched as treatment to stop the progression. It’s important for insurance to cover treatment of liposuction and manual removal. This gives life back and can halt the progression of joint problems and pain where we don’t move anymore and it gets worse.

[@Daizey57]

I would firmly disagree with any plant based diet. I have suffered with this most of my life AND HAVE LITERALLY TRIED EVERYTHING. As a last resort I decided to try a Carnivore diet. I am on the road to TRUE HEALING for the first time in my life!!!!

[@middleofnowhere1313]

Plant based is so carby. My blood sugar would be sky high that way, too!

[@MegaVictorygirl]

Me too. The carnivore diet brought my high blood pressure down after 32 years, and I’m off medication. Someone got the whole idea of plant-based diet wrong-at least for me. I tried it for years and it didn’t work.

[@LipedemaSimplified]

so glad to hear that carnivore is working for you!! no one diet seems to work for everyone!

[@1976mcfarlane]

I totally agree. Low carb preferably carnivore

[@DanaNolan-g7u]

Carnivore works!!!! ​@@LipedemaSimplified

[@wandalea9]

There is a body type system that uses the dominant endocrine gland of the body to understand how it functions. Types are Adrenal, Thyroidal, & Pituitary for men or women. For women there is an extra type--Gonadal. This type has dominant ovaries & the same body characteristics as this if obese. Even when at their ideal weight, they have smaller bodies above the waist & larger below the waist. My elderly family member was a Gonadal type & ate a junky diet. When I prepared plenty of meat & eggs for her instead of bread, in 2 days her legs decreased in size by inches. See the posts below about the carnivore diet. My family member was addicted to carbs.

[@middleofnowhere1313]

Where can we read about this?

[@wandalea9]

I read the original version of this book in the 80s. There is a newer version. "Dr. Abravanel's Body Type Diet". I don't agree with all the diet recommendations, but he nails the body types. @@middleofnowhere1313

[@rinskevanzeeventer717]

Thankyou for a great video- from a fellow lippy in the netherlands

[@kirksway1]

I find this to be one of the most interesting videos I've seen in a long time. very thought provoking.

[@LipedemaSimplified]

Thank youuuu!!

[@meenageorge64]

I just feel like weeping,i was told i have thunder thighs 😢to know that it was a medical condition is good and heartbreaking

[@Cthbg]

Excellent video, Thanks

[@LipedemaSimplified]

Glad you liked it!

[@elmersmammalove8577]

I was a scrawny little kid until my tonsils were removed in grade one then I blew up and have been fat and shamed ever since!

[@sandilynn8010]

I don’t think the logo for the lipedema foundation looks like all lipedema bodies. Many lippy ladies have the trunk legs. I want to share your foundation more but I don’t think the logo sketch represents the lippy legs

[@gemcan54]

This video is comforting yet heartbreaking. I believe lipedema, like most functions of the body are caused by an out of sync thyroid. I am going for my first compression test in a few days. When my feet were swelling every day, I knew something bad was happening. I've been overweight most of my life, so this disease explains most of my diet failures. 🙁

[@lisaduerre8323]

This is so useful. Insightful and hope filled. Thank you.

[@notawolf]

It's a touching story of kindness. Thank you for your education on this condition.

[@darlenehughes4796]

My doctor has diagnosed me with lipodema.I hope there is a cure.

[@bettesmith1117]

I use a Chi Machine daily and it helps a lot. My fat deposits have lessened on my calves and upper legs quite a bit. I have now started doing it twice a day and it helps even more now. It took about a year to really notice a difference but it has worked for me.

[@gracietilert8952]

Wow. This is so enlightening and thank you so much for putting this very important video together. What great information.

[@LipedemaSimplified]

Thank you so much!! It means so much to us and we're doing our best every day to find the best way possible to find the answers for us suffering this disease.

[@alisonbamford6723]

Very interesting. Could it be that something - gluten, refined seed oils that harden & oxidise when heated, or some other factor - is clogging the lymphatic system so much over time that the fluids & toxins are forced out of the lymph as a not very helpful alternative?

[@brie1987]

Probably hormones and the vicious cycle with things that also exacerbate the condition and cause hormone imbalance

[@Peony25001]

I found that a plant based diet and rebounding were the only 2 things that helped. I stopped wearing shorts in my teens and I'm 52 now. It has felt like a lifetime of struggle but your channel really helps me feel validated in my experiences. Thank you so much. Knowing it has a name is amazing. ❤

[@Anygma]

someone just shared this video on facebook and googling lipedema while starting to watch the video. it answered one of the questions i asked my doctor some months ago that she just shrugged her shoulders... why are my thigh becoming so sensitive to touch? it very painfully sensitive. now this answers the question. and why i don't lose weight no matter what i do.

[@heiditaylor3514]

Going carnivore has made such a difference for me!

[@arivera2559]

Thank you! This video was very informative

[@MelanieFromCanada]

Thank you for this. It helped some of my family members understand better, including myself. I had a experience that I want to share with someone that can tell the right people about it. But because it is of a 'people might try it themselves and harm themselves' nature, I would prefer to not make it public. Is there a way I can share it in a private message?

[@LipedemaSimplified]

Melanie, contact [e-mail] and we'll help in whatever way we can

[@Lovelyasdfghjkl]

Hey did you get any answers

[@susanarojo3906]

Was this some kind of a remedy you’ve got?

[@lolaottinger3038]

Just over three years ago I had surgery for a bilateral torn meniscus and after the surgery my doctor called my daughter to let her know how the surgery went and he also told her I have lymphedema. He never mentioned it to me. I’m not sure I have it although my legs are pretty heavy, but when I lose weight I lose weight in my legs, and they don’t hurt and don’t easily bruise.

[@alinaramonahrib7807]

Gosh !!!!! Any new studies have been made since this video it's been made ?? Anything new have been discovered about Lipedemia ? ❤

[@giatasha2181]

A carnivore diet seems to be working for alot of people - however specialists says that it has to be grass or organic fed as the hormones in grain fed can have a negative effect. Carnivore is extreme - I can’t stick to that long term but when I have went carnivore the results for me have been almost instant (two weeks and upper thighs pockets of lipedema maybe 60% improved. Also feeling amazing full of energy and none of that heavy feeling in limbs. Again it isn’t for everyone and can be challenging to stick to

[@zoubialazebrette6029]

My body started hanging after a traumatic event. Ever since, I've been putting on weight and not even keto, carni or fasting helped much. I felt better yes, but couldn't shed weight. I especially have a swollen belly, it feels hard as if it were full of air all the time, and around the belly button the fat is nodular. So I'm starting to wonder if it could be an early stage of this. But I 've had this problem for like 15 years and I just constantly stay at around 30 kg over my previous weight, and it stays there.

[@happierinthesunshine]

This was incredibly helpful. Thank you!

[@bobyputhoor]

Can you suggest a lipedema doctor in Dallas texas

[@777SEER]

how small does your hips need to be to get liposuction for stage 3 lipedema?

[@lauragray8439]

Thank for this!! 🙏🏾 I am now 99% sure I have this with a recent shove after a hospital stay to stage 3. I even have fluid in my eye sockets and lids and under. I look like a monster. I am really over weight yet hospitalized in September 2023 for severe malnutrition. I was accused of eating to much but I wasn't eating hardly any. 😢 Now I need to find a Dr who will listen.

[@giatasha2181]

Have you considered carnivore? I hope you find some help - that sounds very painful and must be very challenging for you.

[@josefinaramos6534]

The eating choices for lipoedema are depressing… basically you can’t go out with friends, you can’t eat anything but eggs in the morning … terrible

[@carolecoffman4276]

You can have berries, cheese, vegetables.. Vegetable omelettes are wonderful.. You ca N have meat of any type that is lean.. There are many websites with keto recipes for all meals and snacks

[@user-be3js4bv3g]

Lipedema is triggered and exacerbated by female hormones, which is why it affects women more often than men. Triggers for this condition include female puberty, during which progesterone is released in greater quantities, as well as, for example, pregnancy. For me, Metformin has restored the balance of my hormones, and my lipedema has drastically improved. While the connective tissue may not improve naturally, it is possible to reduce the fat. I was diagnosed with lipedema five years ago and gained 10 kg rapidly after pregnancy, even though I returned to my very active lifestyle quite quickly. I have now lost 20 kg with the medication and am happy to report that the lipedema has receded. There is no longer as much fluid accumulation in the tissue, and I have hardly any pain. The fact is, with lipedema, losing weight is not easy, as I couldn't do it back then either. You practically have to fight for every kilogram. However, the quality of life is completely different, more beautiful and active when you no longer have to carry around the excess weight and when pain doesn't hold you back from moving.

[@deborahchaussee7485]

Isn't metformin for diabetes?

[@Shop-z5n]

Molim vas sta ste pili.Koje tablete i kako ste smrsali.lp

[@brc9064]

I believe that when people go into "physicals" at doctors they should be FULL physicals,genetic testing, dietary focus. we are in a society where eating process foods isnormal. in and out of doctors offices, insurance refusing to pay for tests needed to help patients-a whole mish mosh and here we are with people suffering for so long when it probably could have been nipped in the butt early on. I feel for these patients who have suffered physically and mentally .

[@robinwatkins8528]

But how often do you see lipedema in countries where people struggle to get enough food?

[@MeMyrrh]

Interesting question

[@moderngoldilocks]

IF THIS WAS A MAN'S DISEASE - THIS WOULD ALREADY HAVE A CURE....AND "COSMETIC" SURGERY WOULD BE PAID FOR BY MEDICAL INSURANCE!

[@michellewall6748]

Absolutely!!! Well said!

[@skru2476]

Absolutely. 😢

[@frankie5779]

Wondering if taking collagen affects lipedema. Does it help, make it worse, or make no difference?

[@kirstensteel5105]

It's funny you question collagen. I live a very active and healthy lifestyle and weight between 60-62kg (my heaviest I was 75kg 7 years ago). I follow a clean and gluten free diet and train 5-6x a week at the gym. For the last 6 months I've been taking a supplement called JS Health which is to promote hair growth. It's main ingredient is sea kelp which contains collage. I've noticed my legs are bigger and more bumpier and I'm getting pain which I'd never had before and I'm 2-3kgs heavier. I said to myself I swear it's these tablets. I have 10 tablets left. I think I'm going to stop taking them now. I have a specialist appointment next week to hopefully get a diagnosis and liposuction on my legs. I think I'm stage 2.

[@frankie5779]

@@kirstensteel5105 I hope we find answers on collagen. I’ve taken it for years, and it has helped with hair, skin, nails, and joint pain. However, upon entering menopause I noticed that I can’t reduce the size of my legs. I eat keto/carnivore and exercise but there hasn’t been much change in my legs. It all of a sudden occurred to me that maybe collagen has something to do with it.

[@davonnaweleczki6213]

Rebounding is a nice easy way tomove lymph

[@ritahall2378]

I want a cure or even available treatment Women have been told to learn to live with it long enough

[@petithibou1891]

M’y mom sister grandma aunts etc have lipoedema and they never or do very little exercice. I work out every day but sunday for as long as i can remember and i am still at stage 1. You can’t see anything and i am 38 …

[@piscesempress1978]

Just wait.

[@rowenahamilton6587]

Thank you for this and we'll done x I have it in my lower legs but fasting and keto have really helped x

[@skru2476]

Thank you so much for this. I understand so much now.

[@samcollage7682]

When I was in eighth grade a boy said to me "Your legs look like sausages." Then as an adult, I became aware of the term "cankles." Thank you for this documentary. I only wear shorts in my own home and never wear dresses. I hope it isn't too late for me.

[@PamelaDavis-j7t]

Thank you for this documentary so interesting to learn why my body is the shape it is.

[@davonnaweleczki6213]

How is it possible that there are so many clueless So-called experts please ask yourself how is that even possible

[@eScorpiónA-801]

Only in USA

[@tknzdworldfirstidentylinke6404]

Does insurance cover compression garments?

[@MeMyrrh]

In some cases, yes

[@safiremorningstar]

My daughter gets really angry when doctors take one look at me and rather than check to see what might be wrong they say wow because you're fat.... It really gets her angry in the worst thing is most doctors they don't look no matter what you tell them I literally took my daughter to an endocrinologist and said look my teenage daughter has stretch marks her legs are getting bigger there's something wrong here... And the doctor refused to listen because my daughter was relatively thin at that time and have been working out so she had a six-pack only her legs and hips were getting bigger... And she red purple stretch marks to prove it... I wish there were doctors who didn't judge and just looked at the patient look at the situation did the test try to figure out what the heck is wrong with my patient instead of I know what it must be it must be.... Fill in the blank of their pre-existing assumptions... Fat is always número uno on that list.

[@vickimerchlewitz]

How do I find a lipedema doctor near me I’m in northern Iowa.

[@davonnaweleczki6213]

Lymphedema is about the kidneys they are not clearing out toxins fast enough the kidneys and detoxification of the body Please support the kidneys in detoxification and fluid will move out of your body ♥️

[@Itscandylandxo]

Wow I have both. Kidney damage and Lipedema

[@MeMyrrh]

Not if you’ve had lymph nodes removed but have excellent kidney function

[@miasmic100]

Rightly said at 21:40, how to find the right doctor

[@TraceyMush]

I've always been on the heavy side. Last year with excessive arthritis and inflammation I went on a very stringent diet and decreased or actually eliminated every single processed food. It's strange to me that at the side of my knees I have two pockets of hard fat. Will be talking to my doctor about this. I am on a 100% plant diet.

[@r.awilson7402]

Thank-You for this very informative video. I think I developed my Lipodema from driving Uber 🚖 for 6hrs a day 5+ days a week. I've now purchased a Vibration plate to do 30 minutes a day (2x15) 3 x a week to re tone my legs and drain my body, I borderline stage 2️⃣. I also bounce on my Tebouber 20 min a day, now I need to add swimming to my routine,😊

[@brooklynnrose]

I have so many health issues but my legs have alys been an issues and ive never been able to lose weight in them and now the tenderness to touch the bruising the swelling the pain it all makes sense now i was just told i was fat then after weight loss surgery my legs stayed the same oh you just have loose skin. no i'm in pain daily the swelling is getting worse i have painful lumps and the drs here don't listen i need to find a specialist around me who will understand. i'm on dialysis and have other health issues so this makes this hard. i can't even sleep because my legs hurt and tender from the pressure and weight.

[@christinaadams4187]

The POTS I have may also be linked as it causes issues with veins. They told me since EDS is a ligament disorder it may be the lack of collagen and proper composition of the ligaments that allows the fat cells to be out more 🤷🏻‍♀️. Not sure.

[@theresaholmes6586]

I wish I could get help my legs hurt me so badly

[@Sunnybrook-69]

So this video starts with “it’s not your fault it isn’t about eating”. Then a lady comes on and says you must eat right, more healthy and a plant based diet in order for it not to progress. So are we not at fault or are we? I eat right and am a lacto-ovo vegetarian but gained 75 lbs in less than a year.

[@aprilramos-case8336]

Now imagine if you weren’t eating right…

[@Sunnybrook-69]

@@aprilramos-case8336 thank you for this comment, it woke me up. Thank you! 🙏🏻

[@giatasha2181]

The way you are eating may not be right. Have you ever had a test to see which foods cause you inflammation? Eating right can look very different for each individual - this is the issue. Some will flare up and be totally inflamed and have extreme lymph issues eating vegetables tomatoes etc and need to eat only keto. For some keto won’t work. If you haven’t already get tested - your excellent diet could be the root cause - even if you are doing everything right. For years we were told to eat large amount of carbs and low fat and that was ‘right’ - for some this can be right. For others it can take away mobility. There is no one cure for all and there is no universal right diet. When I was vegetarian and eating right I was never as inflamed bloated with fluid and in constant pain with inflammation. When I went keto ALL of that went away. This is an issue for those who do not eat meat for moral reasons. I now have a balance and include some carbs which I can tolerate. There is no one right way.

[@Sunnybrook-69]

@@giatasha2181 Thank you so much for writing this! I was tested years ago but have fallen apart in the past two years. Extreme stress, loss of mobility all together, skin that hurts and scratches easily, nausea every single time I eat which causes me to stop about five bites in. Nothing I eat makes me feel good. I lost my primary care doctor five months ago and haven't been able to find a new one yet. There is a shortage of doctors in my area and as a result, the ones that are here are booking six months out. I have an appointment in August. I kept telling my former PCP that I felt swollen, filled with fluid, not fat. I took notes from your comment and will ask professionals until someone helps me. I am ready to give up. The depression at this point is killing me.

[@giatasha2181]

@@Sunnybrook-69 I am sorry to read that and maybe it is worth you considering if keto is worth a try. I know for me my response to many many vegetables and starches and gluten is appauling. It got to the stage for me where I was struggling to get out of bed in the morning due to pain on hips legs wrists etc. within a week of keto my symptoms dramatically improved. When I stuck to carnivore for six weeks I was literally symptomless. I am not saying that it is for everyone but it sounds like anything is worth a try for you and whatever is happening now with you is not working. It may not be totally down to your diet but you will never know if you don’t change and stick to that change for a good few weeks. Not medical advise and doctors are not keen to suggest full carnivore but many many including the people that produced this video are in agreement that the evidence shows for some people keto is super effective. Don’t loose hope. But it sounds like radical change is needed and whatever that radical change is you can do it.

[@esthelaparra1086]

I notice that lipedema was focused on women, but I know at least 2 men with disproportionate legs to upper body, they may have this medical problems

[@sarareimold3151]

Same... I'm pretty sure that I got this from my father's side as my grandmother looked like me and my dad has very heavy legs also, especially for a man.

[@dferrantiJfr]

What are the tests that have proven the different between weight gain fat and lipodema fat?

[@middleofnowhere1313]

At about 10 minutes you can see the MRI analyzing the leg tissue

[@barbarabonnette2705]

I keep being told to stop using salt……I keep the same container of salt in my cupboard for over two months. I don’t believe that’s excessive, since I cook for more than myself. I gladly eat salads at least 3xs a week…..and I try to walk on the weekends….as I stand on my feet for 8hrs. Everyday. This is a fricken curse. Cause when you see no results you have a tendency to just say why? It’s heartbreaking.

[@skru2476]

I totally understand u. I feel the same. As someone who doesn't have money and mental strength to go through surgery, I am clueless as to what I can do. It's so heartbreaking

[@lhale9176]

Even my dentist told me to lose weight...the drs have no idea whats going on...i said i have a fat disease. He didnt believe me...i had a hysterectomy and all hell broke loose... So scary!!! I have gigantic upper arms and weird fat all over my legs...so frustrating.

[@deborahgonzalezknight168]

There is a surgeon in Madrid. dr Burgos de la Obra. He only does lipo on patients with this condition. He is very good.

[@brie1987]

I want to be an EU resident because the medical system is atrocious. May do 6 month a year of retirement in a country with decent patient care

[@mercypodaras5402]

I thank you I thank you for that because I’ve been going to the doctor showing my legs and nobody know what was going on. I had surgery I knee replacement, but my lips kept on blowing a little bit and they said it was because I was fat but I’m not heavy on the top. It’s only on my weights on my legs, I do exercise for my legs and I jog or walk so that way my legs feel a little bit better but thank you for this program that make me see what it was that I had wearing tights so I the fluid will go through but I think the Lord for all of you for putting this on the Facebook, and I always looking at better things to do for myselfGod bless all of youse

[@heidibee501]

Since puberty l have had the body of two people. The top is bony and delicate, and the bottom is classical fat. In my late teens l went on a diet because l was ALMOST 150 lbs. I wanted to join a dance group and there was a weight limit due to lifts and flying. In two months l lost 40 lbs. by living on 75 cal./day. My doctor said that was impossible. He was wrong. I got in! Once l fasted for 3 days and gained 3 lbs. I'm guessing l have lipedema.

[@mdevorah6833]

😮 i guess I have this. Since a kid i had "saddle bags". Now in my 60s I notice that my fat above my knees is starting to look like its going to hang over my knees. My lower legs are hard as rocks and standing on my feet all day, ugg the night paIns

[@arlettasloan6453]

I have this sort of problem with fat on my body; but, it is not my legs. It's my abdomen. I got up to well over 400 lbs. Not sure how high but over 435 lbs and I believe over 475 lbs while exercising and mostly eating right, but living in a very stressful state that got increased in stressed by moving into a bad apartment building where people picked on me calling me "fat bitch" (not at me but in my hearing), broke into my apartment and smoked much, much pot (which I am highly allergic to) . When I moved in I weighed about 240 lbs and I lived there less than 3 months before I was over 400 lbs even though I increased my exercise a lot, living upstairs and having to walk to get groceries (or anything else) and I swam in the pool when I could. Anyway ... I moved. I got less stressed for a while and then I got stressed in the right way, where I had to start eating more vegetables and starches than anything else as that was what was affordable. I lost down to 240 lbs but during that time my belly only changed about two inches total, and it went back up to where it had been before I lost any weight. So, that's at least 200 lbs lost, maybe more like 300 lbs, and my belly remained fat. I learned, in the last year or so, that I am genetically predisposed to needing a higher starch, very low fat diet and that I have some serious intolerances to food. It was supposed to tell me allergens to basic things but it did not, unfortunately. Well, to some things, but not to food things. The closest it came was to say that I might have a genetic predisposition to be allergic to wheat or have an intolerance. The other DNA test showed no intolerance to wheat but a great deal of intolerance of apples, almonds, beef and sheep and their meats. I have been trying to learn enough, since, to convince myself to try again as there has seemed, so far, to be no point. If I can't lose the weight on my belly and get my cortisol in order, what happens is that I exercise and gain muscle, then a stressor happens to which I overreact (now), and then my muscle gained gets broken down, turned into fat and put on my belly. So, even though it is not legs or that area, since I have a cuff of abdominal fat and another cuff of upper back fat, I am hoping this video will give me a solid clue or two. Either way, thank you for posting it!

[@foxiefair123]

I’m sorry you went through that.

[@MeMyrrh]

I wishing you continued success

[@theresaholmes6586]

I have huge Big Legs my whole life and I've always been in pain so bad when I'm on my legs to long my legs will go num

[@rt2874]

I need help with this. Please i am from Canada 🇨🇦 they're not helpful 😢😢😢

[@evolveyourself9518]

Confusing because most women with lipodema have a lot of weight to lose as well.

[@louisanossell1223]

Can you recommend plastic surgeons who are skilled in this type of fat removal?

[@carolecoffman4276]

I think on her website there is md info

[@deborahpaul5307]

Where are the links? Am I blind?

[@LipedemaSimplified]

Hi Deborah, can you please specify which links you mean?

[@camilleallure_2708]

I know I have this who is the surgeon that did the 29 year old lady surgery I’m 30 and need this taken care of 😢

[@cherylanon5791]

why is it only women that get lipedema? I know many women who appear to have this condition, and no men, really---NO men with this condition. And of course if it were only Men with this condition it would have been solved a long time ago, unfortunately.

[@yourcelebrant]

On behalf of men across the planet, thanks for sharing your sexist opinions. You may note for future reference that Prostate cancer is something that still isn't cured as yet, so maybe, just maybe your argument does not hold up to serious scrutiny.

[@lindaingram7537]

Female Hormones

[@1976mcfarlane]

I definitely have this but it's gotten so much better eating ketovore