God Bless anyone who is suffering from this, and to the parents God Bless you. Cant imagine the strength it takes to care for your child with this condition, I mean by having to see them hurting and all. I hope science and medical research finds something to help with this soon.
@92.rx73 жыл бұрын
:(
@kriss5813 жыл бұрын
Thank you for the explanations. I'm working in a special needs school and one of our student have juvenile leukodystrophy. It's very helpful, though I'm absolutely heartbroken for this kid, it pains me a lot to know his fate
@dewaldsteyn1306 Жыл бұрын
It sound like i might be developing mld at 15 according to your diagnosis... how do i know if its mld or just a coincidence or if i just misunderstood something here or just over--exaggerating?
@kvramanadr5 жыл бұрын
Great... In simple words
@yummyyumnakitchen53457 жыл бұрын
My son is diagnosed with mld .i am worry.here in pakistan doctors says that there is no treatmnt ..plz any can help me abut his health..?
@subaidhasubaidha17785 жыл бұрын
My son also diagnosed with MLD .Physiotherapy helps for an extent to my child. Speech therapy also..
@bariskilic8505 жыл бұрын
Hey we are from germany and my brother is diagnosed with mld too, but there is no treatment..god bless u
@muhammadabubakar7934 жыл бұрын
My nephew is 3 year old.she is diagnised from MLD. pakistani dr's says that their is no treatment of this disease... Please help me for the treatment of this disease....
@hafizmimran62654 жыл бұрын
@@muhammadabubakar793 i belong to bhkr punjab pakistan my beloved daughter diagnosed metachromatic lekudystrophy in 3 years old (3years 5mnth) dr says no cure my daughter walking slow low diet and mouth sy loab atta h right eyes sy aor right nthny sy pani ata rehta h m r i and leb test ki base py diagnose kia gya h mn ghm sy marr jaon ga
@hafizmimran62654 жыл бұрын
Plz msg my wtsap 03438903608 hm ak dosry sy help ly sky meri beti 4 sal ki h mld h
@CoCo225_3 жыл бұрын
My son has PEX1 he js 61/2
@JimRiley-d1r3 ай бұрын
Robinson Karen Martinez Maria Gonzalez Paul
@92.rx73 жыл бұрын
My brother has this😭
@CoCo225_3 жыл бұрын
Cam is 6 1/2 can’t walk or talk suffers from sezisures and is going blind