What is MOG Antibody Disease? (MOGAD)

[@MyMyelitis]

Please remember to like and subscribe if you enjoyed the video! If you would like to read more about MOG Antibody Disease then visit our website to see our full MOGAD Information Page - mymyelitis.com/mog-antibody-disease/information/

[@ZinkBHAA]

Thank you for making this. I’ve never met someone else with this or heard of anyone with it, I was diagnosed when I was 15 and we still don’t know much at all. It’s nice to know people like you care about rare diseases that don’t effect a lot of people. Thank you

[@MyMyelitis]

Thank you for the message! I'm still yet to meet anyone with MOGAD in person so far but online support groups has been great to connect with others. This week I will be releasing an updated video on MOGAD support groups if you haven't joined one already :)

[@itzAnkitpandey]

Hi brother now how old are you

[@ZinkBHAA]

@@itzAnkitpandey 19 now, 15 when diagnosed

[@itzAnkitpandey]

@@ZinkBHAA are you walking fine or your report negative now

[@hetamanavadariya7331]

Hey!!.. I'm diagnosed by it now.. can we chat??

[@joekennington3865]

Thank, I’m learning more from you than I have from the many doctors I’ve seen

[@MyMyelitis]

Thanks, that is the reason I started this channel and website. I looked for information here myself and couldn’t find much so I started to try provide it myself. So glad you find it useful as this encourages me to continue!

[@marrastiek]

Nice that you made this video for other people, i have it to.

[@MyMyelitis]

Hi Martijn, thank you for your message and I'm glad you found the video useful! I hope that you are well :)

[@SuccessisTheGoal]

Hey Scott! Chris gave you some great advice that you should keep building on. I also teach public speaking and help my students gather sources to cite references to create authority. I wish you the best with your journey and offer my support in well-wishes and positive thoughts! See you online soon!

[@MyMyelitis]

Thanks for your message! I'll drop you a sub and look up your referencing videos. Wishing you all the best with your channel too

[@roxanrojas1055]

Buenas noches, que tan difícil es tener una vida "normal" con anti MOG positivo??? Es tan malo como la NMO???

[@losofloxks8597]

My brother as this with his eyes … I am heart broken can someone let me kno if he can get his vision back fully… did anyone ever come back from this??? Please let me kno I’m beggin 💔💔💔

[@roxanrojas1055]

Mi hija tiene anti MOG positivo débil y esta tratada con rituximab, ácido micofenolico, prednisona y actualmente se añadieron dosis mensuales de inmunoglobulina... será el tratamiento correcto????... Gracias

[@MyMyelitis]

Hey Roxan. I'm sorry to hear about your daughter. The good thing is all those medications are used to treat MOGAD. I have sent you a message with more info :)

[@rahulkapoor712]

One of my friend mother age 55. She was diagnosed by MOG. She had a optic neuritis .. she used to speak herself when she was diagnosed for the first time. Is murmuring also a symptoms of MOG?

[@MyMyelitis]

Hi Rahul, I have not heard of murmuring being a symptom of MOGAD. But if she had lesions on the brain then maybe it could be possible?

[@litankundu8318]

Can MOG positive be turned into Negative after taking medecine????

[@MyMyelitis]

Great question - Yes, medication can effect whether you test positive or not. I made a video explaining MOGAD testing and titre levels here which you might find useful - MOG Antibody Disease (MOGAD) Titres Explained kzbin.info/www/bejne/ZqrEqHeDgJJ2ha8

[@joshimanohar470]

Hello sir, I'm from india,Recently my mother got MOG positive and now her vision also not clearly one eye and another eye was fully not visualise, Please suggest any best medication or any other suggestion,

[@MyMyelitis]

Hi Joshi, sorry to hear about your mother's diagnosis. I'm not aware of any medication apart from the ones mention in the video. It can take some time to recover from MOG attacks. In my case I'm still noticing improvements almost 2 years later. I hope with time your mother's vision gets better!

[@Kapanzzchannl]

. is it needed to take life long medication

[@V1-115]

Please tell me the diet chart for MOG patients.because recently my niece was diagnosed by this dieses and she's having problem in bladder.is it curable?she has got 73%of infection.

[@MyMyelitis]

Hi, I’m sorry to hear about your niece. There is no specialised diet for MOG patients right now. MOG affects everyone differently but in general people do tend to see some improvement if the treatment is correct and given fast. I also have bladder problems and they have gotten better over time but it is still not 100% back to normal. Good luck to your niece and her recovery!

[@wikusswart5109]

I was diagnosed in 2020 with MOGAD. I have retained bladder and bowel issues which I have been told by my Neurologist will be with me for life. A dietician put me on a diet commonly used for people with irritable bowel syndrome and it has yielded favorable outcomes

[@hetamanavadariya7331]

​@@wikusswart5109hey.. im diagnosed in 2022.. can we chat

[@AZEZ1_PLATFORM]

​@wikusswart5109 can u dm me please 🙏 😔

[@MyMyelitis]

Subtitles have now been corrected :)

[@glorioussierra]

Thank you so much!

[@MyMyelitis]

Glad you enjoyed it! :)

[@ripadash96gmail]

mycophenolate mofetil is used for mog?

[@MyMyelitis]

Yes it seems to currently be one of commonly used preventative treatments for mog

[@ThaElsa]

Has anyone recovered fully? We need advice, our 2 year old has Anti MOG ADEM and lessions in the back of her brain, neck and spine. She lost lots of balance since her third episode and the IVIG was not as succesfull as the two earlier. The doctors has let her go with this balance condition for almost 3 weeks now and they want to give her Rituximab, we dont want to give her that. Anyone with a holistic approach? There must be other ways to heal the inflammation and stop the body from creating antibodies against the oligodendrocytes?

[@MyMyelitis]

Hi Elsa, I’m sorry to hear about your daughter. Some people can recover fully and those with MOGAD tend to recover better than those with similar conditions such as AQP4+ NMO and MS. I’m not too familiar with ADEM in children but I do know of some people in the MOGAD community who may be able to help. If you can drop me an email at [e-mail] I give you their contact details.

[@alexaaguirre36.-]

My daughter is 3 years old and was diagnosis with mog disease this year..am giving her vitamin b complex with zinc plus vitamin d3 ..complex b it a natural antiflammatory

[@חנהוואלאך]

I was diagnosed yesterday :(

[@MyMyelitis]

Sorry to hear about your diagnosis. How were you diagnosed?

[@חנהוואלאך]

@@MyMyelitis LP. And bloods

[@MyMyelitis]

@@חנהוואלאך I hope that the treatment they have given you works out!

[@denisebraisby4251]

Sorry to hear of your diagnosis..im having relapses but told not Ms, it affects my lumbar area of spine plus neurological symptoms, how long did it take you to get diagnosed and how do your relapses play out?

[@meenakshijat2855]

Hey I'm mog positive and after taking my first RITUXIMAB injection i feel vibration in my hands and feets from last 4days and also have headache and dizziness is it normal after first dose or should I worry about it???? please reply

[@MyMyelitis]

Hi, I’m sorry to hear about your symptoms. I don’t think the vibration is a symptom of Rituximab. The headaches and sickness could be, you may want to contact a doctor depending on how serious it is

[@hetamanavadariya7331]

Hey.. I'm diagnosed by mog too.we can chat to discuss symptoms u r facing

[@meenakshijat2855]

@@hetamanavadariya7331 i never recover my vision i got permanent damage from mog in my both eyes and now I'm facing tingling sensation in both my hands and legs other then i didn't have any other symptom

[@AZEZ1_PLATFORM]

​@hetamanavadariya7331 hi

[@Foundation2507]

I am 16 year old boy mog positive what I do

[@MyMyelitis]

Hi Harsh, are you taking any treatments?

[@krampus9412]

it's over for you

[@angelj.2051]

mog mog mog

[@justinj4827]

Hey bro.. im upset i missed the zoom call. I thought it was on thursdays. Hope you’re doing well brother. Whats your email if you dont mind. 💪

[@MyMyelitis]

Hey Justin, great to hear from you again. Sorry you missed the call, there will be another on the 17th October. Sure, you can drop me an email at [e-mail]