Thank you very much, I wish more people knew about nf
@charleneowen59848 жыл бұрын
I have Nf1 but I get ringing in my ears, and have had balance issues, not bad but I do at times.
@wastelandwarriorz665fanacc85 жыл бұрын
Latly I get ear ringing
@nomadsaurabh95574 жыл бұрын
Charlene Owen how much tumor you have
@Christine-ys5iq3 жыл бұрын
I have NF1
@MrJamiez3 жыл бұрын
I randomly get ringing in my ears, not all the time!
@samaratuinstra31704 жыл бұрын
That's my doctor I have neurofibromatosis type 1 my family found out when I was like 2 and I'm scared about if them by bumps are going to be on the outside or the inside mainly because I don't want them on the outside
@primitivodominguez47424 жыл бұрын
Samara, hope this message finds you well. My Nephiew was just diagnosed with NF1, and I’m trying to find someone who has who can recommend anything that helps as well as answer some questions i have. Starting with the most basic of questions: Have you found a change of diet to be beneficial at all?
@bloodtraitorsrule4 жыл бұрын
I also have NF 1 and have for 26 years recently I have become worried about the out side neurofibromas.
@Christine-ys5iq3 жыл бұрын
I have the bumps in the outside
@dark20blade883 жыл бұрын
I was born with NF & i got bumps on my back arms & 1 somewhat big one right in the palm of my right hand
@Christine-ys5iq3 жыл бұрын
I have a few bumps. I've been asked what they are. And tell people I have NF1.
@wastelandwarriorz665fanacc85 жыл бұрын
Somebody with Neurofibromatosis should start a restaurant called cafe Olay
@freespirit_174 жыл бұрын
😂 I have NF1 and your comment made me chuckle...
@dhorizinquijada78274 жыл бұрын
I have nf too and this was 😂
@samaratuinstra31704 жыл бұрын
Yasss let's doit
@beausaunders77862 ай бұрын
😂
@arnabbiswas94613 жыл бұрын
My Newrofribama problem please madicin name please help me
@madislater34303 жыл бұрын
what
@booksarelife39233 жыл бұрын
my mum has nf I'm not sure which and I'm worrid cuz I've only recently found out it was serious.
@madislater34303 жыл бұрын
did you find out? if not ask her
@kyressa4 жыл бұрын
I have NF1
@beausaunders77862 ай бұрын
What does she mean five or six I have hundreds of them
@AuthorRahsaanAli Жыл бұрын
Nf1. Mines are primarily on the outside. Shit is not a game. In many cases those whom do not have it choose not to associate themselves with those that do. Chances of being in a relationship with a person without it are quite slim. Albeit there are some that tend to ride with you but indeed fear being chastised when they do. At lest in my experience. However you must carry on and be strong.