What is wrong with Shane’s voice? / Squirmy and Grubs

[@SquirmyandGrubs]

Thanks again to Bright Cellars for sponsoring this video! Click here bit.ly/BrightCellarsSquirmy3 to get 60% off your first 4 bottle box along with a BONUS bottle!

[@AngelKhalidah]

Hannah is like the type of a woman that every woman should look up to! 🥰

[@kristinminiscalco5592]

💗💗💗you guys

[@kristinminiscalco5592]

@@AngelKhalidah yes she is💗

[@kristinminiscalco5592]

@@AngelKhalidah love her sense of humor

[@laurencehill3591]

Thank you for your vlogs . I mostly have a stupid smile on my face due to the feel good factor of the content presentation .

[@bobbyt2012]

Geez, I thought Shane actually sounded clearer over the past year or so. The video title had me concerned his muscles had weakened. Glad to hear everthing is good!

[@bbghoul_x]

Scared me too

[@Nairozet]

It might have to do with getting used to his speech as well.

[@nvwest]

@@Nairozet yeah that’s it for me

[@kathleend8611]

I’m a speech therapist who has a lot of experience with motor speech disorders. I have DEFINITELY noticed a difference over the past year! I mean-I have some base knowledge of the WHY you sound different, but your speech has been the biggest way I have noticed strength improvement! I’ve actually shown a clip of yours to some of the kids I work with to show that adults have differences too. Thank you!!

[@cynthiarussell4261]

You both do such a great job of helping others understand not only SMA but disabilities in general.

[@scottpenrod5386]

I love the way y'all complement each other. I love the way Hannah picks up on Shane's body language and takes over to help him.

[@carolinebauguss121]

Even as a speech-language pathologist, I’m still amazed at how many muscles are involved in speech. So sorry to hear that people have left rude comments. Really love your videos! 🙂

[@hayleycole5119]

ME TOO!!! It’s fascinating 🤩 Shane has great intelligibility 👌🏼

[@lizb4156]

@@hayleycole5119 You don't, making words up.

[@lizb4156]

@@hayleycole5119 You don't, making words up.

[@hayleycole5119]

@@lizb4156 here ya go, did the research for you… in·tel·li·gi·bil·i·ty noun 1 the state or quality of being intelligible. "being able to see a speaker can improve intelligibility" From the Oxford dictionary.

[@lizb4156]

@@hayleycole5119 What a moron! You didn't understand what I was on about. I said she didn't have intelligibility at the beginning of my sentence.

[@beverlyculbertson4188]

I'm so glad I found your channel. A close friend's grandbaby was just born with SMA, and I would never have been able to understand what this disease was about without your wonderful channel. You are a hero.

[@hotcoffee8819]

Folks with SMA isn't the world's problem.

[@natashasays]

Are they able to test for it in utero?

[@rubypierce9344]

I have been a subscriber to you for quite a long time now, but I’m just now getting the courage to comment. Thank you so very much for pointing out the frustrations with someone asking what’s wrong with whatever it is. I am a totally blind person that uses an iPhone with a feature called voiceover. I get it all the time also when people ask what’s wrong with my eyes, I’ve even had someone ask me what’s wrong with my face. It really makes me feel awful, and it makes me feel even more of an outcast than I already do. Thank you so very much for this video.

[@machellelokersonvlog1273]

Congratulations to your first comment! You made it and should be proud of yourself! Keep going as you are beautiful and uniquely created! GOD bless dear! 🙏❤️🇺🇸💎😊

[@evolutionseven6406]

Thank you for commenting and sharing this! I'm very sorry that this happened to you. I recently saw a quote that I saved by a therapist which said: " I'm surprised you feel comfortable asking people that." the next time someone asks something invasive, none of their business or insensitive. All the best to you from England 🇬🇧

[@kathyk479]

I have Rosacea and work in a school. I also have vitaligro Micheal Jackson syndrome kids don't miss anything. Red face ,white arms. I'm a real treat. Some say what's wrong with your face. Why is it like that? I tell them I was born the way I am. There's nothing wrong. Just like you were born the way you were born the way you are. We are all different!

[@andreapatacchiola1184]

"so tell me, what's wrong with your rudeness?" (is that a real word? English is not my native language, sorry!)

[@iveyivey1298]

It all goes back to that saying "it's not what you say it's how you say it" and the Golden Rule "do unto others as you would want them to do unto you" we need to teach our children and grandchildren to be kind and considerate and not just assume something's wrong but to ask in a nice kind way truly not that hard to be kind

[@laurent2523]

Video topic aside, I just wanted to say how moved I am by the connection and the obvious kinship you both have with each other. Your bond is so beautiful, strong and sincere

[@Sarah-ic4yu]

I never think about my tongue until I’m at the dentist and then it’s ALL I CAN THINK ABOUT AND I CANT CONTROL ITS POWER

[@amandao9869]

Lol. True

[@kbalk215]

Me too!

[@hazelfilene964]

True! I’m a linguist and learning to do speech therapy so I think about tongues a little bit more than the normal person but not much of my own

[@jessicaann2070]

This made me laugh out loud

[@lindavidamia8199]

Same🤣😂🤣😂

[@angeladuffy2768]

“CRAWL!” “NO!” I legitimately laughed out loud! And the look on Hannah’s face! 😂

[@sleepypanda69]

Nearly spat out my drink 😃

[@cherylreichardt]

I think Shane does a fine job speaking! He has a fantastic partner with whom he communicates quite well! Thanks for explaining!

[@sweetluvgurl]

Yeah, I’ve heard a lot worse in the disability community. Some, you can hardly understand, and I don’t know why they didn’t have one of those devices that speak for them.

[@cleosworld9096]

I agree. He does really well.

[@dominiclowrey6567]

@@cleosworld9096 cxx x cc c c

[@cleosworld9096]

@@dominiclowrey6567 are u ok?

[@qabrona9776]

She's his caretaker and they make videos for money, stop believing a fairy tale

[@heatherhunt147]

I just absolutely adore the two of you! I could just listen to you two all day long! The way Hannah looks at Shane and he at her.....and how they interact. That is what everyone should strive for. Truly amazing to see two people so in love and sharing their story. That's what it's all about. Love. God bless both of you!! I love your videos so much!! Inspiring to say the very least. :)

[@loose167]

People can be so ruuuuuude! My vocal chords usually shrivel up if I’m in a social setting, it’s so frustrating. You shouldn’t need to educate people to be considerate human beings but you’re doing a grand job! You two are great ❤️

[@marthabohnen115]

I love the way you know each others strengths and weaknesses and acomadate each other in your union,you are truly a example of true love!

[@marjielalonde3875]

It always makes me sad when you feel you have to explain yourselves to viewers, but you always do it with humor, and I hope you know that most of us just love you guys.

[@ih82r8]

Goes with the territory. If you want people to understand something, you have to give them the information.

[@elizabethconroy7665]

Agree You under no obligation to explain anything to anyone

[@jesussaves6625]

@@elizabethconroy7665 His whole career is based off of informing people about his disability.

[@kareemahmullen8940]

Yes, always done with humor, but also a gentleness, respect, and a desire for people to understand...that in itself should demand respect for such a personal question. Perhaps the anonymity of these platforms allows people to trespass such boundaries.

[@vdeniceeckert3494]

What's sweet is she looks at Shane with such love, in her eyes. Love this.

[@gerrieellen]

There’s nothing wrong with Shane’s voice, everybody has different speech patterns and it’s all good.I love you both and you handle obnoxious comments great.

[@jessiehass82]

I know it's not the same, but i have an issue with R and W. Some times I'll say Wabbit, etc.

[@dickrichards9650]

@@jessiehass82 My daughter, Anna, used to do that with words, that began with t. She would make a dee sound. For example, she would say " diss, and dat", instead, of "this and that". It was so cute.

[@sianhancock5872]

I came to say there isn't anything wrong with Shane's voice. Hell it's like someone asking Hannah what's wrong with her hair because it is blonde lol. Everyone is different. It would be a bloody boring world if we were all the same. I think most people realise it is because of SMA. But at the end of the day it is rude to ask. Respect people's differences.

[@bettywhitegirl2294]

The gaggy saliva sound is hard to hear.

[@fulltimerver2355]

If it's a trial about the focus and lighting, and you are sharing, I will assume you are okay with hearing how viewers think it is working. It's a bit fuzzy compared to previously. Also, I noticed, the focus changes in and out .

[@stephanienoriega2936]

I really enjoy watching the interchange between the two of you. What a fun, loving relationship you have!

[@JestRLee]

To be honest, I have never noticed anything abnormal about the way Shane speaks because I'm too busy laughing at the things he says... dude is hilarious 🤣

[@1PhoenixRisen]

True dat! LoL 😆😆😆

[@princesswmh8907]

EXACTLY!!

[@tracys169]

Yep. He always cracked me up, so I was surprised to see the title that there was 'something wrong' with the way he speaks.

[@nonondriessen]

It is traitorous though not to realise there might be something wrong with his voice, because he is hilarious. Thank you for talking about this.

[@JestRLee]

@@nonondriessen ... Traitorous ? ? ? Sure, Shane has his limitations, as do we all, some are just more obvious than others, but refraining from focusing on those differences is by no means "traitorous", it is merely an appreciation for the uniqueness and talents that every individual brings to the table... Shane's physical limitations are between him and his doctor, and in no way reflect upon his value as an individual... focusing on the differences of others is more a reflection of the observers character than that of the one being observed...

[@janahargarten6774]

I have noticed your voice becoming stronger. I haven’t noticed the interruptions. I noticed entertaining banter. I love the back and forth. It’s better than one person talking for too long. It keeps it light. My favourite part is where you break into song, “it’s perfect…”

[@MissLea922]

Lol I love Shane's jokes. "My parents put me on the floor and said CRAWL" haha

[@ballerinaprincess09]

Literally hilarious 😂

[@MJthedragonfly]

Shane often makes me almost spit out my coffee LOL He's hilarious :)

[@lisamoroney3036]

Funny 😆

[@JoshRazauskas]

I get the exact same thing from having cerebral palsy so you’re definitely not alone in dealing with it Shane! Good for you for explaining it so well and good job Hannah too!

[@debbiekingston5166]

Hannah how do you survive all the laughter. I really appreciate Shane's sense of humor. You have worked so hard Shane congratulations on all your hard work on your speech.

[@speaking_bookish]

You so gracefully explain all the ways in which people are rude as hell- I truly commend you! And anyone who actually watches your videos would probably understand why Shane’s voice works the way it does-

[@SabrinaRomero1031]

When Shane said "what is wrong with your hair ?" It made me laugh. You have a great tone voice. So happy to learn more about how your condition affects voice. What beautiful singing. You can be an opera singer.

[@michelleseveney9113]

Same!! I LOL’d!!😂

[@girlryann]

Same! I cackled!

[@carolelve4462]

Thank you for giving us more insight into how SMA can affect ones voice. Much appreciated.

[@TheNeurospicyMama]

I read out loud for two hours straight one day last week and my jaw was so tired afterwards. Like Shane said, I haven't considered how important the tongue as a muscle is for talking, etc. Again, I appreciate your teaching about disability. I've learned so much from you both.

[@angiecarlson7677]

As a person with the physical disability, I have Cerebral Palsy, the first time I watch this video I was apalled at the idea that you even had to bring the subject up. In my mind there is nothing wrong with your voice. Even if there is, the name of your disability explains it all. But I guess there’s just some people that don’t get it. Enjoy your content and love you!

[@cyn4476]

I am grateful for the explanation and the kind, gentle way you always tell your audience things about your disease and relationship. Anyone who says ridiculous things about your videos and relationship are jealous, plain and simple. I guess I don't scroll through the comments enough to see those awful things said. I see a ton of supportive, loving people here. You deserve those folks, not the others. Ignore them, don't feed into their negativity.

[@jenkellner354]

When i saw this title my first thought was “oh no! What has happened to Shane’s voice” It just didn’t occur to me that there’s anything “wrong” with Shane’s natural voice. Love you guys!!!

[@mrtony80]

🙄

[@radfoo72]

"Whenever we're out in public I cannot get her to Shut Up!" 🤣🤣🤣 You two are Great!😊

[@lorrainekleingunther5632]

The two of you are amazing but you are lovely Hannah! Never notice Shane putting you down. Never! Your man is just extremely witty! Our worlds are far apart but for Hannah and Shane, I only see love, warmth and happiness in your eyes and your every day living. Thanks for always sharing!

[@sisterbea47]

Shane, I think you handle everything you have been dealt in life so wonderfully. Now that you have Hannah to help you things are even better! I cannot understand why people are so critical of you and Hannah. You are fortunate to have found one another! Who can tell someone who to fall in love with! People who are critical of Hannah and your marriage are unhappy and want everyone else to be unhappy too. You two make me smile with joy. God bless you both! Love, Sandi from Texas

[@dod2304]

I'm really glad to see that you are starting to be more direct with some people and telling them when they are being inappropriate. You've been so generous for a long time as far as your tolerance for questions from people who are completely naive to people with disabilities. I've had a bit of experience myself in that area. I'm an American Sign Language/English Interpreter and my kids' father is deaf. He speaks pretty clearly considering his hearing loss (which isn't entirely due to whether he had good Speech pathologists or he worked extra hard. Some people just seem to be better at speaking and lip reading than others.) In any case, people would often ask, or assume because they could understand his speech that he heard & understood more than he did. Then they'd get impatient or frustrated when he misunderstand or didn't "hear" someone behind him. And, I can't count how many times people would tell me how moved they were that I was so "kind" as to marry this "poor deaf man". So, I feel ya Hannah. He was always more patient than I. Maybe because he'd dealt with all that for many more years than I had. Still, after interpreting for more than 30 years, I still can't believe the things that people say to me about Deaf people. And, how "caring and kind hearted" I am to help "those poor people". Ugh. Nobody stops to think that THEY need me too! ie. they have a vested interest in making sure the deaf person understands what they're saying and that they understand the deaf person. And, if they knew ASL they wouldn't need me at all. LOL I try to remind myself that none of us know what we don't know. (but, jeez, if sometimes they'd just stop and think before they say or ask something it'd be a blessing to all of us! )

[@jaroneller1525]

Hannah is so proud of herself for figuring out the camera, this is delightful ^^

[@hotcoffee8819]

Yeah it's all about her lol !!! Always has been lol!!!! The puppet next to her is the pet.

[@jayreid1260]

Hey guys, This is my first time commenting on any KZbin page or video at all, ever. So, first of all, you guys are awesome, amazing, loving people. I’m thrilled to have discovered your page! I am a elementary school Special Education educator who works with some of the most highly-impacted (in numerous and various ways) children in our school district. I appreciate watching both of you and learning about the amazing, open, and caring perspectives both of you have, and the humorous and tolerant ways that you address and respond to the sometimes awkward, and the (probably way too frequent) sometimes inappropriate questions and comments that you receive. I think that what you do makes a huge, positive impact towards helping people to learn and understand how to interact, communicate, and be more tolerant of the many differences that we all have. I only wish that more people (everyone!) could see your videos. I’m not super confident that out of the thousands of comments you endlessly receive that mine will even float past your radar or come to your attention in any way. Also, I’m sure that plenty of people have made this suggestion as well, but I’m throwing it out there anyway. You are probably already aware of this fellow, but I have only recently discovered him. I think it could be an incredible collaboration if the two of you could make a video with him and interview each other. Like I said, I only recently discovered him, so the little I know so far is that he was previously an educator, but then transitioned to his current role interviewing people from many places with various conditions, diagnoses, and differences. His page: Special Books by Special Kids. If you’re interested in pursuing that collaboration then I wish you luck with it and I will be eagerly anticipating the results! I would love to hear back from you if you have the time. Thanks, Jay

[@rosereardon8884]

I'm pretty sure Shane and Hannah have already been interviewed on Special books for special kids. I could be thinking of soul pancake though.

[@jayreid1260]

@@rosereardon8884 Thanks for the reply, Rose. I tried a search for a video that they may have already done that but didn’t find anything. Any chance you could share a link to it?

[@Emily-ck9ji]

Huh. I didn't know this was even a thing people were asking. I always appreciate learning more about SMA and how it effects your day-to-day, but it's a shame that the question about your voice has been asked so rudely in the past. I love that you handle it all with humor and grace.

[@carolcole570]

Emily. Frankly, I don’t consider it being rude. I consider it people loving and caring about this man, and humanly curious about his good points as well as bad points. People are so scared to death of just being normal and asking questions, that it is just sickening to listen to them. If Sean is THAT sensitive, let him just SAY to stop all questions.

[@jellynellye]

@@carolcole570 They're taking offense to calling his voice wrong.

[@yomama5304]

@@carolcole570 I think it's the way people are asking. You can tell if someone is genuinely interested/concerned or if someone is being downright rude. The rude people don't actually care what the reason is behind their question they are just being snarky. Some people thrive off of the negative vibes they give others.

[@yomama5304]

@@carolcole570 BTW Shane's disease is not a "bad point". It was just the cards he was dealt in life.

[@Emily-ck9ji]

@@carolcole570 It's not inappropriate to ask questions, but when you imply that there's something "wrong" with Shane or implying that he needs to be "fixed"? That's completely unnecessary. You can ask questions without implying that he's broken.

[@harmonydesroches]

I really appreciate your willingness to share your story & be vulnerable.

[@Asteroid147]

When you've learned a foreign language just enough to be able to talk for a while, that's when you can really experience the tiredness in your tongue and cheeks, since the sounds in different languages require different movement for the muscles to be able to produce them. And you're not experienced enough yet to have found the most optimal way to pronounce the words.

[@critiquecriticism5860]

You all make me feel more comfortable with how I communicate with people. Watching your life helps me accommodate others. I appreciate it.

[@ecosfilosoficos]

I discovered this channel like 5 days ago and I laughed so much with you and learn so much. KEEP THAT GOOD VIBES UP GUYS

[@madibis8144]

you guys are too wholesome and adorable this video brightened my day i was smiling the whole time

[@rethinkeverything2982]

People can be cruel. They think their opinions are “needed”🤦🏻‍♀️ Hang in there y’all

[@KatieM786]

And that they "are entitled" to it. Yes you can have your own opinions but you don't have to be an butthole.

[@tvspaz626]

i'm a speech therapist and am about to do an assessment on a child with SMA. so this was perfect timing! That said, i never really had any concerns about his voice and could understand him just fine. even during the experiment.

[@oodoodoopoopoo]

I couldn't really follow any of what was being said because I was so distracted by how amazing the lighting was! Whoever set the camera does amazing work! 👍

[@thefilipinojoe]

I nearly died of cancer in 2014. Towards what would have been my death, but wasn't thanks to a miracle, I discovered just how much energy it takes to talk. A healthy person might never realize it, but we all exert a lot energy when talking. In the worst stage of my cancer, my heart would race anytime I over exerted myself. Even to hold a ceramic plate of food was too much for my heart. If I was to hold my food while eating, it had to be on a paper plate. To walk anywhere, I had to walk very very very slow, and I couldn't walk far. If I overdid it, I could have had a heart attack. But with speech, it was simply too much at times. Speaking was impossible without making my heart race. I never knew before all this happened to me just how much energy we all use to talk. Add a party to the mix, having to speak louder, more intellectually, whatever, and that energy exertion increases a lot. So if a healthy person ever wonders why their exhausted after a lot of socializing and talking, it's because talking exerts a lot of energy. So it's no surprise to me to hear that with your condition you tire of talking. I'm glad to hear that you're getting more energy with the new treatment, but just know talking for everyone exerts a great deal of energy. It's okay to take a breather. 💕

[@marissafrances6318]

I understand everything Shane always says. And he’s amazingly fun and funny. And Hannah is beautiful in every way she’s the light that always shines bright. My favorite channel.

[@funoldmomof2]

I just found you both a few days ago & have been watching in amazement how the two of you are so in Love & work well with each other. I can see the Love you both have for each other.

[@elizabethlevine4263]

Shane, you are freakin hilarious! I absolutely love you! Your humor, your warmth and just everything about you.

[@andreawhiteman2291]

I love how you use your channel to educate everyone about individuals with disabilities ! I am a speech therapist and your humor is priceless !

[@mascymadness8856]

I have never thought Shane's speach was different. Everyone has a different sounding voice.

[@L3TZ_G0_G4MBL1NG]

Love this channel and your sweet honest ability to educate! So many people have no couth! Just like you said, asking anybody a question like that is RUDE! “What’s wrong with your _____” is just not an ok way to phrase a question about anyone’s person. Hell even about an object there’s a better way to say it!

[@karengarner9839]

Love you two, you are able to call out rude behavior in such a gentle and Informative way, love it.

[@Avalanche_Broncos_Fan]

Please keep me in your thoughts and prayers for my upcoming surgery on Tuesday. We traveled to Seattle to visit with my son until he had Army Reserves now flying out in the morning for Juneau, Alaska for my surgery. Dr of 13 years took a position there & I wouldn’t change drs to have my neurotransmitter changed. Will fly back to North Pole, AK a few days after surgery and will catch up with you guys’ posts.

[@chibi_rabbit]

I will pray for you Amy.

[@barbaraberkel9275]

I love your voice Shane, especially when you sing. Beautiful voice, beautiful person. Love you guys

[@callie6146]

Audio and lighting has always been good but now it is amazing!!!!! Nice job, guys!! 😍😍😍

[@anneliesjoss]

I LOVE how that blue cabinet with the green plant looks in that clip where Shane talks about wine. That’s a beautiful cabinet 💜

[@lisaking1743]

Shane and Hannah, thank you for all you do to educate all of us out here. I hate that people can be so rude when asking questions. It's hurtful. So glad you are willing to address the issue. It may make people think twice on how they ask a question. I read your first book Shane, "Laughing at My Nightmare ", and finished it two days ago. I am now reading your book "Stranger's Assume My Girlfriend is My Nurse" and I love them. Your writing has improved so much. I have journaled since I was 10 years old and now am 58 years old. Watching how my writing evolves is fascinating. I love the written word. Do you plan on putting out another book anytime soon? I have started writing several books but do not have the discipline to finish. Kudos to you for being able to. Keep up all the wonderful work you both do.

[@justinfetty9526]

Very informative and you explained it well, even adding some humor, sorry that people were not very kind about their questions. Keep up the great videos your family seem to be very nice people, and I think you two like food as much as I do:)

[@outdoorsmom2000]

Love your humor and how you share your story while educating people too, all the best!

[@pinkyuzu]

I wish I could have Hannah's chill attitude about interrupting each other, but OMG that's like my biggest peeve! You two are great 💜

[@LW0214]

So wonderful you are there to finish each other’s stories! Such a blessing and shows how connected you are to each other. 💞

[@TheMessianic]

Being a fast talker, there are times people have a hard time understanding me--even my wife asks me to repeat myself. Shane, I have NO problem ever understanding you. As for the interruptions, my wife and I are also interrupting each other. It's a married couple thing...lol Love you guys

[@TheJeffrey575]

I think you two are brave to do all you do. You’re an inspiration for all physically challenged. Thank you for your willingness to share and your honesty.

[@carmensamone]

The funny thing is I never actually even notice or pay attention to Shane's voice. I just pay attention to what he's saying. 🤷🏽‍♀️

[@sharonbrown6595]

Me too. I can’t Imagine even asking about anyone’s voice ect.

[@nleb1993]

I haven't either

[@sharinasuhaimi2043]

Same here! Nothing wrong with his voice Love his sense humour 💝

[@kbalk215]

Same!

[@rosemarrypolack5708]

That is excellent that the SMA treatments work so well! Never knew this about your speech! So happy for you both!

[@gemmaanderson5605]

I like your voice shane, and I'm sure your beautiful bride to be loves your voice, I also love how incredibly polite you always are, dont let others get you down with there ill thought out questions, you both are amazing

[@ginnybrunori5778]

You guys are such a great team. I believe your interruption of one another is as Hannah says a "sign of love". Shane, I love how you make light of your disease. The world would be a better place if we all could develop that talent. Thank you both so much for the joy and love that you share and for the laughs.

[@TinathePomMom]

My brother got to the point he couldn't swallow, his muscles were so weak. He decided against a feeding tube, and passed away about a month later. It was a TERRIBLE death. He was 19, had the heart of a 70 yr old. I've lost many relatives to Muscular Dystrophy. It is an evil disease! I'm a carrier:/

[@donnahocutt395]

Was you told 50/50 chance? I never got any test done, but I have two healthy boys. Age 32 and 22.

[@TinathePomMom]

@@donnahocutt395 I was so young. I was only told by my mom, that any boy I had would have it. I remember all the testing, the NEEDLES!! But, I didn't fully understand it all. I know as an adult, and after seeing all the ones in our family with it, that I don't believe that to be true now. My sister was adopted out at 3 weeks old to extended family. My parents didn't know at that time, that my brothers were going to have it, nor that she was a carrier. She had 5 children, three of them were boys (all approx. one year apart). The two oldest had it, the youngest did not. I had two aunts that had the same mom, as my mom, but different father. One had a son with it, the other had 3 boys - none had it. Another aunt (both same parents as mom), she had 3 boys. One had it, the other 2 did not.

[@SmurphyGiggle115]

I've actually wondered not so much about Shane's voice but about your storytelling and I've noticed Hannah "taking over" a story. This makes so much sense and is yet another thing that gives me a deep appreciation of your relationship. Thank you so much for sharing!!

[@odonovan]

5:33 - Shane: "...while you tell them about this, I will show off my voice, in the background." Me: +grinning already, waiting for what I KNOW is coming+ Hannah: +starts talking+ Shane: "AaaaaAAAAAaaaaaaaaaa..." Hannah: +facepalms+ Shane: "Just keep going." Hannah: +falls for it, again+ Shane: "AAAAA..." Shane, you did NOT disappoint. Bravo! 👏🏻 👏🏻 👏🏻 👏🏻 👏🏻 (applause)

[@jesuschristsuperczar1224]

You rock brother. Your wife rocks. I have MS. I had some scary experiences that came and fortunately went but may return. Enjoy your lives and throw caution to the wind.

[@jessicaa.m.harper1727]

I love seeing the love Hannah has for Shane in the way she looks at him.

[@OscarsMama]

You're joking, right? She's obviously a very well paid caregiver, nothing else. Their "marriage" is a farce. She has been seen with a very hunky guy, they just hide it well. Can't believe people actually believe these guy's are a couple. It's all for the money.

[@amyball3342]

@@OscarsMama Can you show or provide a source for her being with a hunky guy besides just hearsay? I'm being serious. I'm truly curious if there is any reliable evidence for this being a sham, besides your theorizing.

[@OscarsMama]

@@amyball3342 it leaked out on Twitter. But I don't remember whose. But yes, she admitted to being with the guy, of course, said it was just a friend. Then on their next post there was a lot of tension. When asked about it the comments Hannah said the tension was caused by a problem with a mutal friend. That's all I know.

[@amypoindexter3896]

I love both of them !!!!!

[@amyball3342]

@@OscarsMama Very interesting indeed. I'll see what I can dig up. Thanks

[@jeffvandenberg8422]

You both are a great couple. Love how you hold your vows and are a great support system for eachother. Take care and stay healthy.

[@leeartlee915]

Asking someone “what’s wrong with X” is clearly a question from someone who’s never gotten past the “inquisitive child” phase.

[@sueq8862]

I was only thinking of you two yesterday wondering when you would do another video. Love you guys. Love watching your love story. Wishing you both fantastic happiness, wonderful health and everlasting love.

[@jeaniefenner3386]

Shane, your singing voice is wonderful! You kids are so loveable. Hannah is such a beautiful and fun lady as well. Still love the eyebrow thing, too! 😘😘

[@gmariel2624]

You guys are great! I'm usually smiling and chuckling throughout your vids. I love Hannah's comment that, "interrupting is a sign of love"! Virtual hugs to both of you!

[@rosezv7413]

as a speech therapist I’m so thankful y’all made a video about this 😌

[@sarahjames2991]

Wow you do a really good job Shane because I never notice. I must admit that by the end of this video I was consent and hoped you would recover from talking alot, soon after . I love watching your videos and learn something about your disability gives me a better understanding . If that both your goal "Its working !!" X

[@Christina-yk7zz]

Everyone's voice is different and a result of our makeup. I never thought it was any more different than anyone else's. You sound as "normal " as anyone else

[@mrtony80]

Are you serious? What good are doing the man by telling such a blatant lie? He doesn't sound normal at all, which is why he's making a video explaining it.

[@pattituron8510]

We certainly do live in a society of critical people. I have been enjoying your videos for a long time and I have never noticed anything except how much I love listening to the two of you and how you always include us in your adventures! I see two really loving, amazing people who are head over heels in love. In this world we need to enjoy life and cherish the moments we are given and that is what I get from watching your videos ~ You both make me laugh and I love that you are not only entertaining but you seem to both have so much fun whether you are out and about, or just enjoying playing with Chloe. I love seeing Chloe and your parents. It must be a lot of work putting so much time and yourselves into making videos. Thank you for making us smile. That is what we need more of these days.

[@BlessedtobeMimi]

I had trigger point injections in the right side of my neck last year for pain relief and the doctor accidentally paralyzed my right vocal cord. I started coughing within an hour, had shortness of breath, chest pain, hard time talking. Of course it was 2020 C-19;they said but 7 negative tests later and a trip to the ENT doctor who dropped a camera down my throat saw my vocal cord was paralyzed and will not come back. So I too have trouble talking and swallowing, chocking on my own spit. I did try speech therapy but as the doctor said, it didn’t work but I wanted to try. So this video really interests me!! Thank you so much for sharing.

[@RonHeartsMe]

Oh man this is terrifying! Up until about two years ago I had been getting trigger point injections in my neck (usually 9-10 at once) every other month. I didn’t even know that was a possibility!

[@BlessedtobeMimi]

@@RonHeartsMe yeah me neither. I had them done for years by another neurologist and never had an issue. I went to this lady once and wham! Was out of work from July to October last year and still have affects. I pray you never have this happen to you. I called three lawyers and they won’t take me as a client because there isn’t enough payout.

[@znowicotton5176]

Never wish to change. You guys have helped keep me going and keep some hope in me for years. Thank you.

[@onthequest8860]

I was seriously focusing then right when Shane said “In the month of May” I busted out laughing. Shane, your sense of humor is just the best!

[@jenniferbreidel3407]

I think Shane does a great job speaking. Thanks for educating us. Love you guys and your content.

[@Christina-Claire]

Both of you are glowing ! 3rd wedding glow?!

[@spiritofcoco]

Oh my gosh, thank God lovely people like you two exist in this world and thanks to the Internet your lovelyness can spread ALL around the world and hopefully infect us viewers. Thank you guys 💓

[@Harlan_1]

As a speech pathologist and a fan of your channel, I love your voice ❤️

[@staceymayy1359]

I'm always so impressed by the way you two handle these situations. (The ones where someone says or ask something so inappropriate and rude). I never understood how some people can behave this way. But, I'm always happy to see how you address this. By coming out for all to see and exposing this type behavior it helps others to be aware of what the proper way is to ask a question or address a situation. And hopefully teaches the one who had acted so badly to wake up and realize that we are all humans trying to survive and be happy with whatever life brings us. Love your videos!

[@deedee55686]

I really believe the ones asking without couth are probably very young, haven’t been taught yet. OR they’re older & haven’t ever been taught. OR they are just rude. Love you guys!

[@richardrosenthal9552]

Shane and Hannah, you two are the best pairing of people I have come across . You complement each other in through your support of each other. Shane your voice is fine but it does change as you speak for awhile. All in all you are not hard to understand when you talk. Hannah obviously recognizes when it is getting hard for you to speak and tries to help. It is amazing how effortlessly the two of you can change speakers as a presentation goes on. Don’t let negative people get you down. Stay safe and healthy.

[@tammylewis9324]

I have had TMJ since a young age. My grandmother laughed at me for saying”I’m not full I’m just tired of chewing”😀

[@nickpenny5497]

Can relate to that ! Plus half my tongue has become paralysed. Eating and talking are not the same. I think Shane sounds fine.

[@PowerchairGeek]

This video has moved me so much that I want to share this. I have cerebral palsy, my speech is also moderately affected. To give a description, when I say words containing the letter r it's not as crisp as I would like it to be. it sounds kind of soft for lack of a better term. I've had people say some horrible things to me, one that comes to mind that bothers me more than some of the others is when someone said that I sound like I have a d*** in my mouth. People can be cruel. For what it's worth Shane I could understand every word you said even when you were tired I didn't even have to try to understand. I have to say that you are such an inspiration to me, both you and Hannah. Thank you for sharing your lives with us!

[@sharalou3393]

Is it just me but Shane's singing voice is rather lovely ;-) Keep up the Good Work Guys.

[@Nahanni_Norway]

I never thought you are interrupting each other, you are more like twins who complement each other, as if you think alike and know what the other should say .. It shows how united you are and that you have a good relationship 👍

[@donnavanbekkum9147]

Thank you for sharing about your voice, Shane. The love and care you have for one another is beautiful. And no, there's nothing wrong with your voice. You have a manly voice. Perfectly unique.

[@kathmatsushita]

I am so glad that you made this video --- I wasn't sure if that was just the way you spoke, Shane, or if it was, indeed, influenced by your SMA. I figured that the latter was the case. Thank you both for being so honest and up-front about it! That's one of the things I appreciate the most about you guys --- your honesty and realness. I LOVE YOUR CHANNEL!!!!!

[@irenedonaldson1930]

I cannot believe how rude people are....I have never thought anything of Shane's voice. We all have different voices for petes sake. Love you guys. Keep up the great videos!

[@sallywright8065]

You’ve honestly never thought anything of Shane’s voice?? Rubbish. True enough it’s rude on many levels to ask about it but equally it’s not realistic to pretend his voice is crystal clear.

[@w2npjvve]

I'm w/ you Irene, Shane sounds fine to me because that's what he sounds like. Viva le Shane and Hannah!!!!!!