What to do if you have a Crohn's disease or ulcerative colitis flare | GI Society

[@ashaaz2450]

Hi, I was diagnosed at 21, I am 36 now. Based on my experience, the best advice I can give is: 1) Homemade meals; 2) No smoking, cut alcohol, no acidic fruits go for sweet fruits instead; 3) Go for walks; 4) Cut sugar/processed foods as much as you can. 5) Reduce coffee intake; 6) Take your meds regularly; 7) Write down daily food intake/Diary; 8) NO ADVILS!!! 8)IT'S THE FOOD IN AMERICA! You'll have to reduce food servings; 9) Make your own bone broth, drink in the morning. I believe it will help bones for joint pains, on the long run; 10) Save fat from meat, to fry eggs and potatoes, CUT Canola oil, use olive oil; 11) I will cut cow milk soon for goat milk and analyze the difference on the flares.

[@johnnyappleseed6665]

very helpful!! Im literally almost in despair over how bad ny issues have affected my life

[@chrisbauman2562]

Same. My family thinks im angry and mean but i am just in pain​@johnnyappleseed6665

[@MrJohnnyDistortion]

Do you know if Marijuana use will help any?

[@chrisbauman2562]

@MrJohnnyDistortion it will help you eat and manage pain

[@MrJohnnyDistortion]

@chrisbauman2562 Indeed. I was wondering if it would diminish pain.

[@HeartFarts]

Just for further education, flares can also include but not limited to: joint pain, fatigue, sweating, chills and low grade fever. That's my experience, at least.

[@mae9064]

Yep, of the above and spasmodic cramping that will literally bring tears to your eyes 😢

[@kokachips]

May god help us

[@derrickjohnson2302]

It feel like there’s no way out of this I have days where I don’t want to get out the bed. The pain is so bad just stay strong.

[@joshgreer3527]

I know what you mean having a flare up last few days how do you work did you have to get disability been dilling with this for probably a year after gallbladder surgery do you puke green and have green diarrhea its not always green

[@hollywitherite416]

You might want to try fodmap diet.i hope this will be helpful ❤️

[@damiandamiano3651]

fast... thats the only way to fix this

[@jayashreethirupathi1825]

Eat cucumber and carrot as salad everyday, include apples and pomegranates more in your diet, buttermilk and curd rice might be a great help. Eat curry leaves or mint leaves chutney

[@bodazaphfa]

@@jayashreethirupathi1825horrible advice. Fiber terribly irritates your GI tract!

[@nicobeing]

This was calming and helpful. Thank you. It's been years since I was diagnosed and a flare still throws me off my game. Thanks for the clear steps. I'll save this as reference.

[@moxig5717]

I had two this month. Put me out 3 to 4 days a week. I’m curious if anybody else has diarrhea or vomiting or they have pain in their heart? I think from the vomiting, the strain on my heart, the hospital thought that I had a small heart attack last time. How do you know where it comes from that is the scary thing? Do you think it is completely diet?

[@ElevatedLiving1]

​@@moxig5717checking on you. How do you feel?

[@chiunc]

Thank you so much for this! This made me understand how things could be for me without making me feel scared.

[@TheMagicCrafter]

Searching for answers after I was stood up by my gastro for our scheduled virtual appointment today... which we scheduled over a month ago. 😮‍💨

[@Pursuitofinsighttt]

I was ibd patient ,and now I have fully cured it with one simple thing.

[@Msh4rky]

I was diagnosed when I was fifteen after a year of pain and suffering. People are too scared to treat or diagnose children in the US and I almost died because of it. We need to fix our healthcare system or things are only going to get worse.

[@user-hi7vo9ct5x]

How’s your case now? Is it better please answer

[@Msh4rky]

@@user-hi7vo9ct5xIn all honesty, not great. Im not incapacitated anymore but I still have a lot of pain and other symptoms even on medication. Im trying to look into alternative things to try it now, like seeing a dietician.

[@Xo01w]

Same i got diagnosed with it when I was fifteen in February a week before my birthday where I've been having pain for 2 years :(

[@mae9064]

@@Xo01w I’m sorry that you are having such a tough time

[@paramedicchrisbookseries]

Being a chrohn's sufferer myself, this is really helpful to be able to show others.

[@DhanLimbutsk]

How did you cure your disease?

[@MrsAlmaTrumble]

Watching as I have a bad flare up. I've had Crohn's since 2013 and still fighting it and to get health insurance to cover my medical.

[@highxtechlowxlife6618]

I was diagnosed in 2013 too and have been dealing with the insurance struggle and getting a good care team in place. Hoping things look up for you. Hang in there. ❤

[@englishliterature6056]

I'm also... feeling frustrated...again and again I'm same situation

[@MrsAlmaTrumble]

@@highxtechlowxlife6618 thank you. I have to have surgery so I'm still fighting to get health insurance.

[@MrsAlmaTrumble]

@@englishliterature6056 thank you.

[@NICKELL5]

We’re in the same boat and as someone experiencing this also I can agree it’s very frustrating

[@bobbaker9820]

I'm going to leave this here. Hopefully it can help some of us. I have likely had Crohns since high school. Diagnosed at 35. Late 40's now. Regardless what you do, this must be rule #1: Get past the fear. Fear has caused more flares and ER visits for people than anything else. Everyone's disease is different. Try things in consult with your doctor. Be patient with yourself and your body. I am flaring right now and for at least a month. My next Drs. appt is in a month. I am trying things. Right now they aren't working. I know something will, though. So I'm going to stay calm and keep working at it.

[@scampervalley4923]

I am just getting over flare up. I’m 50 and just diagnosed in2022, this was 3rd and the worst. The pain was unimaginable, several times I was sure I was gonna pass out, hoping to. Ended up in ER and have missed 3 days of work. I can’t imagine dealing with knowing one of these could be right around corner. I’m currently petrified to move.😮

[@shakirhunter5235]

Went years without having a flare; was diagnosed at the age of 6 and went in remission around the age 10. Now I’m 22 and my UC has been back up and running for the past 2 months😪😪

[@JanFreebersyser-ne7gz]

Is it constant for 2 months straight? I’m sorry you are going through this it’s no joke

[@redvsblue3294]

@@JanFreebersyser-ne7gzoh its constant for sure. Day in and day out, my fiance seems miserable and I don’t have any other resources to help. Scheduled to see the GI but i feel like thatll only lead to wanting surgery.

[@siobhanmulvey]

@@redvsblue3294diet isn’t getting you out of flare? It’s that bad? I had awful (first) flare last June and diet couldn’t do it. I got diaehea (from my sick nephew) plus gut pain chills major fatigue sweating stuffed head etc. I quickly got diarhea under control w food but then I added in too many new foods and I’m in pain diarhea back:( I was doing So well so I can’t imagine a 2mo flare now. I hope you’re ok

[@JRenee-Sings]

Sorry you're suffering. Look into totally changing your diet and lifestyle. Go on a total body detox for as long as you can, without compromising your health. Seek a good holistic doctor, who uses medicinal herbs. Consider Including prayer 🙏❤

[@shakirhunter5235]

@@JanFreebersyser-ne7gz sorry I’m just now seeing this but yes it was constant for a whole year. It was terrible. I still get constipated every now and then and also have mucus in my stool but it’s not nearly how it was last year. I couldn’t stand for long periods and was in SO much pain😣

[@euancamz3740]

Am I the only one who doesn’t get flare ups? It’s just constant symptoms. I’ve had it for 5 years and it’s been constant pain every day.

[@aidenkletke9049]

Just try to found out what’s going on or change the diet up a little bit but hang in there!!!

[@SujanDiyali-fc6xh]

Does it stop paining now

[@user-hi7vo9ct5x]

Still the same case??

[@Take_a_breath208]

I don’t appear to have flares… but I certainly feel like I do. It’s been a really rough few weeks.

[@philosophicalbarbarian6969]

I go into remission where I don’t have pain. But my colon is so damaged that I suffer with irritable bowel and incontinence on a pretty regular basis. Good times.

[@palashvijay4814]

I was diagnosed with ulcerative colitis (UC) a year ago and have had only one flare-up since then. My diet primarily consists of home-cooked vegetarian meals, avoiding processed and spicy foods. Although I rarely eat out, I do drink milk coffee twice a day and completely avoid alcohol and smoking (despite the known association of smoking providing some relief in UC). The flare-up I experienced was due to my own decision to eat outside food, fully aware it could trigger symptoms, but I had no other choice at the time. As a doctor, I recommend tailoring your diet based on your body’s response, as I’ve seen many patients experience flare-ups from vegetables, though they work exceptionally well for me. My diet includes a variety of vegetables, especially green leafy ones, along with grains and wheat bread (roti). When I was first diagnosed, I had 3-4 bloody bowel movements per day. I was initially treated with steroids and PPIs for 2-3 months. Once my symptoms stabilized, I stopped those medications and have been successfully managing my condition with mesalamine alone for the past year.

[@studfinderball]

This may help to cope: any two ply tp and any body lotion (not body wash), wipe and repeat until paper is clear. Cleans and soothes rectal tissue. Expensive wipes are history!

[@RosietheGirls]

Currently at the end of a nasty flare up. Its wiped me out xx

[@CamillaKofoed]

Hey everyone I recommend eating unsweetened can pumpkin it really helps with Crohn's disease

[@philippalmer2566]

Hmm, another re-active version Id expect from conventional medicine, there are more pro-active programs to avoid having the flare. The medications do-not remove the cause of the inflamation only the symptom.

[@erichenningfeld]

.... That's not true. Inflammation is caused by the immune system. No one is diet won't help. But diet can't fix the malfunction of the immune system.

[@OmegaAlphaDu]

I was diagnosed today with colitis. 4 days of straight burning and uncomfortable feelings and poor sleep left me in the ER and the doctors found the problem with a CT scan. I just want this to end

[@Yourhighnessbella]

I found out the same wag 5 days ago today .

[@masifnaeem]

Wht are ur symptoms​@@Yourhighnessbella

[@oconversionofficial5482]

Me too and still in the hospital now

[@OmegaAlphaDu]

​@@oconversionofficial5482good luck, I was finally able to get it under control.

[@johnnyappleseed6665]

I DIDNT KNOW THEY COULD FIND THAT WITH A SCAN!! I've been going through a living hell over this for more than twenty five years

[@damiandamiano3651]

stop eating for 24h, drink green eta and water

[@RanjithRanjith-cb6ju]

Thank you for, your valuable information and please, what is the medication, please advice 🙏

[@sudeepbhattacharya6271]

I m taking medications regularly yet I am getting unwell. Urgency to go to toilet, cramps in thigh, feeling feverish. I don't know what to do. I am having ileitis.

[@c.h.7581]

Did you try quitting gluten (and probably sugar & alcohol)?

[@sudeepbhattacharya6271]

@@c.h.7581 I don't take alcohol or tobacco. I avoid milk being lactose intolerant. Gluten intake is also low.

[@anchmcle]

🚫Caffeine. Stay Hydrated. Everyone goes through UC and CD differently. Test and see if certain foods are causing the problem. Some foods may cause constipation, some diarrhea. I am sorry you are going through this.

[@sudeepbhattacharya6271]

​@@anchmcle Thanks for your suggestion.

[@SucculentChineseMeal]

Go to hospital, they can monitor you and administer medication to control flare

[@abdelhadikhalis1500]

After examinations, I found out that I have Crohn's disease,so, what is the first step that I must follow, or is there a specific diet?

[@anikaangel8897]

NO CARNIVORE DIET. That will kill you. Whole food plant based diet is the only way

[@moxig5717]

Did you find anything out? I thought that was a great question, I think I have the same thing, had it twice this month already it is so incredibly painful that I can hardly stand it. When they ask my pain level, I say nine, with 10 being, I would have to be on fire. Feels like a cheese grater on your intestines. I am not even on medication, I guess I need to think about that first but I’m gonna look for some dietary information and if I find some thing I will bring it here to share it with you

[@yothatscool6004]

@@moxig5717 ive found that diet plays a role, diet and stress. For me, specific foods dont hurt as long as i include 4-5 organic meals in my diet per week

[@kerryrus]

@@moxig5717 No alcohol. And for diet Low fiber diet Low FODMAP diet Low residue diet and Carnivore diet. I cycled through them and determined that the carnivore diet was the best by far, for me.

[@edwardkennedy9919]

Carnivore diet

[@emmamuita7618]

I have had colitis since 21. Recently i traveled out of state for a month. The coalitis cleared up and i didn't even use medication when i was away. As soon as i landed back and started eating the food here the flate up came back after few days. I think dieat is key. Am yet to find out exactly what food.

[@sannakoski3633]

Try watching videos by Team Honnas... You'll find the comments section very encouraging too.

[@johnnyappleseed6665]

Very interesting.. sometimes its so bad im not sure life is worth living

[@emmamuita7618]

@@johnnyappleseed6665 am so sorry to hear that. I believe food/diet is or will eventually be the key. Somebody in the comments recommended watching team honnas and am fing very helpful recommendedations. Don't give up keep trying

[@Sheogoarth]

I'm 18 and was Diagnosed with Active colitis a month ago

[@shaniac437]

How are you with it? I’ve been diagnosed for two years and live with flareups maybe 8-9x a year. It’s awful

[@badgutcanada]

Please check out our Living With IBD series to learn more. badgut.org/livingwithibd/

[@jocelynobordo6077]

How are you now I think I have ibd or IBS I don't know😢😢😢😢 I have a baby and a breastfeed mom😢😢😢😢

[@سالمسبلان-د7ع]

​@@shaniac437I think this is too much. Have you tried discussing with your doctor about changing medications?

[@JRenee-Sings]

What about a cure? 🤔

[@eddkennedy6458]

I've had Ulcerative colitis for 18 year's and the carnivore diet has put my Ulcerative colitis into remission for over 3 years and I'm off all medications

[@marianmorley]

Yes I have heard about this. I have UC for 27yrs, I drink kefir milk which I make myself with the grains also cod liver oil and aloe Vera are which help but I am unwell a lot now and the disease has spread to the right side. I don't know if I could stick to the meat diet but I will give it a try.

[@badgutcanada]

Not all diets work the same for each person. It is best to speak with a dietitian before making any big changes to your diet.

[@SucculentChineseMeal]

Be careful of this, not everyone responds well to diets and ditching the meds is literally one of the worst choices you can make as most people don't have the will power to sticking with ultra restrictive diets.

[@Barrytong]

May I ask I have sticky muscus discharge found in stook after bowel open and increased difficulty in oassing stool. Is it a symptom of ulcerative collitis？

[@سالمسبلان-د7ع]

اذهب الى المستشفى​@@Barrytong

[@MDGOrbit]

Have had this flare for 5 days and i feel so dead. Still going to work and everything. Honestly dont know what to do since ive been fine for 2 years.

[@philosophicalbarbarian6969]

I’ve had this since I was 18. There’s Chanel’s where people claim they have cured themselves with diet and microbiome management but idk. I’m 32 now and terrified I’ve got cancer. But I hate going to the doctor. Uhg.

[@user-hi7vo9ct5x]

Hey , since you got a bit of experience how’s your 14 years with crohn? Did you somewhere at some point achieved remission? And how , please help because i got diagnosed a year ago and it keeps getting worse

[@philosophicalbarbarian6969]

Guess I watched this video last year lolol. Still haven’t had a colonoscopy.

[@philosophicalbarbarian6969]

@@user-hi7vo9ct5xsorry buddy. It’s on and off. Sometimes there’s absolutely nothing wrong with me, and I’m invincible. Then I usually always get a flare around the holidays, or when it starts getting colder. Right now I’m in agony. I wish I had helpful information. We are all just on this journey. I usually lean towards an animal based diet, but I don’t have all the answers.

[@user-hi7vo9ct5x]

@@philosophicalbarbarian6969 thank you

[@user-hi7vo9ct5x]

@@philosophicalbarbarian6969 yeah me too right now im very good, thank you man

[@MrJ0mmy]

I'm sick of being so gassy

[@anchmcle]

Try drinking hot water with your meals and throughout the day. It's actually soothing and it helps with gas.

[@3tch3r]

Anyone ever experience mesalamine doesn't work for you?

[@ulasina]

So you are basically saying take your meds and go to see your doctor.

[@matthewlawson4936]

My Crohns is really getting me down at the moment. Ive felt ill for a few weeks with zero energy. I have two young kids so it sometimes makes me irritable and I don't have the energy to play with them. I also find it hard that you're never sure if you feel ill whether its linked to a flare or not. Ive had headaches for weeks and no idea if its Crohns or something else as Crohns and the medications can obviously lead to so many different symptoms

[@rifatjk7123]

Do you eat junk food? Do you control your food properly?

[@Aditya-hm4vf]

I am also having headaches and feeling so weak and tired, I can't even walk or climb stairs.

[@mariecassidy3720]

Had flare up 7 years ago told it was a once off, bad pain for the last year waiting for tests 😢

[@SmallLittleMan]

I think i have crohns. Is it common in teens, and what are the symptoms? Sending prayers to whoever has this🙏

[@HomoRetardi]

Im 15 and has ibd since i was 6. There was blood and mucus in my stool at some point and had stomach pains. Although my medications got fixed straight away and havent had symptoms since.

[@hfactor6429]

Mesalamine?? Anyone know if good?

[@BabyfaceL3DG]

Been using it for a week ain’t noticed anything just yet

[@TheStefangolubovic]

Be consistent

[@jamesvega6813]

apparently there are better treatments such as infusions with medicine such as Stelara but i did take Mesalamine and it does help quite a bit

[@cigdamagelungs]

Ok for uc,not for chrones

[@jamesvega6813]

@@cigdamagelungs it still helps though I was prescribed to that by my gastroenterologist and while it's not a whole cure all it did help alot

[@rimawankhede2921]

My brother was diagnosed with chrons Nov 23, his age was 36 then, treatment was going on he was having flare in lower abdomen, but he got multiple ulcers in throat, after 3 days of hospitalisation his BP got dropped dr could not find any pulse after some time . We lost him, can someone please help me to understand does it happens this way

[@Ranjan-x5z]

I'm sorry about your brother What was his symptoms mam

[@سالمسبلان-د7ع]

I think the doctors did not provide him with the appropriate treatment for his condition.

[@phindz113]

Thank you for this information. Ever since I was diagnosed with IBD, I have been eating Herbalife and it really good with managing gas and constipation..... I've been feeling way better. When I don't have money to buy the Herbalife than I will feel this gas on my abdomen

[@thedalmatianpack]

Hi I have a Question, Is Herbalife a powder, pills, Etc...? I would love to buy this for my daughter that has pain in her belly often cause of her colitis

[@mdrubelmolla6251]

I have ibd and to much pain mucus in stool what i can do please help me

[@gilla2092]

cut back anything involving acidic, lactose, red meats, sugars and caffeine, NSAIDs, and double on hydration. Get some sleep, take a deep bath

[@DRK1785]

Hi I had the disease for over 15 years it was in control for at least 12 years until my doctor's messed up and failed to do the correct test when I had really bad gurgling in my stomach. I would get your Doctor to get you a dietitian and check for deficiency in things like iron, B12, calcium, and potassium etc. Make sure as well all your meds are timed for the same time each day or month week mine monthly now. Drink lots of water and sounds odd but I find Bananas are usually good to eat and helps a little bit. The only other thing I can advise is try and relax when you can and I know this is the difficult part of exercise when you can. I know none of this is a cure but it may help. Best of luck to you.

[@PK-se2jh]

Thankyou 🙏

[@e.s.92]

I been trying different medication for 3 years, I even had surgery to remove a part of my intestines and I still ended up In the hospital afterwards nothing helps I am mess up, I fallow I strict diet 😭😩😭😩

[@DRK1785]

Hi I had the same issue I had the disease for over 15 years it was in control for at least 12 years until my doctor's messed up and failed to do the correct test when I had really bad gurgling in my stomach. I would get your Doctor to get you a dietitian and check for deficiency in things like iron, B12, calcium, and potassium etc. Make sure as well all your meds are timed for the same time each day or month week mine monthly now. Drink lots of water and sounds odd but I find Bananas are usually good to eat and helps a little bit. The only other thing I can advise is try and relax when you can and I know this is the difficult part of exercise when you can. I know none of this is a cure but it may help. Best of luck to you.

[@tomjjj9037]

Get disability

[@jessiemorrison1984]

I cant afford the meds so I'm not sure what to do

[@سالمسبلان-د7ع]

I think it is offered for free in some hospitals.

[@badgutcanada]

Best to speak with your doctor and they can reach out to the companies to find out if they have compensation for medications.

[@snigdhachakraborty2203]

Is it proper medicine crohn's ? disease

[@badgutcanada]

There are many treatment options for people who have Crohn's disease and ulcerative colitis. Here is our IBD medication guide. badgut.org/ibd-medication/search/

[@kB5TVP]

Medication would be great if you have a good GI doctor. Mine sucks. Never given me any meds but BENTYL. and we all know that works for a year and neevr works again.

[@elgato9534]

This shit sucks! I had to drive like a maniac in traffic and almost crapped in my company car! I wanted to DIE!😮😢 NO SHIT!

[@user-hi7vo9ct5x]

I swear me to i just want an end to this😢

[@tompchromedome]

yep the good old doctor stand by when they haven't got a clue """ stress"""" How did fighter pilots or trench warfare soldiers get on? Every diet is totally different with completely opposite and apposing recommendations. Just stop eating, look at fasting info if you are not skinny , you are over weight , you must stop stuffing your fat gob. During a recent flare I had to travel by car on a couple of eight hour trips , I stopped eating after eight o'clock the night before and got by the next day on a total of 2 small thick shakes and 2 small maccas chips, all day felt more alert while driving and was not tired.

[@gilla2092]

they didn't. people just died in their 30s and 40s like it was normal

[@philosophicalbarbarian6969]

Am i the only stupid, crazy bastard that doesn’t take any medication? Just rawdog flares. Currently enjoying the immense suffering of a pretty severe flare. Seems like it’s getting worse as I get older. My bathroom looks like a homicide.

[@kalawren77]

This was so unhelpful

[@badgutcanada]

Sorry to hear it did not help you.

[@Davidu7]

Is ok to smoke if you have colitis ???

[@c.h.7581]

Nope! ..or drink! ..All of that 'fun' stuff will make ya worse, sorryyyy! 😞

[@dlh0607]

Smoking is not okay for anything

[@Davidu7]

What affects ? If you have colite

[@RyDawg96]

No

[@user-hi7vo9ct5x]

Hey, please every one help me , i was diagnosed with crohn a year and a half ago about 5 month i started taking humira i took 160mg first then stopped for some reasons I can’t changes , after that i started taking back but lowering the doses, at the first time when i took 160mg i felt like its a magic everything is perfect, but after i stoped even when i take humira it keept getting worse every couple of weeks what can i do?

[@draedeltoro6542]

Have you changed your diet at all? I was diagnosed at 23 and was battled with it until I was 26. They had me on multiple meds that worked for a short period of time and then completely stopped working. Rectal mesalamine and cutting out gluten, spicy food and caffeine helped me tremendously.

[@user-hi7vo9ct5x]

@@draedeltoro6542 look there is alot of my friends telling me the diet is the main secret buy i can’t cut off all these it’s too hard bro how could you

[@user-hi7vo9ct5x]

@@draedeltoro6542 spicy food ain’t an issue but caffeine and gluten I genuinely can’t, i tried a lot but i simply can’t stop it for a day

[@bossrodtv1117]

Natural method to crohn dicease

[@justins4873]

Sooooo.... ask the doctor..... k.

[@theboarhunter]

Scrap all this crap advise. There is alternative ways that work quicker and are permanant that wont gove serious side effects

[@cespo77]

What are they?

[@RyDawg96]

LOL 5 months later and you haven’t shown the alternatives.

[@theboarhunter]

@RyDawg96 LOL 5 months later and you never asked. LOL 5 months later and you never thought about doing your own research. Nit feeling great si you are back for answers. $375 p/h for you il help you out.

[@theboarhunter]

@cespo77 there are so many. Tell me what results you want with your health il tell you

[@physicianmrbin]

nicwe

[@terranovarubacha5473]

Too vague to be of any use. Basically, do what you'd do for any condition. Nicely presented though