What to expect with Frontotemporal Dementia?

[@roseavery9446]

My husband has ftd. His language began slipping by saying things like Mike is going to the store instead of I am going to the store. Also referring to his mom as betty instead of mom. Eventually he had three words left.peeing, burger and crap. Except for when he said murder after i put a lock on the fridge. He was diagnosed in 2011. He has not spoken for about two and a half years and shows almost no emotion. Therefore it was nice to hear you explain the language part of ftd. Keep them coming please.

[@ThinkYourHealth]

Thank you for sharing his clinical history.Appreciate your feedback.

[@femckay]

I cared for my husband at home until the last 15 days when he was at the hospice house where I could stay with him.he was diagnosed with FTD ppa about 3 years before he passed. He was 81 years old when he went to heaven. I will never regret keeping him home for those 3 years. He never forgot me or his children and was never aggressive or combative. I determined when we got his diagnosis that I would try to make a good memory every day. Mostly I was successful and I have many sweet memories of the times that we spent together in those last three years that I wouldn’t trade for anything. This is a very difficult exhausting disease but most things are when you get to be that age and death is never a friend.I know that I will see him again one day soon. Never forget that love lasts forever.

[@thefletchlife7837]

I feel that your husband was a very lucky man. You're a good person, I hope I have someone like you at my side one day. Thank you for sharing this.

[@patriciaputman5217]

All true, Both parents had dif. Dementias.❤

[@Tina-bp7wt]

❤God bless you ❤️

[@josidayss]

My mother gas been diagnosed with FTD goin on 2 years now. Its the hardest and saddest thing we have gone through. Watching her decljne and fade away in real time is depressing. From being an independent, hard-working, caring, active grandmother and mother to a completely different person has broken everyone in our family. Everything you said in this video has helped me understand more and described my mothers behaviors exactly. 💔

[@ThinkYourHealth]

Thank you for sharing.

[@patriciaputman5217]

My Mom too❤😢❤

[@ProfessorTanyaSpeaks]

This is a very important topic and one that’s close to my heart. My dad suffered for years with dementia before he died and it was incredibly painful watching his deterioration. Thanks for sharing. 🙏🏽

[@ThinkYourHealth]

As a caregiver and daughter it is terrible to see a loved one suffer through this disease.I always tell my patients family to celebrate their loved ones life and cherish those happy & wonderful memories you have had in the past.

[@melindakitto]

Your patients are very lucky to have such a caring provider like you

[@ThinkYourHealth]

Melinda you are too kind.What a beautiful statement.Thank you.

[@ThinkYourHealth]

Are you taking care of someone with frontotemporal dementia?

[@melissacohen3240]

Yes :( it is the hardest thing I've been through in my life. My mom wasn't quite right at age 55....at age 57 I knew she had this.. she wasn't diagnosed until age 59. She is now 61 and this journey has been extremely tough. So thankful for my dad,, siblings,, and the love of my life to help me get through this.. we truly need each other more now than ever. I knew she had this before she was diagnosed. And it took a longggggg time to be diagnosed. It was agony. Watching my mom decline is so hard to watch. She was a wonderful nurse for 30 years to the same patients she has now become :( I love you mom.

[@dawnbryant3730]

Yes. Dad has picks disease aka ftd. He currently speaks but walking is a struggle and his behavior has changed big time.

[@Corinna_Schuett_GER]

Atm I have my husband (58) yet undiagnosed but have done binge research of symptoms online and writing diary since I realized VERY strange behaviour this year like some "Benjamin Button syndrome", lack of orientation, self restraint, strange taste, delusions, sensual hypersensitivity etc. and we talked (he still does, and A LOT). He got this probably all his life but hid it well from me, developed strategies to cope with in a humorous way. I looked into mykotherapy medicinal mushrooms to slow down the process and ease symptoms, with good results. I can really recommend changing diet and daily schedule drastically and use medicinal mushrooms DAILY! 👍👍 We go searching them in our local forest now, for free! Do you have experience with young people getting it as I am suspicious about our 24yo son developing strange behaviour in his adolescence already (genetic factor)? Thank You.

[@dawnlloyd7666]

Yes I am and I'm disabled too with MFD

[@venkatvure2927]

Yes. My better half is having bvFTD.

[@jennybrooks3941]

Dementia is the worst! My mom suffers from it and it's so hard to go through it with someone, not to mention what it must be like to experience it. Thank you for increasing awareness about this disease.

[@jennybrooks3941]

Also like the outtakes:)

[@ThinkYourHealth]

I am thrilled you made it so far.Thanks for your feedback!

[@ThinkYourHealth]

Yes, unfortunately it is such an insidious, chronic, debilitating disease with no curative options.It affects both patients and caregivers alike.

[@Drostvideo]

First time I've heard of this..I'm just grateful to be healthy and active..good to be aware of the symptoms

[@ThinkYourHealth]

Glad it was of value.Continue to be active.

[@Grmstrs4evr]

My husband has recently been diagnosed and has progressed very rapidly, it is hard to watch. His favorite topic is how often he uses the bathroom and what it looks like, it drives me crazy and there is no amount of redirecting to stop these conversations.

[@cindyloppnow1621]

My husband was diagnosed in July, he is 54 years old. I am already over it, only by Gods grace will we persevere.

[@Corinna_Schuett_GER]

@@cindyloppnow1621 1 Corinthians 15!!! 🙏💖

[@oli720-oli]

Very interesting. My mum has the behavioural variant. She is also taking Memantine but I think she has got worse. Her decline has been so rapid from 2020. Very sad to see.

[@patriciaputman5217]

Some of the meds made my Mom worse.

[@apocketfullofhappiness]

Your videos are making me aware of different medical conditions. Thanks for sharing.

[@ThinkYourHealth]

Glad that I could share these different medical conditions.Right now I am sticking to very common ailments.

[@dinacaceres4629]

Excellent information for us, especially if we are working in that field ,no one in my family had it .but we have to be aware, thank you

[@ElizabethSampson]

This is such a sad disease. My mom passed away with Amyloid Angiopathy. Her CT scan showed vanishing spots in her frontal lobe and temporal lobes. She lost all functions. It progressed rapidly from February 2014 to death in June 2016. This explained how she advanced.

[@ThinkYourHealth]

Elizabeth, thank you for sharing your mother's story.Yes, it is a terrible disease where the soul of you very being slowly withers away.

[@ortallevitan1]

This was so informative! thanks for sharing your knowledge about what we can expect with this form of Dementia

[@ThinkYourHealth]

Ortal, thanks for dropping in.I am happy that it was of value to you.

[@dawnlloyd7666]

My husband has this and all you have said is what's happening to Mt husband his cognitive has been affected its almost like he forgotten how to walk and coordinate, his character has changed completely, he is 64 , he getting progressivly worse and its breaking my heart watching a loving, caring supportive gentle man to someone who just does not care about me or a lot sexually has appeared, he has choking fits and food has to be soft, his speech though is affected he has said that doesn't understand when I talk. My husband is disappearing and we no longer get invited anywhere because his behaviour , I'm lost he is under care Dr's, nurses at memory clinic but people need educated in how to help them

[@bikashbhadury9931]

I lost my son to FTD.He was 46 and an established software engineer

[@jackson2009ify]

So sorry 😢

[@TheOmega3Zone]

Very helpful video. Father-in-law has Alzheimer's (advanced stage), and is in a nursing and care home. It's tragic seeing the life of a once active man (or woman) deteriorate in such a short space of time. Not sure of the details of the disease, but I certainly recognised some of the symptoms and progression you highlighted in your video.

[@ThinkYourHealth]

Thank you for sharing a story from your personal history.This is such a tragic disease, especially as it progresses.How sad!

[@TheOmega3Zone]

@@ThinkYourHealth, you're welcome. It is what it is, unfortunately,, and you have to make the best of a bad situation for the patient and their spouse and family.

[@MonzonMedia]

Very informative, I've seen some of my own family go through this and it's not fun to go through but understanding what is happening helps deal with it.

[@ThinkYourHealth]

Unfortunately this is an insidious, chronic, terrible disease which has no cure.I am happy this video did have some value for you.

[@regineheine5707]

What do you do as the caregiver if the demented one is in denial, blames others to be sick ( both caregiver and patient are medical doctors)?

[@RachelSmets]

I"m so interested in this. Thank you so much! I subscribed as well and love to support.

[@ThinkYourHealth]

Awesome! Thank you Rachel.Glad it was of some value for you!

[@sidonabissitt7953]

In 2015 we drove 45 miles unknown to me I had a aneurism bust. I was 78. It was just above my right eye. Now I have another one by old one. Could I get F T D.

[@frostytrope8580]

Thank you for the informative video my mother, from what I just found out was diagnosed with FTD and was diagnosed sadly at a fairly early age. But being able to understand FTD will help me I hope In taking care of my mother as soon as I finish school and so on.

[@ThinkYourHealth]

Glad it was helpful, and all the best as a caregiver for your mother.

[@SixFigureBusinessCoaching]

thank you for putting it out there! this was an important topic that everyone needs to have an idea about.

[@ThinkYourHealth]

Thanks for checking out the video.My pleasure.

[@DelilahMargaret]

Thank you for educating about this disease. My husband was just diagnosed. He started having complex partial seizures at age 63. His behavior started to change along with memory issues. He also had hallucinations and delusions. His neurologist blamed it all on the seizures. I did a lot of research and it wasn't adding up. Finally about 3 years we have a diagnosis. Are seizures common with this? Thank you.

[@ThinkYourHealth]

Seizures can occur with most dementias including FT dementia.The reason for this is atrophy of the brain and abnormal protein build up in certain areas of the brain.As a result of this the cells can become hyper-excitable making them more likely to cause seizures.The reason atrophy causes seizures is because of loss of neurones and connection between neurones.The neurones are not able to "communicate" with each other making seizures more likely.

[@DelilahMargaret]

Thank you for answering my question

[@TrentKennelly]

Really helpful to keep an eye out for this. My parents aren’t there but I’ll put this my back pocket for if they do!

[@ThinkYourHealth]

I am confident you are your parents can continue to maintain your brain health.If you are interested here are 5 proven ways to prevent dementia: kzbin.info/www/bejne/eH3PaZihbdFjZ7c

[@ProfessorTanyaSpeaks]

No to the question of the day. Not taking care of someone, but my dad suffered from it!

[@ThinkYourHealth]

Thank you for sharing your dad's story!

[@SocialConfidenceMastery]

You explained this really well!

[@ThinkYourHealth]

I am glad you think so.Thanks.

[@SherifaNakalema]

I loved this video and I am very interested in this topic. Keep them coming. Great content!

[@ThinkYourHealth]

Thanks Sherifa. Glad you’re enjoying the content.

[@delaineymacphearson6850]

This is one of my worst fears. The idea that people I love would have to watch me fade away. I have a very strong personality and to know I would lose myself gradually is just too much. My Mart would never leave me and it would kill me.

[@Zfaith_fitness_detox]

I love hearing the science of the brain! Always enjoy your videos!

[@ThinkYourHealth]

Glad you like them! Will have more videos brain related in future videos.

[@julianpenny4671]

Most informative thank you for sharing your knowledge 😎🇳🇿

[@ThinkYourHealth]

Glad it was helpful!

[@SciFirstMovieTalk]

Found this video very interesting and informative. It will help a lot of people. Thanks for sharing.

[@ThinkYourHealth]

So nice of you, thanks for your input.

[@SciFirstMovieTalk]

@@ThinkYourHealth You`re very welcome! :)

[@ArturoJohnson]

Great content and really interesting.

[@ThinkYourHealth]

Arturo Johnson Thanks for checking out video.

[@darbyhomann391]

My dad was diagnosed with FTD at 56yrs old. He’s now 58. The neurologist initially said that he had about 3yrs left to her best estimate. How would she have determined his life expectancy? Is that something you’re able to do based on the brain scan?

[@ThinkYourHealth]

Prognostication would depend on a number of factors including the physicians' experience with the disease and other similar entities, your Dad's over function(mobility) and cognition as well as co-morbidities.Generally speaking there are prognostication tools which physicians use however they do have some limitations.Testing per se such as a brain scan will only give information about the anatomy of the disease and to some degree the severity but there would be no correlation with prognostication.Some Hospice organizations use the Karnofsky Performance Status Scale to assess the prognosis in individual patients which I have found useful. FTD has a younger age of onset and appears to progress more rapidly than Alzheimer disease (AD) . Survival from symptom onset is approximately 8 to 10 years and is often shorter in patients with the behavioral variant of FTD than those with primary progressive aphasia.Here are some scientific studies looking at survival in FTD patients: pubmed.ncbi.nlm.nih.gov/12913196/, pubmed.ncbi.nlm.nih.gov/19917988/, pubmed.ncbi.nlm.nih.gov/27037234/

[@CaylynAdamko]

Thanks for sharing! There are multiple types of dementia, and I think it's important to know what you're dealing with.

[@ThinkYourHealth]

Caylyn, you are so right.Unfortunately, it is such a progressive and debilitating disease.

[@maxsterling8203]

I’m having facial seizures and I’ve been suffering a frontal personality without knowing this is from tbi for last 10 years. I tried to commit suicide and in hospital I was finally told my car accident 10 years prior produced a tbi. Can you please direct me to some educational or supportive or therapeutic information, I have been starving my mind of all stimulus unless imperative to my health and I think it’s helping. Good blessings to you

[@ElizabethRitchie]

I am not taking care of someone with this condition but regardless found this video helpful as family around me is aging. And I have never heard of 'tau' either. Thx!

[@ThinkYourHealth]

Glad it was helpful!I'm glad it was of some value.

[@Totustuus822]

Thank you for this video. My mother-in-law was recently diagnosed with FTLD. We're still waiting for the executive function testing that will happen next month. Her behavior had been so difficult before the diagnosis that I had to beg my husband not to cut ties with her. We definitely have a more sympathetic attitude toward everything now, but it's been a difficult journey and I know it's going to get worse.

[@noreenflaherty4309]

My husband has FTD he has many many of symptoms you have mentioned. He was diagnosed in 2013. But most recently he is constantly chewing his shirt collars he gets very wet in his chest area. Would you have any solution for this behaviour.

[@AbedMotasemi]

Thanks for sharing 🙏

[@ThinkYourHealth]

My pleasure, thanks for visiting.

[@hollymoore2907]

My mother has FTD, she has been diagnosed for about 10 months. She can no longer walk and struggles to finish a sentence, but my worry is she is becoming less verbal, can no longer pay attn to the TV. Would this be advanced stage? Thank you so kindly for your informative videos, please keep them coming.

[@ThinkYourHealth]

Appreciate your feedback, thank you!.

[@siyu7052]

Hi Holly, my mum has FTD too and is on the last stages. She was diagnosed in 2018 but we noticed signs of unusual behaviour in 2016. She has stopped speaking for almost two years I believe. The symptoms you’ve mentioned we witnessed around 2018. I am so sorry you are going through this. I pray you and your mum find solace through this difficult time.

[@terryvandyke5975]

My husband was diagnosed with FTD 3 years ago, how long does a patient live in these circumstances?

[@dp27thelight9]

I'd sure like to know as well. My mom's basically failing all adls due to behavior, but her body is in great health.

[@ThinkYourHealth]

Read entire transcript here: drthinkyourhealth.com/what-is-frontotemporal-dementia/

[@ShishirKhadka]

Thanks for sharing helpful video

[@ThinkYourHealth]

So nice of you.My pleasure.Thanks for checking out the video.

[@ProfessorTanyaSpeaks]

My father had those totally INAPPROPRIATE behaviours!!!

[@ThinkYourHealth]

Yes, those are typical frontal lobe symptoms.i always emphasize that's its the disease and not the person.

[@ProfessorTanyaSpeaks]

Think Your Health I realized but the caregivers were not very patient and it was difficult to mange caregivers while living in a different country. There was elder abuse so I had to put him in a nursing home. His last years didn’t reflect the strong, wonderful man he was. Still painful to remember.

[@ThinkYourHealth]

Sorry, to hear that.Thank you for sharing his story.

[@ThinkYourHealth]

🍏 Check latest Wellbeing blog: drthinkyourhealth.com/blog/

[@tarundewan3821]

John, contact me, can tell you a lot about fronto temperol dementia and encephalitis, Tarun

[@ThinkYourHealth]

Hi Tarun, glad to touch bases with you.Email me at [e-mail] then I can send you details of contacting me.

[@andrewhazenberg3398]

It’s M.A.I.D. if I ever get this horrible cruel disease. 💔

[@francoforleo4971]

This is the cruelest disease to witness…

[@ThinkYourHealth]

Yes,indeed.