Why I've been gone + MRI Results | My MS Story

  Рет қаралды 7,493

Sarah Kate

Sarah Kate

Күн бұрын

Пікірлер: 98
@kimidrzazga7896
@kimidrzazga7896 Жыл бұрын
Don’t think that people don’t want to hear that you have no active lesions and that you are doing well. I think it gives those who are newly diagnosed hope that this disease can be controlled and life can be relatively normal!
@sarahkate717
@sarahkate717 Жыл бұрын
Thank you
@harper_anne2089
@harper_anne2089 7 ай бұрын
Agreed! I am so happy she got good news!!!
@mj4208
@mj4208 15 күн бұрын
The Rt. Honourable Dame Helen Winkelman, Chief Justice grew up with her Dad with MS, therefore she has an interest in Disability Law.
@arunca190
@arunca190 Жыл бұрын
Happy you have no legions but even happier you have grown stronger, wiser and braver.
@randolphnitz4427
@randolphnitz4427 Жыл бұрын
You maintain such a great attitude. You are inspirational. May you be rewarded with a lifetime of good news, good health and happiness.
@billierush2995
@billierush2995 11 ай бұрын
Please keep making videos. I enjoy hearing about your journey. There are so many things I deal with that it helps to hear I'm not alone.
@EvenSoItIsWell
@EvenSoItIsWell Жыл бұрын
Whoop! Whoop! Congratulations on the good news. Good to see you again!
@sarahkate717
@sarahkate717 Жыл бұрын
Thank you Vickie!
@jealous_wombats
@jealous_wombats Жыл бұрын
Wow your story is so similar to mine... In 2019 I had bells palsy and was prescribed 75 mg of prednisone and it resolved within two weeks. In 2023 I started having trouble with walking after 500 meters and intermittent speech issues. I went to my GP and he sent me straight to the emergency room where I had an MRI and MS was confirmed.. I had 5 days of steroids (1000 mg) in the hospital. I started on Tysabri for about 5 months and was quickly taken off when it was found I'm JC virus positive and am now on Kesimpta. My 6 month MRI came back with no new lesions. I'm on fampridine for symptom management and it seems to help with the walking and some motor issues (which I think speech is one). Physio and speech therapy has also helped. Its so good to see someone doing well with MS and so open about going through the same stuff!
@mishieZed1
@mishieZed1 11 ай бұрын
when you say trouble walking what does that mean? like leg pain or numbness?
@jealous_wombats
@jealous_wombats 11 ай бұрын
@@mishieZed1 spasticity and weakness
@jealous_wombats
@jealous_wombats 10 ай бұрын
@@mishieZed1 leg weakness and spasticity
@shaylanea1156
@shaylanea1156 6 ай бұрын
I experienced the same things. I didn’t speak to anyone because of how my speech slurred. I walk with a cane and can clearly hear out of my right ear. This is so scary I just made it to the age of 30. I’m praying for us MS warriors.
@jealous_wombats
@jealous_wombats 6 ай бұрын
@@mishieZed1 Spasticity and weakness mostly
@rachraves4734
@rachraves4734 Жыл бұрын
Hearing your good news gives me HOPE
@viktorija214
@viktorija214 Жыл бұрын
I'm glad your MS is under control.I have MS too it's nice to know I'm not the only one with brain related symptoms.And happy birthday to your boyfriend Montgomery.
@EllieOop
@EllieOop 9 ай бұрын
Thank you for this. I got diagnosed in March of this year and I’m currently taking a break from school. I feel that embarrassment you talked about right now. Emotionally I’m so ready to go out there and grow - be who I want to be in every way, but physically that isn’t realistic for me. It’s hard. Definitely grieving. But your videos make me feel so much less alone. Really, thank you from the bottom of my heart.
@marthascanlon9256
@marthascanlon9256 Жыл бұрын
Hi Sarah! I have booked flights for Joe and I to come see you during your special time. I can't wait! Unfortunately the visit will be short, but we'll plan something for later.🥰😍🤩
@SandraTuck-k9y
@SandraTuck-k9y 4 ай бұрын
I just got diagnosed with MS. I am 23 years old and my entire right side of my body and my entire face is still numb. It is very inspiring to see that your story has a good outcome.
@lemonpeelangelfish
@lemonpeelangelfish Жыл бұрын
Hey Kate, so good to see you! So very pleased your MRI was stable. I can so relate to what you say about shame - such an odd emotion to feel when you are faced with the challenges of MS. I think it’s because a lot of symptoms and struggles are invisible to others and MS is a chronic condition. It feels similar to how I felt when I had to have a break due to mental health. You rationalise it as inappropriate but somehow it’s just there. Incidentally Depression is twice as common in pwMS. I would like you to feel incredibly proud of yourself and how you managed the last year it was bloody tough!! Big hug, Jane x
@RicoS1105
@RicoS1105 Жыл бұрын
I'm so happy you are doing fine! I started following you after my son's diagnosis last year because I was looking for more information, and your video resonated with me because you both are so young. He was 24, in college, with a very aggressive form of MS. I wanted my son to join a support group, but after watching your video about the support group you visited, I stopped asking. That was an eye-opener because we want to help, but we do not completely understand the journey a person with MS goes through. All MS warriors have a story to tell, and I'm glad you are doing it!
@sarahkate717
@sarahkate717 Жыл бұрын
Hearing how a video I made opened your mindset it very meaningful to me, thank you for sharing Rico.
@shaylanea1156
@shaylanea1156 6 ай бұрын
Yes I’m happy to listen to your videos. I relate so much to your videos. We are MS Warriors 🧡
@thendoftheriver_
@thendoftheriver_ Жыл бұрын
I'm so glad to hear this Sarah. Your video is very encouraging. Because when I see you getting better, I believe I will also get better. Wishing you well!
@InspireAndGrow
@InspireAndGrow 2 ай бұрын
i love that you're fine and you update that you're fine. please keep updating. its good to know that someone with your type of symptoms can do so well after a few years!!
@TheReasonableSkeptic-ii4te
@TheReasonableSkeptic-ii4te Жыл бұрын
Your video was worth the wait, a fun surprise tonight. Glad about the MRI results. I'm also glad to enjoy 10 minutes of your sense of humor, your intelligent introspection, and your off beat video style. I hope you post a few more videos when you are ready.
@sarahkate717
@sarahkate717 Жыл бұрын
What an incredibly kind comment, thank you
@muckfs2733
@muckfs2733 4 ай бұрын
Please keep us updated with your journey,i'm almost at my decade mark but i still love learning about other people's MS journeys.
@rachelstafford602
@rachelstafford602 Жыл бұрын
Thank you for making this video. I watched your first one yesterday as I am going through testing for health issues and wanted to hear from someone with MS. When I saw the videos stopped a year ago with no good bye or I'm taking a break I worried. Glad to hear you are doing well. Prayers for continued good scans and good health.😊
@livingwithms
@livingwithms Жыл бұрын
Hey! Great to hear from you and hope you're doing well. We're all here with you. 💛
@STree42
@STree42 8 ай бұрын
Love the attitude and the videos. Hope to see another one soon!
@JE-sw6cx
@JE-sw6cx 8 ай бұрын
God is amazing, I’m so happy for you God will reward you for give a hope to so many ppl 🙂 you are so strong
@harper_anne2089
@harper_anne2089 7 ай бұрын
Amen. God is Great. I thank Him every day for every thing. Even the bad and painful days. They keep me humble. I have this thing about getting cocky when I am feeling great, and then I am reminded that I am not healed, and I become humble again, lol.
@lindabidwell7647
@lindabidwell7647 4 ай бұрын
Thanks my son was diagnosed a few months ago. Not knowing what to expect is heartbreaking. He is 51 President of our family business. Lot of pressure.
@lindabidwell7647
@lindabidwell7647 3 ай бұрын
Thanks for responding. He is getting infusions now.
@aqdasshehzad5439
@aqdasshehzad5439 11 ай бұрын
Good to see you back and healthy...stay blessed
@qw-nz5fj
@qw-nz5fj 4 ай бұрын
Just gone through all of your MS videos and wow. I am so happy for you and agree with the other commenters, you could just upload 2 min video updates from time to time so we can celebrate it together with you here 🎉🎉🎉🎉. Really happy for you ❤!
@NurwadariahBinteJaffar
@NurwadariahBinteJaffar Ай бұрын
im happy you are feeling better.
@aaronmartinez4711
@aaronmartinez4711 7 ай бұрын
Much love and light 🤙🏼
@michycruz1145
@michycruz1145 7 ай бұрын
We missed you ❤️❤️❤️❤️ glad to see your doing better
@kopitegs
@kopitegs 11 ай бұрын
Your extremely likeable and very cute. I dont want you to be ill and i think most wouldn't..I love your hair being long too.
@fatalradius
@fatalradius Жыл бұрын
Hey Sarah! Keep up the great work. Love your attitude in all of this. I've had MS for about 18 years and am blessed to still have an active lifestyle as a 38 year old. You will have your ups and downs just like anyone who has MS. Keep taking your meds, try to be as stress free as possible, make sure to workout often and keep your body as strong as you can. Eat well, sleep well. Most importantly, laugh and keep close friends and family around you.
@SidneySmith678
@SidneySmith678 8 ай бұрын
Yay!! Great news!! Thanks for sharing your positive news!😀
@garybaldwin1061
@garybaldwin1061 7 ай бұрын
Nice to see you again...post soon.
@__Wanderer
@__Wanderer 10 ай бұрын
So glad you're doing well :) You deserve some good news and fantastic that there are no new lesions! I'm up for my yearly MRI over 2-3 months hoping there is no / little activity also. 🤞 This week was my 2 year "MS diagnosis anniversary". It has been a strange two years and I can definitely relate to the sadness and depressive thoughts - it was a big shock but I think I have now settled into my acceptance of MS. It still lingers in the back of my mind but we do what we can to fight it :) Medication, healthy food and enjoying life will all help fighting this for as long as possible hopefully - all the best Sarah 😃
@TheReasonableSkeptic-ii4te
@TheReasonableSkeptic-ii4te Жыл бұрын
Glad to hear from you again.
@lesiapersimmon7547
@lesiapersimmon7547 Жыл бұрын
You have the best hair💖
@justathought274
@justathought274 10 ай бұрын
Thank you for making these videos. You are likable and great on camera. If and when you can, it would be nice to hear more from you.
@katykennashow
@katykennashow 3 ай бұрын
Will you continue to keep up updated throughout the 6 months MRIs? I have MS and I watch your happy result videos every time after I get my results, they make me feel better ❤
@fragariasec
@fragariasec Жыл бұрын
You look gorgeous! I am gonna to get Kesimpta and would like to come to the situation with nothing new in my MRI 🎉😊. Also can you tell about your Lasic surgery? How was it? Is there something special to consider while having MS?
@Alicia_Grows
@Alicia_Grows 4 ай бұрын
I'm so happy that you are in a good place! No change is good change. I'm very curious about how dentistry is going! I'm a dental Hygienist who was planning on going to dental school. Having issues with my body though... (which is how I found you haha).
@patriciammoss7906
@patriciammoss7906 Жыл бұрын
Thank you Sarah for updating! Just know that we are always happy to see and hear good results for you and happy to be patient while you wrestle with all those tough feelings. I'm incredibly thankful to have found your site.
@sarahkate717
@sarahkate717 Жыл бұрын
Thank you for this comment ❤
@zakdowneydowney3728
@zakdowneydowney3728 Жыл бұрын
Happy to see more!
@ericasand2973
@ericasand2973 Жыл бұрын
You just keep getting more beautiful!!! 😍
@AngelicaHernandez-uc3sz
@AngelicaHernandez-uc3sz 6 ай бұрын
Really happy for you, just got diagnosed and i am so scared of the future, thanks to your video, it gives me hope. Wondering if anyone in ontario, Canada?
@NitroVipers3
@NitroVipers3 5 ай бұрын
Hope you are doing well. Weird things have been happening to me and worry about MS. You make me feel better and also worse haha. Im to scared to go get it figured out.
@Kayleegeorge92
@Kayleegeorge92 3 ай бұрын
I was diagnosed this year and I personally just love to see someone whos well and thriving. Love your videos, really informative and I can relate. I hope you are still well 😃
@mj4208
@mj4208 15 күн бұрын
Kaylee how did you know you had a problem?
@Kayleegeorge92
@Kayleegeorge92 12 күн бұрын
@mj4208 I was feeling off and dizzy for a few days. I tried to stick to my normal routine and went for a run with my dog when my right leg gave out. Many doctors visits pushing for answers later, I had an MRI (x2) and they concluded I had agressive RRMS.
@mj4208
@mj4208 12 күн бұрын
@@Kayleegeorge92 How did you adjust to the knowledge you had RRMS? Was getting a diagnosis that made sense a relief?
@Kayleegeorge92
@Kayleegeorge92 5 күн бұрын
@mj4208 To be quite frank, there was some relief but shortly after that I was horrified. I am still in my first year post diagnosis. I have had many bumps along the way so far, but my DMT has kicked in and I am awaiting my next scan to see if it is working. Life is a strange beast sometimes, just have to continue on in my experience and see how I go.
@andresgarcia-he5hj
@andresgarcia-he5hj Жыл бұрын
I will like to send you a hug. You are so sweet and positive. Me and my family will pray for you so you can have the strength to go on. I have acid reflex my self and I understand how you feel sometimes. Don’t be sorry for expressing grief, that is part of life and being sick but we are still alive and while we are alive lets make the best when we feel great and grief through the down times. You are strong and special and I am glad I found your channel. Have a great day today and tomorrow too.
@bryanpuentes4556
@bryanpuentes4556 Жыл бұрын
First off you are an absolute treasure to not just the MS community but everyone around you. I want to be as positive as you are! I wanted to ask, you on any diet that has helped you after your diagnosis or do you eat normally and use the DMTs?
@sarahkate717
@sarahkate717 Жыл бұрын
Hi Bryan! Thank you so much :) I am accidentally on a diet I guess? haha, I have a intermittent fasting eating pattern becuase of my work, but that has been known to help with inflamation. Low inflammation is the summary of it! I don't have milk becuase I feel awful when I do (my arms go more numb temporarily) and I try to avoid gluten and red meats ... like if I order it or if someonewas nice and made me dinner I will eat it no problem, but they are not on my gorcery list! Hope that helps.
@colleensmith3374
@colleensmith3374 Жыл бұрын
Yay, Sarah Kate! So happy to hear your good/great news. You look beautiful! We both have such great hair:) I am also doing good. I watched you when I was 1st was diagnosed and will now be 2 years this coming March. On Kesimpta and so grateful. I have 3 sons & husband so a minute older..lol! I was thankful you were there. Best to you & love from Colo
@Hrmn8tor
@Hrmn8tor 11 күн бұрын
Taking about the MRI gives me anxiety. I am so claustrophobic and my first one was 3 hours too
@imanbayaldi9390
@imanbayaldi9390 Жыл бұрын
Very happy for that news. Thanks for the video and the funny stuff you do on the video. You would creat an amazing travel vlogs. The type of humor you have it's hilarious! Of course you look stunning as always!
@TheReasonableSkeptic-ii4te
@TheReasonableSkeptic-ii4te 7 ай бұрын
KZbin just flashed your last video onto my screen, again. I long ago watched all of your earlier missives and liked your humor and honesty. But I think MS is not the finale of your story. You're more complex. Hope these days you are doing all the things you want to do. (I found your channel a few years ago, trying to understand what a friend with MS was managing. I've commented briefly before.)
@ddrew3303
@ddrew3303 Жыл бұрын
you are such a radiant and spectacular person who brings so much joy to the world. you should never feel any type of negativity towards getting good news. everyones journey is different and i know so many people appreciate your vulnerability and sharing your story for others to see and relate to. as always wishing you peace, love, and happiness forever. ily
@sarahkate717
@sarahkate717 Жыл бұрын
I love you ❤
@daisygomez8771
@daisygomez8771 6 ай бұрын
hope to see you again soon!
@Lurin19
@Lurin19 Жыл бұрын
You are so lovely bless you 💐💐
@k14pc
@k14pc 7 ай бұрын
good luck sarah
@scottyarms78
@scottyarms78 Жыл бұрын
Missed your videos!
@panagiotischristo
@panagiotischristo 5 ай бұрын
Stumble on your video...and 1) I thought I was the only one who sleeps in MRI!?...but the technicians when finding out its me, warn me not to sleep cause i twitch and I mess things up.🤣🙄 2)I like your gap, plus you seem to have good oral hygiene, which seriously dont understand why is it so hard for others. 3) good video. Wish you well, good fortune....go nutts, enjoy life, have fun...oh plus some advice -- dont be afraid to laugh and voice your opinions.
@Pixie_Salt31
@Pixie_Salt31 Жыл бұрын
Welcome back. Miss you.
@soulcatcherone
@soulcatcherone Жыл бұрын
your gap smile is very sweet
@SAABTURBO1986
@SAABTURBO1986 Жыл бұрын
Glad to see you’re doing well! Do the doctors still test your babinski reflex at your neurologist exams? (Where they take something pointy and run it up your feet? 😅😅😅
@rosemary81812
@rosemary81812 6 ай бұрын
Ur hair looks phenomenal!!!!!!!!!!!!!!!!
@KaitsterSaysHello
@KaitsterSaysHello Жыл бұрын
i also love your teeth i am happy to hear you are keeping the gap :)
@sarahkate717
@sarahkate717 Жыл бұрын
This made me smile.
@KenWang2
@KenWang2 9 ай бұрын
What was your nutrition like before? I eat a mostly Animal Based Diet low sugar low carb and i have not gotten sick from anything ever except the usual rare cold or flu. The only time i was getting weird brain headaches was when i tried that wacky fruitarian diet. I felt like the sugars were attacking my brain.
@mj4208
@mj4208 15 күн бұрын
Not an MS sufferer, but I have small nerve fibre neuropathy.
@Bee-xz4sh
@Bee-xz4sh 4 ай бұрын
Can you please make an update. Let us know your symptoms and what youve been feeling. Are your hands and legs still numb. Also, did you take anything for anxiety like antidepressants? Please give us an update
@Valandovchanec
@Valandovchanec 6 ай бұрын
Did you check your B12 vitamin level? Deficiency of B12 can cause a lot of neurogical issues. You should check MMA and Homocysteine level for B12 deficiency.
@WorldInspiring
@WorldInspiring 7 ай бұрын
Feel your feelings. We're here to watch from afar, this isnt about us. Its about you. Be you. Its okay to feel good. Its okay to feel down. Ups and downs. This is beautiful. All of it. No need to feel guilty about the ups if we might not feel great! Be you.
@Eric-jy8ec
@Eric-jy8ec 8 ай бұрын
The gap between you teeth is not cute, it is super cute 😸 It gives you character, not that you need one 😸
@jazziez6467
@jazziez6467 10 ай бұрын
i cant hear the video
@maxzytaruk8558
@maxzytaruk8558 11 ай бұрын
Haha the pinching the guy running
@gerardine9675
@gerardine9675 Жыл бұрын
Cabana Chronicles YT channel is about a UK woman who has MS and says her symptoms have greatly reduced without medication despite MRI showing new lesions on her brain, because she changed her diet to carnivore. Her neurologist can't understand why she feels fine when according to scans she should be much worse and considers her LDL levels to be very bad, but she is fine and healthy.LDL cholesterol is actually good for human health and our brains need lots of it. MS is an autoimmune condition which people on a good nutritious diet, rich in animal protein and fat, apparently don't get.
@redxpro7768
@redxpro7768 Жыл бұрын
MS sucks!
@sarahkate717
@sarahkate717 Жыл бұрын
hell yeah it does!
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