Why ME/CFS is Ignored and Neglected by the Medical System - Dr. Katie Brown, MD

[@Rutashealingroute]

What i learned from this interview: prioritize rest, reduce stress, and realize your nervous system became dysregulated for a reason , so find what those reasons were and make necessary changes ..best interview ive seen on the subject and good to know there is a doctor out there who can help others who has been through the trenches herself!

[@tanyawieczorek6603]

Mine was disregulated due to 2 bouts of covid, but no idea how to heal it myself

[@kristinae.7084]

That invisible "line" between the psychological and the physical is the Nervous System.

[@stevebarlow1959]

This is just fantastic. And a real game-changer for the many lucky enough to find their way to Dr Brown who knows CFS painfully inside and out (I wouldn't wish it on anyone but it makes a HUGE difference when a medical professional knows the conditon personally) Love the description re: the ANS does not distinguish between physical or psychological stress/trauma triggers, it simply becomes profoundly dysregulated regardless. Thank you both for this fantastic interview (ps: I've just completed ANS Rewire and it has made a BIG difference to my journey)

[@RaelanAgle]

So happy to hear that you found ANS Rewire helpful, Steve ❤️

[@AnneAlready]

Great comment, and great testimony! Best wishes for continued healing.

[@taragunn9400]

What aspects of AND Rewire helped you Steve?

[@stevebarlow1959]

@@taragunn9400, it would be hard to single any one component out. Reframing thoughts, silencing the chatter and anxiety/stress 'voices', encouraging a different relationship with symptoms, reducing catastrophising etc. It is so cram packed with useful stuff and while a lot of it I was already implementing into a daily framework, the reminders and reinforcement from somewhat who can really walk the walk was powerful.

[@friendswithfairies3278]

Dr. Katie is more than a doctor. She’s a beautiful Earth Angel and pure soul. What a wonderful blessing!

[@dreamcreate116]

Dr Browns experience essential to truly advance with this work. The next step is respecting bodies who know what they need at each stage. Learning to communicate with them directly as my doctor does, a naturopath/acupuncturist/homeopath. She has saved my life and presently heavy metals being removed and we hope for a full recovery. Though there may be yet another issue to deal with under this. I have healed from a milder level of this illness before, so well experienced. New healing ways coming forward ❤

[@EmergingForward]

I love the reminder to go slow and steady, baby steps, to recover. So great to have medical professionals who understand this condition and from personal experience, very hopeful!

[@jayverasummer]

Thank you. I’m loving the doctor interviews 🙏

[@y2ksurvivor]

This gives me so much hope.

[@lirdling]

Dr Brown has confirmed so many of the conclusions I've come to myself about the fatigue element of my Long Covid. It's always reassuring to hear a medical professional who has come to the same conclusions as myself. She explains it all so well, too, especially in addressing that confusion I've seen so many have in believing that doing any psychology work to recover implies that the condition is entirely psychological. Definitely a video I will be sharing when it becomes available for general viewing on your channel.

[@RaelanAgle]

So good to know that you find the interview helpful, Lirdling! ❤️

[@RaelanAgle]

Thanks so much for your kind support, Lirdling! ❤️❤️❤️

[@timm.8729]

This is a great interview, what a blessing there are doctors like you! ❤

[@misscinnamon5690]

Really great interview, I hope you will have her back in 6 months or a year's time when her knowledge is even greater.

[@kamusnainen]

This is a good idea

[@nolamayer4101]

Really enjoyed this interview. The link I learned from listening to an American Dr talking about long Covid and nicotine wasn’t to do with the stimuli the nicotine can induce but more the link from what caused the Covid virus and using nicotine to suppress this. It isn’t something that is widely known about , at least here in Oz ,but from I learnt studies have been done in England on the success of this treatment . Wishing you all the best Katie and thanks Raelan for addressing my question, much appreciated 🥰

[@kimcoons3322]

I live in KY and am definitely emailing Dr. Brown! This is amazing!

[@RaelanAgle]

❤️ ❤️ ❤️

[@Skyrunner2]

Wonderful interview. So glad to hear the medical field is slowly waking up. And kudos to Dr. Brown for her arduous work and commitment to help others. Thank you for answering my question both Dr. Brown and Raelan. ❤

[@RaelanAgle]

You're most welcome, Maitte! ❤️❤️❤️

[@heidikonigs4421]

Dear Realan, thank you very much for your great work! "Unfortunately" I only came across your site after three years of Long Covid. Funnily enough, I tried nicotine patches and your name was mentioned in the group there. I read your book and came across your site at the beginning of January 2024 and was finally able to start my recovery. I'm from Germany and speak English. I have a few friends and relatives who would benefit greatly from your and other English language sites. Unfortunately, the language barrier is too high for them and healing through mind-body-work has not yet arrived in Germany.

[@germanside7890]

Hey Heidi, es gibt die Möglichkeit auf KZbin einen deutschen Untertitel für die Videos zu verwenden. So haben auch die Menschen die nicht so gut English können die Videos zu verstehen. German LG

[@Leonschulze06]

Sonst ist das Gupta Programm auch empfehlenswert. Ist auch auf deutsch

[@emanuelgy729]

Hi, haben die Nicotine patches geholfen ??? Grüße 😊

[@MarielaAures]

Best interview in my opinion that you should see first at the very beginning. All of these different recovery stories are extremely helpful. But everyone seems to recover by a different approach. That can be quite overwhelming at the beginning. Dr. Brown perfectly summarizes why it is like that and where the commonality lies. In my opinion, every new mecfs patient should listen to this interview at the beginning so that they can then sort all other interviews into this theory. thank you thank you thank you!

[@RaelanAgle]

Much appreciated, Mariela! 🧡 🧡

[@user-nb1kh4ke7z]

Most interviews involve some component of not working. I would find it very helpful if we could find out how people managed that financially.

[@stacymeyers8821]

This was very helpful. Thank you so much Dr. Katie! And Raelan! I'm still still on my recovery journey. Keeping the hope!!

[@RaelanAgle]

Glad to hear it was helpful, Stacy!

[@elizabethbarker5364]

One of the best interviews ❤️🙏🏼

[@danielamarinkovic2720]

I subscribed to Raelan`s chanell a few months ago and yesterday I decided to become a member because I want to support amazing work that you Raelan are doing and also, of course, to learn as much as I can, and figure out a way to help myself. For the first time, these explanations of what I`m going through regarding my illness, make sense. I`m so thankfull to God that people like you exist because I was relying on conventional medicine for 3 years and it led nowere. I live in Serbia and in my country it`s even more difficult to convince medical system (and also other people around you) that you really are ill. This was, all in all, a great interview! Dr. Brown is so nice and humble but she is also very smart and I think she is connecting the dots in the right way. Thank you both for your amazing work and commitment! Keep going 😊

[@timruof]

Absolutely nailed the TMS / CFS question.

[@lianpeet3502]

Great interview! Dr Brown answered those questions so well and seemed lovely. What a fantastic service to be able to offer to visit!

[@khatijakay4107]

Her work sounds amazing and she seems like a lovely person ❤

[@PeaceIsJesusChrist]

Most chronically ill patients have very little funds, so it’s so awesome to continually hear about brain retraining being the common denominator to healing since it’s affordable-especially “Curable,” which I haven’t tried, but it has a lot of good science behind it. After researching, I plan to start with Ben Ahren’s Re-Origin. It looks to get straight to the point and be a simplified version, and that’s what I need. 😆 Wishing everyone the best with recovery. 🙏🏻 Thank you for all you do, Raelan!! ❤❤

[@katydonna6015]

I have made great progress with brain retraining, purely by running this sentence through my head multiple times per day and doing the meditation brain retraining for cfs here on YT, where I learnt the statement: I am safe, my body is fine, I trust the process. As well as responding well (not fearing or thought spiraling) to my symptoms presenting. My vision is clear! My ability is much better, I see my recovery in the near distance.

[@PeaceIsJesusChrist]

@@katydonna6015 That is amazing! I am so glad you are getting better, and thank you so very much for sharing that! 🩷🩷

[@jog5289]

@@katydonna6015 That's really great to hear. Well done to you! Raelan mentioned once about putting little post it notes around the house saying "I am Safe, My Body is Fine" but I've been saying it instead, when I have a negative thought about my symptoms, and it definitely seems to be helping me to re-train my brain. I will try to remember the last part you say as well, "I Trust the Process". Wishing you a full recovery! :)

[@healingjourney722]

If you google living proof useful resources - you will find a link for curable 6 weeks free and then 50% off subscription. Google for Loz Evans book it’s a free pdf that teaches brain retraining. Jan Rothneys book breaking free is very affordable. If you search for dnrs rounds on KZbin you will see some examples. Hope that helps.

[@azigaziroth]

I've been doing Re-Origin for 6 months and it's a great choice, I can't recommend it enough! And the community there is wonderful.

[@birgitlilliehook5139]

Thank you! So inspiring❤️

[@PeaceIsJesusChrist]

21:45 From my understanding about the nic patches, for Covid, they don’t mask symptoms, because you don’t use them for very long. You only use them for 1-2 weeks, and in that time, they neutralize the spike proteins and are no longer needed. ❤

[@cfsdocbrown]

Thank you for pointing that out. I will do further research!

[@PeaceIsJesusChrist]

@@cfsdocbrown You’re so welcome!! 🩷🩷

[@dickschwanzstein1789]

There is actual medication that neutralizes the spike protein. A thing that starts with I V E R and ends with M E C and T I N. Why wouldn’t you start with that?

[@callum5752]

One thing a lot of these stories have in common is that they learn to stop crashing or getting PEM as much. Perhaps just avoiding PEM for a long time is what gives us our life back. I’m going to try and test this myself by goijg one year straight without any PEM and see if it cures me

[@cfsdocbrown]

Let me know how it goes!

[@PeaceIsJesusChrist]

I’m trying to recall what PEM stands for?

[@cfsdocbrown]

@@PeaceIsJesusChrist PEM = post exertional malaise. The worsening of symptoms after physical, emotional, or cognitive exertion.

[@lkececi7513]

A year will pass quickly, it's doing no more than your own limits and stopping before , then it's a waiting game I think

[@PeaceIsJesusChrist]

@@cfsdocbrown Thank you!! ❤️

[@jog5289]

Another great interview! Thank you, Raelan and Dr Katie! It's lovely to know CFS patients in the U.S. will be able to access Dr's services. I'm in the North Island of NZ & my Functional and Integrative MD is in the South Island of NZ, and sometimes she's requested I go to see my local GP to have a physical examination, seeing as she can't do it herself, and then the findings can be sent to her. (Just thought I'd mention that.) All the best and congrats on your recovery, Dr Katie. 💛🧡💜

[@RaelanAgle]

You've got such great support! 💪 ❤️ ❤️

[@taragunn9400]

I’m in NZ too- can you share your Drs name?

[@jog5289]

@@taragunn9400 Hi. Is there some way I can message you privately? I would prefer to give a bit more information as the above comment might sound like I'm doing well with this particular Dr, but there's a lot more to it. (I hope you can understand.) Eg. I started seeing her 4.5 years ago and I've been in worse health the last 2 years.. basically bed bound.. and I'm currently on 21 different supplements and meds that are expensive. The clinic fees are $550 per hour etc etc. Let me know how we can connect. All the best.

[@jog5289]

@@taragunn9400 Hi. I did reply here the day you posted, but my message is no longer showing. Did you see my original message ok?

[@taragunn9400]

@@jog5289 oh no I didn't get a notification or anything. Perhaps it's not allowed. :(

[@BeSaved_Broken2Bold]

So glad I found your channel. Your content is very helpful! I'd love to know how you got your first name? Raelan? It's beautiful! Thanks for all you share. Can't wait to watch more of your videos.

[@lkececi7513]

Dear ralean, if you could ask at some point this question, in the old days it used yo be nervous breakdown- nervous exhaustion - nervous collapse, and the Dr. Said stay with relative in countryside, rest, read for 6mths, see bette Davis film Now voyageur, is it really about a nervous breakdown but in a society where its difficult to get proper rest and help

[@Truerealism747]

Yes what Claire weeks describes 1962 and suffered by many perfectionist I have found I have asperger's ADHD heds fybromyalgia cfs decades but hope it is this

[@taragunn9400]

I have often wondered this. How many of us can say we knew things weren’t quite right - but kept pushing past our bodies warning signals to stop and rest.

[@e.williams13]

CFS is an autonomic nervous system dysregulation...the fight or flight off. CFS is when you are stuck in the freeze state .

[@Truerealism747]

​@@e.williams13yes and linked to autism ADHD subconscious brain is different in us

[@e.williams13]

@@Truerealism747 I've never heard that

[@theantiqueactionfigure]

Has anyone done research on why folks who've successfully gone through recovery giggle so much, Lol? Seriously the cheeriness gives me hope!

[@callum5752]

I’m guessing the brain protects you from all the bad times you went through. You start to forget just how bad it was at the time. Plus it probably feels good to be healthy again after so long.

[@cfsdocbrown]

I am so thankful just to be alive and well! I remember when I thought my life was going to be confined to a couch or a bed. Now I am grateful for my ability to do things. The joy of recovery is unlike anything else.

[@regina6838]

😂❤

[@jog5289]

@theantiqueactionfigure I hope I'm going to recover and find out for myself one day!

[@baileystruss7319]

What about all the metabolic and other problems that have been identified now that are not the simplistic nervous system umbrella ? CCI, CSF hypertension, genetics, EDS, spike protein with LC, dormant herpes, hormone and Indocrine problems. There are so many that don't fall under the simplistic nervous system explanation.

[@cfsdocbrown]

Great, great question. My explanation was simplistic simply due to time constraints and format. There is certainly a whole host of conditions which may predispose to CFS, mimic CFS or prevent healing. For example, I consider CCI a mimic because it is a structural rather than a functional ANS dysfunction. EDS seems to predispose to CFS and may have its origins in genetic hypomethilation which may account for part of that link. Many of the other things you mention may be downstream effects of the ANS’s effect on the endocrine and immune systems or it may be something more complicated.

[@lkececi7513]

Another thing I have to do now is look up all of this stuff, never heard of it

[@Truerealism747]

Yes and the cause of alot autism ADHD.i now no why I have fybromyalgia CFS autism heds adhd😊

[@Truerealism747]

​@@cfsdocbrownyes eds is linked to autism myself included this is surely the and with autism then thyroid under methalation as a baby I slept 23 hrs a day ling before CFS fybromyalgia diagnosis.and heds

[@Truerealism747]

​@@lkececi7513if you have heds CCI comes with it

[@swedieman1]

Nicotine is not meant to be used for it's stimulant effect when used for LC or prevention for corona type viruses. You need far less nicotine than what you need to feel the psychological/nervous system response to get the protective effects. Why this works is because of the spike protein bind to the nicotine receptor on your cells, but nicotine have a much higher affinity binding to the receptor which basically "pushes the spike protein away" or not making it able to bind to the receptor in the first place.

[@cfsdocbrown]

Thank you. I obviously still have so much to learn!

[@LoobyLoo71]

Hi Raelan I’m ready to do a brain training program and I’ve seen so so many come up on your channel I don’t know where to start. What one would you say has been the most successful over the time you’ve done the interviews? I need to start somewhere.

[@HillyMilton]

If you google CFS program navigator, there is a lady called Lindsey Vine that has made a guide you can buy. It’s a small fee but let’s you compare all the top courses. If I wanted to start a course and wasn’t sure which one, that would be where I would start.

[@RaelanAgle]

Great advice, Milly! ❤️

[@annettekerr7266]

Excellent

[@clarissericardo2313]

So what was the main factor in Drs Katie’s recovery? Brain retraining?

[@cfsdocbrown]

A host of things. ANS Rewire was helpful because it taught proper pacing and helpful lifestyle changes. I don’t consider the actual brain training portion to have played a big role in my recovery.

[@emilybh6255]

I guess it was mind over matter which can help a lot.

[@cfsdocbrown]

@@emilybh6255 Actually, I disagree. To me, mind over matter is the "push through" and "just ignore it" mentality that got me sick in the first place. The recovery mindset was more matter over mind. Give my body what it was asking for rather than trying to make it do what I wanted it to do.

[@beam3819]

Have spesific personalities more chance to get burned out/ get ME, fatigue, brain fog and exaustion? I think of neuro divergent or sensitive people for instance? TX, Norway

[@cfsdocbrown]

I think so. I plan to release a video in the next couple of days explaining why.

[@Truerealism747]

Yes rccx gene theory.i have autism heds fybromyalgia cfs brain is different

[@alexandernordic8551]

Amazing interview! But the nicotine patch theory is different though. They assume that a certain active ingredient in nicotine is supposed to kill (covid)viruses. The idea behind this is that resistant virus residues remain in the body after infection and cause symptoms. Greetings from Germany!

[@Unitedstatesian]

It is unfortunate that even doctors do not seem to get the fact that nicotine is a stimulant of the parasympathetic system. When the ANS is not working properly this is fantastic. A nicotine patch helps the vagus nerve heal, it reduces neuroinflammation, improves NAD+ and autophagy. It is not a miracle cure, but we have been able to help a lot of people get better, improve their quality of life and for some lucky people they credit nicotine patches as being the last piece of their healing puzzle. It also helps calm the brain and increase neuroplasticity. These are beneficial and make "brain training" more powerful. In our social media we always suggest that people go slowly and to continue pacing... even if they feel great!

[@cfsdocbrown]

Thanks for the information. Is there any scientific research you can point me to where I can learn more?

[@sayler47]

It’s actually used to kick the spike proteins from the nicotinic acetylcholine receptors. Not for the purpose of a stimulant. Used more for a detoxification of spike proteins..

[@sayler47]

www.ncbi.nlm.nih.gov/pmc/articles/PMC7889469/#:~:text=recently%20suggested%20that%20the%20SARS,similar%20to%20known%20nAChR%20antagonists.

[@sayler47]

KZbin is deleting my links despite the fact that they are from Pubmed. Censorship is fun. www.ncbi.nlm.nih.gov/pmc/articles/PMC7889469/#:~:text=recently%20suggested%20that%20the%20SARS,similar%20to%20known%20nAChR%20antagonists.

[@sayler47]

I tried to post links to the published papers but KZbin deleted them.😕

[@Gkuljian]

Does this work for tremors (likely Parkinson's)? I recovered from 25 years of chronic fatigue only to start shaking.

[@cfsdocbrown]

Some tremors are psychogenic. Parkinson's isn't but I hear it is strongly susceptible to the placebo effect. Worth a shot?

[@PeaceIsJesusChrist]

@Gk…, Please look into high dose thiamine. It is helping many with Parkinson’s! ❤

[@Gkuljian]

@@PeaceIsJesusChrist Thanks. I did try it, and it exploded my tremors. I even spent time with the author of the book. We don't know why it happened.

[@PeaceIsJesusChrist]

@@Gkuljian Oh my goodness, I’m so sorry to hear this. 😔 I really hope you find something soon that helps. 🙏🏻

[@Gkuljian]

@@PeaceIsJesusChrist Thank you! I will heal. I still need stronger faith, but I'm doing it.

[@rachaellh]

How do we join your KZbin Membership?

[@RaelanAgle]

Click "Join" next to "Subscribe" under the video, and select a membership level. Thanks so much for supporting the channel ❤️🙏

[@AnrupB]

For me, neuroinflammation has been a huge issue which created endless neurological issues.

[@misscinnamon5690]

have you found anything helps with your neurological issues?

[@Candiedclouds]

CFS in general causes endless neurological issues, doesn’t mean it’s necessarily the neuro inflammation. Focus on what the Doc said and work on the nervous system… do not focus on the neuro inflammation because it’s not the root cause, it is just a byproduct of a dysregulated ANS. Sending you love and support on your healing journey from a fellow person experiencing CFS 😊❤

[@AnrupB]

@@misscinnamon5690 Ayurvedic approaches helps me heal it, acupuncture and hyperbaric oxygen helped me improve them temporarily but would keep coming back. Some people it's the opposite, so it's really personal!

[@AnrupB]

@@Candiedclouds I'm using methods that are working for me the last 1.5 years, but thank you. In my case, neuroinflammation has been scientifically proven in Long Covid cases through studies, scans, etc. and treatments that help with that. We are all unique!

[@Candiedclouds]

@@AnrupB if Ayurveda, acupuncture and hyperbaric oxygen help AND it keeps coming back, then it means it’s mind body. Beliefs are important, your belief that you have neuro inflammation will keep you chasing that and only cause you more fear and frustration. We are not all so different in the CFS community. Watch all the recovery videos and you’ll understand. Look into limbic system retraining.

[@erikasinternetgerat8019]

kudos that you travel to you patients! flying doctress😊

[@TimMurphy41]

Can anyone guess why they don't teach it in medical school? 🤔 Hint: It has to do with the cure.

[@erikkkkkkk914]

Please enlighten us.

[@TimMurphy41]

@@erikkkkkkk914 CFS cure has no pills for doctors and pharma to sell.

[@katydonna6015]

17:27 the ANS

[@healingwithsipora]

Wonderful interview! I'd be curious what your self care looks like? I know Dan likes meditation!

[@cfsdocbrown]

Gratitude, rest when tired, Keto diet, trauma release exercises, feeling into emotions, Wim Hoff breathing, gentle exercise, time in nature, prayer. Those are the ones that come to mind on the top of my head. I am considering starting up a meditation practice again.

[@healingwithsipora]

Thank ya!!!

[@TimMurphy41]

This woman is way too smart to be a doctor.

[@cfsdocbrown]

I've never been so flattered and offended at the same time. 🤣

[@Truerealism747]

​@@cfsdocbrownyeah one of my symptoms I was diagnosed asthma when I couldn't take deep breath years ago scary

[@Truerealism747]

As she says in her shorts its the autism causes cfs threw same pathways😊

[@PeaceIsJesusChrist]

Raelan, I have the hardest time trying to leave comments encouraging people to check out your channel here on KZbin! Almost every single time I comment with your name, even if the comment is really short, it gets automatically deleted! 😩 You are doing such amazing work and such an amazing service, and I come across people who I know would be helped, and it’s so frustrating to not be able to share! I’ve even just said: 🔍 Raelan here on YT Even that gets deleted. I can say your name here but not elsewhere it seems. 🤷🏻‍♀️ 😢 Anyone else having the same issue?

[@clementdupanier541]

You should ask yourself why it gets deleted

[@PeaceIsJesusChrist]

@@clementdupanier541 Thank you for commenting and wanting to help. I’ve definitely tried to figure it out. I’ve tried to use symbols, different ways of saying it, etc. It’s not just about Raelan though-lots of my comments get deleted, but it’s odd that I can’t even say her name it seems. 🤷🏻‍♀️ All I can say is, Y T isn’t on our side... it’s extremely, um, monitored. :) Please let me know if you have any tips!

[@cybco]

it's the biggest head game, no one believes you