POLYCYTHEMIA OR ERYTHROCYTOSIS: the causes

[@jamesjoseph799]

Your concepts are good!!!❤🔥

[@MalikaBourne]

Thank you for the well-organized explanation. It will help me understand better what I'm dealing with.

[@WishYouWereClear]

happy to help! take care

[@shakirkhan9260]

How are you now?

[@MalikaBourne]

@@shakirkhan9260 Unexpectedly fabulous! Jakafi has changed my life back to feeling great.

[@JCK363]

Thank you for this well organized and easy to explain a presentation! I am currently dealing with erythrocytosis from being on testosterone replacement therapy. There seems to be mixed advice within this community regarding whether or not these slightly raised hematocrit/hemoglobin levels need to be addressed through phlebotomies, or if it is as innocuous as a raised H/H would be in those living at elevation or some other secondary reason. While this video doesn’t address that specific cause, it does make the whole subject easier to comprehend. Thank you again!

[@juliosaldana7404]

hi there, how are you dealing with your issue, ? any updates?

[@sweetpeanmolly]

Thank you for this well organized presentation. I’m 64 and my levels are at 47.3. Can this be related to sleep apnea?😢

[@bandido7994]

Can Sleep Apnea cause Hypoxemia?

[@vegetadeep6972]

It definitely can! I went through the worst of it before I actually had a sleep study. This was back in 2013.

[@chetanrs]

​@@vegetadeep6972do you have erythrocytosis ?

[@erikaxchristine]

My son is 15 and going to a Hematologist Thursday. I’m worried.

[@bharatt42911]

How he is now?

[@erikaxchristine]

@@bharatt42911 The Hematologist told him he isn’t too worried and thinks it was mostly him being dehydrated. He also said it’s extremely rare in children with no previous history or familial.

[@andreafelgemacher7436]

@@erikaxchristine Can I ask how things went? My daughter has been feeling dizzy and is under initial evaluation by a neurologist. He sent her for blood work and all 3 of her red blood cell levels were elevated. She has not been feeling well for the last two months. We are going to repeat the blood work on June 20th but I am very worried it could be Polycythemia Vera. She is 17 and starting to have bags under her eyes because she isn't feeling well. Just wondering what the outcome finally was?

[@erikaxchristine]

@@andreafelgemacher7436 He had his appt and they really thought he was just dehydrated which was a huge relief. We went back to our primary care physician and did a repeat on the blood work, it was in normal range. I have just been making sure he is drinking more water with electrolytes.

[@aztam321]

​​@@andreafelgemacher7436 May I ask how your daughter is doing? My bf was just in the ER bc he wasn't feeling well for the last 2 mos. They told him he has too much blood and it's thick. He had to get a bone marrow biopsy. They put him on heparin for now until the test comes back.

[@jamesl3523]

Anyway you can check at my lab values and tell me your thoughts? 😩 I'm so paranoid